Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for May 2017

Living with Churg Strauss - video

Last December GSK pharmaceutical company asked Vasculitis UK if they could put them in touch with people living with Churg Strauss Syndrome who would help them...

Last December GSK pharmaceutical company asked Vasculitis UK if they could put t...

Katie18

•7 years ago

10 Replies

Feeling so sad

Feel like a prisoner in my own body...

LauraMk30

•7 years ago

13 Replies

Many questions and not many answers.

Hi I am new here I'm a 53 female. Six months ago I was diagnosed with "Specific Autoimmune Disease" and on May 19,2017 I was confirmed with "Eosinophilia...

Hi I am new here I'm a 53 female. Six months ago I was diagnosed with "Specific...

speedyg0519

•7 years ago

2 Replies

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Evening everyone. Can I ask,...

Evening everyone. Can I ask, what to expect at my consultation appointment at Queen Elizabeth's Hospital Birmingham? Will I be there for a few hours? Do...

Evening everyone. Can I ask, what to expect at my consultation appointment at ...

LauraMk30

•7 years ago

3 Replies

Article in the Guardian newspaper about walking sticks

How I learned to love my walking stick https://www.theguardian.com/lifeandstyle/2017/may/29/how-i-learned-to-love-my-walking-stick I'm sure this is something...

How I learned to love my walking stick https://www.theguardian.com/lifeandstyle/...

vivdunstan

Volunteer•7 years ago

7 Replies

Dealing with this disease.

Update on how I've been doing. Damn it's hard. Each day is different but always has the pain factor. I find drinking tons of water is key. As soon as you wake...

Update on how I've been doing. Damn it's hard. Each day is different but always...

greg31

•7 years ago

13 Replies

Possible nasal vasculitis?

Advice please.. I'm a 45 year old women. I've had nose pain and earache on my right side for at least a month. My nose and sinuses are very tender and I have...

Advice please.. I'm a 45 year old women. I've had nose pain and earache on my ri...

maisie30

•7 years ago

7 Replies

Vasculitis UK AGM May 14th 2017 - Refelective view in photos and text.

This page on the website gives a reflective view in photos and text from the VUK AGM last weekend. http://www.vasculitis.org.uk/news/agm-2017-review

This page on the website gives a reflective view in photos and text from the VUK...

Suzym2u

Moderator•7 years ago

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Orbital vasculitis

Hi, I hope his sunny day fines you all well. Since being diagnosed with vasculitis six and a bit years ago I have had different diagnoses and at the moment...

Hi, I hope his sunny day fines you all well. Since being diagnosed with vasculit...

Mikki

•7 years ago

2 Replies

Something's Twisted

Hello everyone hope your week has been kind & gentle to you all ♥️ Umm, I'm struggling, I know I'm waiting on my appointment to come through the post. But...

Hello everyone hope your week has been kind & gentle to you all ♥️ Umm, I'm str...

LauraMk30

•7 years ago

8 Replies

Something's Twisted

Hello everyone hope your week has been kind & gentle to you all ♥️ Umm, I'm struggling, I know I'm waiting on my appointment to come through the post. But...

Hello everyone hope your week has been kind & gentle to you all ♥️ Umm, I'm str...

LauraMk30

•7 years ago

3 Replies

Titanium

Hey guys&girls My coping mechanisms are singing, & photography. I can't loose my creative streak. I just wanted to share a cover I sang on a app called...

Hey guys&girls My coping mechanisms are singing, & photography. I can't loose ...

LauraMk30

•7 years ago

12 Replies

My Dad

Hello everyone I've come here a few times for support regarding my Dad who was diagnosed with MPA last April. I live in India and was so excited to be coming...

Hello everyone I've come here a few times for support regarding my Dad who was d...

Hidden

•7 years ago

11 Replies

RIP Sir Roger Moore

Not Vasculitis related, but I thought you might want to know. Actor Sir Roger Moore, best known for playing James Bond, has died aged 89, his family has...

Not Vasculitis related, but I thought you might want to know. Actor Sir Roger Mo...

Hidden

•7 years ago

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Ear problems

Hi Guys I have been experiencing a few problems lately. 1. Eyes really puffy and yellow eye lids. 2. Ear Ache . 3. Sneezing , 4 Pains in the head not...

Hi Guys I have been experiencing a few problems lately. 1. Eyes really puffy ...

Omil04

•7 years ago

1 Reply

Parents meeting at school

Hey all, hope you all had a nice weekend. This is a tough one, my son Harrison has found it difficult to settle at school & like most children he likes to...

Hey all, hope you all had a nice weekend. This is a tough one, my son Harrison...

LauraMk30

•7 years ago

12 Replies

Help!

My mom was diagnosed with Wegeners about 2 months ago. She was responding well to treatment. However, I noticed that she would forget little things or say...

My mom was diagnosed with Wegeners about 2 months ago. She was responding well t...

Deedrah

•7 years ago

6 Replies

No understanding

Hi I do not no know a lot about this problem other then got it and waiting on answeres which I will ask at next doc appointment have had a ct scan that showed...

Hi I do not no know a lot about this problem other then got it and waiting on an...

Rusty8

•7 years ago

1 Reply

Azathioprine

Hi guys , can we get these tablets coated? We I take these tabs they tend to stick in my throat. Lorraine

Hi guys , can we get these tablets coated? We I take these tabs they tend to st...

Omil04

•7 years ago

2 Replies

Looks like I've swallowed a melon !

Hi all, since my good news of referral I've come down with a horrible cold! So been tucked up in bed the past week. Appointment for Birmingham hasn't come...

Hi all, since my good news of referral I've come down with a horrible cold! So b...

LauraMk30

•7 years ago

7 Replies

Sinus getting me down

Hi All Anyone else having sonus probs? For past six months ive had blocked nose constant blood streaked nasal discharge. And i upped my pred to 25mg from...

Hi All Anyone else having sonus probs? For past six months ive had blocked nose...

sorefeetsoldier

•7 years ago

18 Replies

Vasculitis and U - Norfolk and Norwich Hospital May 24th 2017

Just a reminder about this event next week.. it is open to patients and it is free 😊 Follow this link for more details...

Just a reminder about this event next week.. it is open to patients and it is f...

Suzym2u

Moderator•7 years ago

2 Replies

Anyone with cellulitis does your cellulitis and/or lymphoedema and/or Vasculitis symptoms change throughout day/night and from day-to-day?

hi anyone with cellulitis - I have burning hot thighs, knees, hips, under the breasts/lower back mainly when I lye/sit down in the eve. When i'm walking about...

hi anyone with cellulitis - I have burning hot thighs, knees, hips, under the br...

loadsofissues

•7 years ago

1 Reply

Help please for my granddaughter 💜

I am Chapter, from the Lupus Community, and I am hoping that they will see this post as well. My grand-daughter, Madison, will be 14 years old in June. For...

I am Chapter, from the Lupus Community, and I am hoping that they will see this ...

Chapter

•7 years ago

5 Replies

New to all this...

Hello, this is Graham, I'm 45 years of age and living on Merseyside. I lecture in electrical and gas engineering at a local college and also run a small...

Hello, this is Graham, I'm 45 years of age and living on Merseyside. I lecture...

Hidden

•7 years ago

10 Replies

Ocular Sarcoidosis

I have been having problems with my eye and yesterday the Doctor at the Royal Free Hospital London thinks it maybe connected to the Vasculitis that I have had...

I have been having problems with my eye and yesterday the Doctor at the Royal Fr...

Mikki

•7 years ago

6 Replies

Doctors Appointment today went WELL 👏🏻

Hey all ♥️ Well I will keep it short... My doctor has finally Referred me to Lorraine Harper @ QEBH :) Victory 🤗👏🏻🤗

Hey all ♥️ Well I will keep it short... My doctor has finally Referred me to ...

LauraMk30

•7 years ago

14 Replies

South Yorkshire Vasculitis Lunch - 10th of June

Hi everyone. We've arranged a lunch meeting for June the 10th in South Yorkshire. We'll be meeting at The Angel Inn in Blyth, just off the A1(M) at junction...

Hi everyone. We've arranged a lunch meeting for June the 10th in South Yorkshir...

RichardE

Volunteer•7 years ago

2 Replies

West Country support group lunch

A quick reminder that, if anyone is planning to join us for our lunch at the smugglers inn, dawlish on Sunday 21 May can you please let me know by the end of...

A quick reminder that, if anyone is planning to join us for our lunch at the smu...

DevonLottie

•7 years ago

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Update Of Today

Hey everyone, I got to the ambulatory Emergency care unit at 10am this morning. Plan of action was bloods, Halter monitor & Dermatology Opinion. Had my...

Hey everyone, I got to the ambulatory Emergency care unit at 10am this morning...

LauraMk30

•7 years ago

6 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for May 2017

Living with Churg Strauss - video

Feeling so sad

Many questions and not many answers.

Evening everyone. Can I ask,...

Article in the Guardian newspaper about walking sticks

Dealing with this disease.

Possible nasal vasculitis?

Vasculitis UK AGM May 14th 2017 - Refelective view in photos and text.

Orbital vasculitis

Something's Twisted

Something's Twisted

Titanium

My Dad

RIP Sir Roger Moore

Ear problems

Parents meeting at school

Help!

No understanding

Azathioprine

Looks like I've swallowed a melon !

Sinus getting me down

Vasculitis and U - Norfolk and Norwich Hospital May 24th 2017

Anyone with cellulitis does your cellulitis and/or lymphoedema and/or Vasculitis symptoms change throughout day/night and from day-to-day?

Help please for my granddaughter 💜

New to all this...

Ocular Sarcoidosis

Doctors Appointment today went WELL 👏🏻

South Yorkshire Vasculitis Lunch - 10th of June

West Country support group lunch

Update Of Today

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