Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for October 2011

Does plasmapheresis aid in the treatment of WG?

I was diagnosed with WG in April 2002. In the weeks leading up to this I was suffering awful headaches, so bad that I couldn't sleep. The various GP's at my...

I was diagnosed with WG in April 2002. In the weeks leading up to this I was s...

shanat19

•13 years ago

6 Replies

the bottoms of my feet feel as if they have been burnd by hot sand,tingling a lot and very painful after a very short walk,

also my joints feel as if they need oiling, is this connected to wegeners or something different?

also my joints feel as if they need oiling, is this connected to wegeners or som...

gsmith

•13 years ago

22 Replies

Joint Pain

Does anyone get bad joint pain, especially in their hands, that stops you using them for periods at a time? If so does anyone have any remedies?

Does anyone get bad joint pain, especially in their hands, that stops you using ...

Danni

•13 years ago

8 Replies

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SWEATING !!

Hello Im just wondering if ANYONE ELSE WITH VASCULITIS sweats alot ? Im means dripping of forhead even after a shower or bath? This is getting me really...

Hello Im just wondering if ANYONE ELSE WITH VASCULITIS sweats alot ? Im mea...

NannyAlli

•13 years ago

22 Replies

The Lauren Currie Twiglight Foundation next Webinar is on the 16th November 2011

The Lauren Currie Twilight Foundation Next webcast is on Wednesday 16th November at 5pm. Register to watch online at...

The Lauren Currie Twilight Foundation Next webcast is on Wednesday 16th Novemb...

John_Mills

Volunteer•13 years ago

Be the first to reply

HYPERTENSION

Has anyone else found out that they have high blood pressure also? I take adalat to combat this but think it maybe a side effect of the medication i take for...

Has anyone else found out that they have high blood pressure also? I take adala...

mandijt

•13 years ago

5 Replies

Can an MRI scan diagnose Vasculitis?

I have recently had an MRI scan of my brain and spinal cord as I have had some numbness in both my arms and legs, blurred vision and occassional numbness in my...

I have recently had an MRI scan of my brain and spinal cord as I have had some n...

Galaxy2

•13 years ago

15 Replies

Is there still a support group in West Sussex?

i heard of the very sad news about Maggie, who ran the West Sussex support group. Has anyone taken over running the group? Is there a group nearby, eg. Hants,...

i heard of the very sad news about Maggie, who ran the West Sussex support group...

SaraMills

•13 years ago

1 Reply

Hi, I was diagnosed with WG approx 12 years ago and had been a nurse for over 20 years but had never heard of this condition.

I thought I would write an account of how I was diagnosed and my own personal experience going from caring for patients to suddenly being the patient feeling...

I thought I would write an account of how I was diagnosed and my own personal ex...

Essex-jill

•13 years ago

4 Replies

Why is coming off steroids so difficult?

I've recently managed to slowly wean myself off prednisolone but I am really struggling with the side effects of withdrawl - muscle pains and cramps, joint...

I've recently managed to slowly wean myself off prednisolone but I am really str...

LyndaGould

•13 years ago

5 Replies

Hi,i am a retired Electrical Test Engineer. I retired in 2005 after a spel in hospital. I am married to Isobel with one son Peter.

In 2005 i was spitting blood which turned out to be Asbestosis I also had Cancer of the limph nodes in the chest,I went to hospital in Liverpool...

In 2005 i was spitting blood which turned out to be Asbestosis I also had ...

PATGW6IMS

•13 years ago

1 Reply

How can a skin biopsy reveal vasculitis but not which type?

louiseevs

•13 years ago

2 Replies

I have WG and i'am now experiencing intermittent twitching under my right eye, has anyone else had this?

I have saddle nose deformity and i'am now experiencing intermittent twitching under my right eye, since last week, not sure if its related to WG or just...

I have saddle nose deformity and i'am now experiencing intermittent twitching un...

Essex-jill

•13 years ago

7 Replies

LUNG INVOLVEMENT

Has anyone had any problems with nodules in the lung? Purely by chance it was discovered that i have a nodule deep in my left lung, which is 'slow growing'...

Has anyone had any problems with nodules in the lung? Purely by chance it was d...

mandijt

•13 years ago

6 Replies

Has anyone had problems with their disability assessment for benefits carried out by ATOS Healthcare?

John_Mills

Volunteer•13 years ago

2 Replies

Does anyone suffer from a history of Vitiligo?

I've had WG 21 years. It started when I was 35. I have had Vitiligo (a loss of pigmentation in the skin) from the age of about 18. I have always wondered if...

I've had WG 21 years. It started when I was 35. I have had Vitiligo (a loss of p...

Dbis22

•13 years ago

2 Replies

Hi does anyone know if Vasculitis is linked at all to thyroid problems, or if any medications can affect the thyroid function.

Lollyem

•13 years ago

5 Replies

Has anyone had problems with the flu jab after previously been ok .Dont know if to have pneumonia jab.I have WG .

deniseann

•13 years ago

7 Replies

How come the Hospital Survey for (e.g.) Addenbrookes shows there are three reviews but they don't appear in the summary?

Hidden

•13 years ago

5 Replies

Vasculitis Support Group West Midlands Meeting today.

Todays meeting at Birmingham was attended by about 60 people. As usual it was a most interesting event and the two speakers were excellent, both in terms of...

Todays meeting at Birmingham was attended by about 60 people. As usual it was a ...

John_Mills

Volunteer•13 years ago

Be the first to reply

UK latest e-News newsletter: Autumn 2011

http://www.vasculitis-uk.org.uk/Autumn%202011%20Newsletter.pdf

Jim-Bornac

•13 years ago

1 Reply

Hi I am looking for some help or probably reassurance, anything really!

I was diagnosed with WG in June and since then my treatment has been pretty much text book, prednisolone now reduced to 25 mg and cyclo about to be moved from...

I was diagnosed with WG in June and since then my treatment has been pretty much...

LynnC

•13 years ago

10 Replies

NEW VASCULITIS-UK LOGO

Back in May members were invited to vote on whether or not to keep the light bulb. A clear majority wanted to keep it but many also stated it needed updating....

Back in May members were invited to vote on whether or not to keep the light bul...

John_Mills

Volunteer•13 years ago

4 Replies

Autumn Newsletter 2011 Congratulations Patricia Fearnside!!

The new Autumn newsletter arrived today. Brilliant! best yet! Full of up to date information including new logo and the new HealthUnlocked group, medical...

The new Autumn newsletter arrived today. Brilliant! best yet! Full of up to dat...

John_Mills

Volunteer•13 years ago

3 Replies

Vasculitis Anca

My father has been diagnosed with vasculitis anca in the liver. Has anyone received such a diagnosis? If yes please get in touch with me.

My father has been diagnosed with vasculitis anca in the liver. Has anyone recei...

Isabellemt

•13 years ago

11 Replies

Can anyone offer any insight?

Hi All I have only just joined this site and would be grateful for any information that anyone can help me with as I have never met anyone with vasculitis...

Hi All I have only just joined this site and would be grateful for any inform...

Galaxy2

•13 years ago

7 Replies

elusive answers

Hi All I wonder if I can post some of my details and then ask for advice. I had a TIA back in April 2008 and was seeing a neurologist. I had a lot of...

Hi All I wonder if I can post some of my details and then ask for advice. ...

annie330

•13 years ago

3 Replies

white cell count

Had the first infusion of third cycle of Rituixmab last Wednesday. Hospital rang me yesterday to say that my white cell count (neutrophils) are very low this...

Had the first infusion of third cycle of Rituixmab last Wednesday. Hospital rang...

annie330

•13 years ago

5 Replies

Has anyone taking cyclophosphamide suffered from tinnitus as a result?

I have CNS vasculitis and shortly after starting cyclophosphamide I developed tinnitus. I have had it for nearly 3 years now and I just wonder if it is a side...

I have CNS vasculitis and shortly after starting cyclophosphamide I developed ti...

LyndaGould

•13 years ago

16 Replies

Hi.I have had WG for just over 4 years now. I have been on Rhituximab for just

over a year and I have been told that I will probably need to have a bone marrow transplant. Has anyone else needed this procedure for WG. Any information...

over a year and I have been told that I will probably need to have a bone marrow...

jimny

•13 years ago

2 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for October 2011

Does plasmapheresis aid in the treatment of WG?

the bottoms of my feet feel as if they have been burnd by hot sand,tingling a lot and very painful after a very short walk,

Joint Pain

SWEATING !!

The Lauren Currie Twiglight Foundation next Webinar is on the 16th November 2011

HYPERTENSION

Can an MRI scan diagnose Vasculitis?

Is there still a support group in West Sussex?

Hi, I was diagnosed with WG approx 12 years ago and had been a nurse for over 20 years but had never heard of this condition.

Why is coming off steroids so difficult?

Hi,i am a retired Electrical Test Engineer. I retired in 2005 after a spel in hospital. I am married to Isobel with one son Peter.

How can a skin biopsy reveal vasculitis but not which type?

I have WG and i'am now experiencing intermittent twitching under my right eye, has anyone else had this?

LUNG INVOLVEMENT

Has anyone had problems with their disability assessment for benefits carried out by ATOS Healthcare?

Does anyone suffer from a history of Vitiligo?

Hi does anyone know if Vasculitis is linked at all to thyroid problems, or if any medications can affect the thyroid function.

Has anyone had problems with the flu jab after previously been ok .Dont know if to have pneumonia jab.I have WG .

How come the Hospital Survey for (e.g.) Addenbrookes shows there are three reviews but they don't appear in the summary?

Vasculitis Support Group West Midlands Meeting today.

UK latest e-News newsletter: Autumn 2011

Hi I am looking for some help or probably reassurance, anything really!

NEW VASCULITIS-UK LOGO

Autumn Newsletter 2011 Congratulations Patricia Fearnside!!

Vasculitis Anca

Can anyone offer any insight?

elusive answers

white cell count

Has anyone taking cyclophosphamide suffered from tinnitus as a result?

Hi.I have had WG for just over 4 years now. I have been on Rhituximab for just

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