Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,863 members•6,893 posts

All posts for November 2024

Scotland support group

Hi Just wondering if there are any support groups in Scotland for Vasculitis

Hi Just wondering if there are any support groups in Scotland for Vasculitis

•3 hours ago

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Yorkshire local support group

If you live in Yorkshire and you are interested in meeting fellow vascies, email Rachel and Mark at vasculitis.yorkshire@gmail.com It is lovely to see local...

If you live in Yorkshire and you are interested in meeting fellow vascies, email...

Moderator•14 hours ago

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Acute mesenteric ischemia

In September I went to the ED with acute abdominal pain which continued to worsen for 20 hours. After several tests I was taken by ambulance to the hospital...

In September I went to the ED with acute abdominal pain which continued to worse...

•3 days ago

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JCVI plans for Covid vaccine rollout 2025 onwards

Statement from the JCVI vaccines group about plans for NHS Covid vaccines in the UK from Spring 2025 onwards. Basically they intend to cut out the broad at...

Statement from the JCVI vaccines group about plans for NHS Covid vaccines in the...

Volunteer•4 days ago

Can vasculitis cause liver problems?

Hello, I had a liver biopsy, following deranged LFTs, which showed "perivenular sinusoidal dilation and congestion with associated collapse". My hepatologist...

Hello, I had a liver biopsy, following deranged LFTs, which showed "perivenular...

•4 days ago

Movember - Thought I would have a go

Hi all I decided to have a go and raise some money. There is a connection for me because Vasculitis among the physical issues I have had has brought with it...

Hi all I decided to have a go and raise some money. There is a connection for me...

•5 days ago

Three years

I was misdiagnosed with PMR for years. It was eventually diagnosed as vasculitis and it's attacked my kidney. I am not suitable for dialysis and my prognosis...

I was misdiagnosed with PMR for years. It was eventually diagnosed as vasculitis...

•6 days ago

Affecting Eyes?

Hi recently diagnosed with IgA Vasculitis.Have dr appointment at end of month however I'm here again to ask has it affected anyone's eyes and quite quick after...

Hi recently diagnosed with IgA Vasculitis.Have dr appointment at end of month ho...

•6 days ago

Surveys

Having a registry of patients with a rare disease is very beneficial and helps drive research and improve care. In the UK we have the UKIVAS registry. In...

Having a registry of patients with a rare disease is very beneficial and helps d...

Moderator•7 days ago

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Christmas Cards

VUK Christmas cards on sale at https://vasculitisuk.myshopify.com/ Both 2024 and 2023 designs can be ordered from the shop. First come, first served - so...

VUK Christmas cards on sale at https://vasculitisuk.myshopify.com/ Both 2024 an...

Moderator•11 days ago

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Blood levels high

I was recently diagnosed with IgA Vasculitis getting my bloods checked for my b12 levels and again it is still showing high for the infection tests.I'm not...

I was recently diagnosed with IgA Vasculitis getting my bloods checked for my b1...

•11 days ago

B12 injections after loading dose

Hi looking for advice. After getting biopsy being diagnosed with IgA Vasculitis we find I was deficiency in b12. Had my 6 loading doses last one on 6th...

Hi looking for advice. After getting biopsy being diagnosed with IgA Vasculitis ...

•12 days ago

newly diagnosed and seeking support

Hey, I got diagnosed last week with vasculitis and I have started meds and I am feeling super overwhelmed and don’t know what to do or how to deal with it....

Hey, I got diagnosed last week with vasculitis and I have started meds and I a...

•13 days ago

Vasculitis Ireland Awareness

If you live in Ireland, Vasculitis Ireland is having a patient conference on the 9th and 10th of this month. You have to buy tickets to attend - it is not...

If you live in Ireland, Vasculitis Ireland is having a patient conference on the...

Moderator•15 days ago

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VUK Autumn Newsletter is now available on line

Via the Vasculitis UK website - https://www.vasculitis.org.uk/news/autumn-newsletter-out-now

Via the Vasculitis UK website - https://www.vasculitis.org.uk/news/autumn-newsl...

Administrator•17 days ago

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update on reducing medication

OH went to see consultant and reducing medication ( MMF) was discussed as we thought. He was initially diagnosed 7 years ago. before deciding reduction of...

OH went to see consultant and reducing medication ( MMF) was discussed as we tho...

•17 days ago

Patient and Carer Voice - Survey

The first public consultation on a draft set of quality statements for rare disease has just been launched. You have the opportunity to have an input....

The first public consultation on a draft set of quality statements for rare dis...

Moderator•17 days ago

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