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Vasculitis UK

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Dry mouth

Hi, do any of you suffer with extremely dry mouth, to the extent that your tongu...

Dental Problems with Behçet’s

Please take the time to read I know this is a long post but I really need help. ...

Dental treatment

Good morning ☀️😃 Finally the weather get better:)can anyone who is on biologic...
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GPA ear problems

I'm interested to know whether anyone else with GPA has had ear problems? I have...

Tuesday 16th February a further 1.7 million were assessed to be CEV and added to the shielded list.

On Tuesday 16th Feb 2021, a further 1.7 million people in England were assessed ...
John_MillsAdministrator

Updated Information - VUK Website - Clinically Extremely Vulnerable - Shielding

Updated information - #VasculitisUK website #Vasculitis #Shielding #ClinicallyEx...
John_MillsAdministrator

Reaction after Covid vaccine?

Hi, I had my first dose Covid vaccine a couple of weeks ago. I did have a reacti...

Rituximab and Abdominal Pain

Currently 3 months into my first Rituximab treatment and without being too paran...

Rituximab after Pfizer

Hi Everybody, hope you are all well! There has been a lot of good advice regardi...

What blood tests should I expect my GP to request?

Hi. I'm new. I've recently developed the classic symptoms of PMR, but only after...

Antibodies following vaccine for those on immunosuppressants?

I’m on Prednisolone and Azothiaprine. I’ve had the Oxford A-Z vaccine. Has anyon...

First time here - GP thinks I have Vasculitis

Hi, I'd appreciate your help, I'm a member of the Thyroid, Raynauds and Migraine...

Pfizer Vaccine after Rituximab

Hi everybody, had last Rituximab infusion 10 weeks ago and had Pfizer Vaccine ye...

Which kind vaccine would be preferable in an ideal world for people on Rituximab?

Hi, I hope everyone is well in these freezing temperature ! Could anyone explain...

Covid vaccine with active EGPA

Hi I have active EGPA and had Covid vaccine at 11am on Friday. By 5pm I was feve...

Newbie with possible vasculitis

*waves* this may be a long story, but I'll try to keep it as short as possible! ...

1st covid vaccine booked

Hi I am currently taking mycophenolate and prednisolone I was diagnosed in Novem...

Covid-19 vaccination booking

I may be telling you something you already know but you can book your vaccinatio...

CRP

Hi all, I just wondered if anyone has had a similar experience to this. I have M...

GPs CAN NOW OFFER COVID VACCINES TO PATIENTS WITH HISTORY OF ANAPHYLAXIS, NHS ENGLAND HAS SAID

ARTICLE FOUND ON PULSETODAY.CO.UK BY CONSTANZ PEARCE 05 JAN 2021

Muscle pain

Hi. I've developed upper arm uncle pain which is more noticeable when I reach ou...

Is Granulomatosis with polyangiitis (GPA) relapse after every 2 years??

I am suffering from Granulomatosis with polyangiitis (GPA) from past 7 years now...

Covid-19 vaccinations and Vasculitis

https://www.vasculitis.org.uk/news/covid-19-vaccinations-and-vasculitis
zoe69Administrator

ms diagnosis but now looks like it might be egpa

Since June i have had multiple steroid courses for asthma and many hospitalisat...

Vasculitis and COVID Vaccine

Hi everybody, we are now further down the road regarding vaccinations from my la...

Shielding

Hi I was diagnosed with cerebral vasculitis 14 years ago. At that time I became ...

Muscle weakness/shakes - vasculitis or steroids?

Seen contradictory things as to whether weakness and shakes are down to the vasc...

Having to start at 60 mg prednisone all over again, two years later.

I was dx PMR in 2/2019 with high suspicion of GCA. GCA Biopsy never completed ...

Hives!

Is anyone suffering an outbreak of hives that just won't go away? I've had sever...

Advice on new condition

Hi I'm new here. In November after 2 hospital admissions I was diagnosed with pu...
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