Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,774 members • 6,747 posts

All posts for June 2016

Worried about diagnosis tests

Did go through with lumber puncture.Felt to uncomfortable with technician and nurse on the ward.What can I do??very anxious now as Neurologist thinks I may...

Did go through with lumber puncture.Felt to uncomfortable with technician and nu...

jan85uk

•8 years ago

14 Replies

Help please!!!

Dear all,. I have been trying for over a year to get a diagnosis of what is going on with my body. I have been having pain under left rib cage, pain now going...

Dear all,. I have been trying for over a year to get a diagnosis of what is goin...

Suzywhizzo

•8 years ago

7 Replies

Another shock

I have been unable to post due to being very poorly since before Christmas. I had a mastectomy before Christmas and was told everything was o.k. But January...

I have been unable to post due to being very poorly since before Christmas. I ha...

Fennahj7115

•8 years ago

11 Replies

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Yorkshire Support Group Coming Meetings

We are looking forward to the New Hull Support Group Meeting on Sunday Check this out at http://www.yorkshirevasculitis.org.uk/. You will also find details of...

We are looking forward to the New Hull Support Group Meeting on Sunday Check thi...

LynneJ

Vasculitis UK•8 years ago

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Rituximab

Hi all, hope you are all having a better day. I had another Rituximab infusion yesterday which went well. A little tired and a couple of odd hot flushes later...

Hi all, hope you are all having a better day. I had another Rituximab infusion y...

Hidden

•8 years ago

4 Replies

Vasculitis East Midlands Summer Lunch - June 25th 2016

Just wanted to say a big thank you to everyone who came to the EMVSG summer lunch. We were 35 in number, everyone contributed to the lunch/BBQ and everyone...

Just wanted to say a big thank you to everyone who came to the EMVSG summer lunc...

Suzym2u

Moderator•8 years ago

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Centric angiogram

Can anyone tell me what a CT centric angiogram is,I have been having trouble with stomach cramps for almost 2 years, I,ve had a colonoscopy,which was clear,...

Can anyone tell me what a CT centric angiogram is,I have been having trouble wit...

jackrussell

•8 years ago

6 Replies

Looking for a answer

Angry annoyed and feeling very unsure.Just been to hospital for LP but there was only a technician to do it.Total waste of time,my neurologist had told me it...

Angry annoyed and feeling very unsure.Just been to hospital for LP but there wa...

jan85uk

•8 years ago

11 Replies

Wegeners or periodic fever syndrome ? Help please

Hi good people, I have been going through the various and varied, intrusive tests to try and get a definitive diagnosis and my rheumatologist, Dr Harsha...

Hi good people, I have been going through the various and varied, intrusive test...

Jools52

•8 years ago

3 Replies

Do I have Vasiculitis? (MPA?)

i am new here, but have posted on the peripheral neuropathy site as thats one of my symptoms. Feet, legs and hands. I just got a blood test result in the post...

i am new here, but have posted on the peripheral neuropathy site as thats one of...

TallKeith

•8 years ago

12 Replies

West Country Vasculitis Support Group Summer BBQ

On: Sunday 7 August, 1.00pm onwards We will be holding our annual BBQ in my garden in Shaldon, near Teignmouth, Devon this August. As usual all are...

On: Sunday 7 August, 1.00pm onwards We will be holding our annual BBQ in my ga...

DevonLottie

•8 years ago

3 Replies

Churg Strauss new diagnosis.

Hi I'm new to this site thanks for the add. I have recently been diagnosed with churg-strauss and have one more cycle of cyclophosphamide to go I'm coping ok...

Hi I'm new to this site thanks for the add. I have recently been diagnosed with ...

Tiss

•8 years ago

9 Replies

Worried about my Dad

Hi everyone, my Dad was admitted to hospital last week because of high potassium levels in his regular blood tests for diabetes, his kidneys aren't filtering....

Hi everyone, my Dad was admitted to hospital last week because of high potassium...

Hidden

•8 years ago

16 Replies

GPA and Tachycardia

Hi, just wondering if anyone has any experience or information in relation to having long term tachycardia with GPA (or other forms of Vasculitis). Since all...

Hi, just wondering if anyone has any experience or information in relation to ha...

PCAD

•8 years ago

15 Replies

Worried about having lung cancer

I am spitting up blood without having any cough.I am a smoker since last 16 years. I went to GP who sent me for a chest x ray.My x ray was immediately repeated...

I am spitting up blood without having any cough.I am a smoker since last 16 year...

UsmanAbdullah

•8 years ago

4 Replies

Merseyside Cheshire & N Wales VSG Meeting

Just thought I would share photo from our Meeting last week on a very hot afternoon! We were grateful that Dr Omar Nawaytou, Aortic Fellow from Liverpool Chest...

Just thought I would share photo from our Meeting last week on a very hot aftern...

SusanCh

•8 years ago

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Mattress Topper Update

Previous post 'A Shot In The Dark' 70 year old male with Wegener's As previously written.... I have discarded my memory foam mattress topper after reading...

Previous post 'A Shot In The Dark' 70 year old male with Wegener's As previously...

lfu2

•8 years ago

1 Reply

GENETIC TESTING

just curious if anyone has had genetic testing done? I ask cause I have a cystic fibrosis gene mutation as I'm a carrier I dont have cf. I found out with my...

just curious if anyone has had genetic testing done? I ask cause I have a cystic...

greg31

•8 years ago

6 Replies

Irratating Constant Cough

My son has had WG since 2008, he had a flare up in 2014 which threatened his eyesight and it was also found that he has a thrombosis in the jugular vein. The...

My son has had WG since 2008, he had a flare up in 2014 which threatened his eye...

Mgtrob

•8 years ago

23 Replies

Trafford Expo Manchester 7th June

Mike, Jann and I attended the Trafford Expo yesterday where we were kindly given a charity stand by James and Emma of Innov8. It was a busy day with plenty of...

Mike, Jann and I attended the Trafford Expo yesterday where we were kindly given...

SusanCh

•8 years ago

1 Reply

RV and Stroke

I have Rheumatoid Vasculitis, a byproduct of having Rheumatoid Arthritis, and suffered a mild stroke. There was no bleed on the brain, nor any furry arteries....

I have Rheumatoid Vasculitis, a byproduct of having Rheumatoid Arthritis, and su...

Wolf52

•8 years ago

8 Replies

Tiny blisters on lower eyelid

Hi, I have WG and recently developed tiny blister looking nodules in my lower right eyelid. They come and go. They don't hurt so don't think they are styes....

Hi, I have WG and recently developed tiny blister looking nodules in my lower ri...

Skipper

•8 years ago

9 Replies

Aortitis.

Hi my name is Sandra, and I'm new to this site, Thankyou for accepting me. I was diagnosed with Aortitis in January of this year. Any advice is wekcome.

Hi my name is Sandra, and I'm new to this site, Thankyou for accepting me. I was...

hsandra

•8 years ago

3 Replies

Vasculitis and the Dental Team - June 2016

Thought I would share this, John was asked a while ago to write an article for dental magazine. Anyway last month he was asked for an updated version for the...

Thought I would share this, John was asked a while ago to write an article for d...

Suzym2u

Moderator•8 years ago

5 Replies

No replys

Not sure my health unlocked is working. THINK I WILL USE A NEW ONE.

Hidden

•8 years ago

3 Replies

Raised red blotches rash??

Just noticed this come up on my neck.I'm steel getting tightness on side of my face left side top of head all the way down the left side.Doctor has checked my...

Just noticed this come up on my neck.I'm steel getting tightness on side of my f...

Hidden

•8 years ago

1 Reply

Joint Pain / Wenger's

I have recently been suffering with severe joint pain, in particular in the knees/ ankles to the extent that I've been immobile & struggled getting up from a...

I have recently been suffering with severe joint pain, in particular in the knee...

Lauriescott1

•8 years ago

24 Replies

MRI result says possible Vasculitis, feeling confused

I am feeling very down and confused, but I have just got MRI results back and shocked to be told I may have vasculitis. I am 49 years old. I don't want to bore...

I am feeling very down and confused, but I have just got MRI results back and sh...

vix66

•8 years ago

8 Replies

Pan and vasculitis

so I just found out today I have systemic polyarteritis nodosa. Finally got in to an actual vasculitis center. Shocked to find out only 22 other people are...

so I just found out today I have systemic polyarteritis nodosa. Finally got in t...

greg31

•8 years ago

16 Replies

Prednisalone

Question Being off pred for six weeks Can you resume pred at the last dose 5mg Or is a 40mg higher dose the norm???

Question Being off pred for six weeks Can you resume pred at the last dose 5mg...

sorefeetsoldier

•8 years ago

1 Reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for June 2016

Worried about diagnosis tests

Help please!!!

Another shock

Yorkshire Support Group Coming Meetings

Rituximab

Vasculitis East Midlands Summer Lunch - June 25th 2016

Centric angiogram

Looking for a answer

Wegeners or periodic fever syndrome ? Help please

Do I have Vasiculitis? (MPA?)

West Country Vasculitis Support Group Summer BBQ

Churg Strauss new diagnosis.

Worried about my Dad

GPA and Tachycardia

Worried about having lung cancer

Merseyside Cheshire & N Wales VSG Meeting

Mattress Topper Update

GENETIC TESTING

Irratating Constant Cough

Trafford Expo Manchester 7th June

RV and Stroke

Tiny blisters on lower eyelid

Aortitis.

Vasculitis and the Dental Team - June 2016

No replys

Raised red blotches rash??

Joint Pain / Wenger's

MRI result says possible Vasculitis, feeling confused

Pan and vasculitis

Prednisalone

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