Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,775 members • 6,749 posts

All posts for May 2015

Churg Strauss Syndrome in Remission?

I keep being told by my consultants that my Churg Strauss has been in remission for a while now yet every time I mention that I am lethargic, tired, lack...

I keep being told by my consultants that my Churg Strauss has been in remission ...

Rowmarsh

•9 years ago

18 Replies

Could you have Vasculitis? It’s tough to diagnose and comes with a host of nasty symptoms – but just what is Vasculitis?

Interesting article published today by BT.com Home page for the end of ‪Vasculitis Awareness Month‬ also input from John Mills Chairman of V‪asculitis‬ UK who...

Interesting article published today by BT.com Home page for the end of ‪Vasculit...

Suzym2u

Moderator•9 years ago

4 Replies

I am going mad with my symptoms! Help

Hi everyone! Not posted on here for a while. Going to try and keep this as short as possible. I really need your help as I am literally at my wits end now with...

Hi everyone! Not posted on here for a while. Going to try and keep this as short...

cocobella

•9 years ago

34 Replies

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Rheumatology Services in Manchester (Survey)

NHS North, Central and South Manchester Clinical Commissioning Groups are currently working with providers of rheumatology services across Manchester to...

NHS North, Central and South Manchester Clinical Commissioning Groups are curren...

Suzym2u

Moderator•9 years ago

9 Replies

Churg Strauss Syndrome now with Cardiomyopathy - Medical Retirement

After 10 years of struggling to work it has been suggested that I try for the civil service medical retirement; a task that is no mean feat! All hinges on the...

After 10 years of struggling to work it has been suggested that I try for the ci...

Rowmarsh

•9 years ago

9 Replies

Cambridge Vasculitis Support Group Meeting 4th July 2015

The next meeting of the Cambridge Support Group is on the 4th July. Speakers are:- Vivien Turner MSTAT "Using the Alexander Technique to help cope with...

The next meeting of the Cambridge Support Group is on the 4th July. Speakers are...

Suzym2u

Moderator•9 years ago

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CNSV

I was diagnosed with CNS ten years ago. My initial symptoms were severe headaches, neck pain, seizure and possible hemorrhage. While I was diagnosed in a...

I was diagnosed with CNS ten years ago. My initial symptoms were severe headache...

Kat13

•9 years ago

34 Replies

Worried

I have PAN plus churg Strauss which gives me a lot of pain and nausea. The Steriods have given me diabetes having to inject also sever neuropathy. However I...

I have PAN plus churg Strauss which gives me a lot of pain and nausea. The Steri...

Fennahj7115

•9 years ago

6 Replies

Vasculitis and the ears and eyes

I am sorry that I seem to be back again...still no diagnosis but then I have largely given up seeing any doc over last year as I feel so dissillusioned,...

I am sorry that I seem to be back again...still no diagnosis but then I have lar...

Tinkytink

•9 years ago

25 Replies

Does anyone take vitamin/food supplements?

I am always reading bits here and there about the benefits of certain vitamin/food supplements. Does anyone incorporate such supplements into their diet or are...

I am always reading bits here and there about the benefits of certain vitamin/fo...

Hidden

•9 years ago

33 Replies

severe cramp

Does anyone have any remedies for severe cramp in their feet and lower legs? I suffered footdrop due to churg strauss syndrome and although the nerves have...

Does anyone have any remedies for severe cramp in their feet and lower legs? I s...

Katie18

•9 years ago

12 Replies

International Clinical Trials Day

Today is International Clinical Trials day. Many local hospitals will be promoting their recruitment for research trials so if you have an appointment why not...

Today is International Clinical Trials day. Many local hospitals will be promoti...

RichardE

Volunteer•9 years ago

3 Replies

Strange

Strange... When I blow my nose, air escapes from my right tear duct and blows across my eye-ball. I first noticed this about three weeks ago. Like everyone...

Strange... When I blow my nose, air escapes from my right tear duct and blows ac...

lfu2

•9 years ago

16 Replies

Nausea and vasculitis

Thank you for posting about your nausea. I am going thru the same thing. I don't tolerate antiemetic medicine. I take omeprazole every morning. The nausea is...

Thank you for posting about your nausea. I am going thru the same thing. I don't...

meldan67

•9 years ago

1 Reply

Groin pain

Hi has anyone with WG had left sided groin pain? I've had it intermittently for a few weeks now and the pain is steadily become more frequent especially during...

Hi has anyone with WG had left sided groin pain? I've had it intermittently for ...

ludo

•9 years ago

2 Replies

Methotrexate + methylfolate= any problems?

Hi! I am taking 10 mg of Methotrexate and 4mg prednisone for unspecified Vasculitis. I also take Tribenzor, Lipitor, Panteprazole. Aspirin81, Actonel, various...

Hi! I am taking 10 mg of Methotrexate and 4mg prednisone for unspecified Vasculi...

London37

•9 years ago

8 Replies

Vasculitis 2015 Thames Riverside Walk

The annual Vasculitis 2015 Thames Walk took place today. Around 68 people took part, walking 3 and 6 miles, not only to raise awareness bit to fundraise too....

The annual Vasculitis 2015 Thames Walk took place today. Around 68 people took p...

Suzym2u

Moderator•9 years ago

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Is there anyone in the community who is able to speak/translate English/Polish about Vasculitis?

Please contact John if you think you can help. john.mills@vasculitis.org.uk thank you Susan

Please contact John if you think you can help. john.mills@vasculitis.org.uk tha...

Suzym2u

Moderator•9 years ago

1 Reply

Working from home?

I am coming to the conclusion that rather than be in a continued cycle of returning to work then taking time off and upsetting employers along the way, the...

I am coming to the conclusion that rather than be in a continued cycle of return...

Galaxy2

•9 years ago

15 Replies

Moving to Spain

Hi all, My husband and I are thinking of moving to Murcia in Spain, does anyone know of any , doctors, hospitals that I could contact to get information on the...

Hi all, My husband and I are thinking of moving to Murcia in Spain, does anyone ...

StephanieDiane

•9 years ago

11 Replies

Solent and Portsmouth Vasculitis Support Group Meeting 16the May

The next meeting will be on Saturday 16th May - 10.30-12.30am and will be held at: The Education Centre, E Level, Queen Alexandra Hospital, Portsmouth, PO6...

The next meeting will be on Saturday 16th May - 10.30-12.30am and will be held a...

Suzym2u

Moderator•9 years ago

Be the first to reply

Acute shortness of breath

I have had WG for 15 yrs and am currently having my 2nd flare up. I was admitted to hospital in Leeds in January before this flare up was diagnosed with ?...

I have had WG for 15 yrs and am currently having my 2nd flare up. I was admitted...

Llinos

•9 years ago

3 Replies

concerns for the future with wegeners

Hi i am 44 years old in early 2014 after initial chest problems after many years in the stone trade i was diagnosed with silicosis a lung problem the...

Hi i am 44 years old in early 2014 after initial chest problems after many year...

morgan33

•9 years ago

6 Replies

NEW: MRI of shoulder suggests avascular necrosis, neoplasm, benign tumor.

Hi, First ever post. Pain a 10 in shoulder 1 month. Past history; cortisone inj. no longer work, 7 weeks out knee revision/TKR when shoulder compromised by...

Hi, First ever post. Pain a 10 in shoulder 1 month. Past history; cortisone inj....

m735

•9 years ago

1 Reply

Cerebral Vasculitis (mis)diagnosis/RCVS/vasospasms

Early Tuesday morning on April 28th, 2015 I woke up at 3:30am with an extremely painful migraine that I have come to associate as “thunderclap headache.” I had...

Early Tuesday morning on April 28th, 2015 I woke up at 3:30am with an extremely ...

Jennabug954

•9 years ago

19 Replies

Diagnosis

Diagnosis was within 2 hours of being hospitalised, thank you Dr Gibson at Preston

Diagnosis was within 2 hours of being hospitalised, thank you Dr Gibson at Pres...

Tony-LakeDistrict

•9 years ago

6 Replies

ANCA neg

I have read with interest the discussion about ANCA neg. I was diagnosed two years ago and what I have found out is the medics do a load of blood tests and...

I have read with interest the discussion about ANCA neg. I was diagnosed two yea...

Hidden

•9 years ago

29 Replies

GPA and Acquired Bleeding Disorders / Blood Vessel Fragility

Hiya, just wondering if anyone in the community has any experience or knowledge of acquired bleeding disorders / blood vessel fragility symptoms developing...

Hiya, just wondering if anyone in the community has any experience or knowledge ...

PCAD

•9 years ago

4 Replies

Vasculitis UK AGM Sunday May 10th - Post Code is NG9 6DL

Just to remind everyone of the post code for the AGM on Sunday it is NOT NG10 4EP but it is The new venue is The Village Hotel, Brailsford Way Chilwell,...

Just to remind everyone of the post code for the AGM on Sunday it is NOT NG10 4E...

Suzym2u

Moderator•9 years ago

Be the first to reply

Lump in feet

I have discovered a very small but firm lump under the skin on my foot arch. At times no problem but once touched or at times when walking I get a very bad...

I have discovered a very small but firm lump under the skin on my foot arch. At ...

Tunda

•9 years ago

3 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2015

Churg Strauss Syndrome in Remission?

Could you have Vasculitis? It’s tough to diagnose and comes with a host of nasty symptoms – but just what is Vasculitis?

I am going mad with my symptoms! Help

Rheumatology Services in Manchester (Survey)

Churg Strauss Syndrome now with Cardiomyopathy - Medical Retirement

Cambridge Vasculitis Support Group Meeting 4th July 2015

CNSV

Worried

Vasculitis and the ears and eyes

Does anyone take vitamin/food supplements?

severe cramp

International Clinical Trials Day

Strange

Nausea and vasculitis

Groin pain

Methotrexate + methylfolate= any problems?

Vasculitis 2015 Thames Riverside Walk

Is there anyone in the community who is able to speak/translate English/Polish about Vasculitis?

Working from home?

Moving to Spain

Solent and Portsmouth Vasculitis Support Group Meeting 16the May

Acute shortness of breath

concerns for the future with wegeners

NEW: MRI of shoulder suggests avascular necrosis, neoplasm, benign tumor.

Cerebral Vasculitis (mis)diagnosis/RCVS/vasospasms

Diagnosis

ANCA neg

GPA and Acquired Bleeding Disorders / Blood Vessel Fragility

Vasculitis UK AGM Sunday May 10th - Post Code is NG9 6DL

Lump in feet

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