Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,752 posts

All posts for May 2021

Article in today's Telegraph re Covid vaccines do not work on the immunosuppressed

In an article from today's Telegraph, Lady Nicola Mendelsohn, who suffers from a blood cancer, has discovered that despite her full vaccination for Covid-19,...

In an article from today's Telegraph, Lady Nicola Mendelsohn, who suffers from a...

•3 years ago

Itchy hot fingers/ears

Hi, I was diagnosed with Wegeners/GPA in 2010. Initially lungs and sinuses, quite severe, induced for 18 days. I'm based in Ireland. I've done the whole gamut...

Hi, I was diagnosed with Wegeners/GPA in 2010. Initially lungs and sinuses, quit...

•3 years ago

Vasculitis?

Hi, I’m just waiting on my blood test results but I think it’s Vasculitis. Started as a red non blanchable rash all over my legs, swollen ankles and knees....

Hi, I’m just waiting on my blood test results but I think it’s Vasculitis. Start...

•3 years ago

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Chronic Urticaria or Urticarial Vasculitis

Hello! I’m am just interested to see if anyone was diagnosed with idiopathic chronic urticaria but it turned out to be urticaria vasculitis? I was diagnosed...

Hello! I’m am just interested to see if anyone was diagnosed with idiopathic chr...

•3 years ago

Blood tests negative apart from ANA

I’ve posted a few times and appreciate all your helpful responses, so thought I would post one more time! I had follow-up appt after blood tests, but not with...

I’ve posted a few times and appreciate all your helpful responses, so thought I ...

•3 years ago

Got my private Covid antibody test result

Just got my Covid antibody result, from yesterday’s pin prick blood sample that I returned in the post. A very clear positive, which given half people on my...

Just got my Covid antibody result, from yesterday’s pin prick blood sample that ...

Volunteer•3 years ago

Toe cramps

I’ve recently been diagnosed with vasculitis. We’re still unsure of what kind. Or if there’s an underlying co-morbity. My calf’s were hurting really bad at...

I’ve recently been diagnosed with vasculitis. We’re still unsure of what kind. O...

•3 years ago

Vaccine Protection and Rituximab

Now had three weeks since second Pfizer jab so as protected as I can can be and next week have my latest Rituximab infusion as per guidelines but how much...

Now had three weeks since second Pfizer jab so as protected as I can can be and ...

•3 years ago

Moving Forward with Vasculitis Initiative - Shanali Perera

Shanali Perera says: “I am a contemporary artist, educator, retired Rheumatologist, and a person living with vasculitis, based in Manchester, UK. I am doing a...

Shanali Perera says: “I am a contemporary artist, educator, retired Rheumatolog...

Volunteer•3 years ago

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The Vasculitis Anthem - performed by Keith, John and Sylvia

Saturday was World Vasculitis Day. I, with two friends have written and performed , a shanty. This was produced to raise awareness of Vasculitis. It is also...

Saturday was World Vasculitis Day. I, with two friends have written and perform...

Volunteer•3 years ago

Vasculitis UK 2021 Spring Newsletter now available via the VUK website

https://www.vasculitis.org.uk/news/spring-2021-newsletter

https://www.vasculitis.org.uk/news/spring-2021-newsletter

Volunteer•3 years ago

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Creative Workshop for Young Patients - IgA Vasculitis (HSP)

https://www.vasculitis.org.uk/events/childrens-online-workshop-tummy-pain-in-hsp The Experimental Arthritis Treatment Centre for Children at Liverpool...

https://www.vasculitis.org.uk/events/childrens-online-workshop-tummy-pain-in-hsp...

Volunteer•3 years ago

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The Experimental Arthritis Treatment Centre - Patient Update Event

https://www.vasculitis.org.uk/events/children-with-hsp-patient-update-event The Experimental Arthritis Treatment Centre for Children at Liverpool University...

https://www.vasculitis.org.uk/events/children-with-hsp-patient-update-event The...

Volunteer•3 years ago

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Starting Azathioprine

Good Evening, I'm due to start taking Azathioprine today. In previous years I've taken mycophenolate morfetil and rituximab. My last rituximab was around two...

Good Evening, I'm due to start taking Azathioprine today. In previous years I've...

•3 years ago

How quickly can you relapse after rituximab

Hi on rituximab for anca vasculitis. Was told two weeks ago that I was in remission. My breathing is now awful and wheezy and coughing up green gunk. Is it...

Hi on rituximab for anca vasculitis. Was told two weeks ago that I was in remiss...

•3 years ago

Vasculitis UK 2021 AGM has been postponed

Due to circumstances beyond our control the Vasculitis UK AGM has been postponed, notification of a new date will be posted via the VUK website...

Due to circumstances beyond our control the Vasculitis UK AGM has been postpone...

Volunteer•3 years ago

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Covid Jab, antibodies and clots.

What is the latest advice for us re the Covid Jab. I thought l read that we had produced no antibodies at all leaving the small chance of getting a blood clot...

What is the latest advice for us re the Covid Jab. I thought l read that we had ...

•3 years ago

Vaccination of household contacts of severely immunosuppressed people

Looks like letters are starting to go out from the Scottish Chief Medical Officer to extremely immunosuppressed people whose household contacts are now...

Looks like letters are starting to go out from the Scottish Chief Medical Office...

Volunteer•3 years ago

Do you want to make a difference? - for those aged 11 - 24

Zoom meeting - share your experience

Zoom meeting - share your experience

Volunteer•3 years ago