Posts - Vasculitis UK | HealthUnlocked

Moderator•10 years ago

The Department of Rheumatology would like to invite you to ‘Living Well with Vasculitis’ In connection with Vasculitis UK the Portsmouth Rheumatology team...

Living Well with Vasculitis - Portsmouth Hospital. The first Portsmouth Vasculitis Support Group meeting. July 19th 2014

The Department of Rheumatology would like to invite you to ‘Living Well with Vas...

Moderator•11 years ago

Jenny and Ryan look forward to welcoming members who have attended before and also new members and carers/family. You can be assured of a warm welcome....

South Wales Vasculitis Support Group Meeting July 12th 2014

Jenny and Ryan look forward to welcoming members who have attended before and al...

Moderator•11 years ago

The next West Yorkshire Support Group meeting will be held Sunday 14th September 2014 at the Gomersal Park Hotel. More details to follow nearer the time....

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Date for your diary

The next West Yorkshire Support Group meeting will be held Sunday 14th September...

LynneJ

Vasculitis UK•11 years ago

Just wanted to say congratulations to Joe for not only completing 55 miles on his cycle in the EroicaBritannia in the Peak District last weekend for Vasculitis...

Congratulations to Joe. Joe was diagnosed with Wegener's Granulomatosis (GPA) 4 years ago at the age of 11.

Just wanted to say congratulations to Joe for not only completing 55 miles on hi...

Keep getting missed heart beats when trying to sleep also weakness in chest and upper body, almost like lating down weakens my breathing muscles. Last night i...

Moderator•11 years ago

3 Replies

Worried about stmptoms

Keep getting missed heart beats when trying to sleep also weakness in chest and ...

yorkshiregirl44

•11 years ago

5 Replies

Congratulations to Simon

Congratulations to Simon running for Vasculitis UK at the weekend and for his mum. Simon's mum has Takayasu's Arteritis...

Congratulations to Simon running for Vasculitis UK at the weekend and for his mu...

This year's summer BBQ will be on Sunday 27 July, 1.00 onwards in Shaldon, near Teignmouth, South Devon. It's a great chance to meet and mingle in an informal...

Moderator•11 years ago

5 Replies

West Country Support Group Summer BBQ

This year's summer BBQ will be on Sunday 27 July, 1.00 onwards in Shaldon, near ...

DevonLottie

•11 years ago

So after very severe and extremely painful urticaria I have suffered with itchy feet ever since and for 6/7 months between then and now suffered plantar...

I have early stages of membranous glomorulae nephritis, which is a condition of the kidneys, Is there a cure for nephritis ?

dragonfly54

•11 years ago

3 Replies

I was in hospital 2 years ago with severe urticaria, since suffered plantar, painful joints, muscles, itch & pain in feet, diagnosis needed

So after very severe and extremely painful urticaria I have suffered with itchy ...

Muldoon

•11 years ago

Jennifer has made a provsional booking for a venue close to Scarborough for the next VSG - Sunday 28th September. This will be an informal meeting with...

York, N&E Riding Vasculitis Support Group

Jennifer has made a provsional booking for a venue close to Scarborough for the ...

PatriciaAnn

•11 years ago

Genetic Alliance UK in collaboration with members petition for review of 'exceptionality criteria' underpinning Individual Patient Funding Request (IPFR)...

Funding Request (IPFR) process in Wales For all those who live in Wales who are diagnosed with a raredisease such as vasculitis

Genetic Alliance UK in collaboration with members petition for review of 'except...

Moderator•11 years ago

Genetic Alliance UK have been involved in a number of recent reviews in Wales relating to the appraisal of orphan and ultra-orphan medicines as well as the...

Genetic Alliance UK have been involved in a number of recent reviews in Wales

Genetic Alliance UK have been involved in a number of recent reviews in Wales re...

Moderator•11 years ago

Wandsworth Self-Management Service (WSMS) provides a range of self-management courses and self-help group support to people living with a long term condition,...

Wandsworth Self-Management Service (WSMS) provides a range of self-management courses and self-help group support.

Wandsworth Self-Management Service (WSMS) provides a range of self-management co...

Moderator•11 years ago

http://www.west-middlesex-hospital.nhs.uk/about-us/latest-news/press-releases/patients-invited-to-share-feedback-with-staff/

Have you ever been a patient at West Middlesex University Hospital? Do you have any suggestions for how they can improve your experience?

http://www.west-middlesex-hospital.nhs.uk/about-us/latest-news/press-releases/pa...

Moderator•11 years ago

Are you using local dermatology services? complete this questionnaire, you will be helping them understand your experience, so that they can make improvements...

Clinical Commissioning Groups in Medway, Swale, West Kent and Dartford Gravesham and Swanley want to find out patients experiences

Are you using local dermatology services? complete this questionnaire, you will ...

Moderator•11 years ago

tomorrow will be my first Rituxan infusion has anybody had any luck with Rituxan and MS?

I have secondary progressive multipe sclerosis

tomorrow will be my first Rituxan infusion has anybody had any luck with Rituxan...

jnet1589

•11 years ago

2 Replies

New Handmade Jewellery items for sale in Vasculitis UK shop

Friends of Vascultis; We have a range of 6 new pieces of jewellery created by me specially for Vasculitis UK. Each piece handmade, with sparkley diamontes set...

Friends of Vascultis; We have a range of 6 new pieces of jewellery created by me...

Emperor

•11 years ago

Joe was diagnosed with WG (GPA) Wegeners Granulomatosis at the age of 11, now aged 15....

Article in the Derbyshire Times this week - telling the story of Joe

Joe was diagnosed with WG (GPA) Wegeners Granulomatosis at the age of 11, now ag...

Moderator•11 years ago

The NIHR are actively trying to encourage patients and the public in general to take part in clinical trials. Here are a few links for those who might have...

Web resources for those interested in taking part in medical research

The NIHR are actively trying to encourage patients and the public in general to ...

RichardE

Volunteer•11 years ago

2 how focal can vasculitis get on brain vasculr ? 3 is there a condition of vasculitis gets focused on particular brain vascular and in a specific narrow...

focal vasculitis

2 how focal can vasculitis get on brain vasculr ? 3 is there a condition of vas...

Hidden

•11 years ago

Interesting article about Arthritis Research funding a study into the genetics of ANCA Associated Vasculitis....

Study into the genetics of ANCA Associated Vasculitis

Interesting article about Arthritis Research funding a study into the genetics o...

RichardE

Volunteer•11 years ago

12 Replies

Interesting article from the BBC this morning on Twitter

Hospital patients in England should know which senior doctor is responsible for overseeing their care, according to guidelines being publish...

Hospital patients in England should know which senior doctor is responsible for ...

Moderator•11 years ago

Since November I have been dealing with lots of symptoms. I have been seen by many specialists, but not a vascular doctor, nor rheumatologist. Right now the...

Symptoms leading to Takayasu's Diagnosis?

Since November I have been dealing with lots of symptoms. I have been seen by m...

lindsayshealth

•11 years ago

11 Replies

I was on prednisone for 10 days and an antibiotic for a very bad sore throat (vugular-punching bag, was very swollen) since sat, I have been

Off prednisone, cannot sleep, extremly anxious , bad nightmares, is this from adrenal glands, need help

Off prednisone, cannot sleep, extremly anxious , bad nightmares, is this from ad...

sweetsu

•11 years ago

I've posted on this before. However this extract from this years EAACI meeting in Copenhagen might be of interest, although the chances of it helping anyone in...

I have tight skin on my feet, pain walking on the soles of my feet and great sensitivity in my feet, although numbness on the upper side

Tigris

•11 years ago

10 Replies

HUVS

I've posted on this before. However this extract from this years EAACI meeting i...

Rofa

•11 years ago

3 Replies

Advice on non blanching rash with isolated prolonged APTT ^61

I am looking to find out some info if anyone can help. My god daughter who is a toddler was not too well yesterday and A&E first said could be hand, foot and...

I am looking to find out some info if anyone can help. My god daughter who is a ...

annie330

•11 years ago

There are plenty of ways you can support the Carers Week Quest. We are calling on everyone to think about how they can reach out to the thousands of carers in...

Caring for Carers Week 9th - 15th June

There are plenty of ways you can support the Carers Week Quest. We are calling o...

Moderator•11 years ago

family and friends are welcome too :-) Contact Lesley for further details http://www.vasculitis.org.uk/events/cambs-group-june-2014

Cambridge Vasculitis Support Group Meeting 28th June

family and friends are welcome too :-) Contact Lesley for further details htt...

Moderator•11 years ago