Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

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All posts for December 2021

COVID19 Guidance 24th December 2021 – For those whose immune systems means they are at higher risk.

https://www.vasculitis.org.uk/news/coronavirus-covid-19

John_Mills

Volunteer•3 years ago

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For those who would like to understand more about COVID19 , lateral flow tests, PCR tests, the immune system etc.

The Royal Institution Christmas Lectures https://www.bbc.co.uk/iplayer/episode/m0012tz5/royal-institution-christmas-lectures-2021-2-the-perfect-storm

The Royal Institution Christmas Lectures https://www.bbc.co.uk/iplayer/episode/m...

John_Mills

Volunteer•3 years ago

1 Reply

Just had my 4th Covid vaccine (booster) + arrangements in Scotland

Just had my 4th Covid vaccine - booster after 3 primary vaccines, because I’m severely immunosuppressed. I live in Scotland, and want to remind Scots that you...

Just had my 4th Covid vaccine - booster after 3 primary vaccines, because I’m se...

vivdunstan

Volunteer•3 years ago

9 Replies

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Booster Jab

Had my third Primary Jab on 15th October. Had the devil of a job actually getting it, but got it I did. In November, J Van T on a JCVI press briefing...

Had my third Primary Jab on 15th October. Had the devil of a job actually getti...

Bailey59

•3 years ago

6 Replies

Any link to treatment for GPA and Stroke

I received my latest round of Rituximab on Wednesday and within 20 mins of finishing took a stroke. I'm ok and after three episodes it cleared away. Is there...

I received my latest round of Rituximab on Wednesday and within 20 mins of finis...

Red-head44

•3 years ago

6 Replies

New Anti-viral treatments are here!

I have received a letter from the NHS which tells me I might be suitable for anti-virals if I get Covid. I was hoping for this because I have vasculitis and...

I have received a letter from the NHS which tells me I might be suitable for ant...

2534

•3 years ago

11 Replies

NOT at all Last minute or anything!

Dear Everyone, now please Don't think that I'm- in Any way- a bit 'Behind'....it's just that today is Christmas Eve and my Tree has JUST gone up! Alright the...

Dear Everyone, now please Don't think that I'm- in Any way- a bit 'Behind'....it...

AndrewT

•3 years ago

5 Replies

Update on Scottish rollout of antibody treatments + PCR test kits

Here’s more information on how the antibody treatments will be rolled out in Scotland. Letters and PCR test kits will be sent to extremely high risk patients,...

Here’s more information on how the antibody treatments will be rolled out in Sco...

vivdunstan

Volunteer•3 years ago

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GPA related problems

Hi,I am a GPA sufferer of some 13 years, and although I feel the best I have for along time, following a recent PET scan I have now been diagnosed with...

Hi,I am a GPA sufferer of some 13 years, and although I feel the best I have fo...

Beaver

•3 years ago

3 Replies

EPGA and chicken pox

Hi all! The person we share a house with plans to spend christmas with her family. Her grandson now has chicken pox! How long does that stay infectious and can...

Hi all! The person we share a house with plans to spend christmas with her famil...

sarahdollygirl

•3 years ago

5 Replies

Anti Viral Drugs - Covid - CEV

Hi Everybody, I know some people have posted some information regarding this matter but I thought I would share the information my specialist gave me...

Hi Everybody, I know some people have posted some information regarding this ma...

Investigator1

•3 years ago

25 Replies

Can you have IGA and GPA?

Hi Diagnosed with IGA following a kidney biopsy 2 months again Nose bleeds crusty nose now improved Asked my consultant if you can have both types and he...

Hi Diagnosed with IGA following a kidney biopsy 2 months again Nose bleeds crus...

1421Darcey

•3 years ago

4 Replies

The Melody Study

Dear All, have you been asked about The Melody Study, into COVID immunity? If not then Do ask- your Doctors/ Consultants or even your GP. I 'qualify' BOTH as a...

Dear All, have you been asked about The Melody Study, into COVID immunity? If no...

AndrewT

•3 years ago

1 Reply

Antiviral medication for Covid

Does anyone know how you access the antiviral medication to take at home if you have tested positive via a pcr for Covid 19 ? Not needed at the moment but just...

Does anyone know how you access the antiviral medication to take at home if you ...

Main1234

•3 years ago

7 Replies

Understanding of CD19 levels?

Hi All Well I'm feeling a little miserable after receiving my covid antibody test result with a reading of just 4 u/ml after 3 vaccines. Further more a recent...

Hi All Well I'm feeling a little miserable after receiving my covid antibody tes...

Galaxy2

•3 years ago

9 Replies

Follow on from original post

Sorry forgot to add from my reducing dose of 10mg of Prednisolone consultant increased dose back up to 40mg which I continue to take. My weight over 7 months...

Sorry forgot to add from my reducing dose of 10mg of Prednisolone consultant inc...

Hidden

•3 years ago

1 Reply

GPA relapse advice needed

Good Morning to you all. I was hoping someone who could advice me on GPA Replase. I was diagnosed back in April of this year spent over 2 weeks in hospital and...

Good Morning to you all. I was hoping someone who could advice me on GPA Replase...

Hidden

•3 years ago

11 Replies

Getting some understanding of the immune system and how it works

I’ve been wanting to do this for a while now and came across a book that I am finding very useful. I am working my way through it and marvel at the way the...

I’ve been wanting to do this for a while now and came across a book that I am fi...

egre

•3 years ago

8 Replies

Scottish deployment of Covid antiviral drugs

Scottish guidelines have been issued for the deployment of antiviral drugs to Covid patients in Scotland. For full details see the PDF letter linked from the...

Scottish guidelines have been issued for the deployment of antiviral drugs to Co...

vivdunstan

Volunteer•3 years ago

2 Replies

Scottish Covid Status app now showing 3rd vaccines

The Scottish NHS Covid Status App is now showing my 3rd vaccine (3rd primary). 3rd primary or booster vaccines are meant to show now in the Scottish website...

The Scottish NHS Covid Status App is now showing my 3rd vaccine (3rd primary). 3...

vivdunstan

Volunteer•3 years ago

4 Replies

MELODY STUDY - Patients Needed

MELODY study The study aims to recruit people who have received solid organ transplants, people with rare autoimmune diseases receiving immunosuppression and...

MELODY study The study aims to recruit people who have received solid organ tran...

John_Mills

Volunteer•3 years ago

2 Replies

Has anybody had muscle pain after Rituximab

Hi all and a premature Merry Christmas. Just had my 3rd Rituximab infusion 3 weeks ago and like last time experiencing some pretty powerful muscle pain. After...

Hi all and a premature Merry Christmas. Just had my 3rd Rituximab infusion 3 we...

Investigator1

•3 years ago

5 Replies

Covid long term effect taking prednisolone

Caught covid mildly in April 2020, came out in terrible skin rash around stomach,, legs and arms and odd patches on trunk. Tried Betnovate no good. Doctor put...

Caught covid mildly in April 2020, came out in terrible skin rash around stomach...

Krissy39

•3 years ago

2 Replies

Volunteers for research on careers and chronic illness

Hi everyone - sharing a request for volunteers from a careers researcher: A careers specialist called Polly Wiggins is looking for volunteers for a small...

Hi everyone - sharing a request for volunteers from a careers researcher: A care...

Grizzly-bear

•3 years ago

1 Reply

Tacrolimus Supply Problem?

Dear All, I have been 'on' Tacrolimus since my Kidney Transplant, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a...

Dear All, I have been 'on' Tacrolimus since my Kidney Transplant, way back, in J...

AndrewT

•3 years ago

1 Reply

Cold water swimming effects

I have vasculitis and associated CKD. I started all year round sea swimming almost 2 years ago ( swimsuit not wetsuit) with no apparent issues. Does cold water...

I have vasculitis and associated CKD. I started all year round sea swimming almo...

nurse_betty91

•3 years ago

4 Replies

COVID Booster

How long after the 3rd vaccine do we get the booster please? Are there any official notices?

How long after the 3rd vaccine do we get the booster please? Are there any offic...

Rodelinda

•3 years ago

8 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for December 2021

COVID19 Guidance 24th December 2021 – For those whose immune systems means they are at higher risk.

For those who would like to understand more about COVID19 , lateral flow tests, PCR tests, the immune system etc.

Just had my 4th Covid vaccine (booster) + arrangements in Scotland

Booster Jab

Any link to treatment for GPA and Stroke

New Anti-viral treatments are here!

NOT at all Last minute or anything!

Update on Scottish rollout of antibody treatments + PCR test kits

GPA related problems

EPGA and chicken pox

Anti Viral Drugs - Covid - CEV

Can you have IGA and GPA?

The Melody Study

Antiviral medication for Covid

Understanding of CD19 levels?

Follow on from original post

GPA relapse advice needed

Getting some understanding of the immune system and how it works

Scottish deployment of Covid antiviral drugs

Scottish Covid Status app now showing 3rd vaccines

MELODY STUDY - Patients Needed

Has anybody had muscle pain after Rituximab

Covid long term effect taking prednisolone

Volunteers for research on careers and chronic illness

Tacrolimus Supply Problem?

Cold water swimming effects

COVID Booster

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