Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,777 members • 6,750 posts

All posts for April 2017

Blood Test Results From Rheumatology

Hey all :) I've finally received my blood test results through the post, That were taken at the time of my first appointment 2 in half weeks ago. They are as...

Hey all :) I've finally received my blood test results through the post, That ...

LauraMk30

•7 years ago

7 Replies

Tingling in all four limbs.. What type of vasculitis?

Hi everyone. Going for emg in 3 weeks. Tingling is in arms and legs. Started in only legs for a long time. Is this every form of vasculitis? Thank you for...

Hi everyone. Going for emg in 3 weeks. Tingling is in arms and legs. Started ...

judyann

•7 years ago

13 Replies

British Society for Rheumatology Spring Conference April 2017

John Lynn and myself have just returned from the 3 day Annual British Society for Rheumatology Spring Conference. I have to say it has been an amazing 3 days....

John Lynn and myself have just returned from the 3 day Annual British Society fo...

Suzym2u

Moderator•7 years ago

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Vasculitis flares

I have been suffering a number of flares which have in the past been treated by an increase in steroids however last weekend I suffered a bad one resulting in...

I have been suffering a number of flares which have in the past been treated by ...

Lauriescott1

•7 years ago

19 Replies

Nodules on lungs..

I have 6 nodules on my lungs with no explanation... Waiting to get diagnosed.. Very frustrated.. Can it be from vasculitis?

I have 6 nodules on my lungs with no explanation... Waiting to get diagnosed.. ...

judyann

•7 years ago

9 Replies

West Country Vasculitis Support Group Lunch

It's been a while since we last met up for a 'social' in the West Country so I hope you can join us for our next lunch: Sunday 21st May 12.00 noon The...

It's been a while since we last met up for a 'social' in the West Country so I h...

DevonLottie

•7 years ago

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Adrenal insufficiency

Hi all, I just posted an adrenal insufficiency question on another community, but then was thinking perhaps I should have posted on my usual community as well...

Hi all, I just posted an adrenal insufficiency question on another community, bu...

PCAD

•7 years ago

17 Replies

Holidays while on PIP

Might have the chance of going to Australia next year for 7 weeks .. Has anyone had a holiday more that 4 weeks abroad and informed the DWP.. Also on ESA....

Might have the chance of going to Australia next year for 7 weeks .. Has anyone ...

Griff53

•7 years ago

6 Replies

NE Meeting

Hi, we can't believe it is almost two months since we had our first get together. As you will hopefully remember from this meeting we agreed to hold the next...

Hi, we can't believe it is almost two months since we had our first get together...

Alpsy

•7 years ago

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Emg to help diagnose cerebral vasculitis?

I have peripheral nerve tingling in arms and legs.. Will an emg tell if it's cerebral vasculitis? It's been 5 years and trying to get a diagnosis.. I have...

I have peripheral nerve tingling in arms and legs.. Will an emg tell if it's ce...

judyann

•7 years ago

6 Replies

Dilemma over foot operation

I've a dilemma and wondered if any of you had similar experiences. I have Churg strauss which seems to be in remission. I'm off steroids now but have recently...

I've a dilemma and wondered if any of you had similar experiences. I have Churg ...

Katie18

•7 years ago

4 Replies

Eye surgery on steroids/methotrexate

Hi my son has also got Keratoconus which they have said is not related to the GPA vasculitis. He needs to have an operation on his eyes but had to cancel this...

Hi my son has also got Keratoconus which they have said is not related to the GP...

Agoodenough

•7 years ago

8 Replies

Merseyside Cheshire & N Wales VSG Meeting

Our next Meeting is on Friday 19th May between 2-4pm in Room 6, Linda McCartney Education Centre at the Royal Liverpool University Hospital as usual. There...

Our next Meeting is on Friday 19th May between 2-4pm in Room 6, Linda McCartney ...

SusanCh

•7 years ago

16 Replies

ANCA POSITIVE

anyone here in new york or usa dealing with anca positive? I feel so lost my doctor referred me to a reumatologist the appointment is in 2 months but i am so...

anyone here in new york or usa dealing with anca positive? I feel so lost my doc...

YOSELIN1006

•7 years ago

21 Replies

Advice please

So went to see my vasculitis specialist and he doesn't think I have it!!! He has put me on steroids and he says they are helping. Says that it may be ms and...

So went to see my vasculitis specialist and he doesn't think I have it!!! He has...

Sophie1986

•7 years ago

4 Replies

Hull Vasculitis Support Group Meeting

Hi everyone, just a last minute reminder about the Hull support group meeting this weekend. We'll be meeting at St Barnabas Church Hall in Swanland on Sunday...

Hi everyone, just a last minute reminder about the Hull support group meeting th...

RichardE

Volunteer•7 years ago

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VUK Research

https://cdn.fbsbx.com/v/t59.2708-21/17695818_941064649365070_2703169407269470208_n.doc/Vasculitis-UK-Final-report-form-completed.doc?oh=07adf93c24d97eceacc1ca8b

https://cdn.fbsbx.com/v/t59.2708-21/17695818_941064649365070_2703169407269470208...

Hidden

•7 years ago

1 Reply

NHS self-referral mentioned

Hi there, someone mentioned about self-referrals in the NHS today. You can now do this online, here is the link:...

Hi there, someone mentioned about self-referrals in the NHS today. You can now...

Sima1952

•7 years ago

12 Replies

Isolated aortitis

Hello all, I had my second or third appointment with my consultant rheumatologist, after waiting over a year. I was unaware that he should have seen me...

Hello all, I had my second or third appointment with my consultant rheumatologis...

Suzycat

•7 years ago

6 Replies

Happy!!

First let me thank you all for your recommendation toward my worries..Robert went to his EMT appointment, they gave him med for what looked like oral thrush,...

First let me thank you all for your recommendation toward my worries..Robert wen...

thecatsathome2

•7 years ago

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Help with consultant referral

Ideally John I am writing this to you as you replied to my earlier post. If you have time to reply I would be very grateful. I didn't get off to a good start...

Ideally John I am writing this to you as you replied to my earlier post. If you ...

Agoodenough

•7 years ago

7 Replies

Extreme temperatures swings

My husband has been suffering from extreme temperature swings, can go from 93 to 97 with no explanation. His feet can be burning hot while his fingers are...

My husband has been suffering from extreme temperature swings, can go from 93 to...

LeoK

•7 years ago

9 Replies

Appointment with GP

This morning I felt positive, slept really well last night too, first time in a long time, I also managed to eat all of my breakfast without a fuss. Pain felt...

This morning I felt positive, slept really well last night too, first time in a ...

LauraMk30

•7 years ago

13 Replies

Churg Strauss skin rash?

I have had CSS for over three years now - all has been under control and the peripheral nerves have been regenerating, albeit painfully, in my legs, feet and...

I have had CSS for over three years now - all has been under control and the per...

RareStap

•7 years ago

1 Reply

Mum & me

Ive noticed over the last few months that my mum has changed in some ways. Back in January she was full of life, happy & had loads of energy.. I envied her for...

Ive noticed over the last few months that my mum has changed in some ways. Back ...

LauraMk30

•7 years ago

8 Replies

Hsp vasculitis

Hi since getting hsp vasculitis I've been in and out of hospital lots including twice in intensive care

Hi since getting hsp vasculitis I've been in and out of hospital lots including ...

Mandy7402

•7 years ago

12 Replies

I've felt low this evening, no...

I've felt low this evening, no painkillers. Just an Epsom salt bath, & hope. I'm not sure if I'm allowed to post a quote. But I've been scouring through...

I've felt low this evening, no painkillers. Just an Epsom salt bath, & hope. I'm...

LauraMk30

•7 years ago

11 Replies

Heavy legs 😥

Hello all, I haven't been feeling very well the last week, I may have over done it by looking after my poorly mum, but my legs really don't feel like my own!...

Hello all, I haven't been feeling very well the last week, I may have over don...

LauraMk30

•7 years ago

7 Replies

Nasty taste in the mouth

Hy Guys I wondering if anyone can help me. I am currently having chemo and what is my problem is the horrible taste it leaves you with. I suffer with GPA any...

Hy Guys I wondering if anyone can help me. I am currently having chemo and what...

Omil04

•7 years ago

6 Replies

Vasculitis UK AGM - May 14th

Speakers on this occasion are Dr Jacqui Andrews, Consultant Rheumatologist, Clinical Director/Honary Clinical Associate Professor, University of Leeds who will...

Speakers on this occasion are Dr Jacqui Andrews, Consultant Rheumatologist, Clin...

Suzym2u

Moderator•7 years ago

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Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for April 2017

Blood Test Results From Rheumatology

Tingling in all four limbs.. What type of vasculitis?

British Society for Rheumatology Spring Conference April 2017

Vasculitis flares

Nodules on lungs..

West Country Vasculitis Support Group Lunch

Adrenal insufficiency

Holidays while on PIP

NE Meeting

Emg to help diagnose cerebral vasculitis?

Dilemma over foot operation

Eye surgery on steroids/methotrexate

Merseyside Cheshire & N Wales VSG Meeting

ANCA POSITIVE

Advice please

Hull Vasculitis Support Group Meeting

VUK Research

NHS self-referral mentioned

Isolated aortitis

Happy!!

Help with consultant referral

Extreme temperatures swings

Appointment with GP

Churg Strauss skin rash?

Mum & me

Hsp vasculitis

I've felt low this evening, no...

Heavy legs 😥

Nasty taste in the mouth

Vasculitis UK AGM - May 14th

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