Runny swollen nose
tazmoea day ago
Has anyone out there with vasculitis suffer from a runny swollen nose whilst under a flare, just woke with my nostrils red as a beetroot ...
Get a second opinion? Or not. In US. Cleveland Vascular Center or Mayo.
Jessileigh6 days ago
Has anyone been to the Cleveland Ohio Vascular Center? Its not too far from me. Also the Mayo Clinic in Rochester Minnesota might be helpful...
Stay positive and you can get though it
phil37 days ago
In 1999 I came down with Cerebral Vasculitis. Can’t remember the level of the medications that I originally was on but it was a high dose of...
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Coping Strategies for Waiting to be Seen
citygirl123411 days ago
I was diagnosed with granulomatosis with polyangiitis (GPA) last month after 6 months of testing / vasculitis being suspected and am ...
Has anyone recovered from adrenal deficiency?
Katie1811 days ago
I have come off prednisolone gradually on a couple of occasions. The last time I had a synachen test and was put on a small dose of hydra co...
PREDNISONE TAPER AND DEPRESSION AND ANXIETY
Christophene4711 days ago
Two years ago this month, after 2 viral episodes, I developed new and different upper body pain which became intolerable. Saw a rheumatologi...
Transition from Cyclophosphamide to Mycophenolate
nblack10112 days ago
I am due to complete my 10th and final cycle of cyclophosphamide in a few weeks. My rheumatologist proposes to then start me on mycoph...
vivavida13 days ago
I’m hoping someone can advise me! My prevailing symptoms are great tiredness and joint pain- Does anyone know of any other p...
metalheron14 days ago
has anyone with vasculitis had severe brain fog?
SsMum14 days ago
Anyone in the Huddersfield area ? Can we join forces to raise awareness and money?
New Norfolk Vasculitis Support Group Meeting in October
Suzym2u14 days ago
For more details or to book a place please follow this link and contact Mark vasculitis.org.uk/events/no...
Vaccinations and Vasculitis.... Has anyone had a MMR that caused a flare up?
suiterdd14 days ago
I started a new job in February that required me to get a MMR vaccination series of two shots a month apart. Before the second shot I got a ...
Vitamin D, Vitamin B and folic acid...…. Is this common to have deficiencies in these?
I have only been diagnosed with vitamin deficiencies from my blood tests. Every other test has been negative so far, ALL of them. But I noti...
Advice on travel to US
Main123415 days ago
my husband (who was diagnosed with GPA last year and is now in drug induced remission ) and I have booked to travel to Austin towards the en...
North East Support Group - next meeting
Alpsy15 days ago
We are delighted to inform you that we now have the agenda for the Vasculitis Support Group Meeting which is taking place at th...
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Anyone declined rituximab with MPA and pulmonary hemorrhage
Becca8115 days ago
I got diagnosed with MPA via lung biopsy after having two pulmonary hemorrhages within a few months of each other (lsst time in Marc...
Well Being Workshop in Nottingham
John_Mills17 days ago
Are you living with SLE, Vasculitis or Scleroderma?
The NHS Treatment Centre Team would like to invite you to a well-being workshop at Circle...
2 Replies1 Like
Pennycat1817 days ago
Recently diagnosed after a rapid decline in kidney function ...keen to learn more as my treatment continues....it's difficult, as so rare a ...
13 Replies1 Like
North West Support Group Meeting
Jann21 days ago
The wet and cloudy August Bank holiday is behind us for 2018 but there is still one event to look forward to attending.
Catch up with fami...
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Lincolnshire Support Group
BronteM22 days ago
If you would like to meet other people who have Vasculitis, or a similar autoimmune disease, do come to our meeting at the Kings Head in Nav...
John19625 days ago
Hi everyone is there any groups near Newcastle upon Tyne , thanks
East Midlands Vasculitis Support Meeting on Sunday
Suzym2u25 days ago
We have just 4 places left for The EMVSG meeting if anyone is interested in going.
There is no charge for attending. Speakers are a Nephrolog...
Reversible Cerebral Vasoconstriction syndrome?
GlenAlvaa month ago
Hi, I am new here and sending this post on behalf of my neice who is currently in Hospital with severe headaches. She is 37 years old. They ...
Vasculiitis specialist consultant
Heart85a month ago
Sadly I find myself in the situation where my father has been diagnosed with lung cancer however also very quickly developed vasculitis w...
North West Support Meeting
Janna month ago
Come and meet others with same or similar conditions at the North West Support Group meeting.
Sunday September 9 between 2.00 - 4.00 pm
COMING OFF PREDNISOLONE
tommi47a month agoPOPULAR
I was diagnosed with vasculitis just over a year ago.
I reduced pred very quickly down to 11mg and then by 1mg a month as my consulta...
Joan78a month ago
I am looking for any help or advice thst my life will not be like this for ever. I am bed bound at 40 my left foot is paralysed and i am hav...
12 Replies1 Like
lou1972a month ago
I know this is going to come across a weird question. I feel I have to ask to settle this niggling in my head.
I have Cutaneous Vasculitis. M...
Can medical marijuana help me
Anethaa month ago
Hi am Anetha (24) and I have been told to have takayasu arteritis type 5 and I had two angio and 4 stents and a ballon procedures but it nev...
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