Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for April 2015

This Atos joke

Been on dla 13 years.high rate mobility indefinitely. .got me in in Dec last year.gave me nil points.they told lies.yet when I went tribunal. Judge brought...

Been on dla 13 years.high rate mobility indefinitely. .got me in in Dec last ye...

john45gig

•10 years ago

3 Replies

British Society of Rheumatology Annual Conference 2015.

This is a photo of myself, Danni, Mike and John at the British Society of Rheumatology Conference in Manchester today. About 2000 doctors and specialist nurses...

This is a photo of myself, Danni, Mike and John at the British Society of Rheuma...

Suzym2u

Moderator•10 years ago

5 Replies

Oral cycophosimite

I have had infusions every three months for two years. Not been good over the last in infusion had a shock. It has now been decided to try daily oral...

I have had infusions every three months for two years. Not been good over the l...

Louzoejf29

•10 years ago

7 Replies

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Cyclophosphamide side effects

Had my first Cyclophosphamide infusion last week, felt fine on the day but was so sick the following day that I couldn't even keep a sip of water down. Since...

Had my first Cyclophosphamide infusion last week, felt fine on the day but was s...

woollysox

•10 years ago

17 Replies

BSR Annual Conference today

I learnt today, at the British Society of Rheumatology Annual Conference, in Manchester, that 10 years ago at the same BSR conference, there were only about 8...

I learnt today, at the British Society of Rheumatology Annual Conference, in Man...

Suzym2u

Moderator•10 years ago

10 Replies

Giant Cell Arteritis - Take part in Clinical Research

Have you been diagnosed with GCA? Are you happy to try a new treatment? Are you happy to be involved in a clinical study? Please follow this link for more...

Have you been diagnosed with GCA? Are you happy to try a new treatment? Are yo...

Suzym2u

Moderator•10 years ago

Be the first to reply

Vasculitis and Trying to conceive

Hi, I am new to this but I have been trying to control my vasculitis for about 2 years now. I have small vessel Vasculitis where I get the rash and also my...

Hi, I am new to this but I have been trying to control my vasculitis for about 2...

Phpetty86

•10 years ago

13 Replies

Vasculitis Patient Symposium April 18th 2015

In the short gap between the Vasculitis 2015 conference and the British Society of Rheumatology 2015 conference, I thought I would report formally on the...

In the short gap between the Vasculitis 2015 conference and the British Society...

John_Mills

Volunteer•10 years ago

3 Replies

Yorkshire Vasculitis Support Group Lunch

Just back from our busy social meeting today at the Balloon Tree Cafe in Gate Helmsley just outside York. Great to meet old friends and some newly diagnosed...

Just back from our busy social meeting today at the Balloon Tree Cafe in Gate He...

RichardE

Volunteer•10 years ago

2 Replies

Mofetil nausea gone with curcumin

When the GFR is <40 patients taking MPA(Mychophenolic Acid) Mofetil at the therapeutic doses end up with GI intolerance due to excessive toxicity of...

When the GFR is <40 patients taking MPA(Mychophenolic Acid) Mofetil at the thera...

mrtmeo

•10 years ago

6 Replies

North east specialist Wegeners/GPA??

I feel like I keep bobbing in and out of this forum looking for answers to health problems for myself, my sister and my son who have very similar symptoms at...

I feel like I keep bobbing in and out of this forum looking for answers to healt...

Tinkytink

•10 years ago

6 Replies

Coffee morning in plymouth

Just a quick reminder that members of the West Country vasculitis support group will be at the Boathouse on Plymouth quay next Wednesday 29 April from 11.00am....

Just a quick reminder that members of the West Country vasculitis support group ...

DevonLottie

•10 years ago

2 Replies

New member

I am looking forward to being a member of this group hoping to be able to help others also gain information for myself. I have churg Strauss syndrome/...

I am looking forward to being a member of this group hoping to be able to help o...

Fennahj7115

•10 years ago

3 Replies

DWP

Just heard today I have lost the mobility part of PIPs. I am unable to go out on my own due to breathlessness and exhaustion, because I have blind spots in the...

Just heard today I have lost the mobility part of PIPs. I am unable to go out on...

valwood

•10 years ago

18 Replies

Biopsy

Hi. I may be having a biopsy tomorrow to determine what is causing ear and nose cartilage to break down - how is the procedure performed and what type of...

Hi. I may be having a biopsy tomorrow to determine what is causing ear and nose ...

Pipp

•10 years ago

5 Replies

International Vasculitis Medical Conference 2015

It is the Vasculitis 2015 Medical Conference starting today. Over 600 doctors have registered. The programme is extremely busy and varied. John is speaking...

It is the Vasculitis 2015 Medical Conference starting today. Over 600 doctors ha...

Suzym2u

Moderator•10 years ago

12 Replies

Vasculitis Patient Symposium 2015

Just wanted to say what an amazing day we had yesterday at the first Vasculitis Patient Symposium, to run along side the Vasculitis 2015 Medical conference....

Just wanted to say what an amazing day we had yesterday at the first Vasculitis ...

Suzym2u

Moderator•10 years ago

11 Replies

? cutaneous polyarteritis nodosa

Hi I would really like some advice about my condition. I had a biopsy last summer on my lower legs which were swollen and ulcerated. The biopsy showed I have a...

Hi I would really like some advice about my condition. I had a biopsy last summe...

johanna-68

•10 years ago

15 Replies

Painful feet

Hi does anyone with WG have painful feet? Mine are very painful and I have no idea what to do to relieve the pain. Thank you

Hi does anyone with WG have painful feet? Mine are very painful and I have no i...

phayes14

•10 years ago

13 Replies

Mycophenolate

Hi I was diagnosed with Wegeners in November 2010 after 4 years of illness and countless visits to my GP who had no idea what was wrong with me. Thankfully,...

Hi I was diagnosed with Wegeners in November 2010 after 4 years of illness and c...

phayes14

•10 years ago

5 Replies

c ANCA positive post GF?

Hi I'm a real newbie on this but trying to get some awareness / thoughts on a positive test result for my daughter. She's just turned 18 and early march had...

Hi I'm a real newbie on this but trying to get some awareness / thoughts on a po...

Pebblesnz

•10 years ago

20 Replies

Can somebody help

Hi everyone I am new and also very worried about my life I have being going to the doctor after which they said I have leukocytoclastic vasculitis, which she...

Hi everyone I am new and also very worried about my life I have being going to t...

narz

•10 years ago

10 Replies

Giant cell arteritis

I have Giant cell arteritis and I am taking steroids to protect me from losing my sight which is one of the worries I have with this disease . I recently went...

I have Giant cell arteritis and I am taking steroids to protect me from losing m...

Classicmichael

•10 years ago

10 Replies

RUDY STUDY - Rare diseases of Joint, bone and blood vessels

If you have been diagnosed with ‪Vasculitis‬ and are a ‪‎patient‬ here England (UK) you may want to take part in this ‪‎rare disease‬ study headed up by the...

If you have been diagnosed with ‪Vasculitis‬ and are a ‪‎patient‬ here England (...

Suzym2u

Moderator•10 years ago

Be the first to reply

Numb nose

I had a numb nose for about three mouths been to doctors but he did not know what it was did have a chest infection and voise box infection wondor if that was...

I had a numb nose for about three mouths been to doctors but he did not know wha...

07975743225

•10 years ago

3 Replies

Update for the Vasculitis Patient Symposium April 18th 2015

Vasculitis Patient Symposium 2015 Speakers: Dr Neil Basu (Aberdeen) Dr Nina Brown (Manchester) Dr Maria...

Vasculitis Patient Symposium 2015 Speakers: Dr Neil Basu (Aberdeen) ...

Suzym2u

Moderator•10 years ago

2 Replies

GPA and statins

I have GPA which affected both my lungs and kidneys but is now in remission and my lungs are fine and kidneys have recovered most of their normal function. My...

I have GPA which affected both my lungs and kidneys but is now in remission and...

MAC12

•10 years ago

6 Replies

Updated page on the VUK website for Central Nervous System Vasculitis

Updated page on the Vasculitis UK website for Central Nervous System Vasculitis also known as Cerebral Vasculitis please follow this link for more details....

Updated page on the Vasculitis UK website for Central Nervous System Vasculitis ...

Suzym2u

Moderator•10 years ago

3 Replies

Vasculitis Awareness Month

What are you doing to raise awareness of Vasculitis? Are selfie sticks old hat? Well according to this week’s paper they are. No longer is fashionable to...

What are you doing to raise awareness of Vasculitis? Are selfie sticks old ha...

Jann

•10 years ago

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Wagner granulmotisis

hi I am diagnosed with Wagner in July 2014. Does any one can help me to find out natural treatment for Wagner. I am scared of prednisone's side effects.

hi I am diagnosed with Wagner in July 2014. Does any one can help me to find ou...

monikagoyal

•10 years ago

15 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for April 2015

This Atos joke

British Society of Rheumatology Annual Conference 2015.

Oral cycophosimite

Cyclophosphamide side effects

BSR Annual Conference today

Giant Cell Arteritis - Take part in Clinical Research

Vasculitis and Trying to conceive

Vasculitis Patient Symposium April 18th 2015

Yorkshire Vasculitis Support Group Lunch

Mofetil nausea gone with curcumin

North east specialist Wegeners/GPA??

Coffee morning in plymouth

New member

DWP

Biopsy

International Vasculitis Medical Conference 2015

Vasculitis Patient Symposium 2015

? cutaneous polyarteritis nodosa

Painful feet

Mycophenolate

c ANCA positive post GF?

Can somebody help

Giant cell arteritis

RUDY STUDY - Rare diseases of Joint, bone and blood vessels

Numb nose

Update for the Vasculitis Patient Symposium April 18th 2015

GPA and statins

Updated page on the VUK website for Central Nervous System Vasculitis

Vasculitis Awareness Month

Wagner granulmotisis

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