Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for August 2019

People with experience of CKD/chronic kidney disease wanted for an online survey on using digital tech to manage health

Vijay Gc is a researcher based at the University of York. As a part of the wider Wearable Clinic project, they are investigating how digital technologies can...

Vijay Gc is a researcher based at the University of York. As a part of the wide...

Volunteer•5 years ago

Is it just me?

In medical remission (until the next blood test possibly) from Tak. Now on 2mg Pred daily and 12.5 Methotrexate weekly. I usually have a couple of days per...

In medical remission (until the next blood test possibly) from Tak. Now on 2mg ...

•5 years ago

Work colleagues getting vaccinations for peru

I have just learned that some of my work colleagues are going to peru and have been getting a number of vaccinations including vaccinated for hepatitis...

I have just learned that some of my work colleagues are going to peru and have b...

•5 years ago

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End of preds...... Woohoo but!

Has anyone else had the same reaction? I was diagnosed in 2017 with GPA. I have had some flares and relapses over the last couple of years and have been on a...

Has anyone else had the same reaction? I was diagnosed in 2017 with GPA. I have ...

•5 years ago

I'm going Away, for a few days

Dear All, I'm going away, for few days, them I'm back then I'm Away Again. My Internet Access will be limited- partly Deliberately, I'll admit. Talk to you...

Dear All, I'm going away, for few days, them I'm back then I'm Away Again. My In...

•5 years ago

Hidden Disability Sunflower Lanyard

Hi, I just wanted to share with you all what I have just learned. Forgive me if you've heard about this before. Apparently there is a scheme that helps people...

Hi, I just wanted to share with you all what I have just learned. Forgive me if...

•5 years ago

Probably a 'Stupid' question, but Most Important.

Dear All, I have heard on these 'Forums', and elsewhere, about 'Trolls'- I assume that's how it's spelt. My question is this...Are these the Nasty 'On line'...

Dear All, I have heard on these 'Forums', and elsewhere, about 'Trolls'- I assum...

•5 years ago

Churg Strauss - stopping Rituximab?

I am being treated here in France for Churg Strauss with 6 monthly infusions of Rituximab (I think it is called something slightly different in the uk). To my...

I am being treated here in France for Churg Strauss with 6 monthly infusions of ...

•5 years ago

Syncope

I have hypocomplementemic Urticarial Vasculitis. I recently have had episodes of syncope and uncontrollable hypertension. I can’t stand up for very long or...

I have hypocomplementemic Urticarial Vasculitis. I recently have had episodes of...

•5 years ago

LVV and Graves disease?

Hi, I have LVV GCA diagnosed by PET scan in November 2018. Same scan also showed a large goitre. I knew had one but not 'large'. Recently it has been growing...

Hi, I have LVV GCA diagnosed by PET scan in November 2018. Same scan also showed...

•5 years ago

Pain

Hi just wondering if anyone else with large vessel vasculitis finds the only way to reduce the pain is lying flat?? Nothing else seems to help me, it doesn’t...

Hi just wondering if anyone else with large vessel vasculitis finds the only way...

•5 years ago

CONTINUED

REST OF RESULTS

REST OF RESULTS

•5 years ago

CONTINUED

REST OF RESULTS

REST OF RESULTS

•5 years ago

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NEED SOME HELP !

SO I WAS HAVING KIDNEY PROBLEMS CAUSING ME SEVERAL VISITS TO THE E.R TO FIND THERE were FOUR LARGE STONES WHICH I WOUND UP PASSING AT HOME. ON THE MRI REPORT...

SO I WAS HAVING KIDNEY PROBLEMS CAUSING ME SEVERAL VISITS TO THE E.R TO FIND THE...

•5 years ago

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Kidney transplant

My husband’s GFR was 15 on his last blood test. The doctor is saying he should go on a transplant list. I heard that the immune suppressant drugs after the...

My husband’s GFR was 15 on his last blood test. The doctor is saying he should g...

•5 years ago

PET-CT Scan for LVV

Hi all, I am suspected of having LVV, specifically Takayasu Arteritis. My rheumatologist is letting me choose between a PET-CT Scan or an MRA. I don’t know...

Hi all, I am suspected of having LVV, specifically Takayasu Arteritis. My rheum...

•5 years ago

C-ANCA PR3 readings

Hi Everybody, I have no symptoms of anything and feel pretty good. As part of my diabetes management I have regular blood tests. For the last couple of years...

Hi Everybody, I have no symptoms of anything and feel pretty good. As part of my...

•5 years ago

LVV pain

Hi recent diagnosis of LVV , crp this week in normal range,but still experiencing a lot of pain. If the inflammation is settled any ideas on what causes the...

Hi recent diagnosis of LVV , crp this week in normal range,but still experiencin...

•5 years ago

EGPA & Night sweats

Does anyone still get severe night sweats even though your EGPA is in remission?

Does anyone still get severe night sweats even though your EGPA is in remission...

•5 years ago

Vasculitis / Vat.

I am about to have a downstairs toilet and shower / wet room extension built, as at times when not feeling to good , I find having to go upstairs a trial , I...

I am about to have a downstairs toilet and shower / wet room extension built, a...

•5 years ago

Swollen muscles

I was diagnosed with HUVS last year . Since then l have taken colchicine and hydroxychloroquine. . Finally being diagnosed l was very optimistic, but l am...

I was diagnosed with HUVS last year . Since then l have taken colchicine and hy...

•5 years ago

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Vasculitis specialist clinic

Hi recently diagnosed with LVV ,was wanting to know how to get referral to a specialist vasculitis clinic, under rheumatologist but at a very small local...

Hi recently diagnosed with LVV ,was wanting to know how to get referral to a spe...

•5 years ago