Been a while since I posted but would be really grateful for some advice from anyone who has experienced rituximab infusions.
I am due to have 4 over 4 weeks soon after many frustrating delays, cancelled appointments, lost letters between consultants etc and during these delays have started my first step back to work, this was done really because of financial necessity not because I felt well enough as ideally I would have preferred to have the infusions first.
My question is this am I being unrealistic to think that I will be able to have my infusions and still work? I work at home and part time over 5 days, it has taken me so long to find anyone willing to employ me that I have been vague about my health problems and know I need rituximab but don't want to have to give up my job but also want to be fair to them.
Thanks for any advice