Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for November 2014

British Society of Rheumatology Autumn Conference. Nov 27th - Nov 28th 2014

BSR (British Society of ‪#Rheumatology‬ ) Autumn Conference 2014, this week in ‪Brighton‬. Programme - Rheumatoid Arthritis, Crystal Arthritis, Psoriatic...

BSR (British Society of ‪#Rheumatology‬ ) Autumn Conference 2014, this week in ‪...

Suzym2u

Moderator•10 years ago

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Nerve needle prick sensations

Recovering from peripheral nerve damage caused by CCS and am experiencing many many little pin pricks all over my body, just discomfort really but would like...

Recovering from peripheral nerve damage caused by CCS and am experiencing many m...

RareStap

•10 years ago

9 Replies

You've hit a milestone! 2000+ of you now have joined the Vasculitis UK community

Congratulations for building a health movement in HealthUnlocked! Whenever you write a post, ask a question or reply to someone, you are touching the lives of...

Congratulations for building a health movement in HealthUnlocked! Whenever you ...

HealthUnlocked

HealthUnlocked•10 years ago

4 Replies

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Rudy is a study in Rare Diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford

This is just a reminder about the RUDY research study here in England. Anyone ‪diagnosed‬ with v‪asculitis‬ can register and sign up. This link will give you...

This is just a reminder about the RUDY research study here in England. Anyone ‪d...

Suzym2u

Moderator•10 years ago

19 Replies

Vasculitis Education Day for medical professionals and patients December 4th

PLEASE NOTE THIS MEETING IS NOW FULLY SUBSCRIBED AND THERE IS A WAITING LIST. THis education day is hopefully going to be filmed - organised by Vasculitis UK...

PLEASE NOTE THIS MEETING IS NOW FULLY SUBSCRIBED AND THERE IS A WAITING LIST. ...

Suzym2u

Moderator•10 years ago

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numbness in legs and feet/plus bells palsy/shingles

diag. 8months WG has anyone numbness in legs and feet ,recovery time for same, had flue inj. 4weeks ago and for last 2weeks had either bells palsy or shingles...

diag. 8months WG has anyone numbness in legs and feet ,recovery time for same, h...

tom21

•10 years ago

7 Replies

Save our NHS Campaign

SAVE OUR NHS CAMPAIGN - On Friday MP's will debate and vote on a private members bill intended to protect the NHS from increasing privatisation. The new law...

SAVE OUR NHS CAMPAIGN - On Friday MP's will debate and vote on a private members...

Suzym2u

Moderator•10 years ago

4 Replies

Vasculitis Education Day, Manchester December 4th.

On December 4th there will be a ‪‎Vasculitis‬ Education day in ‪Manchester‬. This education day is aimed at ‪doctors‬ and other ‪‎medical‬ health...

On December 4th there will be a ‪‎Vasculitis‬ Education day in ‪Manchester‬. Thi...

Suzym2u

Moderator•10 years ago

3 Replies

Lancashire/North West Vasculitis Support Group

The VSG will be held this coming Sunday, 23rd November at the Tickled Trout Hotel, near Preston between 2pm and 4pm. Sorry, I put September originally. The...

The VSG will be held this coming Sunday, 23rd November at the Tickled Trout Hote...

PatriciaAnn

•10 years ago

1 Reply

Coffee and a chat Chapel Allerton Hospital ( Leeds ) November 20th

Do you live in the Leeds area? Then why not come along to the next coffee and chat morning at Chapel Allerton Hospital, Leeds on Thursday 20th November 2014...

Do you live in the Leeds area? Then why not come along to the next coffee and ch...

Suzym2u

Moderator•10 years ago

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Lancashire and North West Vasculitis Support Group Meeting Nov 23rd

Lancashire and North West vasculitis support group meeting 23rd November, please contact Jann or Anita if you are attending :-) please follow this link for...

Lancashire and North West vasculitis support group meeting 23rd November, please...

Suzym2u

Moderator•10 years ago

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Churg strauss

My mum is due to have cyclophosphamise later this month for the first time. This is to replace the mmf she has been taking. She will continue with the...

My mum is due to have cyclophosphamise later this month for the first time. Thi...

Naz2014

•10 years ago

13 Replies

possible vasculitis

I would be grateful if someone evaluate my blood test results. CRP: 0.829 mg/dL min 0.00- max 0.800 ANA: NEGATIVE SEDIMENTATION Sedim 60 Minutes: 14...

I would be grateful if someone evaluate my blood test results. CRP: 0.829 mg/dL...

sas123

•10 years ago

4 Replies

The International Vasculitis Medical Conference and Patient Symposium 2015

http://www.vasculitis.org.uk/content/downloads/prov-notice-2015.pdf http://www.vasculitis.org.uk/news/prov-notice-2015 The 17th International Vasculitis and...

http://www.vasculitis.org.uk/content/downloads/prov-notice-2015.pdf http://www....

Suzym2u

Moderator•10 years ago

6 Replies

Update and Further Vasculitis (WG) advice would be welcome

Hi, Since my earlier post, I have now been diagnosed with Wegeners Granulomatosis (GPA). I am on 25mg of prednisolone a day and, due to having scleritis, I am...

Hi, Since my earlier post, I have now been diagnosed with Wegeners Granulomatos...

chsskg

•10 years ago

8 Replies

Travel Insurance

For your interest, we've just found a travel insurance company called World First 0845 9080161. My husband declared various medical conditions, Vasculitis,...

For your interest, we've just found a travel insurance company called World Firs...

Nadine99

•10 years ago

2 Replies

Confused over diagnosis for daughter -Urticarial Vasculitis

Hi I m a new member and would like some advice regarding my 11 yr old daughters diagnosis. Since she was under 5 she has been having blistery rashes mainly on...

Hi I m a new member and would like some advice regarding my 11 yr old daughters ...

JoT2014

•10 years ago

3 Replies

Research Project Update

Just a quick note to say thank you to everyone who has completed the fatigue survey for my Msc Health Psychology Research Project in the last few days. I'm...

Just a quick note to say thank you to everyone who has completed the fatigue sur...

HM266

•10 years ago

3 Replies

Ingrowing Toenails

Sounds quite insignificant really but they are giving my husband extreme pain (he has WG and the doctors have said this has caused this). He goes to the...

Sounds quite insignificant really but they are giving my husband extreme pain (h...

Nadine99

•10 years ago

5 Replies

managing pain in vasculitis

Dear friends, Does anyone have experience with managing severe pain in their fingers due to vasculitis and Reynaud's phenomenon? My partner has recently been...

Dear friends, Does anyone have experience with managing severe pain in their fin...

rdavis

•10 years ago

9 Replies

More bad news....

It seems every time my dad goes into hospital they find something new. This time we found out that not only has he now got cataracts. his body has now started...

It seems every time my dad goes into hospital they find something new. This time...

LADavies

•10 years ago

5 Replies

For those diagnosed with Behçet's Disease who live in Australia.

https://www.rareconnect.org/en/community/behcet-s-syndrome/forum/topic/behcet-s-in-australia Just follow the link above. It is through Rare Connect, from...

https://www.rareconnect.org/en/community/behcet-s-syndrome/forum/topic/behcet-s-...

Suzym2u

Moderator•10 years ago

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Do you know of patients who are having to fight to access a medicine?

http://us8.campaign-archive1.com/?u=144770e74471b2695c19422dc&id=1f89e1dfd0&e=74c180da55 As part of Genetic Alliance UK's / Rare Disease UK's work to...

http://us8.campaign-archive1.com/?u=144770e74471b2695c19422dc&id=1f89e1dfd0&e=74...

Suzym2u

Moderator•10 years ago

2 Replies

positive c-anca with pr3

I have positive c-anca and pr3 test but i have no symptoms of any vasculitis disorder except dry eyes. What could be the reason of this positive test except...

I have positive c-anca and pr3 test but i have no symptoms of any vasculitis dis...

sas123

•10 years ago

13 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for November 2014

British Society of Rheumatology Autumn Conference. Nov 27th - Nov 28th 2014

Nerve needle prick sensations

You've hit a milestone! 2000+ of you now have joined the Vasculitis UK community

Rudy is a study in Rare Diseases of the bones, joints and blood vessels. Headed up by a research team at the University of Oxford

Vasculitis Education Day for medical professionals and patients December 4th

numbness in legs and feet/plus bells palsy/shingles

Save our NHS Campaign

Vasculitis Education Day, Manchester December 4th.

Lancashire/North West Vasculitis Support Group

Coffee and a chat Chapel Allerton Hospital ( Leeds ) November 20th

Lancashire and North West Vasculitis Support Group Meeting Nov 23rd

Churg strauss

possible vasculitis

The International Vasculitis Medical Conference and Patient Symposium 2015

Update and Further Vasculitis (WG) advice would be welcome

Travel Insurance

Confused over diagnosis for daughter -Urticarial Vasculitis

Research Project Update

Ingrowing Toenails

managing pain in vasculitis

More bad news....

For those diagnosed with Behçet's Disease who live in Australia.

Do you know of patients who are having to fight to access a medicine?

positive c-anca with pr3

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