Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for October 2021

Whopping antibodies after 3rd vaccine despite poor response earlier

Crikey. I just got my latest Covid antibody results. After vaccine 2 (AstraZeneca) in April I had 16.4 U/mL. Rather bizarrely that rose to 33.8 U/mL in...

Crikey. I just got my latest Covid antibody results. After vaccine 2 (AstraZenec...

vivdunstan

Volunteer•3 years ago

8 Replies

Would you like to take part in Research?

Would you like to help with a research study to better understand why some people with inflammatory conditions affecting the joints or the gut, and treated...

Would you like to help with a research study to better understand why some peopl...

John_Mills

Volunteer•3 years ago

4 Replies

Is this vasculitis?

Can only include one photo. I do have another. It’s my husband’s legs. He has varicose veins but on this occasion they were extremely itchy

Can only include one photo. I do have another. It’s my husband’s legs. He has va...

Krawlins

•3 years ago

5 Replies

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Strange bruising after Pfizer and flu jab yesterday?

Hi, I was wondering if anyone else has experienced any strange bruising after having the Pfizer booster and flu jab, which I had yesterday. I’ve not banged it...

Hi, I was wondering if anyone else has experienced any strange bruising after ha...

Tbrz

•3 years ago

6 Replies

Booster

Hi all- were very new to this disease. If my partner is called for covid booster is it safe? We’ve been told to lockdown for 3 months because he’s ‘immune...

Hi all- were very new to this disease. If my partner is called for covid booster...

Dot1958

•3 years ago

14 Replies

Mycophenolate

After having really bad side effects from mycophenolate l am moving onto myfortic . I thought this was the same drug under a different name ? I have looked...

After having really bad side effects from mycophenolate l am moving onto myfor...

artists

•3 years ago

9 Replies

Having to travel 59 miles for 3rd Pfizer Jab

Well what a morning I have had. I got my letter Monday telling me to contact my GP or Consultant. I am due my Rituximab in 4 weeks so at the limit for...

Well what a morning I have had. I got my letter Monday telling me to contact my ...

Investigator1

•3 years ago

15 Replies

A statement from the Rare Autoimmune Rheumatic Disease Alliance regarding third vaccines

https://rairda.org/updates-and-news/

John_Mills

Volunteer•3 years ago

Be the first to reply

Can anyone please recommend a good all round Travel Ins to South Africa, covering a range of health issues including Vasculitis, Thank You

Travel Insurance

jackrussell

•3 years ago

5 Replies

Asymptomatic Aortitis-second axillary ultrasound scan

I had a second ultrasound scan last month and it appears that the results have changed minimally from the first scan. (Currently taking 2mg/1mg/1mg Pred on 3...

I had a second ultrasound scan last month and it appears that the results have c...

123-go

•3 years ago

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Travel insurance companies - can anyone recommend

I have GPA and unfortunately had a flare in May this year, I had 4 rituximab infusions during May and feel great now and want to go on holiday. My...

I have GPA and unfortunately had a flare in May this year, I had 4 rituximab inf...

stuc

•3 years ago

10 Replies

New diagnosis

Hi 67 year old healthy mum to a daughter with special needs who lives at home Appears to be HSP Booked for a kidney biopsy to confirm what type Just started...

Hi 67 year old healthy mum to a daughter with special needs who lives at home A...

1421Darcey

•3 years ago

5 Replies

Third Jab

Amazingly I got my invite letter this morning for the third jab direct from NHS. No dates no numbers to call.. just speak with GP. My Gp has no vaccine or...

Amazingly I got my invite letter this morning for the third jab direct from NHS....

EGPAGuy

•3 years ago

20 Replies

Severe head and face pain ongoing

My husband has recently been diagnosed with gpa vasculitis but has suffered with ongoing extreme head and face pain- he is having to take morphine for the...

My husband has recently been diagnosed with gpa vasculitis but has suffered with...

Lucyfearn

•3 years ago

18 Replies

Finding out whether a hospital or consultant is a Vasculitis specialist?

Hi everyone - Basic question - a lot of people have recommended that long term treatment should be with a centre or consultant that specialises in...

Hi everyone - Basic question - a lot of people have recommended that long term...

Reboundman

•3 years ago

14 Replies

Anyone with Takayasu Arteritis keep on getting squeezing pain in the neck and then in the chest and back?

I keep in getting terrible squeezing pains in my neck and when this happens it then seems to go down to my chest and back. The chest and back pain feel like...

I keep in getting terrible squeezing pains in my neck and when this happens it t...

DawnMezza

•3 years ago

1 Reply

Testing

I have tested positive for the ANCA blood test now 3 times, I keep getting blood results come in regarding different lymphocytes ect, I don’t really know what...

I have tested positive for the ANCA blood test now 3 times, I keep getting blood...

Hazbaz57

•3 years ago

8 Replies

I contracted vasculitis via covid. I'm 8mths in with long covid. Has anyone else got this please. And which vaccine did you opt for if any

Long covid vaccine

M3LZY

•3 years ago

15 Replies

Volunteers Wanted

Read this link for more details Thank you https://www.vasculitis.org.uk/news/volunteers-needed-for-trial

Read this link for more details Thank you https://www.vasculitis.org.uk/news/vo...

John_Mills

Volunteer•3 years ago

1 Reply

Updated COVID19 vaccine information October 3rd 2021

https://www.vasculitis.org.uk/news/coronavirus-covid-19 Update via the VUK website regarding the latest JCVI information for the COVID19 vaccine for children...

https://www.vasculitis.org.uk/news/coronavirus-covid-19 Update via the VUK webs...

John_Mills

Volunteer•3 years ago

1 Reply

Anyone else have the same dilemma?

I'll be really interested in how others are dealing with family members going to work/school in the current climate. I am on rituximab and created no...

I'll be really interested in how others are dealing with family members going to...

Galaxy2

•3 years ago

11 Replies

Stopping Azathioprine

After a blood test My GP has said my platelets are down to 139 (should be at least 150) and to stop taking Azathioprine. I am worried about this as I have GPA...

After a blood test My GP has said my platelets are down to 139 (should be at lea...

Tanzy

•3 years ago

10 Replies

How were you diagnosed?

I was diagnosed with eosiniphilic asthma a few years ago - the asthma came in my 40's - breathing problems and nasal polyps. Two years of back and two to the...

I was diagnosed with eosiniphilic asthma a few years ago - the asthma came in my...

Madbiker1

•3 years ago

4 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for October 2021

Whopping antibodies after 3rd vaccine despite poor response earlier

Would you like to take part in Research?

Is this vasculitis?

Strange bruising after Pfizer and flu jab yesterday?

Booster

Mycophenolate

Having to travel 59 miles for 3rd Pfizer Jab

A statement from the Rare Autoimmune Rheumatic Disease Alliance regarding third vaccines

Can anyone please recommend a good all round Travel Ins to South Africa, covering a range of health issues including Vasculitis, Thank You

Asymptomatic Aortitis-second axillary ultrasound scan

Travel insurance companies - can anyone recommend

New diagnosis

Third Jab

Severe head and face pain ongoing

Finding out whether a hospital or consultant is a Vasculitis specialist?

Anyone with Takayasu Arteritis keep on getting squeezing pain in the neck and then in the chest and back?

Testing

I contracted vasculitis via covid. I'm 8mths in with long covid. Has anyone else got this please. And which vaccine did you opt for if any

Volunteers Wanted

Updated COVID19 vaccine information October 3rd 2021

Anyone else have the same dilemma?

Stopping Azathioprine

How were you diagnosed?

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