Polls - Vasculitis UK | HealthUnlocked

Vasculitis UK

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If you have had covid and contacted a medical professional/hospital what medication/treatments were you offered?

For those who have been prescribed Rituximab in the last 12 months. Have you, as a patient, experienced problems accessing Rituximab?

How are you feeling about the proposed lifting of COVID19 restrictions on 19th July? Let us know if you're happy or not happy in this poll

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( Part one ) Only answer this poll if you have had the vaccine? Which type? Did you suffer side effects? Leave any appropriate replies

In this last year of COVID19 have you had regular contact with your consultant/specialist nurse? Please leave any “appropriate” replies.

How long did it take from your 1st visit to the GP complaining of symptoms to getting a proper diagnosis & treatment. Please comment too.

Have you been diagnosed with cancer SINCE being diagnosed with vasculitis? If so what type of cancer? Please leave any appropriate comments.

Do you have access to your medical test results online? Please answer yes or no, and add appropriate comments if need be.

How long did it take from your 1st visit to the doctor complaining of symptoms to getting a proper diagnosis & treatment. Please comment

What were your first symptoms of your particular type of vasculitis? Please leave any appropriate comments. (Multiple choice)

How many different doctors/specialists did you see before being diagnosed with Vasculitis? Please leave any appropriate comments.

As part of your treatment were you ever referred to a Clinical Psychologist If so did you find it helpful? please make appropriate comments

Since you were diagnosed with vasculitis, have you also been diagnosed with cancer. If yes please comment what type & drugs you were given.

Patients like to take part in research but don't know how. Help us to understand what the problems are. (Multi-choice) Leave any comments

At what age were you diagnosed with vasculitis? Please leave any appropriate comments.

To what extent does "vasculitis fatigue" have an impact on your day to day life? (Please leave any appropriate comments)

How long between first visiting your GP did it take you to be diagnosed with vasculitis. Please leave any appropriate comments.

Do you suffer from 'severe chronic' pain due to neuropathy. please leave any appropriate comments.

What type of Vasculitis have you been diagnosed with? Please leave any appropriate comments.

In addition to your doctor/consultant do you have a specialist nurse/care co-coordinator? Please leave any appropriate comments

Since you have been diagnosed with Vasculitis, have you had to claim benefits? Please leave any appropriate comments

Have you experienced any of the following problems, that you consider to be a consequence of taking steroids?(multiple choice)

IF you have been prescribed prednisolone for any length of time have you since been told you have Osteoporosis?leave any appropriate replies

Have you ever been diagnosed with a Vit B12 deficiency? Please leave any appropriate comments.

If you were given IV Cyclophosphamide, were you also offered Mesna? (To protect against bladder toxicity) leave any appropriate Comments.

What do YOU think was the trigger for your particular type of Vasculitis? "Multiple Choice" Please leave any "appropriate" comments.

How did you find out about the Vasculitis UK HealthUnlocked Community? Please leave any "appropriate" comments.

As a carer or family of a relative diagnosed with vasculitis, where did you find the "initial" information about the disease?

Have you any "symptoms" along with your type of vasculitis that have been or haven't been attributed to it. ( multiple-choice)

If you have a diagnosis of any of the different types of vasculitis. How long since you were diagnosed? Please leave appropriate comments.

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