Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for August 2022

possible flare

hi i have had GPA pr3 for 2 years now after all the treatments to put me in remission and things were going ok apart from the usual side effects of the meds I...

hi i have had GPA pr3 for 2 years now after all the treatments to put me in remi...

•2 years ago

Ever Elusive Remission

Everyone is so supportive in this group! Thanks! I admit to being jealous every time I read "I am in remission". I myself, am NOT in remission. Meds:...

Everyone is so supportive in this group! Thanks! I admit to being jealous every...

•2 years ago

Asthma and vasculitis

Has anybody has their vasculitis confused with asthma? I was disgnosed with eosiniphilic asthma five years ago. I had breathing problems and sinus issues...

Has anybody has their vasculitis confused with asthma? I was disgnosed with e...

•2 years ago

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Newbie still with unsure diagnosis

UPDATE! So had my review with respiratory this morning and they told me my ANCA blood test had been lost 😢had a repeat sample today. They said my eosinophils...

UPDATE! So had my review with respiratory this morning and they told me my ANCA ...

•2 years ago

England’s Autumn 2022 Covid boosters starting on 5th September

Details have been released of the vaccination arrangements for what for some of us will be the 6th Covid jab. See...

Details have been released of the vaccination arrangements for what for some of ...

Volunteer•2 years ago

Avacopan - a new medication that will soon be available for severe GPA and MPA vasculitis patients.

Click on the link for the announcement from Vifor Pharma:...

Click on the link for the announcement from Vifor Pharma:...

Moderator•2 years ago

6th Covid Jab Update - Please Note

hi everybody, recently I posted about going for my 6th jab today and yes I have just had it. However those of you who are arranging this via the NHS website...

hi everybody, recently I posted about going for my 6th jab today and yes I have ...

•2 years ago

Scotland’s Autumn 2022 Covid boosters starting on 5 September

See https://www.bbc.co.uk/news/uk-scotland-62565496 Appointments for immunosuppressed people will be sent in the post, so watch out for a blue letter. It’s...

See https://www.bbc.co.uk/news/uk-scotland-62565496 Appointments for immunosupp...

Volunteer•2 years ago

6th Covid Jab on Thursday

Hi everybody I was picking up my prescriptions at the Pharmacy the other day and the Pharmacist said “hey Nick have you had your booster” to which I replied “I...

Hi everybody I was picking up my prescriptions at the Pharmacy the other day and...

•2 years ago

Co Trimoxazole

Hope everyone is ok with this heat. I just wanted to ask if anyone is on a maintenance drug Co Trimoxazole & if so how long have you been in remission. My...

Hope everyone is ok with this heat. I just wanted to ask if anyone is on a main...

•2 years ago

Evusheld after Rituximab

Hi Does anyone know how long after Rituximab infusions do you have to wait before you can have the Evusheld injections?

Hi Does anyone know how long after Rituximab infusions do you have to wait bef...

•2 years ago

Evusheld update

Here's the announcement we received today. Devastating for immunocompromised patients. A government spokesperson said: “Following a robust review of the...

Here's the announcement we received today. Devastating for immunocompromised pa...

Moderator•2 years ago

Evusheld campaign, never heard of it before tonight.

Hi there, as the title says never heard of it until tonight. Now l could be - and probably wrong - does this Evusheld have something to do with COVID? l had...

Hi there, as the title says never heard of it until tonight. Now l could be - an...

•2 years ago

sleepy

Can I ask if anyone gets really sleepy when the Rituximab is due? My partner is having his next week and for the past couple of weeks he’s slept most of the...

Can I ask if anyone gets really sleepy when the Rituximab is due? My partner is ...

•2 years ago