Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for August 2012

Atos are sponsors of paralympics

anyone mentioned Atos are sponsors of paralympics?

hamble99b

Volunteer•12 years ago

6 Replies

Does anybody know when the next North West support group meeting at the Royal hospital is being held. Thanx

fillyhome

•12 years ago

9 Replies

Anyone had eye problems as a sympton of wg?Had course of Pred.which appeared to clear it.Has come back.Problem was there pre-diagnosis John

buddy70

•12 years ago

15 Replies

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The DLA Minefield

I have noticed recently on this forum that DLA has come up a few times. I do get DLA, only the low rate of care component. I even stood in front of a tribunal...

I have noticed recently on this forum that DLA has come up a few times. I do get...

Regie79

•12 years ago

7 Replies

test only

buddy70

•12 years ago

2 Replies

Can you tell me your experiences of small/medium cell vasculitis?please

My daughter has been told today that she appears to have vasculitis,which has damaged her heart valves,skin,had affected her vision,severe fatigue and much...

My daughter has been told today that she appears to have vasculitis,which has da...

nanny4

•12 years ago

10 Replies

AUTOIMMUNE DISEASE -.So many medical words and phrases I'm confused!!!!

I have been recently diagnosed with vasculitis initially detected through my eyes systemic work up ct scans. Had lung biopsy, still don't know what treatment...

I have been recently diagnosed with vasculitis initially detected through my ey...

Hidden

•12 years ago

5 Replies

has anyone heard of the new research on naloxone in autoimmune disorders?

leedsnel

•12 years ago

6 Replies

West Country Vasculitis Support Group Lunch

Hi, If anyone is in the West Country area and would like to meet up for lunch the next West Country Lunch is booked for Wednesday, 3 October from 12.00...

Hi, If anyone is in the West Country area and would like to meet up for lun...

DevonLottie

•12 years ago

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Daughter diagnosed with Wegeners Granulamotosis

My 14 year old daughter was diagnosed with Wegeners in January of this year after being hospitalized with what was first diagnosed as pneumonia. She went into...

My 14 year old daughter was diagnosed with Wegeners in January of this year afte...

runtim

•12 years ago

8 Replies

thigh pains - anyone help please?

my thighs feel, and are, very swollen and numb but painul!! they feel as if they are in a tight balloon. I've just had a shower and sat in a shower chair...

my thighs feel, and are, very swollen and numb but painul!! they feel as if th...

hamble99b

Volunteer•12 years ago

4 Replies

Content of blogs and postings on this site.

Subscribers to the Vasculitis UK Health Unlocked site value it for the impartial, practical and unemotional postings, blogs and other content, with no...

Subscribers to the Vasculitis UK Health Unlocked site value it for the impartial...

John_Mills

Volunteer•12 years ago

1 Reply

Reducing cellcept - is there anything I need to know

I saw my consultant on Thurs and as my bloods have been stable, he wants me to reduce my cellcept doses slowly. Is there any withdrawal symptoms in reducing...

I saw my consultant on Thurs and as my bloods have been stable, he wants me to r...

KTWells

•12 years ago

1 Reply

Has anyone had problems with their assessment with ATOS?

Professor Malcom Harrington is collecting evidence for a review for work capeability assessment. This is the assessment people go through when they are...

Professor Malcom Harrington is collecting evidence for a review for work capeabi...

John_Mills

Volunteer•12 years ago

1 Reply

Sickness benefit contractor Atos Healthcare to review letters ... BBC news today

http://www.bbc.co.uk/news/uk-19370200

John_Mills

Volunteer•12 years ago

6 Replies

How hard is it to get diagnosed?

I am at my wits end and feeling very frustrated. I have seen 5 specialists and nobody can tell me what is wrong with me or what might be happening to me. I...

I am at my wits end and feeling very frustrated. I have seen 5 specialists and n...

Shezian

•12 years ago

13 Replies

Do many people suffer with food allergy with Vasculitis?

Hi all, just wondered if any of you suffer with food allergy/anaphalaxis? My daughter is at the moment going through the is it or isn't stage of diagnosis,she...

Hi all, just wondered if any of you suffer with food allergy/anaphalaxis? My da...

nanny4

•12 years ago

12 Replies

Kent Express today

Just to say thank you to Janine and Jacqui :-)

John_Mills

Volunteer•12 years ago

2 Replies

Just been hospitalised again. had my regular appointment consulatant said i was more unwell and needed to be admitted for test

Had the same test last time I was admitted with the same outcome lung function ect excellent. When I get tired i get brethless. and find it an effort to...

Had the same test last time I was admitted with the same outcome lung function e...

kath12341

•12 years ago

4 Replies

Not a question just a statement - fed up

Last week or so I have been so unbelievably fed up, bad mood, ratty, very blue. Normally I like to think I'm fairly upbeat but oh my I've felt foul. At the...

Last week or so I have been so unbelievably fed up, bad mood, ratty, very blue. ...

annie330

•12 years ago

8 Replies

In Pain and my appointment has been cancelled - why are we treated this way?

Hi I have been counting the days to my next consultants appointment in two weeks time as I am in pain with my joints or the muscles round them, I don't sleep...

Hi I have been counting the days to my next consultants appointment in two week...

Porky

•12 years ago

19 Replies

Have any of you who have wegner granulomatosis ended up having Multiple sclerosis too??

serafinap

•12 years ago

6 Replies

MRI good news!

just got the results of a brain mri and it is clear! yay!!!! sandra

hamble99b

Volunteer•12 years ago

7 Replies

Painful Feet?

Hi I am currently in remission with WG. I had my 6th infusion of ritux 3mths ago. This is the best I have felt since being diagnosed. I still have all the...

Hi I am currently in remission with WG. I had my 6th infusion of ritux 3mths ag...

Hidden

•12 years ago

14 Replies

DVLA

I wondered if anybod had any experience of DVLA? At what point does vasculitis become a notifiable illness to tell DVLA about? What happens when you do,...

I wondered if anybod had any experience of DVLA? At what point does vasculitis ...

Wellsie

•12 years ago

7 Replies

Progress and chemo cycle 3

Yesterday I saw my rheumatologist. It was a bitter sweet appointment, as he has become my lead doctor, and he told me yesterday it will be the last i see of...

Yesterday I saw my rheumatologist. It was a bitter sweet appointment, as he has...

Wellsie

•12 years ago

3 Replies

Do you feel better after completing cyclophosphide treatment?

Hello - does everyone feel better when they have completed their cyclophosphamide treatment? I finished mine two weeks ago and dont feel any better than I did...

Hello - does everyone feel better when they have completed their cyclophosphamid...

Mooka

•12 years ago

10 Replies

Benefits and Work latest newsletter August 16th 2012

http://www.benefitsandwork.co.uk/news/latest-news/1238-16-august-newsletter

John_Mills

Volunteer•12 years ago

Be the first to reply

How dangerous is to be in contact with someone suffering from TB?

I have lost my brother just a month ago and the doctors said he might have had tuberculosis.He died just the day they were going to test him for the bacteria.I...

I have lost my brother just a month ago and the doctors said he might have had t...

Vieon

•12 years ago

4 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for August 2012

Atos are sponsors of paralympics

Does anybody know when the next North West support group meeting at the Royal hospital is being held. Thanx

Anyone had eye problems as a sympton of wg?Had course of Pred.which appeared to clear it.Has come back.Problem was there pre-diagnosis John

The DLA Minefield

test only

Can you tell me your experiences of small/medium cell vasculitis?please

AUTOIMMUNE DISEASE -.So many medical words and phrases I'm confused!!!!

has anyone heard of the new research on naloxone in autoimmune disorders?

West Country Vasculitis Support Group Lunch

Daughter diagnosed with Wegeners Granulamotosis

thigh pains - anyone help please?

Content of blogs and postings on this site.

Reducing cellcept - is there anything I need to know

Has anyone had problems with their assessment with ATOS?

Sickness benefit contractor Atos Healthcare to review letters ... BBC news today

Sponsored Walk from St Helens to Southport to support Vasculitis UK.

How hard is it to get diagnosed?

Do many people suffer with food allergy with Vasculitis?

Kent Express today

Just been hospitalised again. had my regular appointment consulatant said i was more unwell and needed to be admitted for test

Not a question just a statement - fed up

In Pain and my appointment has been cancelled - why are we treated this way?

Have any of you who have wegner granulomatosis ended up having Multiple sclerosis too??

MRI good news!

Painful Feet?

DVLA

Progress and chemo cycle 3

Do you feel better after completing cyclophosphide treatment?

Benefits and Work latest newsletter August 16th 2012

How dangerous is to be in contact with someone suffering from TB?

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