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Vasculitis UK
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Flu

I have HUVS do you know if it is safe for me to have a flu injection. Thank you...

Is anyone taking cyclosporine and what has their experience been?

I am currently taking 200mg of cyclosporine daily and weening myself of Predniso...

Welcome to the new style VUK website

If you have recently visited the website you will have noticed it now has a new ...

Cerebral Vasculitis to Vasculitis Dementia

I’ve had Cerebral Vasculitis which has now been in remission for 10yrs and still...

Diagnosis of Erosive Osteoarthritis

Hi all, I was diagnosed with this condition in my hands and was advised by a co...

Azathioprine

Hi I’m due to start Azathioprine tomorrow for my GPA vasculitis. Over the past y...

How does one contact the community administrator of PMR

I have been blocked by PMR community for no reason . I would like to contact Can...

Finding the right specialists

Hi I have been tentatively diagnosed with cnsv, However, I am constantly told my...

Does nucala work for egpa

Is anyone with egpa taking nucala and is it working?

Tocilizumab and rash

For the last nine weeks I’ve been self injecting with tocilizumab.....and really...

Central lines?

What is the best line for vasculitis patients : Central line , portacath , Picc...

European Vasculitis Course & Workshop - Cambridge September 2019

We have just returned from the 3 day annual European Vasculitis Course, (EUVAS) ...

Lincolnshire Vasculitis Support Meeting / coffee / lunch October 19th

Please follow this link for more detail https://www.vasculitis.org.uk/events/lin...

Oxfordshire Vasculitis Support Group Lunch - October 13th

The next informal lunch for the Oxfordshire Vasculitis Support Group will be at ...

Vasculitis Support Group West Midlands Meeting October 6th

Speakers on this occasion are:- Anjali Crawshaw, a Consultant Respiratory Physi...

Northamptonshire Vasculitis Support Group Meeting - October 5th

Northamptonshire Vasculitis Support Group Meeting will be held at 13.00 on Satur...

York Support Group

We’ve booked Huntington Memorial Hall as usual, for Sunday the 13th of October b...

West Yorkshire Support Group

The next West Yorkshire support group meeting will be on Sunday the 20th of Octo...

What I did on Holiday, as promised.

Dear All, I went to 'Sandpipers', which is Run by ReVitalise, formerly the Winge...

Vasculitis & heart problems

Hi everyone Ive recently been diagnosed with atrial tachycardia following an EP...

I'm Back!

Dear All, I'm Back, from my Holiday, yes I DID have a 'Good' Time. I, absolutely...

Private vasculitis specialist

Does anyone see a vasculitis specialist, privately anywhere in the south west UK

Apixaban and WG

Hi, Is there anyone else who has WG and has a blood clot that is taking apixaban...

Azathioprine side effects

Hi I have EGPA and have been taking azathioprine and prednisolone for 10 years. ...

Egpa neurological question

Does anyone have experience with egpa affecting them neurologically? I had brai...

Critical illness

Hi there - I’ve been diagnosed with vasculitus (GPA) - is this classed as a crit...

Is this rash Vasculitis?

Hi, I have had this rash for 4.5 years and was initially told it was pityriasis ...

Dropping pred

I have been diagnosed with large vessel vasculitis and recently dropped from35 t...

Buzzing/vibrating sensation in foot?

Hello again everyone. Hope you’re all as well as you can be given whatever life ...

Changing from Prednisone to Hydrocortisone

I am in remission for at least 6 years, Vasculitis (MPA) have gone from 6mg Pre...
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