Posts - Vasculitis UK | HealthUnlocked

Volunteer•11 years ago

My husband has lost the sensation in the thumb and 3 fingers of left hand and lower arm which is causing him great discomfort . he is taking 7x 5mg...

Wegeners Granulomatosis

My husband has lost the sensation in the thumb and 3 fingers of left hand and lo...

carmpurple

•11 years ago

But you don't look sick..... Remember Rare Disease Day 28th February 2013....

Having a Rare Disease does not always show on the outside....

But you don't look sick..... Remember Rare Disease Day 28th February 201...

Volunteer•11 years ago

I know that the disease can cause high blood pressure but can this also be the case when the disease is in drug induced remission? My consultant tells me it is...

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Blood pressure and vasculitis

I know that the disease can cause high blood pressure but can this also be the c...

Chris-Bromsgrove

•11 years ago

12 Replies

bad sleep causes health problems

http://www.bbc.co.uk/news/health-21572686

For those who are interested I received this by email today https://secure.38degrees.org.uk/page/s/nhs-section-75#petition

Volunteer•11 years ago

5 Replies

. Can you help keep the pressure on Jeremy Hunt not to widen privatisation in the NHS.. for those who maybe interested....

For those who are interested I received this by email today https://secure.38...

Volunteer•11 years ago

It’s simple. Donate Mobile is a complete mobile phone service that lets you give 10% of your mobile bill to Vasculitis UK – at no extra cost to you. "one...

Fancy doing something great with your mobile phone? Join Donate Mobile and turn your talking into giving to Vasculitis UK!

It’s simple. Donate Mobile is a complete mobile phone service that lets you give...

Volunteer•11 years ago

can they change your constulant as my daughter is not happy about this

buffy12

•11 years ago

last time cured itself with recovery from Churg Strauss and using weights for strengthening pelvic floor. I have been offered drugs to help solve it but I am...

Has anyone had urge incontinence with a flare up of Churg Strauss?

last time cured itself with recovery from Churg Strauss and using weights for st...

chisler

•11 years ago

The benefit bill is being cut, and the government plans to take more than half a million claimants off Disability Living Allowance. What will that mean for...

Dispatches - Britain on Benefits this evening channel 4 8pm

The benefit bill is being cut, and the government plans to take more than half a...

Volunteer•11 years ago

Dr McClean will be talking about his recent extensive research study "Fatigue and Vasculitis" This research study has taken 2 years to complete... see pages...

Dr Andrew McClean from the Birmingham QE Hospital will be speaking at the Vasculitis UK AGM in May "Fatigue and Vasculitis"

Dr McClean will be talking about his recent extensive research study "Fatigue an...

Just a reminder - the next meeting of the Lincolnshire VSG will be on Saturday March 30th (Easter Saturday) from 2-5pm at the Thorald Arms pub in Harmston....

Volunteer•11 years ago

6 Replies

Next meeting - Lincolnshire VSG

Just a reminder - the next meeting of the Lincolnshire VSG will be on Saturday M...

Ayla

Volunteer•11 years ago

Forgetter BeForgotten My forgetter's getting better, But my rememberer is broke To you that may seem funny But, to me, that is no joke for when I'm 'here'...

Forgetter Beforgotten

Forgetter BeForgotten My forgetter's getting better, But my rememberer is brok...

anthony01

•11 years ago

I've had another day where my temp has reached 37.6 plus a lot of sweating; is this "normal" for Vas? Don't know what Vas. l have yet but l'm going into...

Temperature - 37.6 - plus sweating

I've had another day where my temp has reached 37.6 plus a lot of sweating; is t...

Sima1952

•11 years ago

Had my 7th Cyclophosphamide infusion yesterday. Saw Dr Jayne. He's reviewing my situation and probably switching me on to Retuximab. Also saw Dr Johnny, and...

My Wegener's latest

Had my 7th Cyclophosphamide infusion yesterday. Saw Dr Jayne. He's reviewing my ...

suffolkgirl

•11 years ago

Hi All, I have Churg Strauss, had my 1st infusion of Rituximab Jan and felt no difference, 2nd dose Feb and since then have felt extremely tired, increase in...

Rituximab

Hi All, I have Churg Strauss, had my 1st infusion of Rituximab Jan and felt no ...

alybill

•11 years ago

Can anyone tell me when it is normal to reduce immunosupressant drugs and/or steroids (I know these should not be reduced together!)? I have been on...

I was diagnosed with GCA in November 2012. One of the symptoms of this condition is acute fatigue. Will fatigue diminish on remission?

Wasdale

•11 years ago

12 Replies

When, if ever, do we begin medication withdrawal?

Can anyone tell me when it is normal to reduce immunosupressant drugs and/or ste...

Ayla

Volunteer•11 years ago

7 Replies

Wegeners Granulomatosis

HELP we are so frustated my husband has been to the clinic today to be told that they want him to go onto Mycopheneolate he has recently had Retuximab and it...

HELP we are so frustated my husband has been to the clinic today to be told that...

hornet

•11 years ago

8 Replies

vasculitis question on eggheads!

they knew it of course but at least it got a mention. :) sandra.

Volunteer•11 years ago

http://www.arthritiscare.org.uk/NewsRoom/Latestnewsstories/HfeB

Arthritis Care .. PIP MOBILITY CHANGES MAY BE ILLEGAL – YOUR HELP IS URGENTLY NEEDED

Volunteer•11 years ago

Yesterday, the doctor at the Hospital got things wrong and told me lies, now I do not know what to do. 4 hours round trip to Hospital, now I can hardly type...

Churg Strauss Syndrome - Total Confusion - No continuity of care.

Yesterday, the doctor at the Hospital got things wrong and told me lies, now I d...

Mitz

•11 years ago

19 Replies

Walking the Worcestershire Way

Dies anybody have a word template of a sponsor form I can nab? It's time to get going

Dies anybody have a word template of a sponsor form I can nab? It's time to get ...

Wellsie

•11 years ago

8 Replies

bruises...

hi guys... i have been put on methotrexate which im responding really well to and ive had minimal flare ups in the last 7 weeks.. however my skin is now...

hi guys... i have been put on methotrexate which im responding really well to a...

lucindaross

•11 years ago

6 Replies

Anemia?

I've just about got over having some flu virus, but for the past week I've had a constant headache, been feeling sick, always tired and my fingers and feet are...

I've just about got over having some flu virus, but for the past week I've had a...

turtleface

•11 years ago

www.arthritisresearchuk.org would like to know more. sandra.

poss new treatment for arthritis? maybe help us in future

Volunteer•11 years ago

5 Replies

channel 4 25/0213 8pm dla & benefits

rescheduled

Volunteer•11 years ago

This photo was put on the Vasculitis UK Facebook wall by Jim Bornac from the US... we worked together a bit to make it work but it was all his idea.. so i...

Vasculitis more Common than you think more Serious than you know....

This photo was put on the Vasculitis UK Facebook wall by Jim Bornac from the US....

Saturday 23rd February 2013 at 9.30am to 12 noon. The meeting will take place at the Hurst Community Centre, Hurst Place, Hurst Road, Bexley, Kent, DA5 3LH....

Volunteer•11 years ago

4 Replies

A little reminder ... SE London/NW Kent Vasculitis Support Group Meeting Saturday 23rd February 2013

Saturday 23rd February 2013 at 9.30am to 12 noon. The meeting will take place at...

How does one get rid of the weight gained by prednisolone? I'm down from 60mg to 5mg, have lost the cushinoid appearance and my dress size back to what it was...

Volunteer•11 years ago

4 Replies

Weight gain with steroids

How does one get rid of the weight gained by prednisolone? I'm down from 60mg to...

Keymer71

•11 years ago