Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for March 2019

Diet re sugar reduction

Has any one any thoughts re Truvia sweetener? I am wondering about the laxitive effect in using it in baking

Has any one any thoughts re Truvia sweetener? I am wondering about the laxitiv...

marigolds

•6 years ago

4 Replies

TIME, to Remember....

I Wrote 'A TIMELY REMINBER', in the Autumn, about putting The Clocks Back. This Reminder is to Put them FORWARD....Spring Forward...… Yes the 'Nights will get...

I Wrote 'A TIMELY REMINBER', in the Autumn, about putting The Clocks Back. This ...

AndrewT

•6 years ago

3 Replies

Pics

How do you post pics without sending it to everyone?

danerd1960

•6 years ago

2 Replies

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Strange rash

I’ve been in remission from CNSV for about 7 years now but have recently had a few symptoms that I’m not sure about. One of the most recent is a strange rash...

I’ve been in remission from CNSV for about 7 years now but have recently had a f...

LyndaGould

•6 years ago

4 Replies

What exactly does the burning , pain and tinnitus do? if left untreated.

I am in the process of trying to find another rheumatologist as they are not listening and trying to convince me that all is ok and the remaining symptons are...

I am in the process of trying to find another rheumatologist as they are not lis...

friz42

•6 years ago

2 Replies

Need suggestions on how to naturally treat it.

So I'm pretty sure I have livedo reticularis, I have not gotten diagnosed yet. But have done my research on it I have these weird patterns on my thighs and...

So I'm pretty sure I have livedo reticularis, I have not gotten diagnosed yet. B...

LoloElizabeth

•6 years ago

3 Replies

My story ... journey to a diagnosis

My problems start in January 2008 following the birth of my first child. Over the next 10 years I suffered from pain in joints, pins and needles in my feet and...

My problems start in January 2008 following the birth of my first child. Over th...

356bubbles

•6 years ago

7 Replies

Diagnosed with GPA over 2 yrs ago.

Hi, I am 63 and have been on the usual cyclophosphamide and prednisolone to treat Wegners granulomatosis. Changed to azathioprine after 8 months and am now...

Hi, I am 63 and have been on the usual cyclophosphamide and prednisolone to trea...

Noza456

•6 years ago

11 Replies

TV Company Seeks Interesting Cases

If you are struggling to get a proper diagnosis you may have an interest in taking part in this tv programme. Just follow this link for more detail and...

If you are struggling to get a proper diagnosis you may have an interest in taki...

Suzym2u

Moderator•6 years ago

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Anyone have this?

Hope someone here can help me. I have had sjogrens syndrome for many years but recently, various doctors i see have been mentioning small vessel vasculitis....

Hope someone here can help me. I have had sjogrens syndrome for many years but ...

Georgie-girl

•6 years ago

16 Replies

Vasculitis UK AGM and Support Meeting - May 2019

speakers are: Dr Chetan Mukhtar Consultant Rheumatologist, Norfolk & Norwich University Hospital, Secretary for the British Society for Rheumatology Title - “A...

speakers are: Dr Chetan Mukhtar Consultant Rheumatologist, Norfolk & Norwich Uni...

Suzym2u

Moderator•6 years ago

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Toes with minds of their own!

Hi all Has anyone had toes that separate and bend in the wrong way for no apparent reason?

Hi all Has anyone had toes that separate and bend in the wrong way for no appare...

PaddyPop

•6 years ago

8 Replies

Just diagnosed - vasculitis GPA

Hi, I am so glad I've found this site as I am just at the start of my vasculitis journey and from what I read, seen and heard I will need all the help I can...

Hi, I am so glad I've found this site as I am just at the start of my vasculitis...

NacMacFeegle

•6 years ago

30 Replies

Dizzy with Vasculitis

I have had IgA Vasculitis for the last 16 years. It is being controlled with dapsone and colchicine. Though I still have painful feet I am able to get through...

I have had IgA Vasculitis for the last 16 years. It is being controlled with dap...

Pearlon

•6 years ago

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what do vasculitis ulcers look like compared with shingles

I have GPA Vasculitis, i have had it for 2 years now. at this time i am feeling quite well. i have had flares of very painful sores off and on through this...

I have GPA Vasculitis, i have had it for 2 years now. at this time i am feeling...

1943bonnie

•6 years ago

10 Replies

Medication question

Has anyone been prescribed Mycophenolate for vasculitis ulcers I have them on my foot and they are so painful. so my consultant has prescribed them for me...

Has anyone been prescribed Mycophenolate for vasculitis ulcers I have them on my...

Chazzi

•6 years ago

14 Replies

Vasculitis

Is it okay to take a bath if you vasculitis?

Yan0808

•6 years ago

7 Replies

West Yorkshire Support Group Meeting 24/3/2019

Hi Everyone, We’ve booked the next West Yorkshire support group meeting for Sunday the 24th of March between 2:00pm and 4:00pm. The meeting will be at the...

Hi Everyone, We’ve booked the next West Yorkshire support group meeting for Sun...

RichardE

Volunteer•6 years ago

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East Yorkshire Support Group Meeting 17/3/2019

Hi Everyone, We've arranged an East Yorkshire meeting in Driffield for Sunday the 17th of March between 2:00pm and 4:00pm. The meeting will be held at Cass...

Hi Everyone, We've arranged an East Yorkshire meeting in Driffield for Sunday t...

RichardE

Volunteer•6 years ago

2 Replies

Trying another tiny steroid drop soon

On Saturday we'll be lowering my daily steroids a bit more, from 7.5mg to 7mg. We're definitely near the limit of how low I can go, and my consultant is being...

On Saturday we'll be lowering my daily steroids a bit more, from 7.5mg to 7mg. W...

vivdunstan

Volunteer•6 years ago

10 Replies

Sickness - Azathioprine

Hi I was given EGPA (Churg Hauss) as a likely diagnosis in December. I am on 20 mg predislone, now had one month on Azathioprine, but first week ok, second...

Hi I was given EGPA (Churg Hauss) as a likely diagnosis in December. I am on 2...

Greytippy7

•6 years ago

10 Replies

New Rare Rheumatic Disease National Register

A key commitment of the UK’s Strategy for Rare Diseases is to create national registries. Better data will help us to find out how many people have each rare...

A key commitment of the UK’s Strategy for Rare Diseases is to create national re...

John_Mills

Volunteer•6 years ago

1 Reply

Withdrawal or relapse?

Good morning! I am now on 4mgs daily of Prednisolone - I couldn’t get below 7 mgs in August 2018 - and I feeling really drained, even after 8 hours sleep. I am...

Good morning! I am now on 4mgs daily of Prednisolone - I couldn’t get below 7 mg...

PaddyPop

•6 years ago

29 Replies

Bamboo Glove Inserts

Dear Everyone, I have just had, relatively Minor, Surgery on my hand. I had a 'Growth' and arranged to see my Dermatologist, up at Ipswich Hospital, the same...

Dear Everyone, I have just had, relatively Minor, Surgery on my hand. I had a 'G...

AndrewT

•6 years ago

5 Replies

Getting a diagnosis

Hi All, I'm trying to get a diagnosis for the symptoms I have experienced for years. After getting in touch with Vasculitis Uk I went to my GP and then had...

Hi All, I'm trying to get a diagnosis for the symptoms I have experienced for ye...

Milo00

•6 years ago

20 Replies

West Country Vasculitis Group Lunch

Sunday 24th March The Smugglers Inn 27 Teignmouth Rd, Dawlish EX7 0LA 12 noon - 3.30 pm As always the lunch is open to those with vasculitis, partner or...

Sunday 24th March The Smugglers Inn 27 Teignmouth Rd, Dawlish EX7 0LA 12 noo...

DevonLottie

•6 years ago

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Life insurance

I posted before about this but perhaps not surprisingly I had few responses! Has anyone been successful in obtaining life insurance suffering from vasculitis?...

I posted before about this but perhaps not surprisingly I had few responses! Has...

PaddyPop

•6 years ago

6 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for March 2019

Diet re sugar reduction

TIME, to Remember....

Pics

Strange rash

What exactly does the burning , pain and tinnitus do? if left untreated.

Need suggestions on how to naturally treat it.

My story ... journey to a diagnosis

Diagnosed with GPA over 2 yrs ago.

TV Company Seeks Interesting Cases

Anyone have this?

Vasculitis UK AGM and Support Meeting - May 2019

Toes with minds of their own!

Just diagnosed - vasculitis GPA

Dizzy with Vasculitis

what do vasculitis ulcers look like compared with shingles

Medication question

Vasculitis

West Yorkshire Support Group Meeting 24/3/2019

East Yorkshire Support Group Meeting 17/3/2019

Trying another tiny steroid drop soon

Sickness - Azathioprine

New Rare Rheumatic Disease National Register

Withdrawal or relapse?

Bamboo Glove Inserts

Getting a diagnosis

West Country Vasculitis Group Lunch

Life insurance

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