Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for August 2015

Genetic testing for RA, maybe a test for vasculitus one day!

http://www.dailymail.co.uk/health/article-3216478/Identifying-rogue-arthritis-gene-revolutionise-treatment-sufferers.html It's not a great leap of imagination...

http://www.dailymail.co.uk/health/article-3216478/Identifying-rogue-arthritis-ge...

luggsey

•9 years ago

2 Replies

Struggling with fear of the Future.

Where do I start. I have always been a very strong positive person ,which has really helped me with many problems I have had to manage. Now it has been...

Where do I start. I have always been a very strong positive person ,which has re...

Fennahj7115

•9 years ago

11 Replies

Neuropathy, anyone?

Do you have neuropathy? What do think has caused it? How do you make it less annoying without using prescription drugs. I am not diabetic and I take B...

Do you have neuropathy? What do think has caused it? How do you make it less an...

London37

•9 years ago

13 Replies

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A lighter conversation for the weekend

Sometimes medics can be unintentionally amusing, especially when their first language isn't English (and sometimes when it is!). The lovely locum GP who did...

Sometimes medics can be unintentionally amusing, especially when their first lan...

orsen-trapp

•9 years ago

7 Replies

Hot Flushes/Sweats - Possible Helpful Product.

Hi All, I notice that a lot of people are having hot flushes either to do with their Vasculitis or the menopause etc? I have recently been told by a friend...

Hi All, I notice that a lot of people are having hot flushes either to do with t...

HiveMind

•9 years ago

3 Replies

Private Consultant asked GP to refer for NHS clinic

Hi, I have seen a private consultant in my area and received a diagnosis of vasculitis. He also runs the a rheumatology clinic under the NHS, and wrote to my...

Hi, I have seen a private consultant in my area and received a diagnosis of vas...

lollypocket

•9 years ago

8 Replies

Long flight compression stockings

I'm going on a long flight next month and I'm not sure if compression stockings are a good or a bad thing to use for CSS sufferers, particularly when my legs...

I'm going on a long flight next month and I'm not sure if compression stockings ...

jaydub

•9 years ago

5 Replies

Anca vasulititis

My fiance was diagnosed with Anca vasculitis in 2014. Can one be in "remission" and still have mild symptoms?

My fiance was diagnosed with Anca vasculitis in 2014. Can one be in "remission" ...

Christina1960

•9 years ago

17 Replies

Anca vasculitits mpo

My fiance was diagnosed with Anca vasulititis in 2014. I was curious if one can be in "remission" and still have some mild symptoms? Has anyone experienced...

My fiance was diagnosed with Anca vasulititis in 2014. I was curious if one can...

Christina1960

•9 years ago

7 Replies

vasculitis / renal fialure with dust exposure in your worklife .

Hi , i am very interested as to know how of patients with wg / renal problems or even failure that have been exposed to any dust in your working life , i...

Hi , i am very interested as to know how of patients with wg / renal problems or...

morgan33

•9 years ago

12 Replies

Reminder about the Lincoln Vasculitis Support Group Meeting September 12th

There will be a meeting of the Lincolnshire support group on September 12th, 2015. We are meeting in Sleaford (NG34 7EQ) again, as it was such a success in...

There will be a meeting of the Lincolnshire support group on September 12th, 20...

Suzym2u

Moderator•9 years ago

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Reminder about the New Northumberland and Cumbria Support Group Meeting September 12th

The first ever meeting of the Northumberland and Cumbria Vasculitis Support Group will be in Hexham on 12 September, from 10.00am - 1.00pm...

The first ever meeting of the Northumberland and Cumbria Vasculitis Support Gro...

Suzym2u

Moderator•9 years ago

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Reminder about the Leicester Vasculitis Support Group Meeting Sept 5th

The next meeting of the Leicester Vasculitis Support Group is being held on Saturday 5th September 2015 at the Belmont Hotel Demontfort Street Leicester LE1...

The next meeting of the Leicester Vasculitis Support Group is being held on Sat...

Suzym2u

Moderator•9 years ago

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compensation claims with industrial disease causing wegerners .

Hi , having worked in the stone industry for many years i developed silicosis i now have wegerners vasculitis and now have many problems including low kidney...

Hi , having worked in the stone industry for many years i developed silicosis i ...

morgan33

•9 years ago

37 Replies

Methotrexate blood tests

I am not convinced my GP even looks at my results! I Look at them myself and if they are stabilised, I often leave it for 3 months. I am not a medic but if...

I am not convinced my GP even looks at my results! I Look at them myself and i...

Hidden

•9 years ago

6 Replies

overseas travel by plane

Do not under any circumstances fly Air Alitalia of Italy. I booked and paid business class for myself and carer who is my wife. I arrive for the second leg...

Do not under any circumstances fly Air Alitalia of Italy. I booked and paid busi...

Skipper55

•9 years ago

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Trainers

Iam going on holiday in 2weeks and need some really comfy trainers for walking in. I have bunions on both feet and also nurophathy in both feet, I have Rebock,...

Iam going on holiday in 2weeks and need some really comfy trainers for walking i...

SandieB

•9 years ago

15 Replies

ANCA Associated Vasculitis and Proteinase 3

Hi, this is my first post so please bear with me. I have recently been seen by a rheumatologist, after suffering aches, swelling in ankles and a crop of...

Hi, this is my first post so please bear with me. I have recently been seen by...

lollypocket

•9 years ago

10 Replies

Date for your diary for those who live in Wales - Rare Disease Patient Network - October 2015

The rare disease patient network will formally launch on 20th October 2015 at the Hub, Cardiff Bay. You are invited to this event to learn more about the...

The rare disease patient network will formally launch on 20th October 2015 at th...

Suzym2u

Moderator•9 years ago

1 Reply

Diagnosis of Vasculitis

I have read on this site that some people have waited years for a diagnosis of vasculitis, therefore a lot of damage must have been done before they were...

I have read on this site that some people have waited years for a diagnosis of v...

bowler

•9 years ago

28 Replies

p-ANCA/MPO is 20.31 what is its significance .?

rskalsi

•9 years ago

1 Reply

Churg Strauss Syndrome

Hi everyone! I've just found this site., and this is my first post. Do any of you have Churg Strauss Syndrome? Out of the blue in 2008 I developed sudden...

Hi everyone! I've just found this site., and this is my first post. Do any of ...

Sparkimoore

•9 years ago

22 Replies

Nasal Douches

Hello All, Would anyone who has used a nasal douche let me know how they got on with it? Was it successful? Did you have any issues. Are you using it long...

Hello All, Would anyone who has used a nasal douche let me know how they got on...

HiveMind

•9 years ago

19 Replies

Would using calcium channel blocker mask CNSV vasculitis in MRI?

I saw my new neurologist yesterday and he gave me a prescription for Verapamil, a calcium channel blocker, to try while I am waiting for next MRI to see if...

I saw my new neurologist yesterday and he gave me a prescription for Verapamil, ...

Kat13

•9 years ago

2 Replies

Travelling with injections....

Hi. I was wondering if anyone could help. At the end of next week I'm going away to the states on holiday for 2 weeks. When I first talked to the hospital they...

Hi. I was wondering if anyone could help. At the end of next week I'm going away...

JElsom

•9 years ago

5 Replies

Clicking noise when breathing

I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity. My partner is quite concerned that when I'm asleep my breathing sounds like a...

I was diagnosed with WG over 16 years ago and have Saddle Nose Deformity. My pa...

Essex-jill

•9 years ago

5 Replies

can anyone give me advice??

hello, dont know if i am in the right place?? i need advice about making a complaint about my doctor.. On the 10th of june 2015 my husband died suddenly at...

hello, dont know if i am in the right place?? i need advice about making a compl...

hannahlovesmatt24

•9 years ago

5 Replies

Monoclonal Antibodies

Interesting article explaining a little bit about the history behind the development of monoclonal antibodies (like Rituximab, Infliximab, etc)...

Interesting article explaining a little bit about the history behind the develop...

RichardE

Volunteer•9 years ago

5 Replies

Leflunamide

I'm about to start Leflunamide & wondered what other people's experiences are on it or were whist taking it I'm using it with infliximab to try get the...

I'm about to start Leflunamide & wondered what other people's experiences are o...

Snugglebum1

•9 years ago

2 Replies

NEW Northumberland and Cumbria Vasculitis Support Group Meeting

Just a reminder about the new Northumberland and Cumbria Vasculitis Support Group Meeting on September 12th. For more details please follow the link below....

Just a reminder about the new Northumberland and Cumbria Vasculitis Support Grou...

Suzym2u

Moderator•9 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for August 2015

Genetic testing for RA, maybe a test for vasculitus one day!

Struggling with fear of the Future.

Neuropathy, anyone?

A lighter conversation for the weekend

Hot Flushes/Sweats - Possible Helpful Product.

Private Consultant asked GP to refer for NHS clinic

Long flight compression stockings

Anca vasulititis

Anca vasculitits mpo

vasculitis / renal fialure with dust exposure in your worklife .

Reminder about the Lincoln Vasculitis Support Group Meeting September 12th

Reminder about the New Northumberland and Cumbria Support Group Meeting September 12th

Reminder about the Leicester Vasculitis Support Group Meeting Sept 5th

compensation claims with industrial disease causing wegerners .

Methotrexate blood tests

overseas travel by plane

Trainers

ANCA Associated Vasculitis and Proteinase 3

Date for your diary for those who live in Wales - Rare Disease Patient Network - October 2015

Diagnosis of Vasculitis

p-ANCA/MPO is 20.31 what is its significance .?

Churg Strauss Syndrome

Nasal Douches

Would using calcium channel blocker mask CNSV vasculitis in MRI?

Travelling with injections....

Clicking noise when breathing

can anyone give me advice??

Monoclonal Antibodies

Leflunamide

NEW Northumberland and Cumbria Vasculitis Support Group Meeting

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