When there is throat or ear involvement with MPA, what is that like? I have pain in both but not like flu.
PattyMPA7 hours ago
MPA with throat or ear pain.
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Cathywp21 hours ago
After further reading I have more questions that perhaps the group can help to clarify....
Are ANCA positive and ANCA negative egpa both form...
AndrewTa day ago
I want to 'Pick' everyone's brains here. I was told, when I was first diagnosed (Non-Specific ANCA Vasculitis-Several 'Overlapping' Strains)...
5 Replies1 Like
Atypical ANCA positive
lc242 days ago
So I have found out that my test was atypical ANCA positive. The MPO and PR3 ran with it were all low and within range. It says no known cli...
Rituxan Infusions- Afraid
Alliand3 days ago
Rituxan Infusions. Starting Rituxan infusions along with Azanthopine was recommended by my rheumatologist several months ago; I have as yet ...
Wengle824 days ago
Has anyone had any issues with taking Pred? I’ve been out cycling this morning to try and keep ‘normal’ and when I got back my heart...
Just diagnosed with GPA and trying to keep positive
Wengle828 days agoPOPULAR
Hi all, just wanted to post about my recent illness and final diagnosis and to say hi really.
I’ve been suffering with sinus issues since Ea...
20 Replies3 Likes
In need of some advice! ANCA positive and sinus infections? Could it possibly be vasculitis?
lc248 days ago
In need of some advice again, been really unwell for a long time now, I have low B12, peripheral neuropathy (I have had 5 loading doses of B...
8 Replies1 Like
Feeling of walking on bubble pack
Bernrun8 days ago
Has anyone got good pastures ?
jolittle938 days ago
Hi ive been diagonised with vasculitis with positive anti gbm last july. I have veen on pred starting on 60mg and now down to 5mg, had 10 pl...
Edgenius9 days ago
This is my first time here and just trying to read all the post and responses so I can learn something each and everyone. My boyfriend was d...
Is there a link between surgical mesh and autoimmune conditions?
macrstq9 days ago
Hi. I developed Wegener's Granulomatosis or GPA 3 yrs after being treated with vaginal mesh implants for a prolapsed womb. I have read that ...
2 Replies1 Like
Silly, but harmless, joke
AndrewT9 days ago
Where do you find a spider that doesn't have any legs?
Simple, wherever you left it......
2 Replies3 Likes
arcr9 days ago
Just would like to hear about your experience with azathioprine. i developed more sheathing despite 12.5 mg Prednisone. Also interested in...
Are you artistic and would like to support Vasculitis UK and Arthritis Research UK ??
Suzym2u10 days ago
Please follow this link and read Glynnis’s Story
Madamec110 days ago
Has anyone found a way of reducing Eosophil levels without Predisolone. Looking for a non drug alternative
New and in limbo
Boudica114 days ago
Hi, I just been diagnosed with urticarial vasculitis after a biopsy and am now waiting for more blood test results. Feeling as if I'm in lim...
Doctor says egpa does not affect your brain
Cathywp16 days ago
Ok so now I'm back to where I was a year ago. Today was my third visit to the rheumatologist and I told her my symptoms seem to be returnin...
19 Replies2 Likes
In Memory of Prof Paul Bacon - an early pioneer for Vasculitus
Suzym2u16 days ago
In Memory of Prof Paul Bacon , an early pioneer for Vasculitis , please take a moment to read about Prof Bacon who did so much not only to s...
2 Replies4 Likes
Proof of vasculitis
Cathywp17 days ago
This is probably a silly question but ....
How would I know if I have vasculitis if my ANCA panel always is negative?
Is there anything other ...
7 Replies2 Likes
Main123417 days ago
Hi sorry another question.
My husband has GPA and is reducing his prednisolone to 5mgs this week from 7.5 mgs. He is in drug induced remissi...
10 Replies1 Like
Here we go again!
AndrewT17 days ago
I have, yet another, 'Review' of my Benefit Claim. Last time, about fifteen (maybe eighteen) months ago it was declined. I took it to their ...
Iatrogenic Addison’s Disease
BronteM17 days ago
After following all the advice on HU about reducing my prednisone dose very slowly, I got stuck at 4mg a day. A synacthen test then showed t...
Recently diagnosed with ANCA Associated Vascultis called Microscopic Polyangiitis, and seeking understanding
PattyMPA17 days ago
Hi all, I am new to this site and a a Washington State, U.S. woman recently diagnosed with an ANCA Associated Vasculitis called MPA.
I was j...
Cathywp18 days agoPOPULAR
So I have asked both my GP and my rheumatologist if my crazy heat surges are related to egpa and I just get the blank stare. Apparently the...
Main123419 days ago
Hi my husband is in drug reduced remission. Diagnosed with GPA in August 17 usual treatment given, now on 7.5 msg prednisolone and aza . Pre...
Tattylashes20 days agoPOPULAR
My 31 year old son is suffering with horrendous pain in both legs in his calves, he has struggled on with this for over twelve months but no...
Retire360320 days ago
I was diagnosed with anca associated vasculitis MPA in May 2017. I was treated with 6 sessions of cyclophosphamide and heavy doses of predni...
Not yet fully diagnosed and want to make sure i ask the right questions to my consultant
kc4t20 days ago
After 3 years or random flares of rashes on my limbs sometimes associated with joint pains and or chest infections i feel im getting so...
My story so far....
Ccwalker21 days ago
I was diagnosed with Normocomplementaric Urticarial Vasculitis in November '17 after 6 months of going backwards and forwards to my GP who ...
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