Wizzi17 hours ago
Hi, my son has a sistemic vasculiti probably Mpa and he's taking prednisone and celltech (mmf) but he has high vale of cholesterol and trygl...
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Anyone ever experienced this?
Deedraha day ago
So, for some reason, when my oxygen level is checked on my finger, it reads very low...in the 80's. When it is read on my forehead, it reads...
Long Term Treatment
AndrewTa day ago
Believe it, or not, and it does amaze me.....It's been Twenty Years, since I Collapsed with Vasculitis. I was given or, more correctly, my M...
2 Replies2 Likes
Churg Strauss Vasculitis
Assiea day ago
I have had the above for 11years and would like to hear from others how they have managed this condition as it is extremely rar...
Low dose naltrexone..
judyann2 days ago
Hi everyone.. Went to the doctor yesterday and put me back on prednisone and wants me to try low dose naltrexone.. She said that will repla...
Dreaming and the Onset of Chronic Illness: Exploring and Developing the Concept of the Dream as a Threat Monitoring Mechanism
charlieab2 days ago
Just in case anyone is on researchgate and is interested, here is a report I recently wrote about teh onset of my autoimmune conditions. Tho...
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Has anyone on the Vas site had a vertical fracture of Lumbar 4?
Sima19523 days ago
Some months ago now, l wrote on the Vas' HU site about a compression fracture - via a fall - in my lower spine; this happened in August 2016...
CHARLIE493 days ago
I've been having a Rituximab infusion every three months (used to be two every six months) and went today for the latest one. Am fee...
4 Replies1 Like
New here - Ankylosing Spondilitis sufferer (although controlled), + Vasculitis, Possible Polyarteritis Nodosa. On Pred, Sulfasal & Dapsone
cclarke5 days ago
Just looking to share info/advice and experiences with anyone else out there with these sort of ailments
karenhath0097 days ago
Hello everyone, just me wanting advice about Dad again please. Dad was diagnosed with ANCA+ MPA pretty much a year ago. As far as I'm awar...
What were your initial symptoms?
Brenviking8 days ago
Before I start I have not been diagnosed with anything other than asthma. However.....
Two years ago I was a fit 43 year old - running, cycli...
9 Replies1 Like
Do you have positive or negative experiences of taking prednisolone?
Suzym2u8 days ago
Do you have positive or negative experiences of taking prednisolone? We are looking for brief accounts of people’s encounters with predniso...
Important Patient Survey
Please can those of you who have been diagnosed with vasculitis, who have not already completed this survey, please take a moment to complet...
2 Replies1 Like
West Country Summer BBQ
DevonLottie8 days ago
Hi everyone, this year's 'come rain or shine' West Country Vasculitis Support Group Summer BBQ will be held on Sunday 20th August, 1.00 - a...
Primary or Secondary? I'm confused..
judyann8 days ago
I was wondering how to know the difference between primary and secondary vasculitis. I am anca negative and was checked twice. How can the...
New Blue veins
LauraMk3010 days ago
Hey all, hope your enjoying the sunshine 🔥💛
I've had some new symptoms over the weekend & this morning I've noticed that my right foot & a...
5 Replies1 Like
Yeprat16 days ago
With reference to John Mills's article in the AGM magazine regarding how poor Wales NHS actually were in treating Vasculitis patients...
Surprise in the post today from France
Suzym2u17 days ago
Surprise for John Mills in the post today - France Vasculitis June Newsletter dropped on our doormat this morning and John was featured in t...
5 Replies11 Likes
Wound update again 😱
LauraMk3017 days ago
Well it's been a few days since using the gel dressing. My partner cleaned & redressed it this morning & he retched with the...
Can't get a diagnosis
Johnbrooks197318 days ago
Hi everyone I've not been dx with vasculitis but everything is pointing to it apart from my crp and esr level. I was in A&E last Saturday an...
Recent Diagnosis of CNS Vasculitis (10 year old)
Lolabola20 days ago
After a recent trip to A&E my 10 year old daughter has recently been diagnosed with CNS Vasculitis. My question is what are usually the n...
Rare Autoimmune Rheumatic Diseases Patient Survey
Suzym2u20 days ago
The Rare Autoimmune Rheumatic Diseases Patient Survey
This survey has been developed on behalf of the Rare Autoimmune Rheumatic Diseases Alli...
7 Replies3 Likes
Google Analytics for the Vasculitis UK website - June 3rd - July 4th 2017
Suzym2u21 days ago
Google Analytics for the VUK website vasculitis.org.uk June 3rd - July 4th
55,200 pages viewed
2 mins average viewing time
LauraMk3022 days ago
I've had my stitches out, they've not closed the punch holes so it was pointless having them in. I now have two deeper & wider hole...
5 Replies3 Likes
Return of vasculitis- a few months after chemo
NashaA22 days ago
My boyfriend finished chemo in January, and is on two years of further drugs. We believed he was in remission as good blood test resul...
Jann22 days ago
What to talk to someone who knows what you are going through then join Anita and Jann for coffee on Saturday July 8th anytime between 11am a...
LauraMk3023 days ago
I've received a copy of the letter from my specialist to my GP
I just wanna cry ! Don't know what to think or feel, I've fel...
8 Replies1 Like
talos24 days ago
I have been diagnosed with cerebral vasculitis and I have a massive amount of symptoms, just too many to mention.
On my first attack of...
How it can feel getting several autoimmune disorders
charlieab24 days ago
A: I called at your old place and it was all boarded up. I thought you’d be there forever.
B: Me too.
A: So where are you now?
B: In hell.
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LauraMk3024 days ago
This is what my wound looked like when I took the dressing Off yesterday late evening. I smelt something off, looked around the hou...
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