Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for August 2024

2nd Shingrix Vaccination

Was due to have my 2nd jab last week but the surgery cancelled due to staff sickness. Am booked in for Monday but feeling like I have a cold starting. Hence I...

Was due to have my 2nd jab last week but the surgery cancelled due to staff sick...

•4 months ago

Covid Again - Watch this Space - Summary

Well here we are 27 days since my original post, having 2 x Negative tests in a row. Here are the summary points of what I have learnt. 1/ You can get through...

Well here we are 27 days since my original post, having 2 x Negative tests in a ...

•4 months ago

HSP rash & other symptoms

I came out In a horrible rash on my lower limbs 5 weeks ago. Ot started to clear but has reappear again and it has gone up thighs and tummy and arms hands now...

I came out In a horrible rash on my lower limbs 5 weeks ago. Ot started to clear...

•4 months ago

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Eye Problems

Hi All. I have started to have problems with my eyes. No pain but am getting a cloudy discharge and a rash and swelling around both eyes. Has anyone had...

Hi All. I have started to have problems with my eyes. No pain but am getting a c...

•4 months ago

medication for restless legs

My OH often suffers from restless legs he has GPA vasculitis. He has obtained some tablets from the US that are not available in the UK and I wondered if...

My OH often suffers from restless legs he has GPA vasculitis. He has obtained...

•4 months ago

Temporary Stop Endoxan/Cycloph

Hello, I have renal limited ANCA vasculitis. Started Induction almost 4 months ago with 2 Rituximab infusions and Prednis 60mg. After about 3 months was...

Hello, I have renal limited ANCA vasculitis. Started Induction almost 4 months ...

•5 months ago

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Covid again - watch this space!- Update

Hi all, remember my post above from last week well I said I would update Monday after the test. You guessed it…. I fell really ill. I went out for a walk...

Hi all, remember my post above from last week well I said I would update Monday ...

•5 months ago

Compression socks for travel

Hello, wondering if anyone has a good experience with compression socks for long haul travel? I do experience some feet swelling these days during the day...

Hello, wondering if anyone has a good experience with compression socks for long...

•5 months ago

Laryngitis symptoms - vasculitis flare?

Hi folks I've got laryngitis symptoms (pretty sure it isn't an infection as I don't have any infection symptoms and feel generally fine - tickly throat,...

Hi folks I've got laryngitis symptoms (pretty sure it isn't an infection as I d...

•5 months ago

Covid again - watch this space!

Hi all, sorry I have been a bit inactive recently but not much to tell you all. They say better late than never so here goes. As you are aware I am being...

Hi all, sorry I have been a bit inactive recently but not much to tell you all. ...

•5 months ago