Help needed for a proposed research study. - Vasculitis UK

Vasculitis UK

7,865 members6,893 posts

Help needed for a proposed research study.

Suzym2u profile image
Suzym2uModeratorVasculitis UK
2 Replies

To support a proposed research study into access to timely and coordinated specialist care for vasculitis patients, we urgently need very brief accounts of people's negative experiences of delayed recognition and diagnosis or uncoordinated or inappropriate care.

Maximum 100 words by mid-night Tuesday 29th August!! So no pressure!!

No replies will be accepted here in HealthUnlocked community only replies sent by email to John.mills@vasculitis.org.uk or susan@vasculitis.org.uk

Thank you

Written by
Suzym2u profile image
Suzym2u
Moderator
To view profiles and participate in discussions please or .
2 Replies
Suzym2u profile image
Suzym2uModeratorVasculitis UK

Thank you for the emails up to this evening.

Suzym2u profile image
Suzym2uModeratorVasculitis UK

Just wanted to say thank you for all the emails John has received. He has received over 30 emails. 😊 so he has enough evidence for this particular research study now. 😊

Not what you're looking for?

You may also like...

Invitation to participate in a study

Vasculitis UK is supporting this study and we would welcome those eligible to take the opportunity...
zoe69 profile image
Moderator

Your help is needed - experiences of Avacopan

VasculitisUK are looking for real life patient experiences of Avacopan. If you have #Vasculitis and...
John_Mills profile image
Volunteer

Your help needed again please - health care during the COVID19 pandemic

Susan has been asked to ask in the group if there are any issues anyone is experiencing in relation...
John_Mills profile image
Volunteer

Do you feel your present health status would have been better if you had:

a) Been diagnosed earlier b) received more appropriate treatment and care c) or both Please leave...
John_Mills profile image
Volunteer

We are looking for your help please. Do you speak French, German or Spanish?

Vasculitis UK are looking for people who are fluent in other European foreign languages to help...
John_Mills profile image
Volunteer

Moderation team

See all
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator
Charlie_Harper profile image
Charlie_HarperAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.