Is infusion therapy necessary to achieve remission in egpa
Cathywp3 days ago
I am wondering about achieving remission. I do not think that I have ever actually been in remission. My new rhumatologist/vasculitis spec...
16 Replies1 Like
Armistice Day 100 Years
AndrewT4 days ago
I have been 'Thinking About/ Considering Armistice Day', 100 years on....I actually Finished this this morning. It's actually printed, in RE...
5 Replies5 Likes
Coincidence or what? 73 year old male with GPA.
lfu26 days ago
I had my flu jab yesterday (Thursday). I have them every year without any problems. This year seemed to be the same. However, my sleep was i...
Help - soo much sinus pain with a cold
Puttystuff6 days ago
Hi everyone, hubby has GPA just affecting his sinuses. He’s picked up a cold this week and we are due to fly on holiday today but he’s soo b...
Lowering Prednisolone Levels
AndrewT7 days ago
Dear All I guess,
There has recently been, a lot of, 'Talk' about Lowering Prednisolone levels, which I have read with interest. My level is ...
12 Replies5 Likes
Next Merseyside Cheshire & N Wales VSG Meeting Thursday 15/11 at 1pm
SusanCh7 days ago
Just a final reminder for our meeting next week at the Linda McCartney Education Centre at the Royal Liverpool Hospital.
Dr Janice Harper, Va...
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Mrsszyb7 days ago
Hope you are all feeling well!! I was wondering if any of you have had Botox or Juvederm?
I have been thinking about this for a wh...
It's hard to stay upbeat when you no longer get invited to the party
Cathywp8 days ago
Ok I need to vent. None of my friends know about this site so they won't know I'm complaining about them. This just sucks. I really have ...
15 Replies3 Likes
Improving PatientMPower app
Cannon-Power8 days ago
I am the past Chair of Vasculitis Ireland Awareness - a support group for those affected by Vasculitis in the island of Ireland. As you know...
10263710 days ago
I need advice please on having the pneumonia injection 3 month after Rituximab
I was diagnosed with GPA 5 years ago I had the pneumonia jab...
Berylholley11 days ago
Can this be longstanding.
MAC1212 days ago
There is plenty of advice about travel insurance on VUK site, but I wondered if anyone had recently found companies who provide good service...
Where is 'Poems Galore'?
AndrewT12 days ago
I used to, fairly often, 'Talk' to poemsgalore on these pages. (S)he seems to have Disappeared- was it Something I, or any of us, Said?
Central Retinal Arterial Occlusion
Linmur195713 days ago
I woke up Friday morning and the vision in my right eye had gone. I have been seeing Consultants in Vascular Clinic, Rheumatology Clinic, De...
11 Replies1 Like
CHEZ9813 days ago
my wife has a boil like lump the size of a 50 pence piece on her outer left arm just above bicep.. red.. sore.. no white head & bin there fo...
Dougiearchieizzy13 days ago
Hi, I am a single woman of 47 living with a 2017 diagnosis of GPA. I would love to hear from anyone who is suffering from the same condition...
13 Replies1 Like
Hull Support Group Meeting 18th November 2018
RichardE16 days ago
We’ve not been over to East Yorkshire for a while, so we’ve scheduled another, rather last minute, meeting in Hull for the 18th ...
Too much aziathioprine in system
Katie1818 days ago
Hi I recently saw my rheumatology team at Manchester infirmary and after a blood test they have told me I have too much aziathioprine in my...
The story so far lol
Suzycat19 days ago
Hi all, I eventually got a phone call from my consultant, yesterday. He said my esr was raised but not too much. He is referring me to an e...
A 'TIME-LY Reminder.
AndrewT19 days ago
Don't forget to put your Clocks Back, an hour, tonight. (UK only)
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Mgtrob19 days ago
Is it advisable or beneficial to have this vaccine if you have had shingles?
The GODs ANCA &ANA
Boudica119 days ago
I have a question. Why do doctors bow to either of these two? Without one or the other it's almost impossible to get a diagnosis even though...
What does egpa feel like and how so I know if it's a Flair?
Cathywp20 days ago
Because I have been told so many things by doctors who really do not know about egpa I have become super confused. Now my new rhumatologist...
jackrussell22 days ago
I have just received a letter from my surgery informing me that I am now eligible to have a one-off shingles vaccination , has anyone had th...
Sever attack today from UV😔
Ledi23 days ago
Hi everyone, I hope you are all doing well. I have tried to read as many posts as possible and I’m very saddened to see so many of you suffe...
For those with an interest the Vasculitis U.K. Autumn Newsletter is now available online
John_Mills24 days ago
Via the Vasculitis U.K. website .. just follow this link. vasculitis.org.uk/news/autu...
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Dealing with an invisible and fluctuating illness
vivdunstan25 days ago
I just blogged about this, which others here may be able to relate to. I've been living with a very neurological form of vasculitis since 19...
8 Replies11 Likes
Just as a matter of interest - monitering protocols in North East UK
Suzycata month ago
My consultant informed me recently, after speaking to the vasculitis team at Freeman Road Hospital, Newcastle, that it is now recommended pr...
Received a Call for PET/CT Scan
Vo321a month ago
I received a call this afternoon from the hospital, in which I was told my consultant has scheduled a PET/CT scan for next Tuesday morning. ...
9 Replies1 Like
More problems with prednisolone tapering
Hi folks, I was diagnosed with aortitis in dec 2015 and have been on prednisolone since then. I have tried tapering a couple of times last y...
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