Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for April 2018

Medical marijuana

Do you all just ask the doctor? Not sure how to bring it up.

Jalepek2

•7 years ago

6 Replies

A Very Warm Welcome, to New Members

I'm aware that, quite a few New Members, have joined us of late. So, irrespective of your reasons, condition(s) or indeed anything else, please know that you...

I'm aware that, quite a few New Members, have joined us of late. So, irrespectiv...

AndrewT

•7 years ago

1 Reply

vasculitis dilate or contract

I have vasculitis in my lungs i have bled into them needing transfusions one site is telling me my blood vessels dilate and i bleed into my lungs the others...

I have vasculitis in my lungs i have bled into them needing transfusions one sit...

jackiecambeltown

•7 years ago

2 Replies

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Vasculitis UK AGM and General Meeting today in Derby

Thank you to all those who came to the VUK AGM and General Meeting today. It was very good to see so many new faces. Dr Pani Gopaluni from Addenbrookes...

Thank you to all those who came to the VUK AGM and General Meeting today. It wa...

John_Mills

Volunteer•7 years ago

2 Replies

Hello, I am new to the group, and am not even sure I belong...From Parkinsons to possible Cerebral Vasculitis plus MS.?? Let me explain..

Hello, I am 55, I was diagnosed with Parkinsons over 18 months ago, after a few months the diagnosis was changed to Atypical Parkinsonism, until 6 weeks ago....

Hello, I am 55, I was diagnosed with Parkinsons over 18 months ago, after a few...

Bools33

•7 years ago

7 Replies

EGPA and Bronchiectasis

Hello everyone. Diagnosed with non severe Churg Strauss 5 years ago. Reasonably managed with pred. Rituximab, mycophenalate -no effect. Now just diagnosed with...

Hello everyone. Diagnosed with non severe Churg Strauss 5 years ago. Reasonably ...

vivavida

•7 years ago

10 Replies

Environmental

I live in North Carolina and I was told in 2011 that I had wg. I am wondering if any of you live near coal plants or pits. I found out that I was living in...

I live in North Carolina and I was told in 2011 that I had wg. I am wondering if...

jenwide70

•7 years ago

2 Replies

My husband, 78 was diagonosed with vasculitis and positive ANKA in December 1917 he had plasma exchange and steriod treatment what now?

My husband, 78 was diagonosed with vasculitis and positive ANKA in December 1917...

doreljoanne

•7 years ago

2 Replies

Tech brain fog results in New identity

Hello to All, Because I could not remember my password to this site, I was directed by website to change user name and password. So alliand is now redmoon....

Hello to All, Because I could not remember my password to this site, I was dir...

bluemoon70

•7 years ago

2 Replies

Vasculitis UK Spring Newsletter 2018 is now available to read on line

Please follow this link http://www.vasculitis.org.uk/news/spring-newsletter-2018-04

Please follow this link http://www.vasculitis.org.uk/news/spring-newsletter-2018...

John_Mills

Volunteer•7 years ago

Be the first to reply

Waiting for Diagnosis Frustration

Hi I finally got to see a rheumatologist a few weeks ago but was a bit unfortunate in that after a few bouts of being quite unwell I was actually in good form...

Hi I finally got to see a rheumatologist a few weeks ago but was a bit unfortun...

Lavender-Flowers

•7 years ago

7 Replies

Whooshing sounds / sensations in my head - Vasculitis or Carotid Artery problems - it’s not Pulsatile Tinnitus

Hi there, I’m new to the group. I’ve been a tinnitus suffer for 56 years now and managed to live with it even though it has increased in noise level quite...

Hi there, I’m new to the group. I’ve been a tinnitus suffer for 56 years now and...

Pennyb65

•7 years ago

10 Replies

Starting Rituximab infusions for EGPA/Churg-Strauss

Help! I'm starting Rituxan infusions next Monday and I'm apprehensive. My EGPA-ChurgStrauss was being controlled (sorta) by prednisone (up and down a lot but...

Help! I'm starting Rituxan infusions next Monday and I'm apprehensive. My EGPA-C...

grindhaus

•7 years ago

7 Replies

Post Avastin reactions?

Do most people who receive Avatin injections in the eye, suffer from blurry vision subsequent days, and then does it usually improve? My vision in my left...

Do most people who receive Avatin injections in the eye, suffer from blurry visi...

avgale

•7 years ago

Be the first to reply

Headache

How vasvulitis headache feels like?

Kichu89

•7 years ago

1 Reply

ANCA negative "limited" GPA

Hi. I have recently been diagnosed with ANCA negative GPA with a "limited" variety of it. I wondered if anyone else on here is the same and what treatment they...

Hi. I have recently been diagnosed with ANCA negative GPA with a "limited" varie...

Hidden

•7 years ago

8 Replies

New Member - Intoduction

Hello All, My name is Nick and I have recently, last month been diagnosed with GPA. I had been feeling rundown after a short flu bug in December 2017, then...

Hello All, My name is Nick and I have recently, last month been diagnosed with G...

Hidden

•7 years ago

28 Replies

Does this rash,red colouring of hands looks familiar to anyone? Normally my hands feel very stiff, sometimes pins and needles

My hands have become more of a target since Christmas. They never seem to go back to their normal colouring without a rash. During these episodes where I...

My hands have become more of a target since Christmas. They never seem to go ba...

Lisalou19

•7 years ago

6 Replies

Vasculitis UK AGM and Annual Meeting 29th April 2018

A week today it is the Vasculitis UK AGM and meeting. We have Dr Pani from Addenbrookes Hospital discussing ongoing clinical trials, Prof Peter Rutherford from...

A week today it is the Vasculitis UK AGM and meeting. We have Dr Pani from Adden...

John_Mills

Volunteer•7 years ago

1 Reply

Myasthenia gravis

My question is can prednisone 10 mg cause muscle weakness while starting it again after a long time

My question is can prednisone 10 mg cause muscle weakness while starting it agai...

sharoz

•7 years ago

1 Reply

Css,egpa

Hello , just come back on health unlocked, would love to chat and catch up with anyone who has churg strauss , I was diagnosed about 6 years ago . I am...

Hello , just come back on health unlocked, would love to chat and catch up with ...

kujude

•7 years ago

2 Replies

Some Google Analytics for the Vasculitis UK website from March 1st - 31st 2018, for those with an interest.

23,720 users 82% new users 18% revisiting users Pages viewed - 60,154 average viewing time for each page - 2 minutes Top 5 types of vasculitis viewed HSP...

23,720 users 82% new users 18% revisiting users Pages viewed - 60,154 average v...

John_Mills

Volunteer•7 years ago

Be the first to reply

Abnormal Complete Blood Counts

Hi to All, Does prednisone cause neutrophil blood counts to become abnormally high?How does one know if high white counts are the caused by prednisone, or...

Hi to All, Does prednisone cause neutrophil blood counts to become abnormally h...

Alliand

•7 years ago

2 Replies

Fed up

Well just got back from dermatology and feeling really annoyed. Skin Dr wants me to take Dapsone so I ask if it was okay as I have Asthma and COPD plus a heart...

Well just got back from dermatology and feeling really annoyed. Skin Dr wants me...

Boudica1

•7 years ago

13 Replies

Tocilizumab for treating Giant Cell Arteritis

https://www.nice.org.uk/guidance/TA518 Released by NICE today.

John_Mills

Volunteer•7 years ago

Be the first to reply

My prednisolone issues

Hello...I am new to this group. My leukocytoclastic vasculitis was diagnosed in october 2017.I started predenisolone 55 mg per day and reduced gradually. Now...

Hello...I am new to this group. My leukocytoclastic vasculitis was diagnosed in...

shanahamza

•7 years ago

12 Replies

Cutaneous Vasculitis

Hello I would like to hear from anyone on here that has Cutaneous Vasculitis and is in the UK I do not want to come across picky but I have a couple of...

Hello I would like to hear from anyone on here that has Cutaneous Vasculitis and...

lou1972

•7 years ago

6 Replies

Heart problems after ciclofosfamide

Any experience ?

Wizzi

•7 years ago

8 Replies

Any advice or help? A difficult time since February (Vasculitis)

I am wondering if anyone else has been in a siniliar situation to my dad and any advice would be greatly appreciated. In February 2018, my dad became ill. He...

I am wondering if anyone else has been in a siniliar situation to my dad and any...

Emma158

•7 years ago

16 Replies

Getting hold of my data

Hello! Unfortunately as my hsp was progressing I moved from Northern Ireland to England where I've finally been diagnosed and in the next few months I'm...

Hello! Unfortunately as my hsp was progressing I moved from Northern Ireland to...

kc4t

•7 years ago

8 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for April 2018

Medical marijuana

A Very Warm Welcome, to New Members

vasculitis dilate or contract

Vasculitis UK AGM and General Meeting today in Derby

Hello, I am new to the group, and am not even sure I belong...From Parkinsons to possible Cerebral Vasculitis plus MS.?? Let me explain..

EGPA and Bronchiectasis

Environmental

My husband, 78 was diagonosed with vasculitis and positive ANKA in December 1917 he had plasma exchange and steriod treatment what now?

Tech brain fog results in New identity

Vasculitis UK Spring Newsletter 2018 is now available to read on line

Waiting for Diagnosis Frustration

Whooshing sounds / sensations in my head - Vasculitis or Carotid Artery problems - it’s not Pulsatile Tinnitus

Starting Rituximab infusions for EGPA/Churg-Strauss

Post Avastin reactions?

Headache

ANCA negative "limited" GPA

New Member - Intoduction

Does this rash,red colouring of hands looks familiar to anyone? Normally my hands feel very stiff, sometimes pins and needles

Vasculitis UK AGM and Annual Meeting 29th April 2018

Myasthenia gravis

Css,egpa

Some Google Analytics for the Vasculitis UK website from March 1st - 31st 2018, for those with an interest.

Abnormal Complete Blood Counts

Fed up

Tocilizumab for treating Giant Cell Arteritis

My prednisolone issues

Cutaneous Vasculitis

Heart problems after ciclofosfamide

Any advice or help? A difficult time since February (Vasculitis)

Getting hold of my data

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