artists15 hours ago
Although l have had vasculitis for many years l am newly diagnosed with HURS . I have started to have very sudden pain in my feet, so sever...
Hand Foot and mouth disease
Webbyj3 days ago
Does anyone know if there are any problems with hand foot and mouth disease as a sufferer of MPO Vasculitis? My son has it (he works in scho...
Happy Christmas, Hope you All Remain Well
AndrewT4 days ago
Dear Everybody, yes even You...….
This is an, admittedly Slightly Early, HAPPY CHRISTMAS. I Hope that, you all, are 'Well' and remain so, ove...
2 Replies3 Likes
How IS Everyone?
AndrewT8 days ago
It seems, only Yesterday, that I was urging the Weather to Cool Down. Well it FINALLY has and, I caught a 'Nasty' Cold, my Joints a...
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Long time GPA patient
abc110 days ago
I am 61 years old male and have had GPA on and off since I was 26. Had lots of treatments, some nicer than others, and have weathered some l...
7 Replies13 Likes
tazmoe10 days ago
Does any one suffer with nerves ringing pins and neddles with vasculitis I suffer small and medium cell vasculitis with symptomatic ...
2 Replies1 Like
Signs of improving reading ability (living with cerebral vasculitis)
vivdunstan11 days ago
I've just blogged about improvements I'm currrently detecting in my ability to read print, which has been severely hampered since I fell ill...
5 Replies5 Likes
Berylholley11 days ago
Is this disease treatable with prednisolone?
citygirl123414 days ago
I saw my vasculitis consultant today who discovered that the tops of my hands and feet don't seem to be quite as sensitive as they pe...
8 Replies1 Like
New legions and what happens next.
Shelley4614 days ago
Hi all it's been a while since I posted on here my daughter had a stroke in 2014 aged 9 shortly after her stroke she had an MRI scan which s...
Withdrawal off pred
tazmoe14 days ago
Just reading a few posts this morning about people suffering sdide effects coming off pred
Question how long do class as a long time...
Assist215 days ago
No, just the marijuana.
Alcohol and Methotrexate
PaddyPop15 days agoPOPULAR
I was diagnosed with Takeyasu Arteritis in Nov 2017. Originally on a reducing dose of Prednislone but relapsed at 5 mgs and Methotrexate ...
Ear pain and vasculitis
Yes, vasculitis can cause ear problems in the outer ear and great pain. It can cause inner ear problems too. The immunosuppressant drugs y...
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EGPA/CSS with Thymoma
grindhaus17 days ago
One of my early CTs soon after diagnosis of EGPA/Churg-Strauss Syndrome was of the chest, to look at lungs, as I also had breathing ...
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Benefits of THC and CBD marijuana for GPA Vasculitis
Assist217 days ago
My wife has been using medical marijuana in THC and CBD form for about a year for maintenance with gpa vasculitis and it has controlled her ...
7 Replies2 Likes
Can ANCA INDUCED VASCULITIS CAUSE EAR PROBLEMS
brnhoff17 days ago
I was recently diagnosed as having this condition and today my left ear started to feel like it was closing up on the inside as it heated u...
Nasal polops with EGPA
Stevemarge17 days ago
Has anyone with EGPA developed nasal polyops. Was it painful to have them removed?
Local Vasculitis Support Group Meetings and Social Gatherings
John_Mills19 days ago
For those who have an interest, this page on the VUK website gives feedback plus photos of recent Local Vasculitis Support meetings and soci...
Vasculitis U.K. has recently been granted Chatitable Incorporated Organisation Status by the Charity Commission.
You can read more about this if you follow this link
5 Replies1 Like
brnhoff21 days ago
i had an mri of brain and came back abnormal dr said my brain wasnt getting enough o2 to meet metabolic demand and said its acute brain ishc...
Is nucala approved as an egpa treatment in Europe
Cathywp22 days ago
I am wondering if nucala is approved as a treatment for egpa in the UK? It was approved in dec 2017 in the United States, but in Canada my ...
Best examples of friendship we have experienced...
Samisntverywell23 days ago
Hi all, I'm following on from cathywp's thread in which many people have posted experiences of friends and friendships that haven't gone wel...
7 Replies1 Like
Alendronic Acid Can the 'medication = side effects= medication for side effects' spiral be avoided?
Hildalew24 days ago
I was diagnosed with polymyalgia rheumatica around 6 weeks ago having suffered from the condition for around 2 excruciating months. Prescr...
Is infusion therapy necessary to achieve remission in egpa
Cathywpa month agoPOPULAR
I am wondering about achieving remission. I do not think that I have ever actually been in remission. My new rhumatologist/vasculitis spec...
25 Replies1 Like
Armistice Day 100 Years
AndrewTa month ago
I have been 'Thinking About/ Considering Armistice Day', 100 years on....I actually Finished this this morning. It's actually printed, in RE...
5 Replies6 Likes
Coincidence or what? 73 year old male with GPA.
lfu2a month ago
I had my flu jab yesterday (Thursday). I have them every year without any problems. This year seemed to be the same. However, my sleep was i...
Help - soo much sinus pain with a cold
Puttystuffa month ago
Hi everyone, hubby has GPA just affecting his sinuses. He’s picked up a cold this week and we are due to fly on holiday today but he’s soo b...
4 Replies1 Like
Lowering Prednisolone Levels
Dear All I guess,
There has recently been, a lot of, 'Talk' about Lowering Prednisolone levels, which I have read with interest. My level is ...
15 Replies7 Likes
Next Merseyside Cheshire & N Wales VSG Meeting Thursday 15/11 at 1pm
SusanCha month ago
Just a final reminder for our meeting next week at the Linda McCartney Education Centre at the Royal Liverpool Hospital.
Dr Janice Harper, Va...
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