Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for December 2013

Happy New Year!

wishing you all Health Happiness and Hope for the coming year. :) sandra.

hamble99b

Volunteer•11 years ago

6 Replies

First time travelling abroad bit worried about autoimune and GCA with all those recycled germs we are warned about and cabin pressure .,,,

Any advice as we are told not to Go into crowded places etc. Thanks

shella

•11 years ago

15 Replies

Anyone suffering from vascullits noticed 'hot sweats'? if so, any suggestions?

just wondered if anyone with vascullitis has noticed night sweats or daytime 'hot sweats'? If so, any obvious solutions? Or anyone with a good endocrinologist...

just wondered if anyone with vascullitis has noticed night sweats or daytime 'ho...

Angelique11

•11 years ago

29 Replies

Want to take advantage of all our features? Just log in!

I have no idea on travel insurance , but as i live in Australia , when I am we'll enough I would like to travel to Europe by air

However with CSS everything I read is that when the cabin de compressors or what ever it does our veins are affected and flying is really not an option for...

However with CSS everything I read is that when the cabin de compressors or what...

Skipper55

•11 years ago

9 Replies

As this is Christmas/New Year How about a quiz?

I just thought having a quiz about Vasculitis would benefit all our understanding. You never know, you might learn a thing or two! Either John Mills could...

I just thought having a quiz about Vasculitis would benefit all our understandin...

HiveMind

•11 years ago

4 Replies

Any one had pain in the veins like pulling and twitching ???

Has anyone had some sort of what I can discribe pulling pain in your veins when moving your arm abit like a twitch, I had treatment about for weeks ago, is...

Has anyone had some sort of what I can discribe pulling pain in your veins when ...

Louisexx

•11 years ago

Be the first to reply

Hi there ,i have css vasculititis does anyone have travel insurance company you can recommend ? Thanks.

kujude

•11 years ago

4 Replies

good quote

thought I'd share this.

hamble99b

Volunteer•11 years ago

4 Replies

Nerve damaged hands and feet

My husband was diagnosed with PAN in September after a long period of illness and rapidly deteriorated until he was transferred to the wonderful team at...

My husband was diagnosed with PAN in September after a long period of illness an...

jmtjat

•11 years ago

5 Replies

Is there really no alternative other than exercise for claudication, where angioplasty or arterial bypass are not recommended?

I have been told that the 2 a arteries below my knee are too small to be operated on. I can only walk around 100 yards before having to rest because of...

I have been told that the 2 a arteries below my knee are too small to be operate...

1504petjen

•11 years ago

2 Replies

My husband is going to tribunal at the end of the month for DLA and we are doing this on our own. Is there anywere where we can get

help/advice that would help us with our case. My husband has vasculitis and had to leave work on health ground over 12 months ago..

help/advice that would help us with our case. My husband has vasculitis and had...

jules59

•11 years ago

7 Replies

really bad day today went for routine blood tests and my bp was up to 189 over 123. The eye infirmary sent me to the Sunderland infirmary

we spent the day with me taking medication and waiting for my BP to go down eventually being sent home with three lots of pills for the BP. they think the...

we spent the day with me taking medication and waiting for my BP to go down even...

molliecatone

•11 years ago

4 Replies

Is it hereditary? Is there a link do you think?

I have a question going around and around my head so I thought I'd ask..... When my mum was young she had urticaria, she grew out of it within a short time,...

I have a question going around and around my head so I thought I'd ask..... Whe...

AllyGY2013

•11 years ago

9 Replies

Pins and needles

My OH was diagnosed with GPA in April this year, he's nearing the end of his cyclo treatment, and he is doing really well and feels so much better than he did....

My OH was diagnosed with GPA in April this year, he's nearing the end of his cyc...

3113nettie

•11 years ago

4 Replies

Email cannot be delivered, please get in contact.

John received an email last weekend asking for advice, he has replied 3 times since Saturday, on the same email by return and three times the email has bounced...

John received an email last weekend asking for advice, he has replied 3 times si...

Suzym2u

Moderator•11 years ago

Be the first to reply

humour

just saw this, thought I'd share.

hamble99b

Volunteer•11 years ago

2 Replies

had to smile

my mp came into the pharmacy before with a prescription, the assistant said "I need you to sign this please" then made by day by saying "Do you pay for your...

my mp came into the pharmacy before with a prescription, the assistant said "I n...

hamble99b

Volunteer•11 years ago

Be the first to reply

Thanks to everyone ...

I am grateful as I finally do not feel alone or isolated with this anymore… I wish everyone a very merry xmas and a happy new year !

I am grateful as I finally do not feel alone or isolated with this anymore… I wi...

SadiaC

•11 years ago

1 Reply

kwik tv fun kwiz [maybe for the over 40's] and answers

please don't post the answers, you can mark your own later in the week. 1. who found herself in wonderland? 2. who were the twins? 3. who was Pinocchio's......

please don't post the answers, you can mark your own later in the week. 1. who ...

hamble99b

Volunteer•11 years ago

1 Reply

"Could a greater miracle take place than for us to look through each other's eyes for an instant" - Henry David Thoreau

This was tweeted by a nurse this morning, It is worth taking a few minutes to read and watch. read this :-......

This was tweeted by a nurse this morning, It is worth taking a few minutes to re...

Suzym2u

Moderator•11 years ago

2 Replies

Re. Jingle Tills poem

This was from my 1st book which was published last Dec "Its A Funny Old life" by J. B. Eden & the 2nd one,"On A More Serious Note" was published in April this...

This was from my 1st book which was published last Dec "Its A Funny Old life" by...

optimist-ok

•11 years ago

Be the first to reply

Jingle Tills (a parody on Jingle Bells) You can sing if you want to!

Jingle tills, jingle tills, Jingle all the day. Oh, my word, just realised Its almost Christmas Day! Oh, how they ring, jingle tills, Busy every day. Not long...

Jingle tills, jingle tills, Jingle all the day. Oh, my word, just realised Its ...

optimist-ok

•11 years ago

2 Replies

How long does it take for improvements to be seen following treatment for CSS?

My father is newly diagnosed with CSS. He spent 3 weeks in hospital and has just had his third cyclo. Hes on 40mg pred from 80mg originally. Last week he had...

My father is newly diagnosed with CSS. He spent 3 weeks in hospital and has just...

huffy4

•11 years ago

6 Replies

Does any body get the following side effects from Cellcept and prednisolone

I am getting hot flushes though this maybe a coincidence as I am a 47 year old female!!! I am also getting minor shakes mainly in the hands any advice please

I am getting hot flushes though this maybe a coincidence as I am a 47 year old f...

molliecatone

•11 years ago

14 Replies

Pulmonary hypertension?

Hi, I was diagnosed with Takayasu's Arteritis 6 months ago after having a pulmonary embolism about a year before and being unwell for about 2 and a half years....

Hi, I was diagnosed with Takayasu's Arteritis 6 months ago after having a pulmon...

Littledot3

•11 years ago

2 Replies

Hi Does anybody have Prof Raashid Luqmani's private consultation details at all? PM me please. Many thanks

Does he happen to offer an afternoon appointment at all? Much appreciated in advance.

Does he happen to offer an afternoon appointment at all? Much appreciated in ad...

Hidden

•11 years ago

3 Replies

Hi does anyone know if the Hallamshire hospital in Sheffield treats patients with WG and respiratry problems

SandieB

•11 years ago

13 Replies

Just a reminder regarding your medication ready for the Christmas and New Year period.

There have been many tweets today on Twitter from lots of the Health Service groups and Hospitals to remind everyone to check they have enough medication for...

There have been many tweets today on Twitter from lots of the Health Service gro...

Suzym2u

Moderator•11 years ago

2 Replies

new diagnosis. I have had several bouts of posterior and anterior uveitis a retinal vein occlusion and bleed and vasculitus in both eyes

I am desperate for information on what this all means and what to expect. My BP was up last week and again this so have to have a 24 hour BP done, My GP wants...

I am desperate for information on what this all means and what to expect. My BP ...

molliecatone

•11 years ago

5 Replies

2 weeks ago I had 3 bags Iv of prednisone and 1 bag of chemo , 1st week with CSS best I have had since being diagnosed in August , at 4 am

Woke grasping for air , grabbed my serititde and just kept on sucking as week and with Very minimal throat and lung capacity , I was going blue until what...

Woke grasping for air , grabbed my serititde and just kept on sucking as week an...

Skipper55

•11 years ago

3 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for December 2013

Happy New Year!

First time travelling abroad bit worried about autoimune and GCA with all those recycled germs we are warned about and cabin pressure .,,,

Anyone suffering from vascullits noticed 'hot sweats'? if so, any suggestions?

I have no idea on travel insurance , but as i live in Australia , when I am we'll enough I would like to travel to Europe by air

As this is Christmas/New Year How about a quiz?

Any one had pain in the veins like pulling and twitching ???

Hi there ,i have css vasculititis does anyone have travel insurance company you can recommend ? Thanks.

good quote

Nerve damaged hands and feet

Is there really no alternative other than exercise for claudication, where angioplasty or arterial bypass are not recommended?

My husband is going to tribunal at the end of the month for DLA and we are doing this on our own. Is there anywere where we can get

really bad day today went for routine blood tests and my bp was up to 189 over 123. The eye infirmary sent me to the Sunderland infirmary

Is it hereditary? Is there a link do you think?

Pins and needles

Email cannot be delivered, please get in contact.

humour

had to smile

Thanks to everyone ...

kwik tv fun kwiz [maybe for the over 40's] and answers

"Could a greater miracle take place than for us to look through each other's eyes for an instant" - Henry David Thoreau

Re. Jingle Tills poem

Jingle Tills (a parody on Jingle Bells) You can sing if you want to!

How long does it take for improvements to be seen following treatment for CSS?

Does any body get the following side effects from Cellcept and prednisolone

Pulmonary hypertension?

Hi Does anybody have Prof Raashid Luqmani's private consultation details at all? PM me please. Many thanks

Hi does anyone know if the Hallamshire hospital in Sheffield treats patients with WG and respiratry problems

Just a reminder regarding your medication ready for the Christmas and New Year period.

new diagnosis. I have had several bouts of posterior and anterior uveitis a retinal vein occlusion and bleed and vasculitus in both eyes

2 weeks ago I had 3 bags Iv of prednisone and 1 bag of chemo , 1st week with CSS best I have had since being diagnosed in August , at 4 am

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