Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for April 2013

Does anyone have symptoms wait to show up until you get into bed?

For the last 5 nights, I've gotten into bed and felt my legs, ankles and feet start swelling, throbbing, stinging and even some short bursts of nerve pains...

For the last 5 nights, I've gotten into bed and felt my legs, ankles and feet st...

notsossweets

•12 years ago

11 Replies

Finding Inspiration & Education about Vasculitis

I blog. It's new to me as of October 2012. I want to make a list on my blog of the best blogs for inspiration and education about Vasculitis. Do any of you...

I blog. It's new to me as of October 2012. I want to make a list on my blog of t...

notsossweets

•12 years ago

2 Replies

A flare or just 'symptoms'?

At the beginning of April I swallowed my last 1mg of pred, having started on 30mg for a flare of CSS that began February 2012. Within a week I was experiencing...

At the beginning of April I swallowed my last 1mg of pred, having started on 30m...

laidbackreader

•12 years ago

10 Replies

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Dupuytren's Contracture anyone?

I have got a lump under the ring finger of my left hand. The doctor says it is Dupuytren's Contracture, He says it is not to do with my vasculitis but as it is...

I have got a lump under the ring finger of my left hand. The doctor says it is D...

LynneJ

Vasculitis UK•12 years ago

8 Replies

problems with bladder

Hi Has anyone else had or having trouble weeing ? I drink loads of juice water and tea throw the day But not peeing as much as i use to ! I do go but not...

Hi Has anyone else had or having trouble weeing ? I drink loads of juice water ...

NannyAlli

•12 years ago

6 Replies

I'm new

Hi ..... 7 weeks ago my right eyelid puffed up, it looked very unsightly and I went back and forth to the doctors and was told it was conjunctivitis,...

Hi ..... 7 weeks ago my right eyelid puffed up, it looked very unsightly and I w...

sandy5

•12 years ago

7 Replies

avascular necrosis

Feet problem please let me know if you suffer from avascular necrosis

Juliew123

•12 years ago

5 Replies

Any one suffer from avascular necrosis of the feet?

Juliew123

•12 years ago

1 Reply

Is there a life expectancy with WG ANCA positive?

lilyloo

•12 years ago

3 Replies

Vasculitis UK - Annual General Meeting - 12th May SUNDAY 12th MAY is THE date for your diary, and the date is fast approaching.

The 2013 Annual General Meeting of Vasculitis UK will be held on Sunday 12th May, 12.30pm at the Novotel, Long Eaton, Derbyshire, NG10 4EP. Come along and...

The 2013 Annual General Meeting of Vasculitis UK will be held on Sunday 12th May...

John_Mills

Volunteer•12 years ago

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We Are All Liars!

Do you have chronic illness? Yes? You're a liar. I'm a liar, too. The problem with chronic illness is that it's just that...chronic--always with us. If...

Do you have chronic illness? Yes? You're a liar. I'm a liar, too. The pro...

notsossweets

•12 years ago

7 Replies

MPA in remission - what are these symptoms?

Hi, Could do with a little advise as not sure if I'm panicking for no reason. I have MPA and am on azathioprine and prednisolone, and am officially in...

Hi, Could do with a little advise as not sure if I'm panicking for no reason. ...

JaneLE

Administrator•12 years ago

11 Replies

WG doesn't always wreck your life

I posted on this site that I'm diagnosed WG but not taking meds and was shocked to be told by people on here that I am wrong and should take them - based on no...

I posted on this site that I'm diagnosed WG but not taking meds and was shocked ...

Hidden

•12 years ago

21 Replies

Joint pain and WG

Does anyone have any tips to cope with the joint pain of WG ? The last few days have been so bad, having difficulty walking. I'm taking paracetamol. Did...

Does anyone have any tips to cope with the joint pain of WG ? The last few days ...

Essex-jill

•12 years ago

9 Replies

Does vasculitis increase the risk of DVT?

I've had lupus for years, & recently diagnosed with vasculitic lesions. I've not had chance to discuss this with my rhuemy yet, due to problems with my...

I've had lupus for years, & recently diagnosed with vasculitic lesions. I've not...

roobarb

•12 years ago

12 Replies

UPDATE: Walk the Worcestershire Way 29 June 2013

We now stand at £2,800 raised through Justgiving, with 9 walkers signed up. I know of another 10 or so who are planning on walking who have not set up a...

We now stand at £2,800 raised through Justgiving, with 9 walkers signed up. I k...

Wellsie

•12 years ago

1 Reply

Been on Cyclophosmide for 10 weeks now feeling yuk.

Hi Changed over from MTX & Azathioprine with prednisolone to cyclophosaminde with prednisolone due to a recent Wegners flare. Been on 150mg daily of oral...

Hi Changed over from MTX & Azathioprine with prednisolone to cyclophosaminde...

BrianCrelling

•12 years ago

9 Replies

ESA explanation needed please

After returning my forms today I received a letter today telling me that my ''incapacity benefit'' is changing to. Contribution-based Employment and Support...

After returning my forms today I received a letter today telling me that my ''in...

magcor

•12 years ago

4 Replies

good days and bad days

today is a good day,feel great,but can never seem to string along more than a few good days with this illness how often can anyone else go having good...

today is a good day,feel great,but can never seem to string along more than a fe...

quinnster

•12 years ago

12 Replies

GenomEthics Survey

The Wellcome Trust Sanger Institute has launched an online GenomEthics Survey to collect attitudes on how genetic information gained from research may be used...

The Wellcome Trust Sanger Institute has launched an online GenomEthics Survey to...

RichardE

Volunteer•12 years ago

6 Replies

Please read Kira's story , Kira's is now 9 years old, she has Henoch-Schonlein Purpura

Kira's has written her story for the Autumn Newsletter 2013 https://www.justgiving.com/kira-conroy

Kira's has written her story for the Autumn Newsletter 2013 https://www.justg...

John_Mills

Volunteer•12 years ago

Be the first to reply

Getting the Most out of Doctor Visits

NEW & FREQUENT-FLYER PATIENTS Make a list of your most pressing concerns/symptoms Bring photos (digitally or in print) Bring medical records...

NEW & FREQUENT-FLYER PATIENTS Make a list of your most pressing concerns/sym...

notsossweets

•12 years ago

1 Reply

Vasculitis UK - Annual Financial Report

I thought that some of you may be interested to know that it was the end of the Trust's financial year on 31st March. Presently our books are being examined by...

I thought that some of you may be interested to know that it was the end of the ...

PatriciaAnn

•12 years ago

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First (paediatric) consultation what to expect?

Hi, my little boy has been referred to the periodic fever clinic in Bristol to see a specialist about the possibility of a rare form of Vasculitis. We have...

Hi, my little boy has been referred to the periodic fever clinic in Bristol to s...

Lau85

•12 years ago

3 Replies

Heavy eyelids

I was diagnosed with GPA in early December 2012 and have had 5 lots cyclo and am currently taking 15 mg of prednisolone per day. I have the moon face and my...

I was diagnosed with GPA in early December 2012 and have had 5 lots cyclo and am...

Dirock

•12 years ago

4 Replies

Urine test strips showing blood traces again after being negative for 2 weeks?

I was diagnosed with WG late January 2013 confirmed with kidney biopsy. Because it was caught so early, I was prescribed Methotrexate (beginning at 10 mg and...

I was diagnosed with WG late January 2013 confirmed with kidney biopsy. Because...

brent5k

•12 years ago

8 Replies

16th anca and vasculitis workshop ,paris 14th to 17th april

I am aware,that a few people off this site,attended this would it be possible to attatch a report,so we read what happened,or at least point people in the...

I am aware,that a few people off this site,attended this would it be possible t...

quinnster

•12 years ago

1 Reply

Fungal infection on Finger and Toenails?

I have developed what appears to be a fungal infection on my index and third finger of my left hand with the index nail lifting free from the underlying...

I have developed what appears to be a fungal infection on my index and third fin...

Albasain

•12 years ago

6 Replies

genetic testing

I have UV and although the diagnosis is confirmed, no cause can be found as to why I,m having really nasty flares roughly once a month, To cut a long story...

I have UV and although the diagnosis is confirmed, no cause can be found as to w...

jackrussell

•12 years ago

5 Replies

Excessive Wind

Excessive wind. Funny? On occasions, but most of all its uncomfortable and when the bloating is at its worst, quite distressing. I'm passing wind out of one...

Excessive wind. Funny? On occasions, but most of all its uncomfortable and when ...

MsAscerbic

•12 years ago

3 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for April 2013

Does anyone have symptoms wait to show up until you get into bed?

Finding Inspiration & Education about Vasculitis

A flare or just 'symptoms'?

Dupuytren's Contracture anyone?

problems with bladder

I'm new

avascular necrosis

Any one suffer from avascular necrosis of the feet?

Is there a life expectancy with WG ANCA positive?

Vasculitis UK - Annual General Meeting - 12th May SUNDAY 12th MAY is THE date for your diary, and the date is fast approaching.

We Are All Liars!

MPA in remission - what are these symptoms?

WG doesn't always wreck your life

Joint pain and WG

Does vasculitis increase the risk of DVT?

UPDATE: Walk the Worcestershire Way 29 June 2013

Been on Cyclophosmide for 10 weeks now feeling yuk.

ESA explanation needed please

good days and bad days

GenomEthics Survey

Please read Kira's story , Kira's is now 9 years old, she has Henoch-Schonlein Purpura

Getting the Most out of Doctor Visits

Vasculitis UK - Annual Financial Report

First (paediatric) consultation what to expect?

Heavy eyelids

Urine test strips showing blood traces again after being negative for 2 weeks?

16th anca and vasculitis workshop ,paris 14th to 17th april

Fungal infection on Finger and Toenails?

genetic testing

Excessive Wind

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