Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

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All posts for March 2020

COVID-19 Risk Assessment ( VUK )

https://www.vasculitis.org.uk/news/coronavirus-covid-19 There is a new COVID19 ...
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Moderator

Advice on Shielding

Hi All I have yet to get a letter telling me I'm high risk but am on rituximab a...
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Cancelled Treatment

I have had GPA for four years and have changed from AZA to Rituximan infusions a...
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Chart to work out if you are high risk

Please see picture it might help some people sort out weather you are high risk ...
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Email from PatientMPower

Has anyone received an email from PatientMPower asking for name DOB Consultants ...
Longwilloe profile image

Corona virus

Morning all I am trying to clarify if I should have recieved a letter or text. ...
buster1502 profile image

Waitrose priority

Hi there I got an email yesterday from Waitrose which said their records show I ...
2534 profile image

Does My Mom stay incompasated?

Hello- My Mother was diagnosed with Churg Straus in 2018 She stayed incompasated...
Arizona55 profile image

Mepolizumab and C19

My wife has EGPA and currently receives monthly injections of Mepolizumab at the...
Riff1954 profile image

What after 12 Weeks (at least)?

Hi, I understand we should shield for at least 12 weeks to protect ourselves and...

Chemo appointments?

Having read the advice on shielding for vasculitis patients, how do I manage the...
Bowlsjack profile image

How do you train a husband?

As a chemistry undergraduate I was part of a research project trying to reproduc...
BronteM profile image

With MPA vasculitis

What does 'shielding' entail?
trebar profile image

Red marks on body

Hey guys I’ve got red marks appearing on my chest upper arms and back, it’s seem...
Liverpool05 profile image

NHS notifications

Hi I hope you’re all staying safe. Has anyone had the nhs notification of being ...
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Coronavirus COVID-19 useful links for those who have a diagnosis of Vasculitis.

Clinical guide for the management of rheumatology patients during the coronaviru...
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Moderator

Guidance for Vasculitis Patients - COVID19

https://www.vasculitis.org.uk/news/coronavirus-covid-19 March 21st and March 22...
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Moderator

What to do (although I think I know what to do)!

I have Tak (all be it in drug remission) and am on the dreaded but wonderful Met...
PaddyPop profile image

Mothering Sunday concert

Just had a wonderful time being entertained by my grandchildren for Mothering Su...

Vasculitis and immunosuppressants

I have GPA, diagnosed 7 years ago and currently kept under control with azathiop...
MAC12 profile image

Latest information - COVID19 - Government Publication March 21st Guidance on Shielding and Protecting those who are Vulnerable

https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-...
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High risk or not with cerebral vasculitis and the virus

Hi my husband had cerebral vasculitis nearly 7 years ago. He has not been on an...
Simmonds797 profile image

Vasculitis chest probs

Hi had my first infusion of rituximab days ago, not expecting miricles but was w...
Cookyboy1 profile image

Virus Concerns

I have MPA and take MMF daily and have done now for 5 years, currently have redu...
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Online shopping, home delivery, click and collect, first hour in store priority for elderly, disabled, self-isolating

Hi all. I hope you are all holding up during this period of mayhem. My partner...
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Nerve damage, tremors, shaking

How do you know if you have nerve damage with mpa vasculitis? Is that what cause...
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Lincolnshire Support Group

Sandy and I have cancelled the meeting that we had arranged for April 4th at the...

A Change, from Doom & Gloom

Dear All, It's Mother's Day, on Sunday, and I have been Looking/ Working towards...
AndrewT profile image

Coronavirus- self isolation, do I remove my child from school?

What do I do...I'm immune supressed and coronavirus has been confirmed in my tow...
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Scrub-a-dub-dub vasci peeps. Here's how:

https://www.npr.org/sections/health-shots/2020/03/14/811609026/the-new-coronavir...