Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,753 posts

All posts for November 2022

GPA and RA or Fibromyalgia

I was diagnosed with C-Anca GPA in 2017. I went into remission in 2019. I was extremely sick for 4 months before being diagnosed and one of my symptoms was...

I was diagnosed with C-Anca GPA in 2017. I went into remission in 2019. I was ex...

•1 year ago

joints and muscle inflammation

Hello I have Sjogrens with possible vasculitis no biopsies yet. I have been taking golimumab for a few weeks now and feel very concerned about it. I have...

Hello I have Sjogrens with possible vasculitis no biopsies yet. I have been ta...

•1 year ago

I just 'Ran Out Of Steam', I guess

Dear All, here I am, at home, when I should have been at my 'Club'. I had a very Busy Day yesterday, being Remembrance Sunday, so maybe I just Overdid...

Dear All, here I am, at home, when I should have been at my 'Club'. I had a ver...

•1 year ago

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stomach

Thankyou for your replies. I have had a camera down into my stomach before I was diagnosed . It showed lesions , which must have been connected with my...

Thankyou for your replies. I have had a camera down into my stomach before I wa...

•1 year ago

upset stomach

Hi I have HUVS .After rituximab l have generally improved . This is my fourth set of rituximab infusions . However each time I have suffered from upset and...

Hi I have HUVS .After rituximab l have generally improved . This is my fourth s...

•1 year ago

Good News, Maybe for all?

Dear Everyone, I recently, in the last couple of days, received 'Notification' from the D(epartment) O(f) W(ork) and P(ensions) that I will be receiving 'The...

Dear Everyone, I recently, in the last couple of days, received 'Notification' ...

•1 year ago

GCA vasculitis

New classification criteria for GCA vasculitis were published today.https://ard.bmj.com/content/early/2022/11/09/ard-2022-223480

New classification criteria for GCA vasculitis were published today.https://ard....

Administrator•1 year ago

lung nodule

My husband is due a lung nodule biopsy and whatever comes from it how long will a hospital stay be roughly ..if any and how long off work. thank you

My husband is due a lung nodule biopsy and whatever comes from it how long will ...

•1 year ago

Advice needed, help from my friends here

Because I have a number of medical conditions, both as a result of vasculitis and other things, I have several hospital appointments coming up this month. One...

Because I have a number of medical conditions, both as a result of vasculitis a...

•1 year ago

vasculitus and Crohn’s disease

I have had Gpa vasculitus for 12 years. I am now pleased to say I am now in remission for the 2nd time. The two drugs that I used to achieve remission were...

I have had Gpa vasculitus for 12 years. I am now pleased to say I am now in rem...

•1 year ago

Life after Rituximab? What is the next chapter?

Diagnose with GPA in December 2019 and after the usual cocktail of Steroids Cyclophosphamide and an unsuccessful spell with Azathioprine I now approach my next...

Diagnose with GPA in December 2019 and after the usual cocktail of Steroids Cycl...

•1 year ago

Can anyone recommend an ENT dept specialising in rheumatic diseases in Surrey or London.

NHS preferably. That's all really. Happy for anyone to PM me with any recommendations if they can't be posted here.Thanks!

NHS preferably. That's all really. Happy for anyone to PM me with any recommenda...

•1 year ago

Chicken Pox Anti Bodies

Recently posted on the CP, as I thought I had been exposed. See previous post I dodged the bullet didnt get its, as grand daughter didnt get it Have...

Recently posted on the CP, as I thought I had been exposed. See previous post ...

•1 year ago

Something VERY 'Strange' Indeed.

Dear All, Something Very Strange is occurring, outside my Flat..... I've Checked the Historical Records and Found, that it's Called 'WIND & RAIN'. Apparently...

Dear All, Something Very Strange is occurring, outside my Flat..... I've Checke...

•1 year ago