Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,753 posts

All posts for September 2022

EVUSHELD

I am gathering experiencies/opinions about EVUSHELD 1/How would having evusheld change your everyday life? What activities would you do you are not doing...

I am gathering experiencies/opinions about EVUSHELD 1/How would having evushe...

Administrator•2 years ago

Covid Risk Based Approach to Travelling Abroad

Hi everybody I just thought I would share this with you. Many questions often arise if going on holiday. And just over 12 months ago I was having my bloods...

Hi everybody I just thought I would share this with you. Many questions often ar...

•2 years ago

Re Scottish autumn 2022 vaccine appointments

For any fellow Scots due an autumn/winter vaccine it’s a good idea to keep an eye on the Scottish appointments website vacs.nhs.scot My autumn/winter vaccines...

For any fellow Scots due an autumn/winter vaccine it’s a good idea to keep an ey...

Volunteer•2 years ago

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travel insurance - am I in remission

The sticky question for me attempting to book travel insurance is “ Am I in remission?” I had GPA diagnosed 8years ago and was extremely unwell initially....

The sticky question for me attempting to book travel insurance is “ Am I in remi...

•2 years ago

Survey

Leeds Hospital are doing a survey on side effects of steroids. Most of us have a story to share! What I find interesting is that they give the opportunity to...

Leeds Hospital are doing a survey on side effects of steroids. Most of us have ...

Administrator•2 years ago

Prednisone, Prolia, osteoporosis, dental work

I wrote this as a response to someone else on the page but it may help other folks that have these issues. Yes, my primary care physician said the Prolia...

I wrote this as a response to someone else on the page but it may help other fol...

•2 years ago

change of meds

hi, all I have a question because of my recent gpa flare my consultant decided to change me from azathioprine to myfenax(mycophenolate mofetil) I asked him...

hi, all I have a question because of my recent gpa flare my consultant decided ...

•2 years ago

Off On Holiday, Yippee!

Dear All, I'm going Away, tomorrow Morning.... Up to Southport (NE English Coast)..... for two Weeks👍😃. It is one of the 'Re-Vitalise' Centres (formerly...

Dear All, I'm going Away, tomorrow Morning.... Up to Southport (NE English Coas...

•2 years ago

angel54

Hi guys , Sny advice I fractured my back badly 3 yrs ago ,I have had T/C alls but never been seen this all happened before covid, I had a recent spinal scan...

Hi guys , Sny advice I fractured my back badly 3 yrs ago ,I have had T/C alls bu...

•2 years ago

ANCA NEGATIVE EGPA

hi, quick question- how many of you with EGPA are ANCA NEGATIVE? I know that only 40% are ANCA positive yet surprises me that some consultants still like to...

hi, quick question- how many of you with EGPA are ANCA NEGATIVE? I know that on...

•2 years ago

Methotrexate, mycophenolate mofetil and prednisolone

Hi all, I have been on Methotrexate, mycophenolate mofetil and prednisolone for just over a year and many side effects are getting worse with new ones...

Hi all, I have been on Methotrexate, mycophenolate mofetil and prednisolone for...

•2 years ago

hearing loss

I can no longer hear without hearing aids due mainly to Vasculitis , Am I able to claim attendance allowance, is there anywhere that I could get information on...

I can no longer hear without hearing aids due mainly to Vasculitis , Am I able t...

•2 years ago

Elusive Doctors

Has anybody seen a Doctor since pre Covid , not even getting phone calls now.

Has anybody seen a Doctor since pre Covid , not even getting phone calls now.

•2 years ago

p Ancaster vasculitis lung involvment

curious- I've been in remission around 1-1/2 yrs.im still very tired and have aches and pains. My blood work is good.sorry to ask I'm starting to get...

curious- I've been in remission around 1-1/2 yrs.im still very tired and have ...

•2 years ago

What should our 6th jab contain?

I got my sixth jab yesterday by calling 119. It was Pfizer. Friends tell me that what they have said they would give us immuno-suppressed people is Moderna...

I got my sixth jab yesterday by calling 119. It was Pfizer. Friends tell me t...

•2 years ago

sinus related issues before diagnosis?

Hi all, l have had intermittent earache,tinnitus, vertigo and eye pain in my left eye (hurts looking to the left or down) since about January. This...

Hi all, l have had intermittent earache,tinnitus, vertigo and eye pain in m...

•2 years ago