Posts - Vasculitis UK | HealthUnlocked

http://www.personalhealthbudgets.dh.gov.uk/News/item/?cid=8582

Volunteer•11 years ago

8 Replies

Found this on Twitter this morning tweeted by the Department of Health regarding long term health conditions....

Just to thank everyone who has bought Christmas Cards this year from Vasculitis UK. We have sold over 700 packs up to date...so that makes 7000 individual...

Volunteer•11 years ago

3 Replies

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Thank you to everyone who has bought Vasculitis UK Christmas Cards this year.

Just to thank everyone who has bought Christmas Cards this year from Vasculitis ...

Volunteer•11 years ago

Would you all be so kind as to list your top 5 most debilitating Vasculitis symptoms for me? Rate things like, quality of life, impact on work/home life,...

Help needed!

Would you all be so kind as to list your top 5 most debilitating Vasculitis symp...

HiveMind

•11 years ago

30 Replies

ESA, less amount now than income support

Hi all, wondering if anyone has any info about ESA. I received a letter telling me I would be coming off of IS and onto ESA, in the support group. I filled out...

Hi all, wondering if anyone has any info about ESA. I received a letter telling ...

Lucylucciano

•11 years ago

5 Replies

Very interesting article by Dr Mark Hyman

http://www.huffingtonpost.com/dr-mark-hyman/how-to-stop-attacking-you_b_657395.html Hope you all find it useful.

http://www.huffingtonpost.com/dr-mark-hyman/how-to-stop-attacking-you_b_657395.h...

HiveMind

•11 years ago

If you do have ANCA associated Vasculitis and have a close blood relative/s who also have ANCA vasculitis, would you like to take part in DNA analysis research...

Would anyone like to take part in a Vasculitis research project?

If you do have ANCA associated Vasculitis and have a close blood relative/s who ...

Rituximab Survey... Just to say thank you so much to everyone who has taken part in the Rituximab Survey for NICE. The response has been excellent!! If you...

Volunteer•11 years ago

3 Replies

Rituximab Survey for NICE

Rituximab Survey... Just to say thank you so much to everyone who has taken part...

There's an article about primary CNS vasculitis in The Lancet in August 2012 (volume 380, issue 9843, pp. 767-77). It's written by Carlo Salvarani, Robert D...

Volunteer•11 years ago

1 Reply

Article in The Lancet (Aug 2012) about CNS/cerebral vasculitis

There's an article about primary CNS vasculitis in The Lancet in August 2012 (vo...

vivdunstan

Volunteer•11 years ago

anyone ever had small clots of blood coming from their mouth,dont mean like bleeding gums,but small clots in their saliva its not coming from my chest,as not...

clots of blood

anyone ever had small clots of blood coming from their mouth,dont mean like blee...

quinnster

•11 years ago

A report from recent research findings. It makes interesting reading and may affect us. www.guardian.co.uk/world/2012/nov/26/grapefruit-health-risk-warning...

Watch out for grapefruit!

A report from recent research findings. It makes interesting reading and may af...

Ayla

Volunteer•11 years ago

1 Reply

Dry nostrils

Hello all, I've been suffering with extremely dry nostrils recently. Crusty and sometimes bleeding. I've never had this before so I'm not sure if it's...

Hello all, I've been suffering with extremely dry nostrils recently. Crusty ...

HiveMind

•11 years ago

5 Replies

Headaches with aziothioprine

I’ve been on 150 mg of aziothioprine now since finishing my initial treatment. I’ve been experiencing mild headaches most mornings when I wake up. These...

I’ve been on 150 mg of aziothioprine now since finishing my initial treatment. I...

Chris-Bromsgrove

•11 years ago

Ayla has come across this article, but for some reason couldn't get it to post, so I'm doing the honours on her behalf. I was informed a long time ago...

Grapefruit medication interactions increasing

Ayla has come across this article, but for some reason couldn't get it to post, ...

PatriciaAnn

•11 years ago

8 Replies

Pregnancy and Vasculitis... ?

I would like to ask a question... has anyone been diagnosed with Vasculitis, during or just after pregnancy? We have just been contacted by another two ladies...

I would like to ask a question... has anyone been diagnosed with Vasculitis, dur...

Has anyone with Urticarial Vasculitis had it suggested that Ramipril ( for blood pressure ) could be the cause of flares, and if yes ,did it prove to be the...

Volunteer•11 years ago

7 Replies

Ramipril

Has anyone with Urticarial Vasculitis had it suggested that Ramipril ( for blood...

jackrussell

•11 years ago

12 Replies

Route Map,

I have just returned from seeing my consultant Dermatologist at my local hospital and during our " little chat " I mentioned Vasculitis UK Route Map, and he...

I have just returned from seeing my consultant Dermatologist at my local hospita...

jackrussell

•11 years ago

1 Reply

Moving on, how?

Hi all, I have been contemplating for some time now, if I ask this question or not, so here goes! I am 33 years old and first had symptoms of Wegener’s...

Hi all, I have been contemplating for some time now, if I ask this question o...

Regie79

•11 years ago

19 Replies

Movember Update

Movemeber, the concept of growing facial hair for charity was an idea imported from OZ. Ed Barton’s progress can be reviewed on his Just Giving site. Visit...

Movemeber, the concept of growing facial hair for charity was an idea imported f...

Jann

•11 years ago

We hear so much about coming off steroids but I am not too worried about a low dose of steroids, can take it for life if necessary as Addenbrookes say anything...

Has anyone managed to dump the immunosuppresants?

We hear so much about coming off steroids but I am not too worried about a low d...

Ayla

Volunteer•11 years ago

13 Replies

We made the papers!

http://www.worcesterstandard.co.uk/2012/11/22/news-Striding-out-to-boost-a-fine-cause-56366.html More than makes up for chemo on Christmas Eve :)

http://www.worcesterstandard.co.uk/2012/11/22/news-Striding-out-to-boost-a-fine-...

Wellsie

•11 years ago

7 Replies

churg strauss on sky today [thurs] @ 5pm

mystery diagnosis on sky 254 @ 5 or 255 @ 6pm features Robin who as churg strauss.

mystery diagnosis on sky 254 @ 5 or 255 @ 6pm features Robin who as churg straus...

hamble99b

Volunteer•11 years ago

3 Replies

TAK & WEGENERS

Hello. Is there anyone out there who suffers with both TAK and WEGENERS? I have TAK but am bit concerned might have WEGENERS too as I have been having...

Hello. Is there anyone out there who suffers with both TAK and WEGENERS? I have...

Coffeebix

•11 years ago

2 Replies

Vasculitis Masterclass

Had a really interesting long morning at the Masterclass. There was a lot of interest in Vasculitis UK. Sam spoke to doctor who was very interested in the...

Had a really interesting long morning at the Masterclass. There was a lot of int...

LynneJ

Vasculitis UK•11 years ago

10 Replies

Hi everyone. Has anybody suffered with depression due to long term Prednisolone use? JacquiM

JacquiM

Volunteer•11 years ago

13 Replies

Rituximab

I went for my first Rituximab infusion on friday and had an allergic reaction to it? has this happened to anyone else? my vasculitis is now flaring up,...

I went for my first Rituximab infusion on friday and had an allergic reaction to...

lucindaross

•11 years ago

6 Replies

Kickboxing Charity Night 24th November for Vasculitis UK

Midlands Kickboxing club are holding a Charity fight night on the 24th of November 2012 at The Rushcliffe Arena, Rugby Road, West Bridgford, Nottingham,...

Midlands Kickboxing club are holding a Charity fight night on the 24th of Novemb...

Volunteer•11 years ago

She is 78 yrs and on Omnacortil 5 mg daily for polyarthritis since last 8 yrs. She complians of intermitant abdominal pain. What is the best treatment for her....

my mother has just been diagnosed with pANCA positive and has hematuria since 10 days. Guide us

She is 78 yrs and on Omnacortil 5 mg daily for polyarthritis since last 8 yrs. S...

frenny99

•11 years ago