Mostly dizzy, waiting for a diagnosis, and looking for answers
Canygirl6127 minutes ago
I don’t know where or how to begin to describe my journey, because after reading the many posts here, seems I may have been battling more th...
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CATBURNETTa day ago
Hi, I am just new to the site and I am desperate for some help. My dad is suffering from Granulomatosis with polyangiitis (GPA). He got diag...
4 Replies1 Like
Hi, Wendy 49 yrs old...
wends19682 days ago
Few months ago I was diagnosed with PMR, and only just realised this has anything to do with vasculitis. All I was told was it was a type o...
Advice re azathioprine and alcohol please
Main12343 days ago
Looking for experiences and research/advice on alcohol and azathioprine please. Partner just completed 6 cycles of cyclophosphamide havi...
8 Replies1 Like
Diagnosed with Urticarial Vasculitis
Kareyc4 days ago
Hi I am new to the board. I have been diagnosed with UV last month. Started on a high dose of prednisone. I don’t know what to expect. I am ...
3 Replies1 Like
Diagnosis for RF positive + anti-CCP positive + ANCA positive + Positive MPO
Lisam195 days ago
I wondered if anyone here had RF positive + anti-CCP positive + ANCA positive + Positive MPO .
I am struggling to get a formal diagnosis...
Mycophenolate and remission
friz426 days ago
I have recently been prescribed Mycophenolate as part of my treatment. I read that with others drugs are used to induce remission. I have no...
khaulah7 days ago
since i am taking sleeping pills I have been facing painful breathing and nose bleeding.. suggest me something.. i can't consult my parents
Prognosis MPA Vasculitis
Webbyj7 days ago
Hi. I am new here. I was diagnosed in June 2017. I was wondering what is the life expectancy for MPA ( microscopic polyangitis). I keep seei...
Balderick7 days ago
I got a letter from Dr Clarke at Southmead saying that my visit to Addenbrookes came to the conclusion that, after a PET scan, I will now ha...
Congratulations for Gareth
John_Mills8 days ago
We just wanted to say Congratulations to one of Vasculitis UK’s trustees, Gareth Garner, on gaining a 1st degree in Biomedicine at Chester U...
6 Replies14 Likes
Rheumatoid Vasculitis: serious disease, difficult treatment.
cyrano11119 days ago
My first post here.
I've been battling Rheum. Arthritis for 50 years, was diagnosed with Rheum. Vasculitis 30 years ago, went into remission...
6 Replies2 Likes
Just a quick reminder for the North East Vsculitis Support Meeting today-including talks about Large Vessel Vasculitis and ANCA vasculitis
John_Mills10 days ago
Please follow this link for more details vasculitis.org.uk/events/ne...
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Spinal Tap Findings..
judyann12 days ago
Hi all.. I finally had my spinal tap.. My neuro had to rule out MS to be sure of vasculitis. I am anca neg, so it's been a tough time. I ...
Welcome New Members
AndrewT13 days ago
I have noticed a number of 'Posts', from New People, recently. I have contacted, one or two, but think that we should give all these, probab...
7 Replies4 Likes
fefevian14 days ago
Does anyone use azatioprina??? I’ve vasculits and im using that with predsolona when will i stop taking predsolona? Sorry about the ebglish ...
Billsbits14 days ago
Hi I am new here, can anyone throw any light on how often blood tests should be taken when on Prednisolone? , many thanks
Hi can anybody tell me how often blood tests should be taken when on Prednisolone? Thanks.
Numb chin and bottom lip
lornasalisbury16 days ago
Evening all. I'm waiting for a hospital appointment to have 4 teeth removed. One tooth bottom right is quite severe and whilst obviously pai...
Change of diagnosis
maisie517 days ago
I noticed on my latest consultant's report that my diagnosis has changed from GCA to systemic vasculitis. Can someone explain what systemic ...
Any night owls out there?
lou197217 days ago
I would like to know if anyone else who has Cutaneous Vasculitis lays awake at night or has to get up becuase of discomfort with itching/ras...
katuf17 days ago
I had an unruptured brain aneurysm clipped 5 years ago. Things went well till 2 years ago. I have brain inflammation at the gauzed ...
immunoglobulin replacement therapy
Mooka18 days ago
I have an immunology appointment on Monday with a view to me starting immunoglobulin replacement treatment as I keep getting chest and sinus...
16 Replies3 Likes
In Early Stages of Testing for Wegeners
Dewitt2918 days ago
So, I recently had a sinus infection which is only the second one I had in my life. Im 59. Sinus infection cleared completely. I seem to h...
5 Replies1 Like
Postgraduate Study and Chronic Pain Study
HM26618 days ago
For those of you who are postgraduate students, you might be interested in a survey regarding how chronic pain affects the postgraduate stud...
Probably NOT quite relevant here but.......
AndrewT19 days ago
This ISN'T really related here but.... I received a phone call, about twenty minutes ago, which I missed (in the loo, as always!). When I ca...
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Dry eyes and mouth
Keyes19 days agoPOPULAR
As many of you know I am part of the VUK Helpline team and we definitely have trends around the type of calls we receive.
I have noticed an ...
79 Replies7 Likes
Prednisone & Belly fat & Bloat
Pepper115819 days ago
Hi I’m new here...I have Atypical anti-GBM disease I have been on 80mg of Prednisone for the last 4 months . I too have the extremely big & ...
20 years since cerebral vasculitis diagnosis
vivdunstan20 days ago
Just blogged this. I've been ill for 23 years, but always remember 5th November as "my" anniversary, because that was the day I had the huge...
3 Replies3 Likes
Flu vaccine and disease progression
Yesterday I had my first flu vaccine in nearly a decade. Woot! Much better than keeping getting flu, and now I'm finally allowed again by th...
12 Replies1 Like
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