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Vasculitis UK
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Rare Disease Day 29th February 2020

Rare Disease Day is 29th February

Still ANCA positive

Hi everyone, regarding GPA, if I’m still ANCA positive after Rituximab and consu...

Northants Vasculitis Support Group meeting - 4th April 2020

Hi all, Not sure if the date of the next meeting has been posted so thought I wo...
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Withdrawal from amitryptiline

I’ve been on amitryptiline for about 8 years to help control nerve pain in my fe...

I’m new, confused and looking for support

Hi there, I’m new to the vasculitis group. What brought me to you guys is a poss...

Back pain and hip "lumps" or swellings on both sides anyone?

Hi everyone, I was dx'd with Churg Strauss 15 years ago. Considered a \"mild\" c...

Chest pain diagnosis

Hi, I have GPA and recently been diagnosed with Microvascular Angina. I hadn't ...

Advice needed

Hi. So I woke up with a red bruise like Mark under my left eye this morning, no...

Steroid reduction

Hi, is it normal for your blood pressure to be all over the place when you start...

Dietary changes

Hi there does anyone have any views on this article please? (I hope the link wor...

Is my vasculitis back i m on remission

I'm on remission but past few days i have been getting flares like this Nd red m...

Cutaneous Vasculitis (legs)

Hey! I was diagnosed with vasculitis leukocytoclastic in the beginning of novemb...

Bleeding nose and horse voice

My husband has GPA and was diagnosed almost 3 years ago now. He responded well t...

MPO levels

Hi does anyone know what is considered acceptable Level of MPO Anca ? Mine has g...

new member 2years diagnosed with CNS vasculitis

Hello Health unlocked community. introducing myself here -541965- i'm not just a...

What a great feeling

It has been a long tough road but as of This week. I AM IN REMISSION. 😊😊. I wa...

Hl4627

Does anyone else have hl4627 positive auto immune disease and uveitis.

Will I every feel well again?

Hi I was diagnosed with EGPA sept 2017 after 7 days in the Brompton. I am ANCA n...

Four months off Prednisone still ocasional bad bloating normal ?

I’ve been off prednisone for four months now. I was one prednisone for a year an...

Immunology

Hi. Has anyone been treated by or seen by an immunologist? I have only seen Neph...

Bladder irritation after cyclophosphamide.

I was diagnosed with GPA vasculitis in 2016 and given two doses of cyclophospham...

Irritated throat.

Does anyone else have a very sensitive throat. I have coughing fits when eating ...

Mycophenilate

I've been taking mycophenilate for 3 months increasing my dose.. I feel horrendo...

Azathioprine tapering

Hi, I've been on Azathioprine for nearly two years now after chemo infusions for...

Azathrioprine

Hi All Any advice on when to restart Azathrioprine after Having Shingles? I'm w...

VERY Helpful Insurance Company

Dear Everyone, I recently booked two Holidays, with Re-Vitalise (formally the Wi...

Bechet's disease?

This is going to be long so bear with me. I was diagnosed with crohns disease in...

New Mattress

Dear Vasculitis Friends, I haven't 'Posted', on here, for a while...So, first of...

GPA heart disease

Anyone with GPA had heart involvement?

Relocating to Dorset

Hi all, Here’s to a better 2020 for us all! I am considering relocating to Dorse...
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