Coming off Prednisolone advice
Red-head443 days ago
I have had WG since Oct 15 [diagnosed March 16].
I have come down from 60mg of Prednisolone to10mg [initially 5mg at a time then r...
Change in taste.
HFox6 days ago
Hi all me again lol! i was just wondering if anyone has experienced a change in their ability to taste things? I seem to have a constant me...
I'm new to pmr
Eleanoeabernathy7 days ago
Hi there I was diagnosed with pmr in June this year after having really bad pains ( in my shoulders and hips mainly) for 5 years and moderat...
Ramipril - albumin in urin
Lima517 days ago
My husband has MPA (had it for one year) and has protein almost 300 mmol/l in his urin and had ramipril for half a year for too high b...
Awaiting Vasculitis Results - UPDATE
Belinda847 days ago
Everyone who responded on my first post, thank you very much, you were all lovely. I had my appointment yesterday at Eastman Dental C...
Jandaw7 days ago
My daughter has recently been diagnosed with Cogans and although picked up quickly within 2 weeks of symptoms has suffered hearing loss. Doe...
Vasculitis Europe - Bringing Vasculitis Support Organisations together
Suzym2u9 days ago
Just thought I would share this link - Peter from Holland and John from the UK have been working together for Vasculitis EU. Vasculitis Euro...
1 Reply5 Likes
Still waiting for vasculitis diagnosis - now liver issues
hines979 days ago
A month ago I posted that my husband has tested positive for p-anca as well as PR3 and MPO after a long struggle with pneumonia like symptom...
Rash at the moment
kazmac4513 days ago
Can I ask for thoughts on this rash on my arm at the minute?
It's the same, but less severe, on my side and my thigh where they took the biop...
TAK and Itching swollen toes.
Coffeebixuk13 days ago
Hello everyone. I have TAK which is currently under control but I keep having swollen red severely itching toes. It happens out of the blu...
Update on veggies.
greg3113 days ago
So I've been back to my old eating habits. Lol. But I've learned so much. I am eating bad due to convenience and cost. So burger joints and ...
9 Replies2 Likes
HFox14 days agoPOPULAR
Just thought I would give an update... Today I have started on the Avacopan trial. I have had rituximab which I have to have every Thursday ...
23 Replies1 Like
Methotrexate Oral Tablet vs Metoject.
Viserys15 days ago
I am currently on week 13 of the Methotrexate vs Cyclosporine clinical trial in the UK(25mg a week). I have been feeling nauseous from the s...
Awaiting Results for Vasculitis
Belinda8415 days agoPOPULAR
This is my first time posting and wondering if anyone has experienced something similar to what I am currently going through. I'll explain...
41 Replies2 Likes
Now colitis with vasculites
jeannette6517 days ago
Hi Anyone got colitis as well as GCA. Just had results of biopsies taken in colonoscopy. Now waiting to see another consultant,because of th...
Omil0417 days ago
Just a update to all , was seen by my consultant on Monday who thought that it could be a drop leg , or back / nerve problems. Today in hosp...
1 Reply1 Like
pr3 and c-anca blood test
croc09917 days ago
Hi Everyone, I'm from Australia and am type 2 diabetic with good Hba1c control ( 6.0 ). I have a slight numbness in my toes and less so in t...
froggerclw18 days ago
My name is Carl but everyone knows me as "frogger ", I was diagnosed with Behcets in 1994, and it seems like it is getting worse. I am wond...
Advice on Prolia please
10263718 days ago
Has anyone had Prolia injections for osteoporosis caused by steroids who has GPA
If so,did you have side effects from it?
Is there a natural t...
Plymouth vasculitis support group meeting
zoe6919 days ago
The local support group will meet for coffee/lunch and a chat at the Boathouse café in Barbican on Sunday 24/9 at 11.30am.
You are welcome to...
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Problems in my right leg
Omil0419 days ago
Hi have GPA sistemic ,giant cells. I am hoping that some one can help me with my new challenge. This morning my leg felt funny heavy , fel...
thecatsathome221 days ago
Hello Everyone !!!! Robert is having made a prosthesis to cover his palate hole he got due to GP vasculatis.. a denture will be implanted as...
AP3821 days ago
Hello, I've been diagnosed with HSP Nephritis in August 2017.
I was on 20mg prednisolone for 5 days and 20mg cozaar daily.
On Day 3 I had a ba...
3 Replies2 Likes
Moving to Durham
anthony0122 days ago
I am moving from London to Durham and think the closest specialised hospital will be Newcastle? that deal with Vasculitis PANCA and Cerebral...
16 Replies1 Like
If vasculitis is remissioned, progression of renal damage is stopped?
Wizzi22 days ago
Or the patient will reach inevitabitable throughout his life the terminal renal failure?
kazmac4524 days ago
Hello. I'm new to this part of the forum, having only been in the Lupus UK part until now.
I've had lots of tests for Lupus and despite my CR...
Riff195425 days ago
Just become aware that you are required to notify the DVLA if you suffer from peripheral neuropathy.
Has anyone any experience of th...
luggsey25 days ago
This one is called canakinumab, not sure if it's the same drug?
New anti inflammatory drug?
I saw on the news there have been successful trials of a new anti inflammatory drug.
I would like to find out if vasculitis sufferers could b...
Help needed for a proposed research study.
Suzym2u25 days ago
To support a proposed research study into access to timely and coordinated specialist care for vasculitis patients, we urgently need very br...
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