Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for April 2024

Covid vaccine

this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as...

this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellen...

•8 months ago

Can you help people to VISUALISE VASCULITIS?

It’s nearly Vasculitis Awareness month! Our Theme is to help people VISUALISE VASCULITIS. And as a charity, we would like to share personal stories to help...

It’s nearly Vasculitis Awareness month! Our Theme is to help people VISUALISE...

Administrator•8 months ago

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Does Immunotherapy cause Vasculitis?

Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor...

Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to ta...

•8 months ago

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VUK at the BSR conference

Susan , Charlotte , Laura (our grant co-ordinator) and I manned the VUK stand at the British Society of Rheumatology's annual conference.It was busy, but at a...

Susan , Charlotte , Laura (our grant co-ordinator) and I manned the VUK stand at...

Moderator•8 months ago

Are you interested in taking part in the HAVEN Trial?

For more details - https://www.vasculitis.org.uk/news/are-you-suffering-with-anca-vasculitis

For more details - https://www.vasculitis.org.uk/news/are-you-suffering-with-anc...

Administrator•8 months ago

urticaria Vaaculitis

Hello everyone. Hope all is well. I have been diagnosed with Urticaria Vasculitis since 2022. I have just turned 30 and with youth spirit, I have been hoping...

Hello everyone. Hope all is well. I have been diagnosed with Urticaria Vasculiti...

•8 months ago

Covid booster

Hi, just saying, I had the Covid booster on Monday ,on Tuesday I was extremely ill , Temperature of 38.6 ,tremors on and of all day , face swollen ,hearing...

Hi, just saying, I had the Covid booster on Monday ,on Tuesday I was extremely i...

•8 months ago

Survey about patient care

Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey :...

Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a ...

Moderator•8 months ago

Colchicine to treat IgA Vasculitis

Hello, My daughter has recently been diagnosed with IgA Vasculitis, with Gastro-intestinal involvement. She is currently living in France and being treated...

Hello, My daughter has recently been diagnosed with IgA Vasculitis, with Gastr...

•8 months ago

Spring COVID Vaccine 2024 booster eligibility

Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those...

Spring COVID Vaccine 2024 booster eligibility The government has announced a Sp...

Administrator•9 months ago

Invitation to participate in a study

Vasculitis UK is supporting this study and we would welcome those eligible to take the opportunity to have their say. Your personal experience and opinion...

Vasculitis UK is supporting this study and we would welcome those eligible to ta...

Moderator•9 months ago

Ramadan Autoimmune Health Survey (including vasculitis)

https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details 👆

https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please foll...

Administrator•9 months ago

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Covid booster vaccines

hi Does anyone know if partners / carers of clinically extremely vulnerable people are eligible for the Covid boosters in April. I am under 75 years of age....

hi Does anyone know if partners / carers of clinically extremely vulnerable pe...

•9 months ago

methotrexate Injections

hi there everyone. I’m starting injections for methotrexate soon. I’m currently on the tablets. And I haven’t taken the injections before, does anyone have any...

hi there everyone. I’m starting injections for methotrexate soon. I’m currently ...

•9 months ago

cutaneous vasculitis - serous drainage

At the weekend I knocked off a new scab on my right foot. I have since intermittently had a clear lliquid dripping from the site. This is the third time in...

At the weekend I knocked off a new scab on my right foot. I have since intermitt...

•9 months ago

Covid Vaccines for Immune Suppressed - Any News?

just sending this out there. Has anybody got any information. I am now over 6 months since my last jab. Our pharmacist has said possibly from April 22nd but...

just sending this out there. Has anybody got any information. I am now over 6 mo...

•9 months ago