Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for January 2015

Saynas

Hi. Has anyone any idea of whether I am ok to use a sauna? I have anca-negative vasculitis which affects my skin and nerves. I've completed six cycles of...

Hi. Has anyone any idea of whether I am ok to use a sauna? I have anca-negative ...

Bindy68

•10 years ago

1 Reply

Nosebleeds

I have WG and I have started to bave nosebleeds in the mornings. I haven't had a problem before. The only changes I have had is in medication, my thyroxine has...

I have WG and I have started to bave nosebleeds in the mornings. I haven't had a...

valwood

•10 years ago

13 Replies

Two Years this month since this video of John Mills was first recorded, talking about Vasculitis.

Thought I would share this video of John talking about ‪vasculitis‬, it is two years this month since this was recorded . Ironically enough, it was thick with...

Thought I would share this video of John talking about ‪vasculitis‬, it is two y...

Suzym2u

Moderator•10 years ago

2 Replies

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Spot rash

Hey everyone. I just wanted some advise, I have got mild vasculitis spots, and they itch so bad. I am on Hydroxychloraquin and fexofenadine and pregabaline. Is...

Hey everyone. I just wanted some advise, I have got mild vasculitis spots, and t...

XliddybX

•10 years ago

8 Replies

need some answers :)

I'm due my 2nd infusion of Rituximab on Tuesday, is it ok for me to go outdoors and mix with people? I'm going stir crazy in the house , my mother is taking me...

I'm due my 2nd infusion of Rituximab on Tuesday, is it ok for me to go outdoors ...

Llinos

•10 years ago

4 Replies

Yorkshire Vasculitis Support Group Web Site

Hi everyone. For those of you in the Yorkshire and Humberside areas, we've just launched a new "Yorkshire Vasculitis Support Groups" web site. It's currently...

Hi everyone. For those of you in the Yorkshire and Humberside areas, we've just ...

RichardE

Volunteer•10 years ago

6 Replies

Smelly Feet

Dear all, I asked, a while ago, about constipation and apparently touched a few 'nerves'- in a good way. So, since I have started a discussion on one,...

Dear all, I asked, a while ago, about constipation and apparently touched a few...

AndrewT

•10 years ago

5 Replies

anca test results

how long does it take to get an anca test result ?

bowler

•10 years ago

16 Replies

Going on prednisone! I was placed on 15mg of prednisone and within days felt wonderful!

My GP put me on a quick reduction of dosage. However, within a week or two, my own ability to make cortisone was reduced, so I did not have this as extra. I...

My GP put me on a quick reduction of dosage. However, within a week or two, my o...

Hidden

•10 years ago

17 Replies

SOLENT VASCULITIS SUPPORT GROUP (Portsmouth)

The group is supported by Vasculitis UK and Portsmouth Hospitals NHS Trust Rheumatology Outpatients Department. The first meeting for 2015 will be on Saturday...

The group is supported by Vasculitis UK and Portsmouth Hospitals NHS Trust Rheum...

Suzym2u

Moderator•10 years ago

1 Reply

Constipation?

Dear all, Not the most salubrious of subjects but how many of us suffer from constipation. Either long term or intermittently? Also how badly are you...

Dear all, Not the most salubrious of subjects but how many of us suffer from co...

AndrewT

•10 years ago

6 Replies

Reflux??

Those of you who have acid reflux, does it fill your mouth with a soapy taste, and your nose with a soapy smell that burns the back of your nose and throat?...

Those of you who have acid reflux, does it fill your mouth with a soapy taste, a...

Hidden

•10 years ago

7 Replies

Update

Saw 3 consultants in Singleton Hospital on Tuesday who confirmed after nearly 10 yrs in remission I have a flare up of my WG. Was given an infusion of...

Saw 3 consultants in Singleton Hospital on Tuesday who confirmed after nearly 10...

Llinos

•10 years ago

7 Replies

West Yorkshire Support Group Meeting

West Yorkshire Support Group meeting Sunday 22th March 2015 Gomersal Park Hotel, Cleckheaton 1.30pm to 4.30pm The speaker this time will be Wendy Murray...

West Yorkshire Support Group meeting Sunday 22th March 2015 Gomersal Park Hotel...

LynneJ

Vasculitis UK•10 years ago

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Do I have WG

I posted on here last week re Do I have WG I saw a new Dr today who was excellent, and I already have a X/ray booked for Wed, and blood tests on Fri. I...

I posted on here last week re Do I have WG I saw a new Dr today who was excel...

bowler

•10 years ago

3 Replies

Has anyone been diagnosed with Buerger's Disease? ( Thromboangiitis Obliterans )

There seems to be very little info on the prevalence of this disease. Please send us a private message if you would like to share your experience, or write to...

There seems to be very little info on the prevalence of this disease. Please se...

Suzym2u

Moderator•10 years ago

10 Replies

Benefits and Work January 2015 Newsletter

http://www.benefitsandwork.co.uk/news/2980-14-january-2015-newsletter

Suzym2u

Moderator•10 years ago

Be the first to reply

Citizens Advice Bureau is handing over a petition to DWP to change the rules

The Department for Work and Pensions have repeatedly defended their decision to stop people’s benefits during the first stage of that appeal process, which is...

The Department for Work and Pensions have repeatedly defended their decision to...

Suzym2u

Moderator•10 years ago

Be the first to reply

Very profound and moving article

I found this article online. I don't mind admitting it made me weep......because I recognise so much of myself in it....

I found this article online. I don't mind admitting it made me weep......because...

HiveMind

•10 years ago

18 Replies

Je Suis Charlie

Please, please do, join me, in offering the prayers of ALL decent people-whatever their religion may be-to the awful events, that occurred in Paris recently....

Please, please do, join me, in offering the prayers of ALL decent people-whateve...

AndrewT

•10 years ago

1 Reply

Operations for vasculitis sufferers

Are there many vasculitis sufferers who have had to have an operation for a medical condition non-linked to their vasculitis? I have a cyst on my spine which...

Are there many vasculitis sufferers who have had to have an operation for a medi...

LindainFrance

•10 years ago

8 Replies

Cauda Equina?

I have recently picked up a rotten case of bi-lateral sciatica, which coincided with a drop in my steroid dose and a mild increase in my inflammation markers....

I have recently picked up a rotten case of bi-lateral sciatica, which coincided ...

Wellsie

•10 years ago

3 Replies

Advice please

Ive had WG for 15 yrs , my last flare up was 10 yrs ago. I'm not on any medication. In November I had a ? virus which caused shortness of breath , pyrexia and...

Ive had WG for 15 yrs , my last flare up was 10 yrs ago. I'm not on any medicati...

Llinos

•10 years ago

3 Replies

Any tips on how to sleep on high steroids

I've recently had a flare of Churg Strauss syndrome. And the docs are helping me get it under control with medication. The major thing I'm struggling with is...

I've recently had a flare of Churg Strauss syndrome. And the docs are helping me...

Katie18

•10 years ago

11 Replies

GCA is an invisible disability. http://invisibledisabilities.org/

Who knows or cares if you have inflamed arteries which can cause a vast number of very serious health problems? By supporting voluntary and charitable...

Who knows or cares if you have inflamed arteries which can cause a vast number o...

Hidden

•10 years ago

2 Replies

Hi

Iv posted several times on her with various symptoms. As yet i dont have a vasculitis diagnosis. I have lots of pain and at the moment the pain is worse on my...

Iv posted several times on her with various symptoms. As yet i dont have a vascu...

yorkshiregirl44

•10 years ago

2 Replies

Testicular vasculitus

Hi, wondered if anyone has had any experience of testicular vasculitus and the treatment they've had for it?

Hi, wondered if anyone has had any experience of testicular vasculitus and the t...

35merlin

•10 years ago

12 Replies

For those who live in Cheshire, who maybe interested in attending this meeting.

NHS Eastern Cheshire (@NHSECCCG) 14/01/2015 09:40 The next meeting of our #patient and #carer reference group is taking place on 20th Jan 6-8pm in...

NHS Eastern Cheshire (@NHSECCCG) 14/01/2015 09:40 The next meeting of our #p...

Suzym2u

Moderator•10 years ago

Be the first to reply

You and your warfarin - Information about how to take your warfarin tablets safely

This has been posted By the hospital John attends in Chesterfield - it is a video giving information to patients (like John) who take Warfarin regularly....

This has been posted By the hospital John attends in Chesterfield - it is a vide...

Suzym2u

Moderator•10 years ago

2 Replies

takayasu's arteritis

Hi there, Have any of you that has takayasu's arteritis had a angioplasty for the carotid artery failed. If so what did they do afterwards. I had mine, and it...

Hi there, Have any of you that has takayasu's arteritis had a angioplasty for t...

mayony

•10 years ago

8 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for January 2015

Saynas

Nosebleeds

Two Years this month since this video of John Mills was first recorded, talking about Vasculitis.

Spot rash

need some answers :)

Yorkshire Vasculitis Support Group Web Site

Smelly Feet

anca test results

Going on prednisone! I was placed on 15mg of prednisone and within days felt wonderful!

SOLENT VASCULITIS SUPPORT GROUP (Portsmouth)

Constipation?

Reflux??

Update

West Yorkshire Support Group Meeting

Do I have WG

Has anyone been diagnosed with Buerger's Disease? ( Thromboangiitis Obliterans )

Benefits and Work January 2015 Newsletter

Citizens Advice Bureau is handing over a petition to DWP to change the rules

Very profound and moving article

Je Suis Charlie

Operations for vasculitis sufferers

Cauda Equina?

Advice please

Any tips on how to sleep on high steroids

GCA is an invisible disability. http://invisibledisabilities.org/

Hi

Testicular vasculitus

For those who live in Cheshire, who maybe interested in attending this meeting.

You and your warfarin - Information about how to take your warfarin tablets safely

takayasu's arteritis

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