Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for March 2018

Rash?! Sun, drugs or something else??

Hi all, I’m being treated for GPA with rituximab infusions and steroids, currently 20mg a day down from 60mg a day. I’ve developed a rash that started on my...

Hi all, I’m being treated for GPA with rituximab infusions and steroids, curren...

Wengle82

•7 years ago

5 Replies

Is this a Relapse?

Quick recap. Diagnosed with MPA Wegeners in Oct 2015 and put onto Prednisolone and Mycophenolate. Prednisolone was reduced and stopped by early 2017 but...

Quick recap. Diagnosed with MPA Wegeners in Oct 2015 and put onto Prednisolone a...

tisme2

•7 years ago

18 Replies

This Time Next Year - TV Programme

Just wanted to share this video clip ...... Our very lovely friend Jayne is going to one of the stars in this tv programme, “This time next year” . Jayne was...

Just wanted to share this video clip ...... Our very lovely friend Jayne is goin...

John_Mills

Volunteer•7 years ago

8 Replies

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Uticarial vasculitis swelling red hives multiple allergies foods meds skin irritation now numbness n hands fingers shooting pains .

Started with hives red rashes allergic reaction swelling of lips hard to breathe now I have food allergies medicine allergies swelling numbness in fingers...

Started with hives red rashes allergic reaction swelling of lips hard to breathe...

Btr0484

•7 years ago

Be the first to reply

Prescriptions, be careful

I had a, very 'Strange', experience recently regarding my Prescription Drugs. I recently changed GP Surgeries, the best 'Move' I have ever made, and 'Signed...

I had a, very 'Strange', experience recently regarding my Prescription Drugs. I ...

AndrewT

•7 years ago

2 Replies

Disability

I am in the U.S. I was diagnosed with anca vasculitis mpa in May 2017 I have gone through 6 mos of cyclophosphamide and heavy doses of prednisone. I am...

I am in the U.S. I was diagnosed with anca vasculitis mpa in May 2017 I have gon...

Retire3603

•7 years ago

9 Replies

I am looking the link between smoking, giving up smoking and autoimune disorder such as vasculit / hsp

Could u reply bellow questions please Firstly what is the sickness u have? how long before it started? aproximately how old are u? 30s 40s sth like that Are u...

Could u reply bellow questions please Firstly what is the sickness u have? how l...

sevda12

•7 years ago

5 Replies

How many years have you got vasculitis?

Hello everyone, to get an idea of the outcome of these diseases I would like to know how many years you have been diagnosed with Vasculitis, what kind of...

Hello everyone, to get an idea of the outcome of these diseases I would like t...

Wizzi

•7 years ago

36 Replies

Can Antidepressants Cause Vasculitis?

I am new here and trying to find out if my Vasculitis is drug induced. I was recently diagnosed with Urticarial Vasculitis. I have been using Citalopram to...

I am new here and trying to find out if my Vasculitis is drug induced. I was rec...

WinJ3

•7 years ago

6 Replies

Possible kidney, liver, and sinus issues— still no answers

Hi All, My recent round of labs showed some elevations, specifically: ALT, Alk Phos, BUN/Creatinine, CRP, blood in urine with slightly low specific gravity....

Hi All, My recent round of labs showed some elevations, specifically: ALT, Alk ...

Canygirl61

•7 years ago

17 Replies

Imiquod Cream Just pescribed for multiple small skin cancers; No certainty if safe and effective for those with immune system disorders.

In addition to vasculitis and GCA,and being trated with 12 mg methylpred per day and 15mg. Methotrexate once a week, I imagine I am immunosupressed. I also...

In addition to vasculitis and GCA,and being trated with 12 mg methylpred per day...

Alliand

•7 years ago

3 Replies

West Yorkshire Vasculitis Support Group Meeting

Hi Everyone, Our next West Yorkshire vasculitis support group meeting will be at the Gomersal Park Hotel as usual on Sunday the 22nd of April between 1:30pm...

Hi Everyone, Our next West Yorkshire vasculitis support group meeting will be a...

RichardE

Volunteer•7 years ago

1 Reply

York Vasculitis Support Group Meeting

Hi everyone, Our next York vasculitis support group meeting will be at Huntington Memorial Hall as usual on Sunday the 15th of April between 2:30pm and......

Hi everyone, Our next York vasculitis support group meeting will be at Huntingto...

RichardE

Volunteer•7 years ago

1 Reply

Vasculitis

Hi I just got vasculitis in may 2017 initially I thought it was pneumonia but later on i got admitted doctors told I have avelour heomarroge in which u get...

Hi I just got vasculitis in may 2017 initially I thought it was pneumonia but la...

Dineshbothra123

•7 years ago

11 Replies

Bruising on leg

Hi everyone, it's been a couple of months since i've been on here and l have a question which hopefully one of you can answer for me please. I've had a badly...

Hi everyone, it's been a couple of months since i've been on here and l have a ...

Sima1952

•7 years ago

5 Replies

Anyone had a cochlear implant?

I have vasculitis (Royal Free Hospital refuses to commit to which one, but says ‘maybe Wegner’s’). I am losing my hearing and powerful hearing aids are no...

I have vasculitis (Royal Free Hospital refuses to commit to which one, but says...

dinahg

•7 years ago

2 Replies

Anti-rejection Meds

Hi, Has or does anyone take anti-rejection meds and experience thinning hair? Had my Kidney Transplant on 11-16-17, just wondering what I can use or help new...

Hi, Has or does anyone take anti-rejection meds and experience thinning hair? H...

Hidden

•7 years ago

6 Replies

GPA and sinuses

Would anyone be so kind as to share their experience with GPA (or other autoimmune disease) sinus involvement? I'm in "undiagnosed limbo" and am struggling...

Would anyone be so kind as to share their experience with GPA (or other autoimmu...

Canygirl61

•7 years ago

14 Replies

Antinflammatory Diet for Severe Bloating Pulminary Sarcoidosis

Just wanting to know if there are any good healthy foods to help with massive bloating of the abdomen since being on prednisone. I had no stomach before. Have...

Just wanting to know if there are any good healthy foods to help with massive bl...

Bodhiforevermine

•7 years ago

4 Replies

Need to be diagnosed

Hello! I have not yet been diagnosed but the doctor threw out that he thinks this could be the beginning stages of vasculitus. I've been trying to find...

Hello! I have not yet been diagnosed but the doctor threw out that he thinks th...

Merelanew

•7 years ago

9 Replies

Iodine Contrast - content

I had swelling of the feet within a few days after CT with iodine with contrast. This could be coincidence but the following link states that some contrast...

I had swelling of the feet within a few days after CT with iodine with contrast....

BeesMom

•7 years ago

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HSP with kidney damage - bcs of cold, tonsilit

I am diagnosed hsp when I was 11 years old, and it attacked when I was 35, and 40. I have kidney problem, loss of protein since 2nd atackt. Now I am using...

I am diagnosed hsp when I was 11 years old, and it attacked when I was 35, and 4...

sevda12

•7 years ago

3 Replies

Rituximab

Hi all i was diagnosed with ANCA Vasculitis which left me with Stage 3/4 CKD and following other treatments and medication i have been given rituximab 3 times...

Hi all i was diagnosed with ANCA Vasculitis which left me with Stage 3/4 CKD and...

Keithtim10

•7 years ago

5 Replies

West Country Vasculitis Support Group Lunch

Our next lunch is booked for Sunday 22nd April 12.00 - 3.00 ish The Smugglers Inn 27 Teignmouth Rd, Dawlish EX7 0LA As always the lunch is open to those...

Our next lunch is booked for Sunday 22nd April 12.00 - 3.00 ish The Smugglers ...

DevonLottie

•7 years ago

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EGPA

Hi, anyone with EGPA who can share their experience of the disease. I was diagnosed 18 months ago and just been told I'm in remission but still on 12mg a week...

Hi, anyone with EGPA who can share their experience of the disease. I was diagno...

Ovens61

•7 years ago

11 Replies

Bad reflux

Bad Reflux. I have been 4 weeks on Methotrexate now at 17 mg 1x a week and 6 wks on Prednisone now at 16 mg. The acid reflux began 3 weeks ago and is so bad...

Bad Reflux. I have been 4 weeks on Methotrexate now at 17 mg 1x a week and 6 wk...

PattyMPA

•7 years ago

8 Replies

NICE are looking for patient experts for the NICE Scientific Advisory Panel for GCA

The experience we are looking for in these patient experts - It could also involve attending a meeting in London at some stage. We are looking for someone...

The experience we are looking for in these patient experts - It could also invo...

John_Mills

Volunteer•7 years ago

3 Replies

Prognosis MPA

I am hoping to enter into a contract in France on a property. I suffer from MPA. I cannot enter into the contract if MPA is regarded as a "life limiting"...

I am hoping to enter into a contract in France on a property. I suffer from MPA....

amms43

•7 years ago

5 Replies

Good news for GCA

Tocilizumab has been approved by NICE for the treatment of GCA in certain circumstances...

Tocilizumab has been approved by NICE for the treatment of GCA in certain circum...

Hidden

•7 years ago

3 Replies

Date for your Diary - Vasculitis UK AGM April 29th 2018

Please follow this link for more information. Full programme will be published very shortly http://www.vasculitis.org.uk/news/agm-2018-03

Please follow this link for more information. Full programme will be published v...

John_Mills

Volunteer•7 years ago

2 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for March 2018

Rash?! Sun, drugs or something else??

Is this a Relapse?

This Time Next Year - TV Programme

Uticarial vasculitis swelling red hives multiple allergies foods meds skin irritation now numbness n hands fingers shooting pains .

Prescriptions, be careful

Disability

I am looking the link between smoking, giving up smoking and autoimune disorder such as vasculit / hsp

How many years have you got vasculitis?

Can Antidepressants Cause Vasculitis?

Possible kidney, liver, and sinus issues— still no answers

Imiquod Cream Just pescribed for multiple small skin cancers; No certainty if safe and effective for those with immune system disorders.

West Yorkshire Vasculitis Support Group Meeting

York Vasculitis Support Group Meeting

Vasculitis

Bruising on leg

Anyone had a cochlear implant?

Anti-rejection Meds

GPA and sinuses

Antinflammatory Diet for Severe Bloating Pulminary Sarcoidosis

Need to be diagnosed

Iodine Contrast - content

HSP with kidney damage - bcs of cold, tonsilit

Rituximab

West Country Vasculitis Support Group Lunch

EGPA

Bad reflux

NICE are looking for patient experts for the NICE Scientific Advisory Panel for GCA

Prognosis MPA

Good news for GCA

Date for your Diary - Vasculitis UK AGM April 29th 2018

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