Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,876 members•6,908 posts

All posts for August 2023

Scottish Winter Vaccines for immunosuppressed being brought forward

Public Health Scotland today announced that the Winter Vaccines for the highest risk people are being brought forward from the originally planned October...

Public Health Scotland today announced that the Winter Vaccines for the highest ...

Volunteer•1 year ago

Protect-V trial

I have vasculitis GPA and have regular infusions of rituximab which is an immunosuppressant. On a recent trip to Addenbrookes (Cambridge Hospital) to see my...

I have vasculitis GPA and have regular infusions of rituximab which is an immuno...

•1 year ago

We are deeply saddened to announce the recent passing of John Mills

We are deeply saddened to announce the recent passing of John Mills on 28th August 2023. He most recently served as our Vice Chairman and Deputy Director of...

We are deeply saddened to announce the recent passing of John Mills on 28th Augu...

Moderator•1 year ago

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Isolated

I originally had an Ent appointment . Then all of a sudden I have an autoimmune disease and multiple tests and treatments. I'm on steroids that gave immediate...

I originally had an Ent appointment . Then all of a sudden I have an autoimmune ...

•1 year ago

ANCA Vasculitis

I was told in 2015 I had GCA but now after a flare I am told it was always ANCA Vasculitis any more info from anybody? David

I was told in 2015 I had GCA but now after a flare I am told it was always ANCA ...

•1 year ago

Vasculitis UK AGM

The Vasculitis UK AGM & online webinar will be held on Sunday September 24th 2023, starting at 13.00 BST (12 noon GMT). Prof Raashid Luqmani will speak...

The Vasculitis UK AGM & online webinar will be held on Sunday September 24th 202...

Moderator•1 year ago

notalgia paresthetica

I have vasculitis, MPA, and have developed nostalgia paresthetica, (my own diagnosis). Intense itching on my back is driving me crazy. This has been going on...

I have vasculitis, MPA, and have developed nostalgia paresthetica, (my own diagn...

•1 year ago

MELODY study results

The MELODY study has been published! I Short summary of the MELODY study paper COVID-19 can be a serious infection that can lead to treatment in hospital or...

The MELODY study has been published! I Short summary of the MELODY study paper ...

Moderator•1 year ago

peripheral neuropathy with cutaneous vasculitis

I have unfortunately had cut vasculitis for over 45 years. Have been in nremission for a couple of years now but have had a flre for the last 6 weeks. Would...

I have unfortunately had cut vasculitis for over 45 years. Have been in nremiss...

•1 year ago

Oxford

hi all l have HUVS after being really unwell l am now now on rituximub every six months . It has been a life saver for me . We are thinking about moving to...

hi all l have HUVS after being really unwell l am now now on rituximub every s...

•1 year ago

Autumn 2023 Covid booster eligible groups

Here’s the list of eligible groups to receive a Covid booster in the UK in Autumn 2023. Healthy people are restricted to only over 65s getting the booster. But...

Here’s the list of eligible groups to receive a Covid booster in the UK in Autum...

Volunteer•1 year ago

change to leflunomide

Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!

Hi can anyone give any advice on changing to this drug.. not keen on side effect...

•1 year ago

Shingles Vaccine

Hi everybody. Just looking at the new advertising campaign for the shingles vaccine although those who are 70-79 are entitled to it looks like those of us over...

Hi everybody. Just looking at the new advertising campaign for the shingles vacc...

•1 year ago

Specialists in the South East/London Area

Hi All Can anyone recommend a rheumatologist and neurologist specialising in vasculitis based at the same hospital? Thank you

Hi All Can anyone recommend a rheumatologist and neurologist specialising in va...

•1 year ago

Avacopan, share your thoughts

Dear fellow Vascies, Vasculitis UK will appraise Avacopan-Tavneos for the Scothish Medicine Consortium. Quotes from patients are extremely powerful, I would...

Dear fellow Vascies, Vasculitis UK will appraise Avacopan-Tavneos for the Scoth...

Moderator•1 year ago