Nadsrziguix25 minutes ago
Hi I'm just wondering if anyone can help me with a cheap good insurance as I have just been diagnosed with the wegeners disease and the chea...
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Effects of long term antibiotics
sarahdollygirl21 hours ago
I have Churg Strauss, currently treated with Rituximab, 5mg Prednisilone, Following a fungal infection in my lungs last winter which had to ...
GPA and purple bruising under big toenail. Is it related??
Wegener21 hours ago
Hi, I've been diagnosed with Wegener GPA since May and am on trial medication, which touch wood seems to be working, however I've noticed th...
What is the difference between Methotrexate and Rutiximab?
sarahdollygirl2 days ago
I have CSS and my consultant here in France took me off methotrexate at the beginning of last summer which resulted in the disease re-emergi...
biddy753 days ago
Hi has anyone experienced burning at toe of feet just below there toes
Private diagnosis anyone ? Sick of this constant battle?
Lisalou193 days ago
Have you paid privately ?
What testing was used? If any
Would you recommend
I’m so tired of feeling so rubbish in myself, and my children n...
South Wales Vasculitis Support Meeting is today
Suzym2u4 days ago
The South Wales Vasculitis Support Group will be meeting today, 14th July, from 2pm - 4pm, at The Grove Golf Club, Porthcawl
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How rare am I?
Canygirl614 days ago
What club do I belong to? What's lurking?
Autoimmune disease "club" for certain. "Your complicated" is what I've been told—"smoldering" and "...
1 Reply4 Likes
West Country Summer BBQ
DevonLottie5 days ago
Hi everyone, the West Country Vasculitis Support Group will be holding a BBQ at 1.00pm on Sunday 19th August in Shaldon, near Teignmouth. ...
3 Replies2 Likes
Recommendation for specialist consultants
Autumnwillow5 days ago
Hi I was wondering if any of you see specialist consultants at the QE in Birmingham and who they are. I'm hoping to get refered there but ne...
tazmoe5 days ago
Hi everyone I've been reading this for a gd Yr now, and hadn't posted anything yet but reading people issues has helped me so here we go 3 d...
TROPICAL VIRUSES ON THE RISE: THE CHICKINGUNYA VIRUS IS EVERYWHERE, CAUSING CHRONIC AUTOIMMUNE TYPE SYMPTOMS IN OLDER POPULATIONS
Christophene475 days ago
As I had the chickungunya virus, bitten by an Aedes aegyti mosquito carrying the virus while in the Caribbean island of Saint Martin, I got ...
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Germarey7 days ago
I believe your Dr did right test. I get tested for this as am C ANCA posituve pr3. They tezt for ANCA and if positive then check which one. ...
Feeling worse with treatment
Katiz8 days ago
Recently diagnosed with mpo ANCA +ve Vasculitis and undergoing Aggresive stage of treatment now. Prednisone and cyclo. Trying to work with r...
8 Replies2 Likes
I Have HSP! What foods/drinks trigger it?
Carrcunn1210 days ago
I’m 18 years old and got diagnosed with HSP a week ago. I was at the beach got this rash around my ankles and tiny dots on my legs, to me it...
Granulomatosis With Polyangiitis: Research Participants Wanted
John_Mills12 days ago
Do you have GPA and would you like to take part in Research?? Please follow this link for more details ...
1 Reply1 Like
How was you diagnosed? My bloods are normal , I don’t feel normal and the doctors seem baffled.
Lisalou1913 days agoPOPULAR
No matter what way I turn I keep hitting a brick wall! After waiting 7 months for an appointment I am now being referred for testing for UV...
Heart racing after infusion for Wegeners
Balderick15 days ago
I had my 4th infusion of Rituximab last week for Wegeners granulomatosis and earlier today felt pressure in my ears, like when you go up in...
After Three years I am been taken off my medication for my illness Anca vasculitis.
Fred2718 days ago
On June 2015 I only had days to live my kidneys where at 6%
I was send to hospital in Letterkenny Donegal IRELAND,
After blood tests in A&E I ...
8 Replies4 Likes
Rusty819 days ago
Good morning all is there anyone out there have any ideas what is going on with arm nurses don’t seem to know doctors haven’t come up with a...
10 Replies2 Likes
Sorry but more 'Scams'
AndrewT19 days ago
I had a Phone Call, this morning, about half past ten. Apparently I was going to 'lose', my Broad Band Connection, for around two weeks. How...
4 Replies1 Like
3years in pain
Afighter20 days ago
First was swelling feet and was told i have TB. Went to different tb test and all was negative.(20165 But still they gave medicine for it. I...
ANXIETY AND HAND TREMORS
Christophene4723 days ago
I recently began having a sense of inner shakiness and hand tremors, particularly between 4pm and 6pm. ANXIETY feeds off itself so it become...
Frustration1023 days ago
Is anyone out there?
We are beyond frustrated with this disease. My boyfriend has had it since 2013. Even though, before he started breaking ...
Difficulty getting diagnosed
Districtnurse6125 days ago
Hello. This is my first post since joining. I have only been ill for a few weeks, an illness that seems to have come out of the blue. But ma...
14 Replies1 Like
Hello from a new member
Irenejoya month ago
Hi all, just spent a horrendous week with a flare up of hives/urticaria . Been having attacks sine mariund March 2017. Just referred to a...
torreya month ago
I had fluid on my knee, had it drained. it came back a couple days later, went back to the same place had it drained again, then I went to...
MPo and PR3 ANCA testing
Inkyanna month ago
Can someone explain what a low mpo and pr3 means.. Ive read up on anca etc and what anca etc is and fully understand.. But all i needto know...
GETTING BETTER ALL THE TIME! TOO GOOD TO BE TRUE? VACULITIS, PMR/GCA??
Christophene47a month ago
Hi to All,
My diagnosis has never been entirely clear. Antibodies to PR3 at 1.6 in September, 2016; given diagnosis of C- ANCA vasculitis, bu...
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