Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for January 2021

Newbie with possible vasculitis

*waves* this may be a long story, but I'll try to keep it as short as possible! Diagnosed with Autoimmune hepatitis in 2006 aged 15. Plodded along on...

*waves* this may be a long story, but I'll try to keep it as short as possible! ...

•4 years ago

1st covid vaccine booked

Hi I am currently taking mycophenolate and prednisolone I was diagnosed in November. I am booked in for my 1st covid vaccine on Monday 1st February. Has anyone...

Hi I am currently taking mycophenolate and prednisolone I was diagnosed in Novem...

•4 years ago

Covid-19 vaccination booking

I may be telling you something you already know but you can book your vaccination at one of the centres using the NHS website. This is without needing a letter...

I may be telling you something you already know but you can book your vaccinatio...

Chris-Bromsgrove

•4 years ago

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CRP

Hi all, I just wondered if anyone has had a similar experience to this. I have MPA and haven’t been on any meds since April 2019 and have been in remission...

Hi all, I just wondered if anyone has had a similar experience to this. I have M...

•4 years ago

GPs CAN NOW OFFER COVID VACCINES TO PATIENTS WITH HISTORY OF ANAPHYLAXIS, NHS ENGLAND HAS SAID

ARTICLE FOUND ON PULSETODAY.CO.UK BY CONSTANZ PEARCE 05 JAN 2021

ARTICLE FOUND ON PULSETODAY.CO.UK BY CONSTANZ PEARCE 05 JAN 2021

Pollynolongerinagony

•4 years ago

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Muscle pain

Hi. I've developed upper arm uncle pain which is more noticeable when I reach out for something. I have GPA and have been in remission for a few years now. I...

Hi. I've developed upper arm uncle pain which is more noticeable when I reach ou...

•4 years ago

Is Granulomatosis with polyangiitis (GPA) relapse after every 2 years??

I am suffering from Granulomatosis with polyangiitis (GPA) from past 7 years now. It is non curable disease yet controllable from medicines if treated on right...

I am suffering from Granulomatosis with polyangiitis (GPA) from past 7 years now...

•4 years ago

Covid-19 vaccinations and Vasculitis

https://www.vasculitis.org.uk/news/covid-19-vaccinations-and-vasculitis

https://www.vasculitis.org.uk/news/covid-19-vaccinations-and-vasculitis

Moderator•4 years ago

ms diagnosis but now looks like it might be egpa

Since June i have had multiple steroid courses for asthma and many hospitalisations with little positive effect from use of inhalers. I had a broncoscopy in...

Since June i have had multiple steroid courses for asthma and many hospitalisat...

•4 years ago

Vasculitis and COVID Vaccine

Hi everybody, we are now further down the road regarding vaccinations from my last post on the subject, however I am still having difficulty finding...

Hi everybody, we are now further down the road regarding vaccinations from my la...

•4 years ago

Shielding

Hi I was diagnosed with cerebral vasculitis 14 years ago. At that time I became quite poorly and had steroids infused every 12 weeks over 3 days. I do still...

Hi I was diagnosed with cerebral vasculitis 14 years ago. At that time I became ...

•4 years ago

Muscle weakness/shakes - vasculitis or steroids?

Seen contradictory things as to whether weakness and shakes are down to the vasculitis or steroids. Diagnosed with GPA in August, on prednisolone and...

Seen contradictory things as to whether weakness and shakes are down to the vasc...

•4 years ago

Having to start at 60 mg prednisone all over again, two years later.

I was dx PMR in 2/2019 with high suspicion of GCA. GCA Biopsy never completed due to subsequent cardiac stent and early lung cancer dx. Both treated. Good...

I was dx PMR in 2/2019 with high suspicion of GCA. GCA Biopsy never completed ...

•4 years ago