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Vasculitis UK

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Vasculitis Awareness Evening- 12 March

Last Tuesday at the Health Innovation campus in Lancaster a between 40-45 Vascul...
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ANCA Vasculitis - Are you interested in taking part in the HAVEN Trial?

https://www.vasculitis.org.uk/news/are-you-suffering-with-anca-vasculitis
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A questionnaire for those with ANCA associated vasculitis and renal involvement in the UK

For those with ANCA associated vasculitis and renal involvement in the UK Clini...
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Vasculitis Patient Event in Barcelona, 6th April 2024

Do you live in Spain? Or will you be in Barcelona on the 6th of April? Would yo...
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Medication for Vasculitis

Hi. I have had Vasculitis for four years and my current medication is Prednisolo...
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Selbourn

I am now having periods of dizziness and vertigo, I think this is caused by my V...
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cutaneous vassculitis

good morning everyone. I have had a very painful flare since April last year. My...
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Inspiring the Scientists of Tomorrow

Inspiring the Scientists of tomorrow! Vasculitis UK is so pleased to announc...
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white blood cell

thankyou for your reply . I was afraid it was caused by the infusion . It is the...

white blood cells

l have a low neutrophil count l know this can be caused by the immune system , b...
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Selbourn

Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituxima...
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Rare Disease Day

On the rarest day of this year we celebrate #RareDiseaseDay Spread the word in ...
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Robstevens

I've been on prednisolone for 10 years. Can't get off it. Even with nucala inje...
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Avacopan side effects

Hi All, Could anyone please tell me if they are suffering from any Avacopan sid...

Covid Vaccines - Update

Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also d...
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Scalp nerve pain

I have GPA and recently noticed that one half of my scalp is sore to the touch ...
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Patient awareness evening

Members of Renal team at Preston Royal are running an patient awareness evening...
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Polymyalgia

I am quite new to HealthUnlocked and Polymyalgia, although I did join some time ...
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Can anyone help me with an explanation?

I was diagnosed with microscopic poyangiitis in 2007. Recent test results includ...
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Benign breast lump

Hi, just wondering if anyone else has had anything similar. I had a recall on m...
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Vasculitis

Is it OK to have a tooth extraction 2 weeks after Rituximab infusion?
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Covid Vaccines - Can you still book them?

Hi all, something that has slipped my mind but it’s been 6 months since I had my...

I need help..

Hi there I’m a bit of a complicated one but very unwell . diagnosed with probab...

Avacopan and Pred

Hi, I had my first rituximab infusion last Tuesday. I have been supplied Avac...
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Covid jabs to be sold in pharmacies

hi Has anyone else any information regarding selling of Covid jabs from next mo...
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Imperial College Help please

Hi, further to my last post - thank you all so much - my GP and Renal Consultant...
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Rare Disease Day 2024 countdown

23 days to the #RareDiseaseDay , #vasculitis is a rare #autoimmune rheumatic ...
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Rare Disease Day 2024 countdown

24 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic dis...
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Where do I go from here?

I've many years history of Rheumatoid Arthritis and Polymyalgia (PMR). I develop...
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Rare Disease Day 2024 countdown

25 days to the #RareDiseaseDay, #vasculitis is a rare #autoimmune rheumatic dis...
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