Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for January 2012

Does anyone else with Wegeners have fluid retention?

I've been having swelling under my right eye but I popped into chemist tonight and spoke to the pharmacist who sad that it was probably the steriods causing...

I've been having swelling under my right eye but I popped into chemist tonight a...

ISABEL12

•13 years ago

5 Replies

I have just been told that I have gout, and this has more than likely been caused by my wg, has anyone else been told this?

JackieT

•13 years ago

3 Replies

i have been told this morning by the nurse taking my blood that if i am ill i should not take methatrexate until i am better,

if i dont take it for a few weeks will that cause the wegeners to flare???

gsmith

•13 years ago

5 Replies

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Hi all. I have a query re a change in medication regime ,

I am about to undergo a transition from cyclophosphomide to rituximab .I have so far had 8 infusions if cyclo however the W.G is still active following a...

I am about to undergo a transition from cyclophosphomide to rituximab .I have so...

cazy-g

•13 years ago

2 Replies

Difference in blood pressure between both arms 'reveal real health risk' By Daily Mail Reporter Please read more:

http://www.dailymail.co.uk/health/article-2093652/Difference-blood-pressure-arms-reveals-risk.html This could also make a difference to people with...

http://www.dailymail.co.uk/health/article-2093652/Difference-blood-pressure-arms...

John_Mills

Volunteer•13 years ago

Be the first to reply

Does having vasculitis make a person vulnerable to other autoimmune diseases?

I read this somewhere and wonder if it's true...

LyndaGould

•13 years ago

10 Replies

Benefits and Work Buy guides at just £10

BUY GUIDES FOR UNDER £10 We still recommend taking out an annual subscription to get the most out of the Benefits and Work website. That way you get to...

BUY GUIDES FOR UNDER £10 We still recommend taking out an annual subscript...

John_Mills

Volunteer•13 years ago

1 Reply

Breast lump

My partner was diagnosed with Vasculitis in Sept 2011, a day before he had resp failure and spent 3 mths in ICU on a ventilator after pulmonary hemmorhage....

My partner was diagnosed with Vasculitis in Sept 2011, a day before he had resp ...

louiseevs

•13 years ago

2 Replies

Can Vasculitus cause you to forget and to mispronouce your words get them mixed up, I cant always get all my words out?

Ezrela

•13 years ago

13 Replies

I can recommend the new 111 NHS help line

Just thought I would share this...the new NHS 111 helpline have been excellent and I can recommend them through personal experience...not sure if it is because...

Just thought I would share this...the new NHS 111 helpline have been excellent a...

John_Mills

Volunteer•13 years ago

1 Reply

LAUNCH OF A NEW SUPPORT GROUP for people with Vasculitis and their families. SE London/NW Kent Support Group

Open to all people with Vasculitis and their families Next meeting, for tea/buscuits and a chat will be on 7th March 2012...

Open to all people with Vasculitis and their families Next me...

John_Mills

Volunteer•13 years ago

2 Replies

Blogging, telling your story, asking or answering a blog or question, taking part in surveys or polls

Just to let everyone know that any Vuk/HU member can blog, tell their story, answer or ask questions, take part in surveys and polls, make comments and send...

Just to let everyone know that any Vuk/HU member can blog, tell their story, ans...

John_Mills

Volunteer•13 years ago

Be the first to reply

back pain

I was finding it difficult to get help--apart from paracetomol- which usually sent me to sleep or was ineffective. After8 months I decided to try an...

I was finding it difficult to get help--apart from paracetomol- which usually se...

mags1701

•13 years ago

4 Replies

Anyone got tips on side affects of medication

hi I'm on 40mg prednislone and 200mg of azathioprine I have spots come up all up the side of my face and neck like a rash Has anyone eles had this problem?...

hi I'm on 40mg prednislone and 200mg of azathioprine I have spots come up all u...

Louisexx

•13 years ago

4 Replies

I have developed and open sore on an old scar and a couple of smaller ones on my face. Can I put this down to TAK?

CathT

•13 years ago

3 Replies

im looking for life insurance i have wg and to much of a risk apparently any one know of any insurers that touch us.thanks guys

tracey65

•13 years ago

9 Replies

What help is available to help make a claim for DLA. My son has CSS and has been refused DLA. Any info would be great thanks mand.

mandm

•13 years ago

10 Replies

Has anyone else had inflammatory incidents as a reaction to ending their steroid treatment?

I was diagnosed with Cerebral Vasculitis in March 2008 and having had the usual steroid and immunosuppresant treatment, I have slowly improved. Last summer I...

I was diagnosed with Cerebral Vasculitis in March 2008 and having had the usual ...

LyndaGould

•13 years ago

13 Replies

Should we be totally honest in declaring all the symptoms of our condition when applying for travel insurance?

i have been trying to obtain an affordable quote for travel insurance to cover a visit to my daughter in the USA. I have tried several insurance companies,...

i have been trying to obtain an affordable quote for travel insurance to cover a...

Ayla

Volunteer•13 years ago

10 Replies

LINCOLN VASCULITIS SUPPORT GROUP. FEB 12th 2012

Pam Todd is going to hold an informal/social meeting on 12th February in Digby, Lincolnshire. If you are interested in joining Pam and her little group message...

Pam Todd is going to hold an informal/social meeting on 12th February in Digby, ...

John_Mills

Volunteer•13 years ago

8 Replies

Thoughts on neurologists letter

I saw the neurologist that week and he has copied me in on hs letter to my GP and the rheummatologist. Sorry in advance if this is long winded he has listed...

I saw the neurologist that week and he has copied me in on hs letter to my GP an...

annie330

•13 years ago

5 Replies

Winter E-newsletter Editor Patricia Fearnside

Thought I would share my copy of the winter e-newsletter. If you would like to become a full member of Vuk for £20 pa with voting rights please message me or...

Thought I would share my copy of the winter e-newsletter. If you would like to b...

John_Mills

Volunteer•13 years ago

1 Reply

Steroids & Immuno Suppressant Drugs?

Still new to all this, husband recently diagnosed with WG. He's been on Prednisone which is still being reduced every 10 days but has never been put on one of...

Still new to all this, husband recently diagnosed with WG. He's been on Predniso...

Nadine99

•13 years ago

12 Replies

Does anyone with Vasculitis or someone you know with Vasculitis have experience of PIP implants?

It has come to our attention that one of our members with HSP had PIP implants that might have been the cause of her HSP. Does anyone else have experience of...

It has come to our attention that one of our members with HSP had PIP implants t...

John_Mills

Volunteer•13 years ago

2 Replies

Has anyone taking prednisilone and/or mycophenolate (I take both) found the medication starts to have less effect.

I've been on both for over a year and have started reacting and I am very tired all the time. Changes have been over the past month and getting worse. Thanks...

I've been on both for over a year and have started reacting and I am very tired ...

Sarahjh2004

•13 years ago

7 Replies

Hi I have been contacted by someone with CV who is having a flushed/reddened face, which he thinks is a side effect of Aziathioprine?

SueAshdown

•13 years ago

2 Replies

does anyone who has completed the medication for WG have back-ache?

mags1701

•13 years ago

7 Replies

12th January 2012 Benefits and Work Newsletter

12 January newsletter www.benefitsandwork.co.uk Type in newsletter on the home page search box... Spartacus Report lead author Sue...

12 January newsletter www.benefitsandwork.co.uk Type in newsletter...

John_Mills

Volunteer•13 years ago

Be the first to reply

Does anyone else with WG feel as if they need anti depressants?

I have Wegeners for 22 months now but since November when going to bed or driving to work I start crying, having severe mmod swings which i'm taking out on my...

I have Wegeners for 22 months now but since November when going to bed or drivin...

ISABEL12

•13 years ago

21 Replies

I was awarded DLA 3 years ago, I was awarded the middle rate for care and the higher rate for mobility.

I had to apply again but this time I was turned down and I now have to face an appeal on 25.01.12. Can anyone give me some advice as to who I should take with...

I had to apply again but this time I was turned down and I now have to face an a...

Mumito66

•13 years ago

8 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for January 2012

Does anyone else with Wegeners have fluid retention?

I have just been told that I have gout, and this has more than likely been caused by my wg, has anyone else been told this?

i have been told this morning by the nurse taking my blood that if i am ill i should not take methatrexate until i am better,

Hi all. I have a query re a change in medication regime ,

Difference in blood pressure between both arms 'reveal real health risk' By Daily Mail Reporter Please read more:

Does having vasculitis make a person vulnerable to other autoimmune diseases?

Benefits and Work Buy guides at just £10

Breast lump

Can Vasculitus cause you to forget and to mispronouce your words get them mixed up, I cant always get all my words out?

I can recommend the new 111 NHS help line

LAUNCH OF A NEW SUPPORT GROUP for people with Vasculitis and their families. SE London/NW Kent Support Group

Blogging, telling your story, asking or answering a blog or question, taking part in surveys or polls

back pain

Anyone got tips on side affects of medication

I have developed and open sore on an old scar and a couple of smaller ones on my face. Can I put this down to TAK?

im looking for life insurance i have wg and to much of a risk apparently any one know of any insurers that touch us.thanks guys

What help is available to help make a claim for DLA. My son has CSS and has been refused DLA. Any info would be great thanks mand.

Has anyone else had inflammatory incidents as a reaction to ending their steroid treatment?

Should we be totally honest in declaring all the symptoms of our condition when applying for travel insurance?

LINCOLN VASCULITIS SUPPORT GROUP. FEB 12th 2012

Thoughts on neurologists letter

Winter E-newsletter Editor Patricia Fearnside

Steroids & Immuno Suppressant Drugs?

Does anyone with Vasculitis or someone you know with Vasculitis have experience of PIP implants?

Has anyone taking prednisilone and/or mycophenolate (I take both) found the medication starts to have less effect.

Hi I have been contacted by someone with CV who is having a flushed/reddened face, which he thinks is a side effect of Aziathioprine?

does anyone who has completed the medication for WG have back-ache?

12th January 2012 Benefits and Work Newsletter

Does anyone else with WG feel as if they need anti depressants?

I was awarded DLA 3 years ago, I was awarded the middle rate for care and the higher rate for mobility.

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