Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,775 members • 6,749 posts

All posts for February 2017

Today is Rare Disease Day - Rare Autoimmune Rheumatic Disease Alliance is now on the British Society for Rheumatology website

Please follow this link for more details. http://www.rheumatology.org.uk/resources/rairda.aspx

Please follow this link for more details. http://www.rheumatology.org.uk/resourc...

Suzym2u

Moderator•7 years ago

Be the first to reply

Last Call for the Vasculitis UK Charity Ball - this weekend - March 4th

For more details please follow this link http://www.vasculitis.org.uk/news/gala-ball-2017

For more details please follow this link http://www.vasculitis.org.uk/news/gala-...

Suzym2u

Moderator•7 years ago

Be the first to reply

Last Call for the Vasculitis Patient Symposium and Education Day - this weekend- March 4th

Please follow this link for more details http://www.vasculitis.org.uk/news/news-symposium-day-2017 Plus Henoch Schonlein Purpura group Meeting on Sunday 5th...

Please follow this link for more details http://www.vasculitis.org.uk/news/news-...

Suzym2u

Moderator•7 years ago

Be the first to reply

Want to take advantage of all our features? Just log in!

PIP Home assessment

I was diagnosed with GPA in 2014 and luckily awarded PIP in Nov 2015 without having an interview. It is now time to reassess my claim and a medical...

I was diagnosed with GPA in 2014 and luckily awarded PIP in Nov 2015 without hav...

cookie61

•7 years ago

3 Replies

Diagnosed with Panca Vasculitis, Rhumatoid, and Osteoarthritis

I'm sorta new at this, I was diagnosed with polymyositis in 2014. I couldn't use my hands or stand up straight. It hurt to walk, sit stand, or even to lay for...

I'm sorta new at this, I was diagnosed with polymyositis in 2014. I couldn't use...

deebeau

•7 years ago

1 Reply

Coping with MPA

Hi, I am a 60 year old female and it was confirmed 2 years ago and I've been treated for MPA. I have now been told that it is in remission and I have been off...

Hi, I am a 60 year old female and it was confirmed 2 years ago and I've been tr...

Foggy56

•7 years ago

11 Replies

Polyarteritis Nodosa - Diagnosis changing direction!!!!!!!

My rheumatologist referred me for Nerve tests. I saw the Nerve Doctor at North Staffordshire Hospital (Dr Horton). Lovely chap and his intro was 'All I look at...

My rheumatologist referred me for Nerve tests. I saw the Nerve Doctor at North S...

Tc3844

•7 years ago

3 Replies

Cyclophosphamide

Hi, my first blog. can anyone tell me how long it takes for cyclophosphamide to leave your system, I have been on a course of 10 infusions and finished on the...

Hi, my first blog. can anyone tell me how long it takes for cyclophosphamide to ...

tonyeade1

•7 years ago

16 Replies

Plymouth vasculitis support group meeting

We would like to invite you to the Plymouth vasculitis support group coffee morning. In Plymouth the 12th of March at 11.30 am. Please contact Elaine Ponsford...

We would like to invite you to the Plymouth vasculitis support group coffee morn...

zoe69

Administrator•7 years ago

Be the first to reply

GPA - Early Days Diagnosed 2 weeks ago

Hi I'm very new and learning all the time to this condition, I'm on Prednisolone 70mgs per day I have lost 10lbs in weight during that time is this part of the...

Hi I'm very new and learning all the time to this condition, I'm on Prednisolone...

Longwilloe

•7 years ago

31 Replies

Bone marrow biopsy with cyntentics

So after seeing another hemotologists.He has suggested this test.not sure what the cytogenetics bit means.Last hemotologist said about a full body ct...

So after seeing another hemotologists.He has suggested this test.not sure what t...

jan85uk

•7 years ago

4 Replies

Vasculitis

Hi I live in Townsville in Australia and have an auto immune condition Vasculitis. I have had Peripheral Vasculitis for two years and have a ride of...

Hi I live in Townsville in Australia and have an auto immune condition Vasculi...

Vrainbird

•7 years ago

6 Replies

Thought I would share this.........

This is a brilliant blog post on what's it's like to live with a rare, chronic disease and very humorous as well. I can certainly relate to most of it. 😀...

This is a brilliant blog post on what's it's like to live with a rare, chronic d...

Hidden

•7 years ago

5 Replies

Trust Me I am a Doctor - this evening talking about GCA

I will try and share the link ... Prof Bhaskar Dasgupta has just been interviewed

I will try and share the link ... Prof Bhaskar Dasgupta has just been interviewe...

Suzym2u

Moderator•7 years ago

1 Reply

symptoms is this normal

Hi Guys. Got GPA, having chemotherapy. Head is giving me a few problems , not headache . Had last chemo 4days ago still feeling sick, sickness Meds I was...

Hi Guys. Got GPA, having chemotherapy. Head is giving me a few problems , not h...

Omil04

•7 years ago

4 Replies

Hello

My name is Debbie and I'm from Melbourne Australia

debja

•7 years ago

1 Reply

Going crazy

Hello. I'm hearing impaired. I am totally dear in my left ear and have a cochlear implant but has failed to ever work as the nerves between my brain and my ear...

Hello. I'm hearing impaired. I am totally dear in my left ear and have a cochlea...

debja

•7 years ago

3 Replies

Huvs

Hello I was diagnosed with hypocomplementemic urticarial vasculitis in 2005 after many years of suffering from burning, painful and itchy hives. I suffered...

Hello I was diagnosed with hypocomplementemic urticarial vasculitis in 2005 aft...

lopiper

•7 years ago

2 Replies

72 yr old from NE Pennsylvania, US

It has taken more than 2 years, to run down accumulating symptoms to be diagnosed with "some" form of arteritis. Over time, have had arthritis knee...

It has taken more than 2 years, to run down accumulating symptoms to be diagnose...

jofrable

•7 years ago

3 Replies

Any ideas for a Specialis in Cerebral Vasculitis in North West England area?

Hi there, my sister has had primary cerebral vasculitus for since early 2013 & the Neurologist who effectively saved her life with cerebral, has now retired....

Hi there, my sister has had primary cerebral vasculitus for since early 2013 & t...

Atkins2014

•7 years ago

1 Reply

trying to find specialist for cerebral vascilitis

my wife has been diagnosed with primary cerebral vascilitis in dublin . she has already suffered 7 strokes before finally a definate diagnosis was made . we...

my wife has been diagnosed with primary cerebral vascilitis in dublin . she has ...

finianscanlon

•7 years ago

7 Replies

Concerns, re feeling so ill and have a blocked artery

Hi.My name is Carol Ann I am a fit 71 year old Psychotherapist CBT.I recently had a strange episode in the night like Vertigo followed by dizziness etc. I saw...

Hi.My name is Carol Ann I am a fit 71 year old Psychotherapist CBT.I recently ha...

wozwell

•7 years ago

4 Replies

Google Analytics for the Vasculitis UK website Jan 2nd 2017 - Feb 1st 2017

John has asked me to share with you the google Analytics for the VUK website for the last month. Jan 2nd 2017 - Feb 1st 2017. 27,546 users 69,314 pages...

John has asked me to share with you the google Analytics for the VUK website for...

Suzym2u

Moderator•7 years ago

Be the first to reply

Did Tara Palmer-Tomkinson have Vasculitis?

I have seen in the press there were reports of Tara Palmer-Tomkinson having an autoimmune disease which sounds very much like vasculitis (see report below from...

I have seen in the press there were reports of Tara Palmer-Tomkinson having an a...

Chris-Bromsgrove

•7 years ago

5 Replies

Blocked Artery

Hi, I have been diagnosed, after many scans, x'rays, MRI and Doppler of having a blocked artery under my shoulder blade, 80% blocked, restricting the blood...

Hi, I have been diagnosed, after many scans, x'rays, MRI and Doppler of having a...

wozwell

•7 years ago

9 Replies

Help with Lab tests

Hi! I have been having severe pain in my joints in my hips and legs. After many Dr's and tons of lab work so far I have tested positive for p-anca and low...

Hi! I have been having severe pain in my joints in my hips and legs. After many ...

Oglesbypartyof10

•7 years ago

1 Reply

Polyarteritis Nodosa - awaiting diagnosis

Just started to get bruising with red inflammation in the middle of my left arm. It is all up my left arm in patches. It has literally just appeared!!

Just started to get bruising with red inflammation in the middle of my left arm....

Tc3844

•7 years ago

2 Replies

Having terrifying vascular issues and doctors are oblivious!

I have been having weird vascular issues since I was pregnant with my daughter that have gotten worse each time I menstruate. My veins in my entire body feel...

I have been having weird vascular issues since I was pregnant with my daughter t...

haileymartine

•7 years ago

1 Reply

ARE YOU A CHILD/TEENAGER OR THE PARENT OF A CHILD WHO HAS/HAD HSP (IgA Vasculitis).

ARE YOU A CHILD/TEENAGER OR THE PARENT OF A CHILD WHO HAS/HAD HSP (IgA Vasculitis). Dr Louise Oni is looking for parents of children/teenagers to attend a...

ARE YOU A CHILD/TEENAGER OR THE PARENT OF A CHILD WHO HAS/HAD HSP (IgA Vasculiti...

Suzym2u

Moderator•7 years ago

2 Replies

Urticarial vasculitis

Hi everyone, i am diagnose with urticarial vasculitis just last month, am i alone, it's frightening, i'm just so worried. My doctor wants to start me on...

Hi everyone, i am diagnose with urticarial vasculitis just last month, am i alon...

sunildath

•7 years ago

5 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for February 2017

Today is Rare Disease Day - Rare Autoimmune Rheumatic Disease Alliance is now on the British Society for Rheumatology website

Last Call for the Vasculitis UK Charity Ball - this weekend - March 4th

Last Call for the Vasculitis Patient Symposium and Education Day - this weekend- March 4th

PIP Home assessment

Diagnosed with Panca Vasculitis, Rhumatoid, and Osteoarthritis

Coping with MPA

Polyarteritis Nodosa - Diagnosis changing direction!!!!!!!

Cyclophosphamide

Plymouth vasculitis support group meeting

GPA - Early Days Diagnosed 2 weeks ago

Bone marrow biopsy with cyntentics

Vasculitis

Thought I would share this.........

Trust Me I am a Doctor - this evening talking about GCA

symptoms is this normal

Hello

Going crazy

Huvs

72 yr old from NE Pennsylvania, US

Any ideas for a Specialis in Cerebral Vasculitis in North West England area?

trying to find specialist for cerebral vascilitis

Concerns, re feeling so ill and have a blocked artery

Google Analytics for the Vasculitis UK website Jan 2nd 2017 - Feb 1st 2017

Did Tara Palmer-Tomkinson have Vasculitis?

Blocked Artery

Help with Lab tests

Polyarteritis Nodosa - awaiting diagnosis

Having terrifying vascular issues and doctors are oblivious!

ARE YOU A CHILD/TEENAGER OR THE PARENT OF A CHILD WHO HAS/HAD HSP (IgA Vasculitis).

Urticarial vasculitis

Search posts

Pinned Posts

Latest poll

If you have had covid and contacted a medical professional/hospital what medication/treatments were you offered?

Topics

Archive