Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,779 members • 6,751 posts

All posts for June 2019

In May 2019 Vasculitis UK held their Annual AGM and Support Meeting.

The VUK AGM was held once again in Derbyshire and was attended by approximately 70 people. Dorothy Ireland, the new chair of VUK, welcomed old and new friends...

The VUK AGM was held once again in Derbyshire and was attended by approximately ...

Moderator•5 years ago

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In May 2019 volunteers from Vasculitis UK took part in two separate Vasculitis Medical Education Workshops in Manchester.

Vifor Pharma along with Shanali Perera held an ANCA Vasculitis Resource Evaluation Workshop in Manchester. It was attended by 4 patient volunteers and 1 carer....

Vifor Pharma along with Shanali Perera held an ANCA Vasculitis Resource Evaluati...

Moderator•5 years ago

In May 2019 Vasculitis UK were represented at both the British Society for Rheumatology & Royal College of Nursing Annual Conferences.

There will be a full report in the VUK Autumn Newsletter but for now if you follow this link it will give a brief summary and photos of both Conferences....

There will be a full report in the VUK Autumn Newsletter but for now if you foll...

Moderator•5 years ago

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experiences of Steroid injections and Turmeric

Has anyone had any experience of a steroid injection? I have been suffering from sciatica for 6 weeks ( missed the vasculitis AGM because of it! ) . After a...

Has anyone had any experience of a steroid injection? I have been suffering from...

•5 years ago

Donating your body to medical science

Hi folks, I discussed this topic some 6 months ago on here. The thread still exists and created some interest. Im sorry I havnt got back to any of you...

Hi folks, I discussed this topic some 6 months ago on here. The thread still exi...

•5 years ago

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Insomnia

Hello, does anyone know if it is possible to take Amitriptyline 10 mg and zoplicone 3.75 mg together? Stopped Amitriptyline a while ago as wasn’t helping with...

Hello, does anyone know if it is possible to take Amitriptyline 10 mg and zoplic...

•5 years ago

Leaflets

Where do you get the leaflets for RV please as I would like to learn more about this disease.

Where do you get the leaflets for RV please as I would like to learn more about ...

•5 years ago

New to Vasculitis

Hi, I am on here to see if anyone can share their knowledge for Rheumatoid vasculitis, the Dr reckons this is something that I may have and I am seeing a...

Hi, I am on here to see if anyone can share their knowledge for Rheumatoid vascu...

•5 years ago

Mycophenolate

I’m due to start mycophenolate next week due to continuous side effects of the methotrexate injections. Would love to hear your experiences. Was also wondering...

I’m due to start mycophenolate next week due to continuous side effects of the m...

•5 years ago

I'm up the 'Stupid Tree' again!

Dear Fellow 'Stupiders'......Everyone?, My Mother just Dropped Me Off, at my home and, as she left I noticed some Fluid, coming from underneath the car. I...

Dear Fellow 'Stupiders'......Everyone?, My Mother just Dropped Me Off, at my hom...

•5 years ago

Structured exercise

Does anyone have a link to a structured exercise programme to address fatigue? My husband has GPA and is doing really well, he would like to regain some of...

Does anyone have a link to a structured exercise programme to address fatigue? M...

•5 years ago

West Country Vasculitis Support Group Summer BBQ

We will be holding a bbq on Sunday 14th July from 1.00 in Shaldon, near Teignmouth, Devon. If you would be interested in coming along please contact me and...

We will be holding a bbq on Sunday 14th July from 1.00 in Shaldon, near Teignmou...

•5 years ago

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Methotrexate v Azathioprine

My rheumatologist is keen for me to take methotrexate instead of Azathioprine which I tolerate very well. Apart from being told it’s an excellent drug to treat...

My rheumatologist is keen for me to take methotrexate instead of Azathioprine wh...

•5 years ago

Sudden 'Trouble' logging In

...........Has anyone else, suddenly Found, that the HU Login has gone 'Strange'- or impossible? I had to Come In, via an answer on Hotmail. If you read this...

...........Has anyone else, suddenly Found, that the HU Login has gone 'Strange'...

•5 years ago

Medication

I have cut out a lot of my medication and picked up so much in 3 weeks I do think a lot of medication prescribed to us counter acts with each other. I know the...

I have cut out a lot of my medication and picked up so much in 3 weeks I do thin...

•5 years ago

HPS & Neurological issues

Hi I have just found out that when I was 3 I had Henoch Schonlein Purpura over a few days my legs went stiff and I turned a funny colour but then after some...

Hi I have just found out that when I was 3 I had Henoch Schonlein Purpura over ...

•5 years ago

Numbness in area after catscan

I recently had a cat scan of my belly and now the whole area is numb to the touch. Is this a normal occurrence or should I seek medical attention? Help!

I recently had a cat scan of my belly and now the whole area is numb to the touc...

Beautifulsoul41

•5 years ago

Patient View

Hi, I was wondering if there is anyone on here from Surrey who uses PatientView. I have been experiencing problems since January receiving my results. They are...

Hi, I was wondering if there is anyone on here from Surrey who uses PatientView....

•5 years ago

Holiday insurance

Morning all Hope everyone well, well little update I'm now been in remission now for 5 mths still need a gd managed dose off 15 mg pred and now 15 mg...

Morning all Hope everyone well, well little update I'm now been in remission no...

•5 years ago