Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,774 members • 6,747 posts

All posts for November 2013

New here - could this be Uticarial Vasculitis?

Hi - I'm new on here but not new to HU because I have Rheumatoid Arthritis and autoimmune Hypothyroidism. I'm hoping someone can help me here. I came off...

Hi - I'm new on here but not new to HU because I have Rheumatoid Arthritis and a...

Hidden

•10 years ago

4 Replies

"Together we are stronger" Please consider becoming a member of Vasculitis UK

Vasculitis UK has representation in various medical professional groups dealing with Vasculitis and other NHS bodies and NICE. The more people with Vasculitis...

Vasculitis UK has representation in various medical professional groups dealing ...

John_Mills

Volunteer•10 years ago

6 Replies

Can anyone help me my 50 yr old husband got struck with cerabal vasculitis on the brain in september last year he's had all his

Cyclophosimide course and he is now on his second month of mycrophenolate and 5 mg of predisolone when the vasculitis strook him it took away the use in his...

Cyclophosimide course and he is now on his second month of mycrophenolate and 5 ...

Chelsea22

•10 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Help, a friend suffers from rare form of vasculitis (not sure of type sorry) and giving up hope!!!

My friend is 37 and has been receiving chemotherapy for his condition but recently been told that treatment is not working and that he is basically dying. I am...

My friend is 37 and has been receiving chemotherapy for his condition but recent...

biddo20

•10 years ago

7 Replies

Hi, I am looking for a little help regarding a rare form of vasculitis that a friend has (not sure of type sorry). Need some advice/answers?

He is 37 and has been receiving chemotherapy for his condition but recently been told that treatment is not working and that he is basically dying. I am sure...

He is 37 and has been receiving chemotherapy for his condition but recently been...

biddo20

•10 years ago

2 Replies

Recently diagnosed with Leukocytoclastic vasculitis via skin biopsy had 1st meeting with dermatologist who has now taken bloods to see if i

am ANCA positive or negative, then will use those results to determine any treatment i might have, also commented my R factor was raised from other bloods, am...

am ANCA positive or negative, then will use those results to determine any treat...

nesbitt

•10 years ago

10 Replies

My Father of 71 just been advised he may have cerebral vasculitis. Shell shocked and unsure what to expect

10 weeks ago my father was bright, intelligent, engaging and fairly fit. Then 5 weeks of double/blurred vision, weight loss, confusion. Finally admitted to...

10 weeks ago my father was bright, intelligent, engaging and fairly fit. Then 5 ...

SteveJarvis

•10 years ago

11 Replies

Prednisilone: 5mg per day = Good or Bad?

I am, currently, on 5mg of Pred daily having reduced from 8mg over the last few months (on the advice of my consultant). Going from 8mg very, very gradually...

I am, currently, on 5mg of Pred daily having reduced from 8mg over the last few ...

HiveMind

•10 years ago

7 Replies

Just diagnosed

I everyone I had been diagnosed with lupus SLE for two years and have just been told I do not have lupus but vasculitus. Please could someone explain what it...

I everyone I had been diagnosed with lupus SLE for two years and have just been ...

XliddybX

•10 years ago

7 Replies

Abbreviations and Terms

Is there somewhere that abbreviations and terms are listed I keep reading them in various Posts etc but my version of Cerebral Granulomatous Angitiis tends to...

Is there somewhere that abbreviations and terms are listed I keep reading them i...

EOS7D

•10 years ago

5 Replies

A Concert for Vasculitis UK February 8th, 2014

"Generation Gap" will be performing a range of vocal solos and duets from ballads to Broadway, classical to pop, a very special fundraising event for...

"Generation Gap" will be performing a range of vocal solos and duets from ball...

John_Mills

Volunteer•10 years ago

5 Replies

Best way to treat tooth abscess when you have Churg strauss

My dentist thinks I may have an abscess on my tooth but he is not sure as I also have a back wisdom tooth growing at a strange angle into my teeth. The abscess...

My dentist thinks I may have an abscess on my tooth but he is not sure as I also...

Katie18

•10 years ago

5 Replies

Time is moving on!

Time is moving on! Way too quick for my liking! We still have some Christmas Cards and Tree Decorations left. Check them out on...

Time is moving on! Way too quick for my liking! We still have some Chri...

LynneJ

Vasculitis UK•10 years ago

2 Replies

New Rare Diseases Strategy to help millions launch today

A new UK strategy to help improve the diagnosis, research and treatment of rare diseases is expected to be launched by the Government today. It is estimated...

A new UK strategy to help improve the diagnosis, research and treatment of rare ...

John_Mills

Volunteer•10 years ago

6 Replies

Coffee and Cake Morning and a Raffle for Vasculitis UK The Pines Surgery, in Kingsthorpe Northampton, is holding a Christmas Hamper raffle

The Pines Surgery, in Kingsthorpe Northampton, is holding a Christmas Hamper raffle to be drawn before Christmas. It is also a chance to win a Winston the...

The Pines Surgery, in Kingsthorpe Northampton, is holding a Christmas Hamper raf...

Suzym2u

Moderator•10 years ago

Be the first to reply

Very interesting day at the Vasculitis Masterclass for Large Vessel Vasculitis yesterday in Warrington.

There were around 50 people present, most were doctors who have an interest in Vasculitis. Prof Justin Mason and Dr Janice Harper were two of the five...

There were around 50 people present, most were doctors who have an interest in V...

Suzym2u

Moderator•10 years ago

7 Replies

CSS In the Daily Mail.

http://www.dailymail.co.uk/health/article-2510577/Mother-developed-rare-life-threatening-illness-manages-make-daughters-wedding--thanks-137-determined-medics.ht

http://www.dailymail.co.uk/health/article-2510577/Mother-developed-rare-life-thr...

luggsey

•10 years ago

2 Replies

Does anybody follow a healthy eating plan or know of diets which can help this condition. I have been diagnosed and being treated for WG.

I am taking 75mg of prednisone daily and have had my first cyclophosphamide a week ago. I have noticed some foods are not so appetising any more and wondered...

I am taking 75mg of prednisone daily and have had my first cyclophosphamide a we...

Hidden

•10 years ago

6 Replies

Kidneys leaking protein

My daughter was diagnosed with wegeners granulomatosis in August has just 5 out of to be 9 doses of cyclophosphamide along with steroids. Her kidneys are...

My daughter was diagnosed with wegeners granulomatosis in August has just 5 out ...

Bailey24

•10 years ago

5 Replies

Hi,anybody with CNSV? Just recently been diagnosed after 3yrs of tests

cazwad

•10 years ago

7 Replies

Returning symptoms

My initial dx was GCA. The it was unspecified vasculitis, then it was more likely a lupus/ vasculitis overlap. Last was it is autoimmune but don't know what!...

My initial dx was GCA. The it was unspecified vasculitis, then it was more likel...

CathT

•10 years ago

10 Replies

What do people with CSS take for severe toothache?

I have severe toothache and have been told to take an inflammatory medicine such as neurophen by the dentist. Although I have CSS and am not supposed to take...

I have severe toothache and have been told to take an inflammatory medicine such...

Katie18

•10 years ago

7 Replies

East Midlands Vasculitis Support Group Christmas lunch December 14th 2013

Please come and join us , we have to have numbers by December 2nd. There is already quite a jolly bunch of us and Santa just may make an appearance. :-)...

Please come and join us , we have to have numbers by December 2nd. There is alre...

Suzym2u

Moderator•10 years ago

Be the first to reply

Cerebral vasculitis

The experts think i have this as i have lesions on my brain, but they have done MRI recently and no new damage but i still have lots of neurological symptoms....

The experts think i have this as i have lesions on my brain, but they have done ...

zeusthegreat

•10 years ago

3 Replies

Had all the symptoms of GCA and PMR, but also had purpula on buttocks and epidydmitis, polpys and choking cough. Bloods were raised esr,crp,

aeonamia, thrombocytosis, leukocytosis, .After they started me on 60mg of steroid my severe head and leg pains continued for 14 days, am type 1 diabetic, so...

aeonamia, thrombocytosis, leukocytosis, .After they started me on 60mg of steroi...

lonelyroad1

•10 years ago

1 Reply

My sister told me about this today...she also has an autoimmune disease but not Vasculitis

Has anyone else read about this..my sister found it very interesting... http://www.bbc.co.uk/news/uk-england-beds-bucks-herts-24849948

Has anyone else read about this..my sister found it very interesting... http://w...

Suzym2u

Moderator•10 years ago

4 Replies

Research into Therapy to put Lupus into Remission

This article (stolen from the Lupus UK pages) looks interesting and although it relates to SLE, I wonder if there would be a crossover with the Lupus-like...

This article (stolen from the Lupus UK pages) looks interesting and although it ...

RichardE

Volunteer•10 years ago

2 Replies

Nerve damage. .........

Hi all. I have vasculitis which seems to be contained to my nerves. Iv lost the feeling and some movement in my left habd and lost the feeling in half my left...

Hi all. I have vasculitis which seems to be contained to my nerves. Iv lost the ...

Mags88

•10 years ago

11 Replies

Has anybody been diagnosed with intermittent claudication and been told that there is nothing that can be done about it?

I am in severe pain in my calf muscles when I have walked around 100 metres. I am told that. 2. Small arteries below the knee are somewhat blocked and an...

I am in severe pain in my calf muscles when I have walked around 100 metres. I a...

1504petjen

•10 years ago

2 Replies

Flares & Relapses

Do flares. & relapses almost always occur? My 13 year old daughter has wegeners granulomatosis - diagnosed august this year. Does anybody out there have WG &...

Do flares. & relapses almost always occur? My 13 year old daughter has wegeners ...

Bailey24

•10 years ago

8 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for November 2013

New here - could this be Uticarial Vasculitis?

"Together we are stronger" Please consider becoming a member of Vasculitis UK

Can anyone help me my 50 yr old husband got struck with cerabal vasculitis on the brain in september last year he's had all his

Help, a friend suffers from rare form of vasculitis (not sure of type sorry) and giving up hope!!!

Hi, I am looking for a little help regarding a rare form of vasculitis that a friend has (not sure of type sorry). Need some advice/answers?

Recently diagnosed with Leukocytoclastic vasculitis via skin biopsy had 1st meeting with dermatologist who has now taken bloods to see if i

My Father of 71 just been advised he may have cerebral vasculitis. Shell shocked and unsure what to expect

Prednisilone: 5mg per day = Good or Bad?

Just diagnosed

Abbreviations and Terms

A Concert for Vasculitis UK February 8th, 2014

Best way to treat tooth abscess when you have Churg strauss

Time is moving on!

New Rare Diseases Strategy to help millions launch today

Coffee and Cake Morning and a Raffle for Vasculitis UK The Pines Surgery, in Kingsthorpe Northampton, is holding a Christmas Hamper raffle

Very interesting day at the Vasculitis Masterclass for Large Vessel Vasculitis yesterday in Warrington.

CSS In the Daily Mail.

Does anybody follow a healthy eating plan or know of diets which can help this condition. I have been diagnosed and being treated for WG.

Kidneys leaking protein

Hi,anybody with CNSV? Just recently been diagnosed after 3yrs of tests

Returning symptoms

What do people with CSS take for severe toothache?

East Midlands Vasculitis Support Group Christmas lunch December 14th 2013

Cerebral vasculitis

Had all the symptoms of GCA and PMR, but also had purpula on buttocks and epidydmitis, polpys and choking cough. Bloods were raised esr,crp,

My sister told me about this today...she also has an autoimmune disease but not Vasculitis

Research into Therapy to put Lupus into Remission

Nerve damage. .........

Has anybody been diagnosed with intermittent claudication and been told that there is nothing that can be done about it?

Flares & Relapses

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