Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for October 2024

IgA Vasculitis with positive ANCA

Hello, 6 months ago my daughter was finally diagnosed with IgA Vasculitis after a couple of years' of debilitating stomach pain and an outbreak of purpura in...

Hello, 6 months ago my daughter was finally diagnosed with IgA Vasculitis after...

•2 months ago

Christmas cards

Finally! Christmas cards on sale! We are sorry for the delay -there's a story behind it: In error the last years design was reprinted and we only found out...

Finally! Christmas cards on sale! We are sorry for the delay -there's a story...

Moderator•2 months ago

AAV Patient Summit

Vasculitis UK participated in the AAV Patient Summit organised by Vasculitis International in Netherlands.Doctors, nurses and patients from 10 different...

Vasculitis UK participated in the AAV Patient Summit organised by Vasculitis Int...

Moderator•2 months ago

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Vasculitis AGM

Hi All, I’ve sent out the link for the AGM on Sunday to those who have registered. Please check your email. And if you cannot see it have a look in junk...

Hi All, I’ve sent out the link for the AGM on Sunday to those who have register...

Administrator•2 months ago

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Vasculitis support groups Hampshire/Surrey/Berkshire/Wiltshire

Hey guys any groups that meet in these areas? Would be lovely to meet people with the same difficulties and have a cup of tea!

Hey guys any groups that meet in these areas? Would be lovely to meet people wit...

•2 months ago

Thank you!

We've had 25 donations in the last 30 days, thanks to our supporters using #easyfundraising when they make online purchases! Please keep up the good work, your...

We've had 25 donations in the last 30 days, thanks to our supporters using #easy...

Moderator•2 months ago

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EGPA x Heart

My husband was diagnosed in 2019 with EGPA. He's on a variety of meds and currently trying to reduce prednisone managing to reduce from 15mg to 11mg before...

My husband was diagnosed in 2019 with EGPA. He's on a variety of meds and curren...

•2 months ago

Rutuximab & Travel

Hi everyone, I am due to travel long haul over the Xmas period celebrating big birthday. I am due my rutuximab infusion in December which is maintenance...

Hi everyone, I am due to travel long haul over the Xmas period celebrating big b...

•3 months ago

Not being offered Rituximab for GPA

Hi all, I have had GPA for over 3 years and am on methotrexate and prednisolone among many others. I have never been offered Rituximab although did have a...

Hi all, I have had GPA for over 3 years and am on methotrexate and prednisolone ...

•3 months ago

Vasculitis UK AGM

A reminder to register at agm@vasculitis.org.uk to participate on Vasculitis UK's AGM on Sunday the 27th of October online.

A reminder to register at agm@vasculitis.org.uk to participate on Vasculitis UK'...

Moderator•3 months ago

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GPA query

Morning troops After being diagnosed in 2016 and taking 6 years to go into remission and off all meds I am having a relapse which isn't as bad as it was...

Morning troops After being diagnosed in 2016 and taking 6 years to go into remi...

•3 months ago

Today NHS Wales launched the National Strategic Clinical Network for Musculoskeletal Conditions

Today NHS Wales launched the National Strategic Clinical Network for Musculoskeletal Conditions (...

Today NHS Wales launched the National Strategic Clinical Network for Musculoskel...

Moderator•3 months ago

For those living in Wales

If you live in Wales, could you register for online attendance to the MSK network launch tomorrow? It is the first step of the NHS Wales to support people...

If you live in Wales, could you register for online attendance to the MSK networ...

Moderator•3 months ago

EGPA Vasculitis alternative medicine

hi everyone, I feel the need to share some important information. I was diagnosed 5 years ago with this rare disease and spent 4 years on a rollercoaster ride...

hi everyone, I feel the need to share some important information. I was diagnose...

•3 months ago

reducing immunosuppressants

hi Looking for some advice regarding reducing immune suppressants and personal experiences. my OH is due to see his consultant in 3 weeks time and at the...

hi Looking for some advice regarding reducing immune suppressants and personal...

•3 months ago