I've been recently diagnosed with TA, previously thought to be PMR, my age (46)!!, and PMR with a GCA overlap.
I have been to see a Private Rheumatologist after much to-ing and froi-ng and he has diagnosed the TA. I was on 20mg Pred when I saw him a few weeks ago and have upped myself to 30mg gradually over these past few weeks as I'm having increasing pain in my shoulders, hips and claudication pain in my jaw and tongue and double vision.
I recently have had a period of stress, a disastrous holiday in a camper plus a fall after a long car journey due to my legs not working properly and I feel like I'm having a flare. Even my jaw/chin starts to ache and go numb when I'm speaking at any length. Do I up my Pred again (I'm currently waiting for a PET scan and a Methotrexate prescription after referral from Private to NHS care which is taking he usual long time to get sorted).
I've previously been on 60mg for suspected GCA and I don't remember having any pain at that dose (although my brain was addled from the Pred!) just huge weight gain. Is it worth me trying 40mg? I can't function daily at the moment, even showering has to be followed by a 20 min rest and hanging up washing takes forever as I have to rest my arms in between each garment! Don't get me wrong, I can do without this but I want to be able to live a fairly normal daily life.
Thanks for any advice x x