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Vasculitis UK

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GPA, azathioprine and biopsy

I am on azathioprine for GPA, which is currently in remission, Urologist wants t...

Eyes and ears

Hello Does anyone on here, get severe pain around their eye socket, and around ...

A but 'Off Subject', Sorry but Does anyone know about this?

Dear All, sorry this IS rather 'Off Subject', please forgive this once, but I we...
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Vasculitis UK Spring 2022 Newsletter now available on line.

https://www.vasculitis.org.uk/news/autumn-2021-newsletter-out-now
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EGPA treatment

I was diagnosed with EGPA I’m August last year - nasty experience as fellow EGPA...

Hi, just wondering if anyone has needed a general anaesthetic who has GPA and also has lung involvement?

GPA & Anaesthesia

CT Colonoscopy

I'm going for a CT colonoscopy next week I'm really apprehensive. I have long c...

Vasculitis UK AGM and Webinar

Vasculitis UK AGM and online webinar this Sunday for those who have an interest....
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New to ANCA Vasculitis

I have searched the site for new information but notice that most entries are se...

Questions after infusion of anticlonal antibodies - can you help?

I'm hoping someone in my situation can give me some information! How safe am I t...

Update on my Holiday

Dear All, thank you all, for you Best Wishes, for my Holiday. Yes it was 'lovely...

Rheumatoid Vasculitis

Hi, does anyone have Rheumatoid Vasculitis and lung problems as well? My hubby ...

5th Vaccine - No problem

Hi everybody, had my spring booster a week last Friday which was my 5th dose. Wh...

Mpa and HPV vaccine

Has anyone diagnosed with microscopic polyangitis received the HPV vaccine? My d...

Evusheld not ordered yet by the UK government

The Guardian has run a story today about this, quoting the Astra Zeneca boss, sa...
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I'm OFF ON HOLIDAY, Yipeee😊😊😊😊

Dear All, Tomorrow Luchtime I'm going Away On Holiday..... the First time, since...

Assistance would be very much appreciated!

My daughter has asked me to post the following: I am approaching the end of my I...

Chest infection

My Dad has Vasculitis and Stage 5 kidney disease he has been on azathioprine for...

Pachimeningitis, Are you out there?

Is there anyone out there with pachimeningitis? Especially if it's associated wi...

Got my 5th Covid vaccine appointment

I have my 5th Covid vaccine booking for early May, just over 4 months after vacc...
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Refused treatment.

Hi . I have GPA and I am identified as being clinically extremely vulnerable due...

Very Sorry everyone.... and HAPPY EASTER😊

Dear All, here I am at Ten, Twenty- on Easter Sunday- and I haven't wished you A...

Tapering prednisone with GPA after truxima infusions.

I was diagnosed with GPA about three months ago, underwent a kidney biopsy and s...

Groups eligible for free LFT tests in Scotland after 18 April 2022

Here is the list of groups who can still order free LFT tests in Scotland after ...
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CUTANEOUS VASCULITIS

Hi! I have these red spots on my legs every time I have long flights. Lately, it...

Low white blood count after Covid infection

Hi looking for some information regarding recent blood works as OH informed his ...

For young Behcet's sufferers

A questionnaire for young Behcet's sufferers and their families. It is from a re...

A bit 'Off Topic' but Very Important.

Dear All, I'm sure that you have had some Scams recently.... However if you rece...

Two blog posts on “Living with Covid”

I read a really interesting blog post from literature professor Martin Paul Eve....
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New COVID-19 Guidance in England for People at Higher Risk

Link to updated guidance for people in England:...
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