Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for January 2014

Estermann Field Vision test

Has anyone sat this test at all, I believe it is to do with loosing your driver's licence. The only thing is I have a lazy eye and this test is done with both...

Has anyone sat this test at all, I believe it is to do with loosing your driver'...

Sima1952

•10 years ago

6 Replies

West Yorkshire Support Group Meeting

The Spring meeting of the West Yorkshire Support Group is to be held on Sunday 30th March at the Gomersal Park Hotel, Cleckheaton It will start at 1.30 till...

The Spring meeting of the West Yorkshire Support Group is to be held on Sunday...

LynneJ

Vasculitis UK•10 years ago

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Lincolnshire VSG meeting Sunday 2nd March.

An informal get together over a splendid cooked lunch has been arranged at our usual venue - the Thorald Arms pub, High St., Harmston, 12 noon for 12.30pm....

An informal get together over a splendid cooked lunch has been arranged at our u...

PatriciaAnn

•10 years ago

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Does anybody know when the next vasculitis meeting at The Royal Liverpool hosp is please ??

fillyhome

•10 years ago

4 Replies

Holly will be interviewed on Radio Leeds about Rituximab

Do you live in the Leeds and surrounding areas? Are you in range of BBC Radio Leeds? If so make a note to listen to the Breakfast programme on Wednesday 5th...

Do you live in the Leeds and surrounding areas? Are you in range of BBC Radio Le...

PatriciaAnn

•10 years ago

2 Replies

Returning to work update/ hair loss

It's been a long year and I've go back to swimming 2 a week so am hopeful of shedding the 4stones I put on. I had my health assessments with capita. The Dr...

It's been a long year and I've go back to swimming 2 a week so am hopeful of she...

rrahman

•10 years ago

1 Reply

Has anyone had a nasal biopsy because of their vasculitis?

I don't think I've had any biopsy of any sort as a helping confirmation of my GPA vasculitis diagnosis feb 2013. (I think the fact i had every other symptom...

I don't think I've had any biopsy of any sort as a helping confirmation of my GP...

rrahman

•10 years ago

7 Replies

Has anyone on steriods for a long time had the Denosurnab injection for osteoporosis

Justjudes3824

•10 years ago

6 Replies

How to take Imuran?

I was wondering is it safe to take Prednisone and Imuran together at the same time, or should I wait couple of hours after taking Prednisone?

I was wondering is it safe to take Prednisone and Imuran together at the same ti...

wg612

•10 years ago

12 Replies

Have you had your eyes tested recently?

My eyes have felt a bit odd over the last few weeks, and I'm definitely not seeing as well as I did. So - rang the optician. But was told that as I'd had a...

My eyes have felt a bit odd over the last few weeks, and I'm definitely not seei...

BronteM

•10 years ago

28 Replies

MPA with Aorta involvement

Hi All, Latest confused question ;-) I have MPA but a recent MRI on my heart has shown some damage to the Aorta, indicating a large vessel vasculitis. Has...

Hi All, Latest confused question ;-) I have MPA but a recent MRI on my heart has...

JaneLE

Administrator•10 years ago

2 Replies

Negative Anca, normal antibeta 2 glycoprotein and started with seizures

Hi folks not sure what I'm looking for to be honest but wanted to put a post on here. Have been told over the years I have vasculitis, lupus and APS, I'm also...

Hi folks not sure what I'm looking for to be honest but wanted to put a post on ...

annie330

•10 years ago

6 Replies

Cambridge News today - Life-saving drug gets UK approval after support from Addenbrooke's consultant

http://www.cambridge-news.co.uk/Health/Health-news/Life-saving-drug-gets-UK-approval-after-support-from-Addenbrookes-consultant-20140128060858.htm

http://www.cambridge-news.co.uk/Health/Health-news/Life-saving-drug-gets-UK-appr...

Suzym2u

Moderator•10 years ago

2 Replies

thankyou V.UK

just wanted to say thanks to John, Susan and everyone who worked so hard to help get rituximab accepted. regards, sandra.

just wanted to say thanks to John, Susan and everyone who worked so hard to help...

hamble99b

Volunteer•10 years ago

6 Replies

Fantastic piece in the Mail Online, Female page

Read about Holly Hampshire, who used to be a V-UK Trustee. Holly's is a truly inspirational story for all young women with vasculitis:...

Read about Holly Hampshire, who used to be a V-UK Trustee. Holly's is a truly in...

PatriciaAnn

•10 years ago

5 Replies

V-UK January e-News

If you haven't received your copy of the January e-News you can now view it on the V-UK website. Just go to this page and scroll down to the e-News PDFs to...

If you haven't received your copy of the January e-News you can now view it on t...

PatriciaAnn

•10 years ago

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Hi I'm new to this but I got diagnosed with h.u.v.s in 2010 does anyone else have this if so how are you doing ?

tmd74

•10 years ago

15 Replies

C anca positive 40 - hospital says. Low level so not wg..still plagued by sinus trouble, dry nose etc..can i be sure? My mum died of wg

One hospital said its positive, another says its too low to be positive..i dont undertstand the levels of tilter?

One hospital said its positive, another says its too low to be positive..i dont ...

Tinkytink

•10 years ago

8 Replies

in feb. last year,when having my second course of cyclo due to a flare, my legs became very weak,i tried exercise,water aerobics, because it

supposed to be easy on the joints, two sessions later, total exhaustion and badly aching knees,and legs giving way on me, hoped the mycophenalate would help,...

supposed to be easy on the joints, two sessions later, total exhaustion and badl...

gsmith

•10 years ago

5 Replies

Anybody been told the same? Diagnosed with Leukocytoclastic vasculitis few months ago & now been told that from my most recent bloods

i have Rheumatoid Arthritis & that is what is causing my vasculitis, have been referred back to the rheumatologist so yet again now waiting for appointment to...

i have Rheumatoid Arthritis & that is what is causing my vasculitis, have been r...

nesbitt

•10 years ago

2 Replies

NICE tweeted this article this morning. "NHS patients should be more pushy with their GP's"

http://www.telegraph.co.uk/health/nhs/10595806/NHS-patients-should-be-pushy-with-GPs-about-treatment-and-drugs-says-health-chief.html

http://www.telegraph.co.uk/health/nhs/10595806/NHS-patients-should-be-pushy-with...

Suzym2u

Moderator•10 years ago

3 Replies

VASCULITIS UK - JANUARY e-NEWS

I have just sent out an e-News to everyone in the e-News address book. The e-News is full of lots of interesting things, including the link to read more about...

I have just sent out an e-News to everyone in the e-News address book. The e-New...

PatriciaAnn

•10 years ago

3 Replies

UK's NICE Gives the Green Light to Rituximab

NICE has issued new Guidelines approving the use in the NHS of rituximab (MabThera) in treating the two most common types of ANCA vasculitis...

NICE has issued new Guidelines approving the use in the NHS of rituximab (MabThe...

Suzym2u

Moderator•10 years ago

11 Replies

Race for life raising money for VUK

I've took the bull by the horns and booked myself onto the Clumber Park 5k Race For Life on June 21st. VUK has been very supportive during the last year, and...

I've took the bull by the horns and booked myself onto the Clumber Park 5k Race ...

3113nettie

•10 years ago

4 Replies

could all these be related

hello my wife started with a skin rash november time saw the skin dr who did tests and has said she has vasculitis had a load more blood tests and due to go...

hello my wife started with a skin rash november time saw the skin dr who did tes...

jellly

•10 years ago

24 Replies

Interesting article on use of Lansoprazole on Inside Health (Radio 4) this afternoon.

I just happened to hear this in the car this afternoon. The link to the programme transcript is attached below. You need to scroll down to the last interview...

I just happened to hear this in the car this afternoon. The link to the programm...

Chris-Bromsgrove

•10 years ago

11 Replies

Can anyone help with cerebral vasculitis?

My husband who is a very active hardworking 51 year old was diagnosed with cerebral vasculitis 4 months ago. Was in an induced coma for 3 1/2 weeks, has had 6...

My husband who is a very active hardworking 51 year old was diagnosed with cereb...

Simmonds797

•10 years ago

26 Replies

Depression Higher Than Previously Reported in People With Severe Rheumatoid Arthritis - An interesting study

This came through today, it makes interesting reading....

Suzym2u

Moderator•10 years ago

Be the first to reply

update on today

well visit to the renal dept bloods taken and BP checked up a bit but that was probably my white coat syndrome. He was happy for me to return to work as long...

well visit to the renal dept bloods taken and BP checked up a bit but that was p...

molliecatone

•10 years ago

1 Reply

possible bedroom tax loophole

there seems to be a loop hole in the new bedroom tax, some people may have been mis-charged. please follow this link if the bedroom tax has affected you.....

there seems to be a loop hole in the new bedroom tax, some people may have been...

hamble99b

Volunteer•10 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for January 2014

Estermann Field Vision test

West Yorkshire Support Group Meeting

Lincolnshire VSG meeting Sunday 2nd March.

Does anybody know when the next vasculitis meeting at The Royal Liverpool hosp is please ??

Holly will be interviewed on Radio Leeds about Rituximab

Returning to work update/ hair loss

Has anyone had a nasal biopsy because of their vasculitis?

Has anyone on steriods for a long time had the Denosurnab injection for osteoporosis

How to take Imuran?

Have you had your eyes tested recently?

MPA with Aorta involvement

Negative Anca, normal antibeta 2 glycoprotein and started with seizures

Cambridge News today - Life-saving drug gets UK approval after support from Addenbrooke's consultant

thankyou V.UK

Fantastic piece in the Mail Online, Female page

V-UK January e-News

Hi I'm new to this but I got diagnosed with h.u.v.s in 2010 does anyone else have this if so how are you doing ?

C anca positive 40 - hospital says. Low level so not wg..still plagued by sinus trouble, dry nose etc..can i be sure? My mum died of wg

in feb. last year,when having my second course of cyclo due to a flare, my legs became very weak,i tried exercise,water aerobics, because it

Anybody been told the same? Diagnosed with Leukocytoclastic vasculitis few months ago & now been told that from my most recent bloods

NICE tweeted this article this morning. "NHS patients should be more pushy with their GP's"

VASCULITIS UK - JANUARY e-NEWS

UK's NICE Gives the Green Light to Rituximab

Race for life raising money for VUK

could all these be related

Interesting article on use of Lansoprazole on Inside Health (Radio 4) this afternoon.

Can anyone help with cerebral vasculitis?

Depression Higher Than Previously Reported in People With Severe Rheumatoid Arthritis - An interesting study

update on today

possible bedroom tax loophole

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