Posts - Vasculitis UK | HealthUnlocked

The next meeting of the Liverpool, Cheshire and North Wales Vasculitis Support Group will be held at the Royal Liverpool Hospital, on Monday 4th November. For...

Merseyside, Cheshire and North Wales Vasculitis Support Group Meeting Monday November 4th 2013.

The next meeting of the Liverpool, Cheshire and North Wales Vasculitis Support G...

Moderator•10 years ago

If you would like to see what changes have been made recently to the Vasculitis UK website then check out:...

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Changes to the Vasculitis UK website

If you would like to see what changes have been made recently to the Vasculitis ...

PatriciaAnn

•10 years ago

2 Replies

Russ Runs the Stevenage Half Marathon for Vasculitis UK

On 3rd November, Russ Wingfield will proudly wear his Vasculitis UK t-shirt as he takes part in the Stevenage Half Marathon. Russ will be raising awareness of...

On 3rd November, Russ Wingfield will proudly wear his Vasculitis UK t-shirt as h...

Moderator•10 years ago

My diagnosis is a funny one, rheumy says vasculitis, lupus and APS but neurologist says vasculopathy; the treatment is the same. The hospital have told me I...

Seizures, I have just got out of hospital after having what appeared to be two seizures.

My diagnosis is a funny one, rheumy says vasculitis, lupus and APS but neurologi...

annie330

•11 years ago

Had my RTX yesterday at Addenbrookes see my vasculities consultants thanks everybody I love these people.

essexboy

•11 years ago

How long does it take for your skin to recover after steroids use? My Mum has been on 30mg for a few months and has recently tapered down to 10mg. she has...

Skin and bone problems after steroids use

How long does it take for your skin to recover after steroids use? My Mum has be...

luggsey

•11 years ago

20 Replies

Vasculitis UK, would like to thank everyone for their support in preparing yet another submission to NICE.

Just to let everyone know the third submission to NICE was sent off yesterday morning, plus a 'petition' containing well over 1000 names. The response from FB,...

Just to let everyone know the third submission to NICE was sent off yesterday mo...

I was diagnosed with WG over 14 years ago and for the past 3 years I have been receiving Rituximab every 6 months and it's been my ' wonder drug ' but after my...

Moderator•11 years ago

6 Replies

Has anybody had 1gram of Rituximab in 2 doses with an interval of 2 weeks between please?

I was diagnosed with WG over 14 years ago and for the past 3 years I have been r...

Essex-jill

•11 years ago

2 Replies

York, N&E Riding Support Group lunch this weekend. Sunday 27th October.

Jennifer will be holding an informal vasculitis support group meeting lunch on Sunday 27th October at The Blacksmith's Arms, 56 The Old Village, Huntington,...

Jennifer will be holding an informal vasculitis support group meeting lunch on S...

Moderator•11 years ago

Waiting on test results to confirm scarlet fever.

My daughter has suspected scarlet fever and i had my first cyclo last week. Should I be worried if I was to catch it?

Mags88

•11 years ago

2 Replies

does anyone know how much blood it requires in urine sample to know if the kidney isn't functioning properly.

I saw my consultant last week and the copy of his report mentioned that I had 'moderate blood and protein as before' in my urine sample. Now I am getting a...

I saw my consultant last week and the copy of his report mentioned that I had 'm...

rrahman

•11 years ago

7 Replies

Thought I would share this video, it brought a smile to my face today.

Memories of Kendall's mini run on behalf of her brother Andrew, Andrew has WG (GPA) fundraising for Vasculitis UK. :-)...

Memories of Kendall's mini run on behalf of her brother Andrew, Andrew has WG (G...

After the usual delay to get a diagnosis my 51yo husband has been diagnosed with this horrible illness. Initially he received almost no treatment for 2 months...

Moderator•11 years ago

7 Replies

Really could use some reassurance, if such a thing exists

After the usual delay to get a diagnosis my 51yo husband has been diagnosed with...

jmtjat

•11 years ago

11 Replies

Prednisolone tapering causing rash?

Mums tapering off pred, 5mg a week from 30mg and now on 10mg for the last two days. She has a rash now on her belly, back and under arm area. Is this caused by...

Mums tapering off pred, 5mg a week from 30mg and now on 10mg for the last two da...

luggsey

•11 years ago

9 Replies

Just wanted to wish Janine Brown all the best for today, running in Amsterdam for Vasculitis UK in memory of Clare.

http://www.vasculitis.org.uk/events/hanine-amsterdam-oct-2013

Moderator•11 years ago

We, at Vasculitis UK, urgently need your help in preparing yet another submission to NICE to influence their decision about the use of Rituximab in treating...

Vasculitis UK, urgently need your help in preparing yet another submission to NICE to influence their decision about the use of Rituximab.

We, at Vasculitis UK, urgently need your help in preparing yet another submissio...

John_Mills

Volunteer•11 years ago

I have just received my copy of The RouteMap for Vasculitus - I have to say I am very impressed with the amount of information & coverage in it - it will be a...

Route map for vasculitis

I have just received my copy of The RouteMap for Vasculitus - I have to say I am...

Bailey24

•11 years ago

11 Replies

New treatment - tocilizumab

Hi. I have takayasu's arteritis and am treated at Addenbrooke's. I saw Dr Jayne yesterday and they've come to the conclusion that things are a bit out of...

Hi. I have takayasu's arteritis and am treated at Addenbrooke's. I saw Dr Jayne ...

JElsom

•11 years ago

3 Replies

Thought I would share this for those who have an interest. Allow ESA claimants to continue to be paid during the dispute process.

This link has been provided through Benefits and Work .........

Moderator•11 years ago

http://www. bbc.co.uk/news/health-24567412 The brain uses sleep to wash away the waste toxins built up during a hard day's thinking, researchers have shown....

Sleep 'cleans' the brain of toxins BBC news

http://www. bbc.co.uk/news/health-24567412 The brain uses sleep to wash away t...

hamble99b

Volunteer•11 years ago

http://www. bbc.co.uk/news/health-24533624 Cash to fund the early entry into hospitals of hundreds of potential new treatments for rare diseases and disorders...

new funding for rare diseases cancelled

http://www. bbc.co.uk/news/health-24533624 Cash to fund the early entry into hos...

hamble99b

Volunteer•11 years ago

The latest attempt to find out my actual blood pressure was not just interesting, but also very funny. I went into the leg ulcer clinic in our local hospital,...

An educational afternoon...

The latest attempt to find out my actual blood pressure was not just interesting...

BronteM

•11 years ago

I have spent all day with a financial advisor trying to sort out my pension. Sadly no underwriter found so far knows anything about Wegeners and as such I am...

Enhanced Pension anyone?

I have spent all day with a financial advisor trying to sort out my pension. Sad...

Geoff

•11 years ago

7 days to go the London Vasculitis Support Group meeting on Sunday 20th October at the Swiss Cottage Community Centre, Winchester Road, London NW3 3NR. Start...

London Vasculitis Support Group meeting.

7 days to go the London Vasculitis Support Group meeting on Sunday 20th October ...

Albasain

•11 years ago

A Quick reminder of the West Yorkshire Support group meeting. Next Sunday 20th October, Gomersal Park Hotel, Cleckheaton. Message me if you haven't booked...

West Yorkshire Support Group

A Quick reminder of the West Yorkshire Support group meeting. Next Sunday 20th O...

LynneJ

Vasculitis UK•11 years ago

I had my flu jab last Saturday afternoon, and have not been able to stop itching since Saturday evening!! I am scratching all over my abdomen, arms, sides...

HELP!!!!!!!! Possible reaction to flu jab????

I had my flu jab last Saturday afternoon, and have not been able to stop itching...

sar1980

•11 years ago

5 Replies

Latest Benefits and Work newsletter 30th September 2013

http://www.benefitsandwork.co.uk/news/2384-30-september-2013-newsletter

Moderator•11 years ago