Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,938 members•6,968 posts

All posts for March 2025

Mother's Day in the UK

Mother's Day can be a happy, sad or mixed feelings day. To all of you, VUK is sending a hug and saying you are special!

Mother's Day can be a happy, sad or mixed feelings day. To all of you, VUK is se...

Administrator•6 days ago

Reverting from full osteoporosis to osteopenia

Wonderful news from the rheumatologist. My latest bone density scan 2 weeks ago in Perth showed that I have improved, going back from full blown osteoporosis 8...

Wonderful news from the rheumatologist. My latest bone density scan 2 weeks ago ...

Volunteer•8 days ago

inflammation/heat

Struggling with body temperature these days. I have a real time with it. It makes me feel on fire. The palms of my hands, my tongue, my head and spine. It gets...

Struggling with body temperature these days. I have a real time with it. It make...

•9 days ago

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Online event for those with IgA vasculitis (HSP)

The UK Kidney Ecosystem at the University of Liverpool is hosting an online event on April 4th (12 PM - 1 PM) for individuals with lived experience of IgA...

The UK Kidney Ecosystem at the University of Liverpool is hosting an online even...

Administrator•12 days ago

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Autoimmune Conditions

Hi everyone. I had a Rheumatologist tell me last week that if I have one autoimmune condition that I cannot have another. This comment stunned me as I have...

Hi everyone. I had a Rheumatologist tell me last week that if I have one autoimm...

•13 days ago

dental problems

in 2022, I was diagnosed with vasculitis, MPA. Two years of prednisone followed, along with 8 infusions of Rituximab. As I was finishing up and going into...

in 2022, I was diagnosed with vasculitis, MPA. Two years of prednisone followed,...

•13 days ago

In the wee hours

OMG dears, it is 2:30 am and my mind won’t shut off and my eyes won’t close. I saw my rheumy on March 14 where she increased my prednisone to 15 mg a day for...

OMG dears, it is 2:30 am and my mind won’t shut off and my eyes won’t close. I s...

•13 days ago

repressed anger and the results on your body.

https://apple.news/A8SLMoXp7Sim1ejlma6cdLw This post this morning has resonated with me. As a child and young adult I had what was termed ‘a temper’ (never...

https://apple.news/A8SLMoXp7Sim1ejlma6cdLw This post this morning has resonated...

•15 days ago

Rituximab - Itchy Skin

Hi all hope everybody is ok. I had me last infusion nearly 4 months ago but have been on Rituximab nearly 4 years. But itchy skin blimey it’s driving me mad....

Hi all hope everybody is ok. I had me last infusion nearly 4 months ago but have...

•17 days ago

What do you think?

I feel saddened and quite shocked that even on these deeply personal and sensitive forums, we have to be on our guard against people like these (Post sent...

I feel saddened and quite shocked that even on these deeply personal and sensit...

•25 days ago

Research publication

'I still can’t forget those words': mixed methods study of the persisting impact on patients reporting psychosomatic and psychiatric misdiagnoses A research...

'I still can’t forget those words': mixed methods study of the persisting impact...

Administrator•29 days ago

Steroid Weight Gain

hi everyone. Been back on 40mg steroids and coming back down. I’m at 15 at the mo. I’d lost 2 stone from weight gain from initial steroids from 2016 but have...

hi everyone. Been back on 40mg steroids and coming back down. I’m at 15 at the m...

•1 month ago

IgA Vasculitis & eye ulcer

Hi all, Just looking for advice. Diagnosed IgA Vasculitis, recently had eye problems, seen at eye clinic. It is an eye ulcer & infection. Does anyone know...

Hi all, Just looking for advice. Diagnosed IgA Vasculitis, recently had eye pr...

•1 month ago

husband diagnosed with wegeners

my husband (68) was diagnosed with Wegeners in December. He was in stage 4 kidney disease.He was given a plasma exchange and started on Rituximab. Due to...

my husband (68) was diagnosed with Wegeners in December. He was in stage 4 kidn...

•1 month ago

Antioxidants

I have recently tried anti oxidants to reduce prednisalone use.resveratrol seems promising.my rheumatologist is advising me to stop just in case it reacts with...

I have recently tried anti oxidants to reduce prednisalone use.resveratrol seems...

•1 month ago