Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for October 2015

Elle

Hi new to the group. Just like to say hello.

Frankiepoos1

•9 years ago

8 Replies

Advice on Herbal

Hi I have WG for 2 years currently in remission..taking3 mg preds and 200mg aza.. I'm going through early menopause triggered by cyclo treatment...just needed...

Hi I have WG for 2 years currently in remission..taking3 mg preds and 200mg aza....

DBH1969

•9 years ago

3 Replies

Sulfasalazine

Hi all. Just a quick question. I've just stopped taking sub-cut methotrexate as it was making me very poorly. I am still on Sulfasalazine but just wanted to...

Hi all. Just a quick question. I've just stopped taking sub-cut methotrexate a...

CHARLIE49

•9 years ago

7 Replies

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Anca test

Hi everyone, Iv posted on here in the past due to various symptoms which i thought could possibly be vasculitis. Months passed and my endo susspected i had PMR...

Hi everyone, Iv posted on here in the past due to various symptoms which i thoug...

yorkshiregirl44

•9 years ago

6 Replies

Pneumocystis Jiroveci Pneumonia- prophylactic medication when on long term high dose steroids and Methotrexate

Was wondering if others have been put on prophylactic medication for Pneumocycstis Jiroveci Pneumonia due to taking high dose Prednisolone over long the long...

Was wondering if others have been put on prophylactic medication for Pneumocycst...

Hidden

•9 years ago

1 Reply

Mycophenolate Withdrawal

Has anyone experience of coming off mycophenolate? Since March I have been reducing from 2000mg slowly and now have just come off it completely. I'm really...

Has anyone experience of coming off mycophenolate? Since March I have been redu...

Galaxy2

•9 years ago

16 Replies

South Yorkshire Support Group Meeting

Hi everyone. Just a reminder that Lynne Jacques and I will be holding a new support group meeting in South Yorkshire next Sunday, the 1st of November between...

Hi everyone. Just a reminder that Lynne Jacques and I will be holding a new supp...

RichardE

Volunteer•9 years ago

1 Reply

Have you experience of being treated by Mepolizumab?

Next month NICE will be holding an appraisal on the use of Mepolizumab, for the treatment of severe Eosinophilic Asthma. If you have experience of being...

Next month NICE will be holding an appraisal on the use of Mepolizumab, for the...

Suzym2u

Moderator•9 years ago

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Catch up...

Hello to all fellow vascy people who might have read my previous posts. I am now steroid free and have been able to reduce MF to 1000mgs/day (also a stone...

Hello to all fellow vascy people who might have read my previous posts. I am now...

SABG

•9 years ago

3 Replies

Carers Meeting - Coventry November 28th 2015

The next new "Carers" group in Meriden, Coventry, is having its inaugural meeting on 28th November, 2015. This informal meeting, with food, will take place at...

The next new "Carers" group in Meriden, Coventry, is having its inaugural meetin...

Suzym2u

Moderator•9 years ago

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This weeks Benefits and Work newsletter.

http://www.benefitsandwork.co.uk/news/3175-21-october-2015-newsletter

Hidden

•9 years ago

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Churg Strauss/Radiotherapy

Has anyone had the experience of having churg Strauss and having to have radiotherapy for cancer. Or do you possibly know if anyone else has . I am also having...

Has anyone had the experience of having churg Strauss and having to have radioth...

Fennahj7115

•9 years ago

10 Replies

Vasculitis Awareness Christmas Cards are now available from the Vasculitis UK shop.

These beautiful cards were designed and created by Lucy with pencil and paint. You can contact Lucy for more details but they are £2 a pack of 5 , £3.50 a pack...

These beautiful cards were designed and created by Lucy with pencil and paint. Y...

Suzym2u

Moderator•9 years ago

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New design vasculitis awareness wristband

This new design vasculitis awareness wristband is now available in the shop, for 99p plus p&p. You can ask for details from Lucy. Lucy@vasculitis.org.uk

This new design vasculitis awareness wristband is now available in the shop, for...

Suzym2u

Moderator•9 years ago

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Christmas Fair in the Peak District, all proceeds go to Vasculitis UK

On November 15th the Lathkil Hotel in Over Haddon, in the Peak District, will be holding a local food and craft fair. It is like a mini market of local food,...

On November 15th the Lathkil Hotel in Over Haddon, in the Peak District, will be...

Suzym2u

Moderator•9 years ago

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WG

I posted here earlier this year re my symptoms of WG, or was it WG ? I felt very unwell with sever lethargy, a raised ESR CRP, headache, crusty sore nose,...

I posted here earlier this year re my symptoms of WG, or was it WG ? I felt ver...

bowler

•9 years ago

6 Replies

West Country support group lunch

Hi everyone, We'll be holding our next lunch at the smugglers inn in dawlish on Saturday 21 November, 12.00 - 4.00. As always the lunch is open to those with...

Hi everyone, We'll be holding our next lunch at the smugglers inn in dawlish on...

DevonLottie

•9 years ago

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Blocked arteries anyone?

Hi everyone,after a recent MRI on both my legs I have no major arteries from half way down my calves.This is the result of vasculitis,my vascular consultant...

Hi everyone,after a recent MRI on both my legs I have no major arteries from hal...

alanmitch

•9 years ago

6 Replies

Rutiximab

everyone!!! Does anyone have side effects of hair fall after taking rutiximab

Sazew

•9 years ago

5 Replies

Liver involvement anyone?

Hi everyone, I was diagnosed with GCA in 2009. Relapsed 3 times since. Last couple of years have had autoimmune hearing loss and sinusitis problems plus...

Hi everyone, I was diagnosed with GCA in 2009. Relapsed 3 times since. Last cou...

maisie5

•9 years ago

7 Replies

West Midlands Annual Vasculitis Support meeting

Just wanted to say that John and I attended the Vasculitis West Midlands Annual Support Group meeting yesterday. It was an excellent meeting and we were made...

Just wanted to say that John and I attended the Vasculitis West Midlands Annual ...

Suzym2u

Moderator•9 years ago

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Gabapenten

I am up north with family I have an ulserated leg under hospital up hear ran out of medication zapain doctor gave me tempory van nten is anyone else taking...

I am up north with family I have an ulserated leg under hospital up hear ran out...

Yorkie12

•9 years ago

4 Replies

West Yorkshire Support Group Meeting

Hi All We have a few cancellations for tomorrows meeting so if you haven't booked would like to come please pm message me or just turn up at Gomersal Park...

Hi All We have a few cancellations for tomorrows meeting so if you haven't booke...

LynneJ

Vasculitis UK•9 years ago

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12 Kidney Disease Symptoms For Men And Women That You Should Absolutely NEVER Ignore

This was posted in the Vasculitis Face Book group, it makes interesting reading Just follow this link....

This was posted in the Vasculitis Face Book group, it makes interesting reading ...

Suzym2u

Moderator•9 years ago

3 Replies

NHS Choices website now covers Vasculitis

The NHS choices website now covers vasculitis , including some of the rarer types. We are working on the Urticarial Vasculitis information but hopefully it...

The NHS choices website now covers vasculitis , including some of the rarer type...

Suzym2u

Moderator•9 years ago

4 Replies

Interesting Tweet this morning - Lab-grown human kidney a breakthrough for medical researchers

You can read the full article here...

Suzym2u

Moderator•9 years ago

1 Reply

SOLENT VASCULITIS SUPPORT GROUP - Portsmouth November Meeting

The next meeting will be on Saturday 7th November - 10.30-12.30am and will be held at: The Education Centre, E Level, Queen Alexandra Hospital, Portsmouth, PO6...

The next meeting will be on Saturday 7th November - 10.30-12.30am and will be he...

Suzym2u

Moderator•9 years ago

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Does everyone need a flu jab?

I'm just asking because I didn't get around to it last year and I don't think I suffered as a consequence and I need convincing it's worthwhile. I know that we...

I'm just asking because I didn't get around to it last year and I don't think I ...

Hidden

•9 years ago

40 Replies

Heartbeat in ears

Hi all, just a odd question. I have heard my heartbeat in my ears since my WG diagnosis 15yrs ago. Its noisy at times, especially at night if I curl up my body...

Hi all, just a odd question. I have heard my heartbeat in my ears since my WG di...

Llinos

•9 years ago

14 Replies

Racing with WG

Quite a good article about racing with WG:...

Haggiss

•9 years ago

2 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for October 2015

Elle

Advice on Herbal

Sulfasalazine

Anca test

Pneumocystis Jiroveci Pneumonia- prophylactic medication when on long term high dose steroids and Methotrexate

Mycophenolate Withdrawal

South Yorkshire Support Group Meeting

Have you experience of being treated by Mepolizumab?

Catch up...

Carers Meeting - Coventry November 28th 2015

This weeks Benefits and Work newsletter.

Churg Strauss/Radiotherapy

Vasculitis Awareness Christmas Cards are now available from the Vasculitis UK shop.

New design vasculitis awareness wristband

Christmas Fair in the Peak District, all proceeds go to Vasculitis UK

WG

West Country support group lunch

Blocked arteries anyone?

Rutiximab

Liver involvement anyone?

West Midlands Annual Vasculitis Support meeting

Gabapenten

West Yorkshire Support Group Meeting

12 Kidney Disease Symptoms For Men And Women That You Should Absolutely NEVER Ignore

NHS Choices website now covers Vasculitis

Interesting Tweet this morning - Lab-grown human kidney a breakthrough for medical researchers

SOLENT VASCULITIS SUPPORT GROUP - Portsmouth November Meeting

Does everyone need a flu jab?

Heartbeat in ears

Racing with WG

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