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Vasculitis UK

7,783 members • 6,757 posts

All posts for July 2015

Portsmouth Hospitals NHS - 9th Arthritis and Connective Tissue Disease Conference September 2015

The programme, for the Arthritis and Connective Tissue Disease Conference in Portsmouth in September, may just be of interest to some. It is a full day...

The programme, for the Arthritis and Connective Tissue Disease Conference in Por...

Suzym2u

Moderator•9 years ago

2 Replies

Also a date for your diary Leicester Vasculitis Support Group meeting, September 2015

The next meeting of the Leicester Vasculitis Support Group is being held on Saturday 5th September 2015 Follow this link for further details...

The next meeting of the Leicester Vasculitis Support Group is being held on Satu...

Suzym2u

Moderator•9 years ago

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Date for your diary - Lincolnshire Vasculitis Support meeting September 2015

The next meeting of the Lincolnshire Vasculitis support group will be on September 12th, 2015 at 12 noon. We are meeting at Cogglesford Mill in Sleaford...

The next meeting of the Lincolnshire Vasculitis support group will be on Septemb...

BronteM

•9 years ago

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Pred-cravings

Just seen this on the BBC site and wonder if the technique would work for the sorts of food cravings we all get on high-dose steroids? Anyone want to try it...

Just seen this on the BBC site and wonder if the technique would work for the so...

orsen-trapp

•9 years ago

14 Replies

Interesting article:

http://www.healthline.com/health-news/scientists-cure-lupus-in-mice-021115 Interesting article about the work being done to find alternative (rather than...

http://www.healthline.com/health-news/scientists-cure-lupus-in-mice-021115 Inte...

Hidden

•9 years ago

1 Reply

Chest pain

Does anyone get chest pain and breathlessness. Im worried this is down to my vssculitis and aorta. Have been diagnosed with GCA and vssculitis since January...

Does anyone get chest pain and breathlessness. Im worried this is down to my vss...

jeannette65

•9 years ago

16 Replies

Date for diaries.

The next West Yorkshire support group meeting is currently being arranged for the afternoon of Sunday the 11th of October 2015 at the Gomersal Park Hotel,...

The next West Yorkshire support group meeting is currently being arranged for th...

LynneJ

Vasculitis UK•9 years ago

1 Reply

Humour

I was in nwph some years ago,I had a 4 part fracture in my right shoulder,so it was decided that they were going to put a metal prosethis in my right shoulder...

I was in nwph some years ago,I had a 4 part fracture in my right shoulder,so it ...

ellie-smith-1948

•9 years ago

3 Replies

Mobility allowance

I have just been told for the second time that I have been refused mobility allowance. They agree that I have difficulty walking more than 200 metres for...

I have just been told for the second time that I have been refused mobility allo...

valwood

•9 years ago

12 Replies

Double vision

I am having double vision for few days in my right eye more in the evening time or after work on electronics. I talked to my rheumy he said i have to wait...

I am having double vision for few days in my right eye more in the evening time...

monikagoyal

•9 years ago

6 Replies

3 month progress report on weight loss regime

I haven't posted about this here before, but I have posted on the Vasculitis UK Facebook page. I've been on steroids since 1998, and generally very high doses...

I haven't posted about this here before, but I have posted on the Vasculitis UK ...

vivdunstan

Volunteer•9 years ago

9 Replies

A football‬ day, 25th July, in ‪Nottinghamshire‬ plus disco, for two charities including V‎asculitis‬ UK. (In memory of Andrew Willows)

A football‬ day has been organised this weekend in ‪Nottinghamshire,‬ plus disco, for two local charities including V‎asculitis‬ UK. if you live in the...

A football‬ day has been organised this weekend in ‪Nottinghamshire,‬ plus disco...

Suzym2u

Moderator•9 years ago

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Hospital life style

If there's anyone who has to go into hospital for the first time and isn't sure what to expect,I mite be able to give them an idea of what a patient should...

If there's anyone who has to go into hospital for the first time and isn't sure ...

ellie-smith-1948

•9 years ago

5 Replies

Foot numb

Can any help me i dont want to have to see a doctor if i dont have too. My right foot has been numb for nearly a week 80% of the time its numb and it sometimes...

Can any help me i dont want to have to see a doctor if i dont have too. My right...

Jennnnnnnnnn

•9 years ago

14 Replies

Prendisilone

Does anyone know why I can't sleep when I take prendisilone

ellie-smith-1948

•9 years ago

6 Replies

Prendisilone

I've been taking prendisilone tablets for 2 days for a chest infection,I am taking them with an antibiotic called doxycycline and just can't seem to sleep,I...

I've been taking prendisilone tablets for 2 days for a chest infection,I am taki...

ellie-smith-1948

•9 years ago

12 Replies

Question

Hi my consultant has called me today to tell me to stop taking Azaropirine as it is causing problems with my liver. He has now prescribed me with a drug MMS...

Hi my consultant has called me today to tell me to stop taking Azaropirine as it...

Foggy56

•9 years ago

7 Replies

Question?

Hi, Does anyone else have tinnitus and/or neuropathy and blurry vision along with the vasculitis? If so.... Do you think it is because of the vasculitis or...

Hi, Does anyone else have tinnitus and/or neuropathy and blurry vision along wi...

London37

•9 years ago

43 Replies

Will Antibiotics effect Rituxmab treatment?

I am feeling that run over by a truck feeling heavy legs hearing like it's under water. Sore throat feverish Had first infusion of Rituxmab on the 3rd July the...

I am feeling that run over by a truck feeling heavy legs hearing like it's under...

tara88

•9 years ago

9 Replies

Some kind of flare

Hi everyone, Iv posted a number of times on here but still dont know the cause of my symptoms. My doctor has suggested i write a list of all my symptoms..this...

Hi everyone, Iv posted a number of times on here but still dont know the cause o...

yorkshiregirl44

•9 years ago

5 Replies

PIP

Just been turned down for PIP, thought I would get the lower element at least for mobility. Problem was in part at least I think that the assessor didn't seem...

Just been turned down for PIP, thought I would get the lower element at least fo...

Galaxy2

•9 years ago

24 Replies

Length of time to get tests done

After posting picture of my livedo ridicularis in early June, and listening to Mary's excellent advice about getting the testing for Hughes done, I had the...

After posting picture of my livedo ridicularis in early June, and listening to M...

Kat13

•9 years ago

12 Replies

Vasculitis Poll

I just get frustrated at times purely because muscle wastage and nerve damage limits my activities, particularly doing DIY and trying to keep reasonably fit.

I just get frustrated at times purely because muscle wastage and nerve damage li...

Derek

•9 years ago

7 Replies

Short and long term memory loss? What causes it and why?

Forgive me if this question has been asked before (I've possibly already forgotten anyway). Recently, I am often forgetting to do stuff more than I remember....

Forgive me if this question has been asked before (I've possibly already forgott...

Hidden

•9 years ago

54 Replies

Post for some "members" of Vasculitis UK. Reminders about the Oxford Research Questionnaire which was sent out 3 weeks ago.

There will be over 300 reminders being posted today from Vasculitis UK, regarding the research questionnaire from Oxford. Enclosed, in the reminder, will be...

There will be over 300 reminders being posted today from Vasculitis UK, regardi...

Suzym2u

Moderator•9 years ago

24 Replies

Vasculitis UK Funding for Research 2015/2016

This is a page from the website explaining the latest round of Vasculitis UK funding for 5 research projects for Spring 2015/Spring 2016 Please follow this...

This is a page from the website explaining the latest round of Vasculitis UK fun...

Suzym2u

Moderator•9 years ago

9 Replies

Eyes

Another question, sorry, I seem to be full of them. I get a very strange sensation in my right eye ( the same side as my Arteritis flair). Whenever I sneeze or...

Another question, sorry, I seem to be full of them. I get a very strange sensati...

Lin-63

•9 years ago

5 Replies

Microscopic Polyangiitis

I was diagnosed with MPA in 2007. You have to experience its symptoms to understand just how painful they are. My kidneys took a hit, but the burning, jabbing...

I was diagnosed with MPA in 2007. You have to experience its symptoms to underst...

Rachelle_Labelle

•9 years ago

10 Replies

Seeking clarity of doctors' roles since diagnosed with vasculitis.

Is it just me or is it difficult to get away from the umbrella of vasculitis symptoms causing or being responsible for everything. I only ask as my GP is...

Is it just me or is it difficult to get away from the umbrella of vasculitis sym...

Hidden

•9 years ago

56 Replies

When is a flare a flare?

Hi ive just been diagnosed with churg strauss and an on prednisilone 5 mg tapered down from 10mg. They said to contact specialist nurse if flare up. That was...

Hi ive just been diagnosed with churg strauss and an on prednisilone 5 mg tapere...

mummyjd

•9 years ago

9 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for July 2015

Portsmouth Hospitals NHS - 9th Arthritis and Connective Tissue Disease Conference September 2015

Also a date for your diary Leicester Vasculitis Support Group meeting, September 2015

Date for your diary - Lincolnshire Vasculitis Support meeting September 2015

Pred-cravings

Interesting article:

Chest pain

Date for diaries.

Humour

Mobility allowance

Double vision

3 month progress report on weight loss regime

A football‬ day, 25th July, in ‪Nottinghamshire‬ plus disco, for two charities including V‎asculitis‬ UK. (In memory of Andrew Willows)

Hospital life style

Foot numb

Prendisilone

Prendisilone

Question

Question?

Will Antibiotics effect Rituxmab treatment?

Some kind of flare

PIP

Length of time to get tests done

Vasculitis Poll

Short and long term memory loss? What causes it and why?

Post for some "members" of Vasculitis UK. Reminders about the Oxford Research Questionnaire which was sent out 3 weeks ago.

Vasculitis UK Funding for Research 2015/2016

Eyes

Microscopic Polyangiitis

Seeking clarity of doctors' roles since diagnosed with vasculitis.

When is a flare a flare?

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