Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,850 members•6,872 posts

All posts for October 2024

Vasculitis support groups Hampshire/Surrey/Berkshire/Wiltshire

Hey guys any groups that meet in these areas? Would be lovely to meet people with the same difficulties and have a cup of tea!

Hey guys any groups that meet in these areas? Would be lovely to meet people wit...

•4 days ago

Thank you!

We've had 25 donations in the last 30 days, thanks to our supporters using #easyfundraising when they make online purchases! Please keep up the good work, your...

We've had 25 donations in the last 30 days, thanks to our supporters using #easy...

Administrator•5 days ago

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EGPA x Heart

My husband was diagnosed in 2019 with EGPA. He's on a variety of meds and currently trying to reduce prednisone managing to reduce from 15mg to 11mg before...

My husband was diagnosed in 2019 with EGPA. He's on a variety of meds and curren...

•7 days ago

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Rutuximab & Travel

Hi everyone, I am due to travel long haul over the Xmas period celebrating big birthday. I am due my rutuximab infusion in December which is maintenance...

Hi everyone, I am due to travel long haul over the Xmas period celebrating big b...

•7 days ago

Not being offered Rituximab for GPA

Hi all, I have had GPA for over 3 years and am on methotrexate and prednisolone among many others. I have never been offered Rituximab although did have a...

Hi all, I have had GPA for over 3 years and am on methotrexate and prednisolone ...

•7 days ago

Vasculitis UK AGM

A reminder to register at agm@vasculitis.org.uk to participate on Vasculitis UK's AGM on Sunday the 27th of October online.

A reminder to register at agm@vasculitis.org.uk to participate on Vasculitis UK'...

Administrator•8 days ago

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GPA query

Morning troops After being diagnosed in 2016 and taking 6 years to go into remission and off all meds I am having a relapse which isn't as bad as it was...

Morning troops After being diagnosed in 2016 and taking 6 years to go into remi...

•8 days ago

Today NHS Wales launched the National Strategic Clinical Network for Musculoskeletal Conditions

Today NHS Wales launched the National Strategic Clinical Network for Musculoskeletal Conditions (...

Today NHS Wales launched the National Strategic Clinical Network for Musculoskel...

Administrator•11 days ago

For those living in Wales

If you live in Wales, could you register for online attendance to the MSK network launch tomorrow? It is the first step of the NHS Wales to support people...

If you live in Wales, could you register for online attendance to the MSK networ...

Administrator•12 days ago

EGPA Vasculitis alternative medicine

hi everyone, I feel the need to share some important information. I was diagnosed 5 years ago with this rare disease and spent 4 years on a rollercoaster ride...

hi everyone, I feel the need to share some important information. I was diagnose...

•15 days ago

reducing immunosuppressants

hi Looking for some advice regarding reducing immune suppressants and personal experiences. my OH is due to see his consultant in 3 weeks time and at the...

hi Looking for some advice regarding reducing immune suppressants and personal...

•18 days ago