Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

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All posts for October 2017

GPA - Holby City (Oct 2017)

Holby City (BBC1) SE 19 Ep 56, 31st Oct 2017 - Know yourself know your enemy.....has a patient with GPA (Wengers) as a potential case study for a young...

Holby City (BBC1) SE 19 Ep 56, 31st Oct 2017 - Know yourself know your enemy.......

philtw

•7 years ago

1 Reply

Wegener granulomatosis my mother suffering at age of 61 what was life expectancy

My mother suffering Wegener granulomatosis last 1year and 7 months now dises affects her lower boday her doctor was not given retuxitumb till today. If it...

My mother suffering Wegener granulomatosis last 1year and 7 months now dises af...

sam05

•7 years ago

7 Replies

How long rituxmab 500mg works and what is the second infusion expected time

Hi My mother 43 yrs old diagnosed with sle fortunately any organ is not damaged.she completed first infusion with no infusion.how long it works and what is...

Hi My mother 43 yrs old diagnosed with sle fortunately any organ is not damag...

Chinnaiah

•7 years ago

2 Replies

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North East Vasculitis Support Meeting - Nov 11th Newcastle Hospital

Programme 10:00-10:10 Welcome and Introduction – Dr Alice Lorenzi & Karen Walker (CTD & Vasculitis Nurse Specialist) 10:10-10:30 Imaging in...

Programme 10:00-10:10 Welcome and Introduction – Dr Alice Lorenzi & Kare...

John_Mills

Volunteer•7 years ago

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High Cholesterol and GPA

GPA in remission but GP wants me on statins. I don't trust the drug and would like to know if there are an positive examples amongst fellow sufferers please.

GPA in remission but GP wants me on statins. I don't trust the drug and would li...

ReidyWG

•7 years ago

21 Replies

Do I Need to be referred back to a Rheumatologist?

I'm 46 and have been having spells of unwellness throughout my life. At 18 I was in hospital for weeks with HSP & ongoing kidney issues (iga nephritis) which...

I'm 46 and have been having spells of unwellness throughout my life. At 18 I was...

MariaK71

•7 years ago

5 Replies

Interesting Study

Funded research study looking at the effect of Rituximab on flu vaccinations in patients with ANCA associated Vasculitis. Specifically whether Rituximab makes...

Funded research study looking at the effect of Rituximab on flu vaccinations in ...

Hidden

•7 years ago

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Low urine output

I have vasculitis (they have not discussed which one P anca pos mpo) and am being treated with prednisolone and mycophenalate (the mycophenalate is on hold at...

I have vasculitis (they have not discussed which one P anca pos mpo) and am bein...

friz42

•7 years ago

7 Replies

Vasculitis UK Autumn 2017 Newsletter

The VUK Autumn Newsletter is now available on line via the VUK website. Please follow this link http://www.vasculitis.org.uk/news/autumn-newsletter-2017-10

The VUK Autumn Newsletter is now available on line via the VUK website. Please f...

John_Mills

Volunteer•7 years ago

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West Country Vasculitis Support Group Pre-Xmas Lunch

It's never too early to start celebrating Christmas (!) so I hope lots of you are able to join us for a pre-festivities lunch Sunday 19th November 12.00 -...

It's never too early to start celebrating Christmas (!) so I hope lots of you ar...

DevonLottie

•7 years ago

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North West Support Group Meeting 22 October 2-4pm

What ever the weather next week you could be at the North-West Vasculitis Support Meeting. We are at The Trickled Trout in Preston. The address is Preston...

What ever the weather next week you could be at the North-West Vasculitis Suppor...

Jann

•7 years ago

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Young children with Wegners / Vasculitis

Hi, I am looking to find anyone who has experience with young children affected by WGPA or vasculitis especially around airways, nose lungs etc. My daughter...

Hi, I am looking to find anyone who has experience with young children affected ...

Matnkay

•7 years ago

5 Replies

Mononuritus multiplix enquiries

Hi every one; Im new here . I was diagnosed with "immune-mediated neuropathy" and some doctors mononuritus multiplix . Until now they are not sure about the...

Hi every one; Im new here . I was diagnosed with "immune-mediated neuropathy" ...

Ghayah

•7 years ago

15 Replies

HUVS

Hi, I'm 39 and was diagnosed with RA in my 20's. After being terribly painful for about 2 years it went into almost full remission after a year of...

Hi, I'm 39 and was diagnosed with RA in my 20's. After being terribly painful fo...

Superhonig1

•7 years ago

2 Replies

Child has had 2 C-ANCA positive results is this cause for concern?

My daughter is now 10yrs old and in recent years has developed Asthma and Cold Urticaria during a visit recently to our local hospital regarding the Cold...

My daughter is now 10yrs old and in recent years has developed Asthma and Cold U...

BoBo10

•7 years ago

4 Replies

Doubly Unlucky

How strange....... When I was 21 yrs old I was diagnosed with PAN (kidneys affected) full remission after 5 years the when I was 51yrs old I was diagnosed...

How strange....... When I was 21 yrs old I was diagnosed with PAN (kidneys affe...

philtw

•7 years ago

14 Replies

Compicated HSP in young adult

I am new here. My 22 yr old daughter was diagnosed with complicated hsp vasculitis 3 years ago, at the end f her freshman year of college. The first and...

I am new here. My 22 yr old daughter was diagnosed with complicated hsp vasculit...

motherofhsp

•7 years ago

5 Replies

Reducing prednisolone slowly

Some time ago I can remember seeing advice on how to reduce pred very slowly and am wondering if someone can print this out again please. I am down to 15 mg...

Some time ago I can remember seeing advice on how to reduce pred very slowly an...

poppet2

•7 years ago

16 Replies

Study into ANCA associated Vasculitis and fatigue

Came across this whilst searching for something else. It's a PhD thesis on Vasculitis and fatigue. It's on my " to read " list. Vasculitis U.K. memebers took...

Came across this whilst searching for something else. It's a PhD thesis on Vascu...

Hidden

•7 years ago

2 Replies

Raynalds with Vasculitis

Does anyone have painful raynalds with their Vasculitis? I have Wegeners GPA and nerve pain in both legs and hands but now the colder weather has started my...

Does anyone have painful raynalds with their Vasculitis? I have Wegeners GPA and...

Peddy1968

•7 years ago

8 Replies

North West Support Meeting 22 October 2017

North West Support Meeting Living in or around Manchester, Preston or the Lake District? Just diagnosed or have been living with Vasculitis for some time...

North West Support Meeting Living in or around Manchester, Preston or the Lak...

Jann

•7 years ago

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Another Trial Update

Just come back from an appointment with the consultant. I have some kind of virus going on and as per usual my veins did not want to give up my blood, so my...

Just come back from an appointment with the consultant. I have some kind of viru...

HFox

•7 years ago

2 Replies

Wegener Newbie

Hi, I'm 46 years old and suffered with RA since 1996. In the last couple of years I've had worsening issues with veins and sinus. Resulted in two surgeries. I...

Hi, I'm 46 years old and suffered with RA since 1996. In the last couple of year...

Rumson01

•7 years ago

9 Replies

coming off methotrexate

Has anyone out there experience of coming off methotrexate?? Since stopping taking in June despite my initial delight I have suffered all sorts of health...

Has anyone out there experience of coming off methotrexate?? Since stopping tak...

sarahdollygirl

•7 years ago

5 Replies

Losartan

Has anyone experience by taking Losarstad comp and p-creatinin getting higher? Have mpo-ANCA and after two months my p-creatinin went from 98 to 117? My doc...

Has anyone experience by taking Losarstad comp and p-creatinin getting higher? H...

Lima51

•7 years ago

1 Reply

Cambridge Rare Disease Network - Re-Imagining the Patient Journey

Suzanne Morris and Lynn Laidlaw have collaborated, using Suzanne's graphic design skills and wonderful artistic vision, to create a patient journey poster...

Suzanne Morris and Lynn Laidlaw have collaborated, using Suzanne's graphic desig...

John_Mills

Volunteer•7 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for October 2017

GPA - Holby City (Oct 2017)

Wegener granulomatosis my mother suffering at age of 61 what was life expectancy

How long rituxmab 500mg works and what is the second infusion expected time

North East Vasculitis Support Meeting - Nov 11th Newcastle Hospital

High Cholesterol and GPA

Do I Need to be referred back to a Rheumatologist?

Interesting Study

Low urine output

Vasculitis UK Autumn 2017 Newsletter

West Country Vasculitis Support Group Pre-Xmas Lunch

North West Support Group Meeting 22 October 2-4pm

Young children with Wegners / Vasculitis

Mononuritus multiplix enquiries

HUVS

Child has had 2 C-ANCA positive results is this cause for concern?

Doubly Unlucky

Compicated HSP in young adult

Reducing prednisolone slowly

Study into ANCA associated Vasculitis and fatigue

Raynalds with Vasculitis

North West Support Meeting 22 October 2017

Another Trial Update

Wegener Newbie

coming off methotrexate

Losartan

Cambridge Rare Disease Network - Re-Imagining the Patient Journey

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