Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,936 members•6,969 posts

All posts for January 2022

Tingling feet and ANCA

Had GCA in 2015 and on prednisone for 4 years…then no relapse but diagnosed with PMR in Dec. 2021. And now they have changed my diagnose to ANCA vasculitis,...

Had GCA in 2015 and on prednisone for 4 years…then no relapse but diagnosed with...

•3 years ago

Antivirals

Hi hope everyone is keeping as well as possible as we enter the next phase in the pandemic. I was wondering how people coped with the antiviral medication...

Hi hope everyone is keeping as well as possible as we enter the next phase in th...

•3 years ago

Welcome New Members😀

Dear All- particularly New Members, I have recently seen both on this Forum, and others to, a number of New Members Posts. I haven't read them all but I have...

Dear All- particularly New Members, I have recently seen both on this Forum, and...

•3 years ago

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I think I know what a Pin Cushion feels like🤨

Dear All, not only have I now had Three Covid Jabs with, in all probability, a Booster to come but also 'Flu' and Pneumonia too. Not that I'm really...

Dear All, not only have I now had Three Covid Jabs with, in all probability, a B...

•3 years ago

Rituxan

Just diagnosed with vasculitis, but first was on prednisone for PMR, which I guess can mimic vasculitis. Now doctor wants me to take Rituxan and taper off...

Just diagnosed with vasculitis, but first was on prednisone for PMR, which I gue...

•3 years ago

Does anyone have experience of neutropenia? Especially due to Sulfasalazine and/or Tocilizmub?

Low neutrophils/ neutropenia on TCZ? Hi folks, I was wondering if anyone who has experienced this happening can give me some of idea how long it will take to...

Low neutrophils/ neutropenia on TCZ? Hi folks, I was wondering if anyone who ha...

Erikaknitssocks

•3 years ago

No Need to Self Isolate with Covid after 24th March?

I know it’s only a proposal but am I missing something? This is the most frightening development I have heard for those of us who are CEV. Forgotten again?...

I know it’s only a proposal but am I missing something? This is the most frighte...

•3 years ago

Rituximab and fourth vaccine

I hope everyone is well and I wish you all a happy and healthy new year ! I was hoping to push back my regular Rituximab infusion to give Omicron a chance to...

I hope everyone is well and I wish you all a happy and healthy new year ! I was ...

•3 years ago

4th JAB

Due to having GPA and being on immunosuppressant medication I am due to have my fourth jab tomorrow (3 months after my 3rd). My first 2 were astra-zeneca and...

Due to having GPA and being on immunosuppressant medication I am due to have my ...

•3 years ago

Pain after Rituxan?

Hi- I'm 61 years old. Diagnosed with CNS Vasculitis in 2016. Treatment Rituxan and steroid Infusions. Every 6 months to a year of remission. I High dose...

Hi- I'm 61 years old. Diagnosed with CNS Vasculitis in 2016. Treatment Rituxan a...

•3 years ago

Medication advice mycophenolate

mycophenolate Advise please My daughter had HUVS and possible lupus She’s on hydroxychloroquine 200 mg and mycophenolate 1000 mg Fexofenadine 360mg She’s...

mycophenolate Advise please My daughter had HUVS and possible lupus She’s on h...

•3 years ago

PCR test

I never received the letter or email regarding the PCR test. I called 119 who said they could not send the special PCR test as I hadn’t received the letter....

I never received the letter or email regarding the PCR test. I called 119 who s...

•3 years ago

Granulomatosis with polyangiitis and nose bleeds

Hi everyone, I am new to the site so please forgive me if this question has already been asked and answered. I have been suffering from various symptoms for...

Hi everyone, I am new to the site so please forgive me if this question has alre...

•3 years ago

Co trimoxazole

Hi, And a good New year to All. How long should a person take co trimoxazole?? Any knowledge is appreciated. Thanks

Hi, And a good New year to All. How long should a person take co trimoxazole?? ...

sorefeetsoldier

•3 years ago

Fight

Keep being positive . And keep yourself safe as much as u can. Dettol spray or wipes are good. Xx

Keep being positive . And keep yourself safe as much as u can. Dettol spray or w...

•3 years ago

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Bruises and petechiae?

Hello all I'm also on NRAS and have posted these pics there and some suggested vasculitis. I get them a lot in various places but never covering this area. The...

Hello all I'm also on NRAS and have posted these pics there and some suggested v...

•3 years ago

Happy New Year (a little late)

hope it's not too late to wish everybody a happy new year and all the very best for everything!

hope it's not too late to wish everybody a happy new year and all the very best ...

•3 years ago

Happy New Year 2022

Dear All, sorry that it IS a 'tad' late- the Story of my life- 🙄 but anyway.... can I wish you All a Happy New Year 2022- with a Heartfelt Prayer that we...

Dear All, sorry that it IS a 'tad' late- the Story of my life- 🙄 but anyway.......

•3 years ago

Scottish patient Covid treatments and just in case PCR test kits

I’ve got a letter today from the Scottish Chief Medical Officer about the new Covid treatments that I should be eligible for. It gives me local contact details...

I’ve got a letter today from the Scottish Chief Medical Officer about the new Co...

Volunteer•3 years ago

Foot issues

Is this part of vasculitis please. Told I had it after contracting covid. My feet/foot also goes red and white. Especially my left foot. Many thanks.

Is this part of vasculitis please. Told I had it after contracting covid. My fee...

•3 years ago

Are you being treated with steroids for your rheumatic condition? Including vasculitis

Are you being treated with steroids for your rheumatic condition? Including vasculitis We need your help to test a new questionnaire about steroid impact on...

Are you being treated with steroids for your rheumatic condition? Including vasc...

Volunteer•3 years ago

How Can I change my Hub

I used to be part of the Vasculitis hub but don’t seem to get any notifications anymore instead I am receiving notifications from PMR/GCA hub. They are lovely...

I used to be part of the Vasculitis hub but don’t seem to get any notifications ...

•3 years ago

Vasculitis and arm .

Dear all . I have urticular vasculitis and am having problems with one arm . This is a first for me and I’m not sure if it is related to the vasculitis or not...

Dear all . I have urticular vasculitis and am having problems with one arm . Thi...

•3 years ago

Best wishes all for 2022

I’d like to say best wishes for the year ahead. I’d also like to take this chance to thank people here for so generously supporting each other over the last...

I’d like to say best wishes for the year ahead. I’d also like to take this chanc...

Volunteer•3 years ago