How long did it take from your 1st visit to the doctor complaining of symptoms to getting a proper diagnosis & treatment. Please comment
John_Mills6 months agoPOPULAR
What were your first symptoms of your particular type of vasculitis? Please leave any appropriate comments. (Multiple choice)
How many different doctors/specialists did you see before being diagnosed with Vasculitis? Please leave any appropriate comments.
John_Millsa year agoPOPULAR
As part of your treatment were you ever referred to a Clinical Psychologist If so did you find it helpful? please make appropriate comments
Suzym2ua year agoPOPULAR
Since you were diagnosed with vasculitis, have you also been diagnosed with cancer. If yes please comment what type & drugs you were given.
Suzym2u2 years ago
Patients like to take part in research but don't know how. Help us to understand what the problems are. (Multi-choice) Leave any comments
Suzym2u2 years agoPOPULAR
At what age were you diagnosed with vasculitis? Please leave any appropriate comments.
To what extent does "vasculitis fatigue" have an impact on your day to day life? (Please leave any appropriate comments)
How long between first visiting your GP did it take you to be diagnosed with vasculitis. Please leave any appropriate comments.
Do you suffer from 'severe chronic' pain due to neuropathy. please leave any appropriate comments.
What type of Vasculitis have you been diagnosed with? Please leave any appropriate comments.
Suzym2u3 years agoPOPULAR
In addition to your doctor/consultant do you have a specialist nurse/care co-coordinator? Please leave any appropriate comments
Since you have been diagnosed with Vasculitis, have you had to claim benefits? Please leave any appropriate comments
Have you experienced any of the following problems, that you consider to be a consequence of taking steroids?(multiple choice)
IF you have been prescribed prednisolone for any length of time have you since been told you have Osteoporosis?leave any appropriate replies
Have you ever been diagnosed with a Vit B12 deficiency? Please leave any appropriate comments.
If you were given IV Cyclophosphamide, were you also offered Mesna? (To protect against bladder toxicity) leave any appropriate Comments.
What do YOU think was the trigger for your particular type of Vasculitis? "Multiple Choice" Please leave any "appropriate" comments.
How did you find out about the Vasculitis UK HealthUnlocked Community? Please leave any "appropriate" comments.
As a carer or family of a relative diagnosed with vasculitis, where did you find the "initial" information about the disease?
Have you any "symptoms" along with your type of vasculitis that have been or haven't been attributed to it. ( multiple-choice)
If you have a diagnosis of any of the different types of vasculitis. How long since you were diagnosed? Please leave appropriate comments.
How does chronic pain affect your life style? ( multi choice answers ) ( please leave any appropriate comments
Suzym2u3 years ago
IF you have suffered abdominal/ gastrointestinal pain as a result of your vasculitis(not due to medication)what type of vasculitis have you?
Since being diagnosed with vasculitis, excluding the direct effects of the vasculitis, what have been the biggest issues for you?
If you are renewing a blue badge or currently applying to be a holder , please take time to answer this question. (multiple choice)
There may be a seasonal pattern to Vasculitis symptoms first starting, can you narrow down when your symptoms started?
John_Mills3 years agoPOPULAR
27 Replies1 Like
After first becoming ill, how many days in total were you hospitalised before your final diagnosis? please leave any appropriate comments
Before you were diagnosed with Vasculitis, what was your level of knowledge of the disease? please leave any appropriate comments.
"IF" you have taken Methotrexate & have had both oral & injection/pen which do you think causes less side effects, please make any comments
Suzym2u4 years ago
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