Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for April 2019

scam calls

Hi Ian here maybe some help spoke to Bt about my bill mentioned scam calls if you ring 1572 straight after the scam call Bt says it will block any future...

Hi Ian here maybe some help spoke to Bt about my bill mentioned scam calls if y...

brown136

•6 years ago

1 Reply

Pan or not

I have been diagnosed with HUVS for a short time but had the illness without diagnosis for many years . I have not met anyone with this illness . I have tried...

I have been diagnosed with HUVS for a short time but had the illness without dia...

artists

•6 years ago

9 Replies

Vasculitis U.K. Spring Newsletter 2019

Our copy arrived this morning , has anyone else on the VUK mailing list received their copy? We have had a few problems with the mailing list this time. Thank...

Our copy arrived this morning , has anyone else on the VUK mailing list received...

John_Mills

Volunteer•6 years ago

26 Replies

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Can rise of P Anca predict relapse in vasculitis?

Please write if you have same experience with relapse of vaaculitis.Did you have any signs before relapse?Rise of ANCA,clinical evidence,biochemistry,Your...

Please write if you have same experience with relapse of vaaculitis.Did you have...

tamidi

•6 years ago

2 Replies

Travelling on plane, low blood count

Hi, I am flying to Rome early tomorrow morning and my consultant nephrologist rang me this evening to say my white blood count has dropped (3. Something!) i...

Hi, I am flying to Rome early tomorrow morning and my consultant nephrologist ra...

Webbyj

•6 years ago

15 Replies

Methotrexate & ongoing side effects

Hi everyone I’m on Methotrexate injections for my AAV vasculitis just had my 10th yesterday. Still experiencing unpleasant side effects including more...

Hi everyone I’m on Methotrexate injections for my AAV vasculitis just had my 1...

Mish-da

•6 years ago

34 Replies

Merseyside Cheshire & North Wales VSG

Our next meeting is on Friday 17th May at 10am at our usual venue of The Royal Liverpool Hospital Prescot St Liverpool L7 8XP. It is in the Linda McCartney...

Our next meeting is on Friday 17th May at 10am at our usual venue of The Royal L...

SusanCh

•6 years ago

Be the first to reply

Alendronic acid - advice please

Hello - very grateful for some advice please . I'm 61, active and fit but with hip pain, hence Xray, then bone scan - result osteopaenia -'moderate risk'....

Hello - very grateful for some advice please . I'm 61, active and fit but with h...

greyh

•6 years ago

14 Replies

Help and advice please

I am very scared and hoping that you wonderful bunch here with so much knowledge can help me After years of being treated for sjogrens syndrome, and PMR, it...

I am very scared and hoping that you wonderful bunch here with so much knowledge...

Georgie-girl

•6 years ago

2 Replies

Neuropathy and joint pain

Good morning Would like to know if any of you are experiencing neuropathic pain? Lately my feet have pins and needles. One moment they feel as though they are...

Good morning Would like to know if any of you are experiencing neuropathic pain?...

Mrsszyb

•6 years ago

4 Replies

Vasculitis in legs

Hi all, in a earlier post I mentioned I had vasculitis in my lower legs, now waiting to see a dermatologist!! I was sat in the sun today and my legs became...

Hi all, in a earlier post I mentioned I had vasculitis in my lower legs, now wai...

2stents

•6 years ago

7 Replies

Undiagnosed as yet

Hi, I am a mid 50’s female and diagnosed from childhood with asthma that became brittle asthma from my 40’s. I was under a specialist centre 9 years ago when I...

Hi, I am a mid 50’s female and diagnosed from childhood with asthma that became ...

Echoblue

•6 years ago

24 Replies

Flu and Flare-up

In early March I caught the flu. I completely lost my appetite. I didn't want to eat anything. On March 8th I felt so bad that I requested a home visit from...

In early March I caught the flu. I completely lost my appetite. I didn't want t...

lfu2

•6 years ago

6 Replies

Vasculitis UK Spring Newsletter 2019

The Spring newsletter will be dropping on door mats this week. If you wish to continue receiving the hard copy VUK newsletter it is ESSENTIAL you complete the...

The Spring newsletter will be dropping on door mats this week. If you wish to c...

Suzym2u

Moderator•6 years ago

8 Replies

New Swindon Vasculitis Support Group Meeting May 12th

Please follow this link for more details http://www.vasculitis.org.uk/events/swindon-sg-2019-04

Please follow this link for more details http://www.vasculitis.org.uk/events/swi...

Suzym2u

Moderator•6 years ago

Be the first to reply

An Old but 'PRESSING' Problem

Dear All, Apart from, seemingly 'Endless' Crank Phone Calls, what other Problems have People- Members & Non-Members- been asking/ reporting? That, most...

Dear All, Apart from, seemingly 'Endless' Crank Phone Calls, what other Problems...

AndrewT

•6 years ago

6 Replies

Question about nausea and Vasculitis

Hey everyone! so my dad was diagnosed with ANCA Vasculitis in 2018 and has been struggling with it on and off ever since. He seems to be nauseous A LOT of the...

Hey everyone! so my dad was diagnosed with ANCA Vasculitis in 2018 and has been...

sweettea5

•6 years ago

19 Replies

Waiting on a diagnosis... Looking for advice please

I'm currently waiting on a diagnosis and vasculitis was the only thing my doctor suggested I may have, although she did test my bloodwork for a bunch of...

I'm currently waiting on a diagnosis and vasculitis was the only thing my doctor...

bobadee

•6 years ago

7 Replies

Cnsv and susacs syndrome

Hi I was diagnosed with cnsv a year ago next week but neurologist changed it to susac syndrome I live in South Tyneside is there any stroke clubs or something...

Hi I was diagnosed with cnsv a year ago next week but neurologist changed it to ...

Debbie_50

•6 years ago

7 Replies

Vasculitis

I was diagnosed with vasculitis when I was 14, I am now 17 and i have successfully recovered. The reason i’m making this post is because I want to meet others...

I was diagnosed with vasculitis when I was 14, I am now 17 and i have successful...

Starseed777

•6 years ago

7 Replies

vascular calcification

I recently had XRays taken as I have osteoarthritis and one of the comments made in the report was that I had marked vascular calcification in one of my...

I recently had XRays taken as I have osteoarthritis and one of the comments made...

SuzyJaneG

•6 years ago

2 Replies

A bit of Fun, to brighten Everyone Up.

At Headway, the Day Centre I Attend, we had a Creative Writing afternoon. Fairly 'Free Form', we needed to include- at least- two Places and two 'Characters'/...

At Headway, the Day Centre I Attend, we had a Creative Writing afternoon. Fairly...

AndrewT

•6 years ago

6 Replies

Ideas

Vasculitis and Parkinson

Moozmom

•6 years ago

1 Reply

Continual colds

Hi my husband has GPA in drug induced remission and only on AZA. He has had the stand and treatment and is doing ok. My question is he seems to go from one...

Hi my husband has GPA in drug induced remission and only on AZA. He has had the ...

Main1234

•6 years ago

7 Replies

The 'Idiot' Scammers are Back!

Dear All, I had a Phone Call, from "BT" (yes you're right), telling me my 'Phone And Broadband would be Switched Off, unless I contacted......Yes That Old...

Dear All, I had a Phone Call, from "BT" (yes you're right), telling me my 'Phone...

AndrewT

•6 years ago

11 Replies

Vasculitis Support Group Meetings this weekend

Lincoln http://www.vasculitis.org.uk/events/lincs-sg-2019-03 Northamptonshire ( New Group ) http://www.vasculitis.org.uk/events/northants-2019-03

Lincoln http://www.vasculitis.org.uk/events/lincs-sg-2019-03 Northamptonshire ( ...

Suzym2u

Moderator•6 years ago

Be the first to reply

Eosinophils

Anyone dealing with high Eosinophils? How does it effect you?

Tunabird

•6 years ago

4 Replies

'YIPPEE', I'm Rich!

This evening, about eight, I finished the Viennetta I had in the freezer. A few minutes ago I went to throw, the box, in the Recycling when 'Something'...

This evening, about eight, I finished the Viennetta I had in the freezer. A few ...

AndrewT

•6 years ago

1 Reply

POLYARTERITIS NODOSA

Hi, does anybody else in the UK have this virus i am 65 yrs old its affected my nerves and my lungs i am taking steroids at the moment but going on to...

Hi, does anybody else in the UK have this virus i am 65 yrs old its affected my ...

MalcConwy

•6 years ago

14 Replies

Child with positive c anca

Hello, my daughter has been seeing a rheumatologist for the past three years for a positive ana. She's had symptoms come and go but has not been diagnosed with...

Hello, my daughter has been seeing a rheumatologist for the past three years for...

veeb16

•6 years ago

8 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for April 2019

scam calls

Pan or not

Vasculitis U.K. Spring Newsletter 2019

Can rise of P Anca predict relapse in vasculitis?

Travelling on plane, low blood count

Methotrexate & ongoing side effects

Merseyside Cheshire & North Wales VSG

Alendronic acid - advice please

Help and advice please

Neuropathy and joint pain

Vasculitis in legs

Undiagnosed as yet

Flu and Flare-up

Vasculitis UK Spring Newsletter 2019

New Swindon Vasculitis Support Group Meeting May 12th

An Old but 'PRESSING' Problem

Question about nausea and Vasculitis

Waiting on a diagnosis... Looking for advice please

Cnsv and susacs syndrome

Vasculitis

vascular calcification

A bit of Fun, to brighten Everyone Up.

Ideas

Continual colds

The 'Idiot' Scammers are Back!

Vasculitis Support Group Meetings this weekend

Eosinophils

'YIPPEE', I'm Rich!

POLYARTERITIS NODOSA

Child with positive c anca

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