Posts - Vasculitis UK | HealthUnlocked

I have difficulty bending down. When i get up from a chair or bed I am like a cripple person. anyone have this problem?

Moderator•10 years ago

2 Replies

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i have been off predesone for 5 months, I now have joint pain in my back, knees and shoulder. I have difficultly walking up stairs.

I have difficulty bending down. When i get up from a chair or bed I am like a c...

angneil

•10 years ago

7 Replies

Awareness Month Vasculitis Cat - Runner up - Janette and Lindsay

The "runner up" t shirt is a combination of two designs by Lindsay and Janette both ladies are members in the fb support group. As with the first prize, the...

The "runner up" t shirt is a combination of two designs by Lindsay and Janette b...

The Cat is very easy to produce on a t shirt but the added colours on the words might prove a little expensive, so we are having an example t shirt made whilst...

Moderator•10 years ago

4 Replies

Awareness Month Vasculitis Cat design First Prize - Derek

The Cat is very easy to produce on a t shirt but the added colours on the words ...

Having episodes of feeling very unwell but cant really explain how i feel. Latest episode last night which lasted more that twelve hours...i felt a surging...

Moderator•10 years ago

2 Replies

Do my symptoms suggest vasculitis

Having episodes of feeling very unwell but cant really explain how i feel. Lates...

yorkshiregirl44

•10 years ago

15 Replies

Vasculitis UK e-News

The e-News for Vasculitis Awareness Month (May) should have hit your inboxes this morning. If you are down to receive the e-News and it isn't there the please...

The e-News for Vasculitis Awareness Month (May) should have hit your inboxes th...

PatriciaAnn

•10 years ago

4 Replies

Interesting article from Twitter this evening - Arthritis patients want more psychological and emotional support

http://www.arthritisresearchuk.org/news/press-releases/2014/april/arthritis-patients-want-more-psychological-and-emotional-support.aspx

http://www.arthritisresearchuk.org/news/press-releases/2014/april/arthritis-pati...

Moderator•10 years ago

The old friends of the late Andrew Willows of Annersley Woodhouse, Nottingham, are organising a football match to help fundraise for Vasculitis UK....

Football Match in Memory of Andrew Willows this weekend.

The old friends of the late Andrew Willows of Annersley Woodhouse, Nottingham, a...

Moderator•10 years ago

http://www.psychologytoday.com/blog/turning-straw-gold/201312/six-common-misconceptions-about-the-chronically-ill

interesting article

http://www.psychologytoday.com/blog/turning-straw-gold/201312/six-common-misconc...

hamble99b

Volunteer•10 years ago

5 Replies

Hi I am in the early stages of diagnosis &at present have been told by letter its skin vasculitis. But have had nasal/sinus issues since no

2013(virus) have been really ill, exhausted.gp did tests blood, protein in urine vasculitis rash on lower legs, feet. All bloods ok except esr, iga high, igm...

2013(virus) have been really ill, exhausted.gp did tests blood, protein in urine...

sleepy60

•10 years ago

11 Replies

Tingling feelings

Finished 10 cycles of cyclo, remained on 10mg preds..now on 100mg aza...been on aza 6 days starting to get tinging feeling on my hand and feet not sure if...

Finished 10 cycles of cyclo, remained on 10mg preds..now on 100mg aza...been o...

DBH1969

•10 years ago

6 Replies

What is the best method if one is to have an attack in public that renders one unconscious for a passer by to assist or act quickly to help

I have look at a few options an I have my doctors 24 hour number in my wallet but my wind pipe has the ability to completely close and suffocation occurs when...

I have look at a few options an I have my doctors 24 hour number in my wallet bu...

Skipper55

•10 years ago

11 Replies

Interesting autoimmune problem.

http://www.dailymail.co.uk/health/article-2607681/Man-suffered-headaches-10-years-calcium-stones-brain-coeliac-disease.html

http://www.dailymail.co.uk/health/article-2607681/Man-suffered-headaches-10-year...

luggsey

•10 years ago

4 Replies

Finished 7 treatments of Cyclo' ....

.... going on Mycophenolate. What sort of side effects should l look out for.

Sima1952

•10 years ago

7 Replies

Heartburn/indigestion when stopping Omeprazole

I have been taking omeprazole for nearly two years. About three weeks ago I stopped taking prednisolone so don't need to take the omeprazole any more....

I have been taking omeprazole for nearly two years. About three weeks ago I sto...

Mooka

•10 years ago

6 Replies

Anyone been treated with Plaquenil (hydroxychloroquine) subsequently discovering it also helped CNS vasculitis or other systemic vasculitis?

RareLily

•10 years ago

8 Replies

Polymyalgia rheumatica (PMR) or a flare up of my vasculitis/connective tissue disease?

It has recently been suggested by my chiropractor and my orthopaedic surgeon that I may have PMR. I am having an ultrasound to rule out any shoulder injuries....

It has recently been suggested by my chiropractor and my orthopaedic surgeon tha...

SusieMC

•10 years ago

2 Replies

Revised Guidelines for Treatment of Adults with ANCA Associated Vasculitis. (2014 Revision).

After almost two years of careful consideration by a multidisciplinary panel of leading experts in the diagnosis and treatment of vasculitis, the British...

After almost two years of careful consideration by a multidisciplinary panel of...

Moderator•10 years ago

After 18 months in remission I have reason to suspect my MPA is biting back. At the moment I'm not sure so, I would welcome anyone else's experience of flares....

Flaring?

After 18 months in remission I have reason to suspect my MPA is biting back. At ...

Chris-Bromsgrove

•10 years ago

8 Replies

Jessica Does a "Bag Pack" for Vasculitis UK in Blyth, Newcastle

Jessica is 13 and was diagnosed with Central Nervous System Vasculitis 3 years ago. CNSV is an extremely rare type of Vasculitis and is even rarer in Children....

Jessica is 13 and was diagnosed with Central Nervous System Vasculitis 3 years a...

Moderator•10 years ago

Leaflet says not to take omeprazole for too long but have never been told to stop.

I have been taking omeprazole for a few years for heartburn. Now been diagnosed with osteoporosis. Any connection?

Leaflet says not to take omeprazole for too long but have never been told to sto...

retired1949

•10 years ago

13 Replies

Can Vasculitis affect your eyes. I have RA, Sjrogrens, and also Vasculitis. When I have a Vasculitis flare-up, my eyes flare-up too.

I feel run down, even more tired than usual and I get something similar to blood blisters on my elbows, finger joints and knuckles. My eyes become extremely...

I feel run down, even more tired than usual and I get something similar to blood...

L1zzy

•10 years ago

16 Replies

Sign up to participate in Genetic Alliance UK's new project, My Condition, My DNA

The aim of our project is to find out what patients and families think about genomic sequencing. This will involve exploring the ethical, societal and...

The aim of our project is to find out what patients and families think about gen...

Moderator•10 years ago

We just wanted to thank Matt Michelle and Colin for running in the London Marathon today for Vasculitis UK http://www.justgiving.com/MRichards...

London Marathon today

We just wanted to thank Matt Michelle and Colin for running in the London Marath...

Moderator•10 years ago

Ahead of the Easter Bank Holiday weekend people are being asked to be prepared and make sure that they have any repeat medication as many GP surgeries across...

Prescriptions and Medication for the Easter Holiday Break.

Ahead of the Easter Bank Holiday weekend people are being asked to be prepared a...

Moderator•10 years ago

Don't forget to visit the Vasculitis UK website. http://www.vasculitis.org.uk/ There are details about all the vasculitis diseases (written by medical...

Don't forget you can find out lots of information on the Vasculitis UK website

Don't forget to visit the Vasculitis UK website. http://www.vasculitis.org.uk/ ...

PatriciaAnn

•10 years ago

A major online security flaw called "Heartbleed" was recently discovered by a researcher at Google and a Finnish security firm called Codenomicon. You may...

Internet Security Warning - What HealthUnlocked are doing about a world wide security bug named "Heartbleed"

A major online security flaw called "Heartbleed" was recently discovered by a re...

Moderator•10 years ago

Rare Disease UK has been campaigning for Health Departments across the UK to develop a strategy for rare diseases. The UK strategy was launched by the Dept of...

Draft Welsh Implementation Plan for Rare Diseases - Have your say May 14th, Cardiff University Hospital

Rare Disease UK has been campaigning for Health Departments across the UK to dev...

Moderator•10 years ago